Carmen: Medicaid, SSI and other stuff

[Guest guest]

Carmen,

I am assuming when you speak about your friend receiving Medicaid,

even though their income is too high you are speaking of a Medicaid

Waiver?

Jake doesn't qualify for SSI, but is on a wait list for one of

Virginia's Medicaid Waivers. Which means he does " qualify " , but

doesn't get the benefits because they don't have enough money to fund

this particular waiver. It is so frustrating. Our state has six

different waiver options, all with their own set of qualifications.

Thanks,

Alison

> Jodi,

> If you go the web site for Social security and look up what

qualifies

> for children, there are several that our RSS kids can fit into. ANY

> growth disorder is considered a disability if they are a certain

> number of standard deviations from normal size. Also severe reflux,

> severe hypoglycemia, feeding tube fed kids, severe asthma. (You

could

> almost take a list of the problems our RSS kids face and a large

> portion of them are on the list). The SSI office collects

information

> for all of your child's doctors and then they take about 3 months

to

> decide if your child fits the criteria of disabled. (ADHD and

Emotion

> issues are also on the list of criteria!) LIST EVERYTHING your

child

> has!!!! I'm sure Dr. H will be a good sourse for you for all that

> they will want to know. I know here in Texas, it is not totally

based

> on income. I have some friends with a 3 year old with myoblastoma

(?)

> They do not qualify for a check because they make to much money,

but

> he still receives medicaid!!! So, it is not totally based on

income.

> The income part is what decides if you qualify for $$$. Storm's

> doctor told us that he thought Storm would qualify, so in Sept. we

> applied. We will probably not hear anything until December! If we

> qualify, Storm will automatically be on " straight medicaide " rather

> than this goofy HMO crap!!! Anyhow, I hope this helps! I would

> encourage you to call the SSI office and get the paperwork started.

> Don't let them tell you on the phone you won't qualify due to

> income!!! Ask to fill out the paperwork anyhow, because your son

> NEEDS these benifits!!! They HAVE to let you fill out the

paperwork!!

> Check out the website! Let me know how it goes!

> Carmen

[Guest guest]

Alison,

From what the mom told me, they have SSI. They used to receive a

check, but no longer qualified for monitary assistance, but they did

not take away the medicaide. I'm not sure of all the details, this

little boy has been in the hospital for about 6 months or so, and is

now in ICU for liver failure. He went through a couple of surgeries,

chemo and a stem cell transplant. (What a trooper!) Anyhow, his

medical needs are WAY out of my league! I'm not sure of the

qualifiers, but this type of cancer automatically qualified him!

Carmen

[Guest guest]

not shure of hte laws where u are but in oklahoma if u qualify

medically for SSI but make to much money u can still keep medicaid.

joanna

> Alison,

> From what the mom told me, they have SSI. They used to receive a

> check, but no longer qualified for monitary assistance, but they

did

> not take away the medicaide. I'm not sure of all the details, this

> little boy has been in the hospital for about 6 months or so, and

is

> now in ICU for liver failure. He went through a couple of

surgeries,

> chemo and a stem cell transplant. (What a trooper!) Anyhow, his

> medical needs are WAY out of my league! I'm not sure of the

> qualifiers, but this type of cancer automatically qualified him!

> Carmen