any one framlier with the childrens hospital in dallas

[Guest guest]

i was woudering if any one has had any exsperience witht he hospital

in general inparticulare with the NS dept. we are taking my

daughter on nov 5 for evaluation of possible surgery due to a

tethered spianl cord which was from being born with spinal bifida.

is any one fromilure by chance with dr david sacco? we are not

framilure with the area and are from oklahoma thanks for any info on

the dr or the hospital:)

thanks

joanna

katelynn 5 1\2(tcs,spinal lipoma, cong scoliosis,partial sacrala

genesis, no coccyx, hypotonia, dev delays, seizure, si,adhd,

renal reflux, right kidney damage,extrarenal pelvis, mild mitral

valve

regurgitation,vater

syndrome,russell silver syndrome(russel dwarfism)

http://www.babiesonline.com/babies/k/katelynnhanna/

austin 22mo (missing S5 vertebre,bilateral hydronephrosis

(resolved),PFO(hole in atrium of heart),PDA (resolvedw ith 2x of

indocen),pectus exscavatus,microcephalic,mild dev delays,vaters)

http://www.babiesonline.com/babies/a/austinhanna/

[Guest guest]

Dear Joanna,

I assume that you are referring to Children's Medical Center of

Dallas. It is one of the country's premier children's hospitals. It

is where we take for anything beyond his well-child visits.

It is a very busy place as it is also a charity hospital and a

teaching hospital. It is not a fun place to go to the emergency

room. That said, however, it is a very fine hospital. We have had

no experience with the NS department. We have been to gastro and

was a patient there when he had viral menengitis at 3

months. They have lots of good family support and social workers to

help with just about any problem you can think of. If you need

anything, let them know. They are very helpful. If you need help

with food, lodging, parking, whatever. I am not familiar with the

doctor you asked about either, I am sorry to say, but if he is at

Children's, I would not hesitate to trust him. I hope things go well

for you and Katelynn. Your experiences have worried me. 's

was born with a sacral dimple. The doctors told us that they would

not even be concerned about it had it been exactly midline. It was

slightly to one side. He had an MRI at 3 months which showed that

his spinal cord was not tethered, but now I learn from you that this

problem can arise years down the road! Argh. I guess we just pray

that he does not have to deal with this later. It is very certain

that right now nothing is 'tethered' on this boy. He is 18.5 months

and it is all we can do to keep him on the ground. His favorite

trick right now is to climb up on the arms of the couches. We are

spending a lot of energy keeping him from killing himself! He thinks

it is all very funny when we yell and run to get him down before he

falls. I believe that the terrible two's are upon us. God bless us

every one!

Conny, 's g-aunt

-- In RSS-Support , " jooanna "

wrote:

> i was woudering if any one has had any exsperience witht he hospital

> in general inparticulare with the NS dept. we are taking my

> daughter on nov 5 for evaluation of possible surgery due to a

> tethered spianl cord which was from being born with spinal bifida.

> is any one fromilure by chance with dr david sacco? we are not

> framilure with the area and are from oklahoma thanks for any info on

> the dr or the hospital:)

>

> thanks

> joanna

> katelynn 5 1\2(tcs,spinal lipoma, cong scoliosis,partial sacrala

> genesis, no coccyx, hypotonia, dev delays, seizure, si,adhd,

> renal reflux, right kidney damage,extrarenal pelvis, mild mitral

> valve

> regurgitation,vater

> syndrome,russell silver syndrome(russel dwarfism)

> http://www.babiesonline.com/babies/k/katelynnhanna/

>

> austin 22mo (missing S5 vertebre,bilateral hydronephrosis

> (resolved),PFO(hole in atrium of heart),PDA (resolvedw ith 2x of

> indocen),pectus exscavatus,microcephalic,mild dev delays,vaters)

> http://www.babiesonline.com/babies/a/austinhanna/

[Guest guest]

it might be is it hte one with ared baloon? i havent actually been

ther jst drove by it many of times on the way to shreevport. i am

glad to hear they are a great hospital gives me hope they will eb

able to help her. i can understand your fears about eh dimple

austin was also born with one as well. he had him MRI at just 4wks

old and only 5 1\2# luckally his to was clear but we where told that

he was still little and not growing to much. but the fact hter was

no sigh in promissing sice that means there is no hidden deffect

liek the dermal sinus or a lipoma:) good luck hope he continues do

well katie tethered cord was dx at 2 1\2yrs old while we where

looking for something else ironigally lol. but she had symptoms

like back pain and abnormal gaite. so with a little luck bot our

boys will eb fine and never show sighn of a tetehr:) thanks for hte

infoon the hospital:)

joanna

katelynn 4#6 IUGR/RSS,vaters syndrome

austin IUGR 5#6 vaters

> > i was woudering if any one has had any exsperience witht he

hospital

> > in general inparticulare with the NS dept. we are taking my

> > daughter on nov 5 for evaluation of possible surgery due to a

> > tethered spianl cord which was from being born with spinal

bifida.

