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Going to see Dr. H!

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Hi everyone. I just got a call from Yadira this morning. My

appointment was changed for the third time. They kept moving it up.

We are going on October 23. Anyone else going this day? Also, I am

having a little trouble with insurance. Dr. H is covered, but Dr.

Spigland and NYPH is not covered by my insurance. That worries me,

becasue according to Yadira, will more than likely be admitted

and have tests run. Yadira talked to Dr. H while I was on the phone

adn Dr. H told her that it would be taken care of, as far as my

insurance not paying goes. Anyone no what she may have up her

sleeve. Plus, I really need to be sure that it will be covered

because or money is very tight right now and we couldn't afford to

pay those bills for a surgery possibly and tests. We are trying to

get ssi or some type of help, but we aren't sure we will get it. Of

course this takes forever too. Anyway, just seeing if anyone had any

thoughts. I am a little nervous about the trip. has just

been put on oxygen at night and they say if he flies he will need it

then, too. Also, the oxygen tank people :o) said I couldn't take

their tanks on an airplane. Eeck! This is driving me crazy. I hate

to drive with him 10 hours in a car. He lays in a car bed and that

wouldn't be a great trip for him.

Jodi R.

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not shure exsactually what she means but sometimes if insurance does

not pay the hospital can write off the exspense and take it as a

charity case or professional curtacy by the dr request. wew here

looking inot this at th mayo for katie but ended up going to

kentucky where she saw the dysmorpholigist on a profesional currtasy

he is alos on of hte top docs in his filed and gets referals from

all over hte US..

joanna

> Hi everyone. I just got a call from Yadira this morning. My

> appointment was changed for the third time. They kept moving it

up.

> We are going on October 23. Anyone else going this day? Also, I

am

> having a little trouble with insurance. Dr. H is covered, but Dr.

> Spigland and NYPH is not covered by my insurance. That worries

me,

> becasue according to Yadira, will more than likely be

admitted

> and have tests run. Yadira talked to Dr. H while I was on the

phone

> adn Dr. H told her that it would be taken care of, as far as my

> insurance not paying goes. Anyone no what she may have up her

> sleeve. Plus, I really need to be sure that it will be covered

> because or money is very tight right now and we couldn't afford to

> pay those bills for a surgery possibly and tests. We are trying

to

> get ssi or some type of help, but we aren't sure we will get it.

Of

> course this takes forever too. Anyway, just seeing if anyone had

any

> thoughts. I am a little nervous about the trip. has just

> been put on oxygen at night and they say if he flies he will need

it

> then, too. Also, the oxygen tank people :o) said I couldn't take

> their tanks on an airplane. Eeck! This is driving me crazy. I

hate

> to drive with him 10 hours in a car. He lays in a car bed and

that

> wouldn't be a great trip for him.

>

>

> Jodi R.

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Jodi - you should call around the airlines. I know that when I was

making arrangements to fly a little girl out from Idaho to the

convention, and she was on oxygen, I found one airline who WOULD

hook her oxygen tank up to their system. But the mother was going

to have to know what levels and stuff. If I recall, it was Delta

Airlines, United or Southwest, if that helps rule it out a bit.

> Hi everyone. I just got a call from Yadira this morning. My

> appointment was changed for the third time. They kept moving it

up.

> We are going on October 23. Anyone else going this day? Also, I

am

> having a little trouble with insurance. Dr. H is covered, but Dr.

> Spigland and NYPH is not covered by my insurance. That worries

me,

> becasue according to Yadira, will more than likely be

admitted

> and have tests run. Yadira talked to Dr. H while I was on the

phone

> adn Dr. H told her that it would be taken care of, as far as my

> insurance not paying goes. Anyone no what she may have up her

> sleeve. Plus, I really need to be sure that it will be covered

> because or money is very tight right now and we couldn't afford to

> pay those bills for a surgery possibly and tests. We are trying

to

> get ssi or some type of help, but we aren't sure we will get it.

