Guest guest Posted October 26, 2003 Report Share Posted October 26, 2003 Louise, I do not know why Periactin/cyproheptadine is not used in England, but I do know that Dr. Stanhope is aware of it. Are you going to see him? He is at Great Ormond Street Hospital and spoke at last summer's MAGIC Convention along with Dr. Harbison. They both have the same philosophy regarding treatment of RSS, so that should be comforting for those of you who can get to him. I do think that when I spoke to him later that night (in the bar where he was quite " happy " ), he mentioned something about it not being approved for use in children in the US, especially as an appetite stimulant. It can still be prescribed, though, and many doctors have listened to us parents and written the prescription for our RSS kids. It is not expensive, either. The pharmacological world is funny, you know? In the US, we cannot get Cisapride unless a child fits the criteria for " compassionate clearance. " Go to Sweden, I believe, and you can get it without a problem. I know it is available in Mexico and, I think, Canada. Perhaps Dr. Stanhope knows of something else you could try. If you are not seeing him this week, then try to make an appointment for another time. He is a wonderful person. Jodi Quote Link to comment Share on other sites More sharing options...
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