> > is any one fromilure by chance with dr david sacco? we are not

> > framilure with the area and are from oklahoma thanks for any

info on

> > the dr or the hospital:)

> >

> > thanks

> > joanna

> > katelynn 5 1\2(tcs,spinal lipoma, cong scoliosis,partial sacrala

> > genesis, no coccyx, hypotonia, dev delays, seizure, si,adhd,

> > renal reflux, right kidney damage,extrarenal pelvis, mild mitral

> > valve

> > regurgitation,vater

> > syndrome,russell silver syndrome(russel dwarfism)

> > http://www.babiesonline.com/babies/k/katelynnhanna/

> >

> > austin 22mo (missing S5 vertebre,bilateral hydronephrosis

> > (resolved),PFO(hole in atrium of heart),PDA (resolvedw ith 2x of

> > indocen),pectus exscavatus,microcephalic,mild dev delays,vaters)

> > http://www.babiesonline.com/babies/a/austinhanna/

[Guest guest]

Dear Joanna,

It is the hospital with the balloons on its logo. I am sure that

they will take very good care of Katelynn. Best of luck. Conny

> > > i was woudering if any one has had any exsperience witht he

> hospital

> > > in general inparticulare with the NS dept. we are taking my

> > > daughter on nov 5 for evaluation of possible surgery due to a

> > > tethered spianl cord which was from being born with spinal

> bifida.

> > > is any one fromilure by chance with dr david sacco? we are not

> > > framilure with the area and are from oklahoma thanks for any

> info on

> > > the dr or the hospital:)

> > >

> > > thanks

> > > joanna

> > > katelynn 5 1\2(tcs,spinal lipoma, cong scoliosis,partial sacrala

> > > genesis, no coccyx, hypotonia, dev delays, seizure, si,adhd,

> > > renal reflux, right kidney damage,extrarenal pelvis, mild mitral

> > > valve

> > > regurgitation,vater

> > > syndrome,russell silver syndrome(russel dwarfism)

> > > http://www.babiesonline.com/babies/k/katelynnhanna/

> > >

> > > austin 22mo (missing S5 vertebre,bilateral hydronephrosis

> > > (resolved),PFO(hole in atrium of heart),PDA (resolvedw ith 2x of

> > > indocen),pectus exscavatus,microcephalic,mild dev delays,vaters)

> > > http://www.babiesonline.com/babies/a/austinhanna/

[Guest guest]

Dear Joanna,

It is the hospital with the balloons on its logo. I am sure that

they will take very good care of Katelynn. Best of luck. Conny

> > > i was woudering if any one has had any exsperience witht he

> hospital

> > > in general inparticulare with the NS dept. we are taking my

> > > daughter on nov 5 for evaluation of possible surgery due to a

> > > tethered spianl cord which was from being born with spinal

> bifida.

> > > is any one fromilure by chance with dr david sacco? we are not

> > > framilure with the area and are from oklahoma thanks for any

> info on

> > > the dr or the hospital:)

> > >

> > > thanks

> > > joanna

> > > katelynn 5 1\2(tcs,spinal lipoma, cong scoliosis,partial sacrala

> > > genesis, no coccyx, hypotonia, dev delays, seizure, si,adhd,

> > > renal reflux, right kidney damage,extrarenal pelvis, mild mitral

> > > valve

> > > regurgitation,vater

> > > syndrome,russell silver syndrome(russel dwarfism)

> > > http://www.babiesonline.com/babies/k/katelynnhanna/

> > >

> > > austin 22mo (missing S5 vertebre,bilateral hydronephrosis

> > > (resolved),PFO(hole in atrium of heart),PDA (resolvedw ith 2x of

> > > indocen),pectus exscavatus,microcephalic,mild dev delays,vaters)

> > > http://www.babiesonline.com/babies/a/austinhanna/