Of

> course this takes forever too. Anyway, just seeing if anyone had

any

> thoughts. I am a little nervous about the trip. has just

> been put on oxygen at night and they say if he flies he will need

it

> then, too. Also, the oxygen tank people :o) said I couldn't take

> their tanks on an airplane. Eeck! This is driving me crazy. I

hate

> to drive with him 10 hours in a car. He lays in a car bed and

that

> wouldn't be a great trip for him.

>

>

> Jodi R.

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Jodi,

I am so glad that you have an appointment soon with Dr. H. You are

going to be taken care of and your little boy will get the help he

needs. We have an appointment to see Dr. H. on October 28, so I

will look for you and see if you are still in the hospital then.

Do not worry about the cost. As long as you are up front with Dr.

H. about insurance and what they will and will not cover, she will

take care of the rest. I have seen her and heard her on the phone

with insurance companies and she always gets them to pay. If they

do refuse after speaking with her (a rarity at that), she will find

a way to make sure the costs are covered in another way. Do not

worry about that. She is more concerned about 's health than

money. And I'm sure Dr. Spigland feels the same.

As for flying with oxygen, I believe that if you let the airline

know that your son needs oxygen, they will provide it for you. You

cannot bring that tank on the plane for fear it will blow up. Let

Dr. H. know about needing oxygen and she will tell you how to

have it ready for him in NYC.

Jodi Z.

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Jodi R,

Jonathon and I will be there on the 28th, if you happen to still

be there on that date we will come see you.

Pattie

> Hi everyone. I just got a call from Yadira this morning. My

> appointment was changed for the third time. They kept moving it

up.

> We are going on October 23. Anyone else going this day? Also, I

am

> having a little trouble with insurance. Dr. H is covered, but Dr.

> Spigland and NYPH is not covered by my insurance. That worries

me,

> becasue according to Yadira, will more than likely be

admitted

> and have tests run. Yadira talked to Dr. H while I was on the

phone

> adn Dr. H told her that it would be taken care of, as far as my

> insurance not paying goes. Anyone no what she may have up her

> sleeve. Plus, I really need to be sure that it will be covered

> because or money is very tight right now and we couldn't afford to

> pay those bills for a surgery possibly and tests. We are trying

to

> get ssi or some type of help, but we aren't sure we will get it.

Of

> course this takes forever too. Anyway, just seeing if anyone had

any

> thoughts. I am a little nervous about the trip. has just

> been put on oxygen at night and they say if he flies he will need

it

> then, too. Also, the oxygen tank people :o) said I couldn't take

> their tanks on an airplane. Eeck! This is driving me crazy. I

hate

> to drive with him 10 hours in a car. He lays in a car bed and

that

> wouldn't be a great trip for him.

>

>

> Jodi R.

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Hey Jodi Z,

We have an apoointment on the 28th also! Finally we have hit the

same date!

Pattie

> Jodi,

>

> I am so glad that you have an appointment soon with Dr. H. You

are

> going to be taken care of and your little boy will get the help he

> needs. We have an appointment to see Dr. H. on October 28, so I

> will look for you and see if you are still in the hospital then.

>

> Do not worry about the cost. As long as you are up front with Dr.

> H. about insurance and what they will and will not cover, she will

> take care of the rest. I have seen her and heard her on the phone

> with insurance companies and she always gets them to pay. If they

> do refuse after speaking with her (a rarity at that), she will

find

> a way to make sure the costs are covered in another way. Do not

> worry about that. She is more concerned about 's health

than

> money. And I'm sure Dr. Spigland feels the same.

>

> As for flying with oxygen, I believe that if you let the airline

> know that your son needs oxygen, they will provide it for you.

You

> cannot bring that tank on the plane for fear it will blow up. Let

> Dr. H. know about needing oxygen and she will tell you how

to

> have it ready for him in NYC.

>

> Jodi Z.

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