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> I hope it is okay for me to be on this list. Are there any obvious signs

> of autism in infants? is showing some delays in that he is not

> babbling the way most infants do. He doesn't yet make the baba, gaga,

> dada, mama sounds yet which according to most books he should be. We had

> him evaluated by a developmental specialist and their conclusion was that

> his cognitive development is a couple of months behind where he should

> be. It is hard to know what that means though.

With my son, there just wasn't that " normal " curiosity. He didn't find

" patty cake " or any game enticing. Also, my son never went through the

babbling stage, and the biggy for knowing something was off, he didn't

point. He simply wasn't curious about his surroundings at all. When he

turned 12 months I began noticing that he preferred to play alone, and thats

about the time his eye contact started going - south! Be sure to put him on

the diet, and yourself, and stick to it. At 12 months, if you're still

concerned, have him re-evaluated by a Ped. Dev. Specialist.

a - Madison WI

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One of my son's (not dx'd, but has some slight signs of AS) didn't make any

of those sounds either. Nor did he sing-song. He could understand what was

being said to him, had no hearing problems. He didn't learn to talk- was

three before I began getting panicky, and started working with him. We'd

began learning sign language after an evaluation, because I felt he would

never talk " normally " . After a lot of work he is talking (talking, talking)

at age eight. I would recommend keeping a close eye on his progress in this

area, and working with songs and such trying to get some mimicking going

on. If he is not showing any other signs of autism, I wouldn't guess it to

be that.

Lolita

>I hope it is okay for me to be on this list. Are there any obvious signs

> > of autism in infants? is showing some delays in that he is not

> > babbling the way most infants do. He doesn't yet make the baba, gaga,

> > dada, mama sounds yet which according to most books he should be. We had

> > him evaluated by a developmental specialist and their conclusion was that

> > his cognitive development is a couple of months behind where he should

> > be. It is hard to know what that means

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Thank you all for your answers to my questions regarding gluten being

absorbed into the skin and DAN Doctor's. I appreciate your help and look

forward to learning lots through you all.

Judith

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  • 2 years later...

Hi everyone,

I've been reading this list for a few weeks now trying to get my 

bearings.

My two youngest daughters are identical twins, Jackie and Amber. While 

still in utero, there was a remarkable size difference in the girls 

from very early in the pregnancy. This caused me to be tracked very 

closely by a specialist. He diagnosed the girls as having a unique 

identical twin condition known as twin-to-twin transfusion syndrome. 

Basically the blood flow from the placenta was connecting the girls. 

One girl 'donated' blood while the other 'received' it. In these cases, 

the donor is very small and the recipient usually is larger, and has 

heart problems. But what happened to my girls was different. Amber 

remained very tiny, hardly growing at all and Jackie grew normally with 

no problem with her heart or anything else. At 32 weeks, they were 

taken by C-section due to Amber having heart fluctuations.

To relate this to my interest in this list, let me try to sum up the 

last four years. Amber was 1 lb. 7 oz., 13 " at birth, her twin Jackie

was 3 

lbs. 13 oz., 17 " . Both were very healthy, but Amber needed to grow. She

gained 

weight in the hospital for 10 weeks and once home, grew quite well. 

Once she reached mobility (walking) around 16 mo. she stopped eating 

well. She continued to grow but did not catch up as predicted by all 

the doctors. At 2 yrs. 9 mo. she was 22 lbs. and is now only 23 lbs.

She 

has grown but not a lot in height. Now, they are trying to determine if 

she has -Silver Syndrome. Because she is growing in height, GHD 

is not really being discussed at this point, although I think we might 

get there soon.

Right now, Amber is taking Periactin and Zantac (possible reflux). We

are scheduled to do an endoscopy in the near future. However, Amber is

also experiencing chronic ear infections which have really only started

since March 2003. So after a visit to the ENT, we are doing ear tubes

and possible adnoidectomy first. I must admit my husband and I have not

worried overly about Amber because she has always been pretty healthy,

is very happy, and the most energetic kid I've ever seen (her nickname

is Monkey). Because we were told this was a twin-to-twin transfusion

issue, we never even realized she had some other condition her

identical twin didn't have. I've been going through some guilty

feelings about not aggressively pursuing her weight gain issues until

recently. She's just always been so happy, it didn't seem like she was

sick.

Anyway, thank you for letting me share our story. I hope to find out

one way or the other if she has RSS soon. It would definitely help me

know how to proceed. Not knowing what the problem is has been the

hardest part.

Thanks,

-------------------------------------------------------------------

Jeffries                              @...

Mom to le (18), (14), and

    twins Jacquelyn, non-RSS, and Amber, IUGR/SGA/possible RSS (4yo)

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Hi ,

Nice to meet you and welcome to the group. I also have twins

although we were able to rule out TTTS right away and my twins are

opposite sex fraternal.

Our stories are quite similar. was always smaller, we

delivered at 33 weeks, spent 8 weeks in the hospital growing.

grew ok until he was 10 months old and then stopped. That is

when we started running tests and seeing many doctors. was

diagnosed w/RSS at 13 months.

Currently is 24 pounds and 32 inches. His twin sister is 35

pounds and 36 inches.

had ear tubes, a partial tonsillectomy and partial

adenoidectomy in May 2003. If you are considering tonsils/adenoids,

be sure you get more information first. RSS kids have palate issues

which means that removing the adenoids is usually not a good idea.

Where do you live? If you are near NY, the best doctor for RSS is

located in NYC.

Good luck. Feel free to contact me directly if you would like.

Judith, Steve, (RSS) and (non RSS) 3 yr 8 mo twins

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