Guest guest Posted October 9, 2003 Report Share Posted October 9, 2003 Yesterday, had his gastic endoscopy done. It all went really well. They did fully anesthetize him, but he came through like a trooper. He did not even vomit. And, the really excellent news is that he does not suffer from reflux, even silent reflux. Wow! I feel so fortunate. So, now we are just continuing to wait to see the dysmorphologist/geneticist in December. We have only been waiting since April for that appointment. LOL We also have an appointment with a Pediatric Endoncrinologist in January. Conny, great-aunt to , RSS? 18.5 months, 20 lbs, 30.5 inches, periatctin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2003 Report Share Posted October 9, 2003 Conny, I am curious if they did a pH probe on ? I am not sure you can do one on a child that young, just curious. Beth > Yesterday, had his gastic endoscopy done. It all went really > well. They did fully anesthetize him, but he came through like a > trooper. He did not even vomit. And, the really excellent news is > that he does not suffer from reflux, even silent reflux. Wow! I > feel so fortunate. So, now we are just continuing to wait to see > the dysmorphologist/geneticist in December. We have only been > waiting since April for that appointment. LOL We also have an > appointment with a Pediatric Endoncrinologist in January. > > Conny, great-aunt to , RSS? 18.5 months, 20 lbs, 30.5 inches, > periatctin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2003 Report Share Posted October 9, 2003 Dear Beth, I had read about other families discovering that their older child had 'silent reflux'. I mentioned it to the gasto doc and I asked about doing a 'test for reflux' and I think the ph probe is what I was talking about. She said, 'Well, we could do that but did your support group tell you how miserable that test is? You have to put a tube in their nose and leave it there for 18 hours. It is no fun. And, all it would tell us is how many times he is refluxing. We would still have to scope him to see if there is damage so....we might as well just go ahead and do the scope and check for damage and reflux all at once. Besides, we would put him to sleep for that one and so it would be much easier for him. " So....the short answer is no, they didn't do that test. I think they can do it on someone his age, but it is a miserable thing to do. How would they get the child to leave the tube alone for 18 hours. I cannot imagine. Conny, 's great aunt > > Yesterday, had his gastic endoscopy done. It all went > really > > well. They did fully anesthetize him, but he came through like a > > trooper. He did not even vomit. And, the really excellent news > is > > that he does not suffer from reflux, even silent reflux. Wow! I > > feel so fortunate. So, now we are just continuing to wait to see > > the dysmorphologist/geneticist in December. We have only been > > waiting since April for that appointment. LOL We also have an > > appointment with a Pediatric Endoncrinologist in January. > > > > Conny, great-aunt to , RSS? 18.5 months, 20 lbs, 30.5 > inches, > > periatctin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2003 Report Share Posted October 9, 2003 We did a second pH probe on Tori when she was 2 years and one month. I think the first one was like a year before that so she would of been under 18 months and then we had a third one done Jan. 2003 but the results were not readable and the dr. never repeated the study. Maloy Re: 's endoscopy Conny, I am curious if they did a pH probe on ? I am not sure you can do one on a child that young, just curious. Beth > Yesterday, had his gastic endoscopy done. It all went really > well. They did fully anesthetize him, but he came through like a > trooper. He did not even vomit. And, the really excellent news is > that he does not suffer from reflux, even silent reflux. Wow! I > feel so fortunate. So, now we are just continuing to wait to see > the dysmorphologist/geneticist in December. We have only been > waiting since April for that appointment. LOL We also have an > appointment with a Pediatric Endoncrinologist in January. > > Conny, great-aunt to , RSS? 18.5 months, 20 lbs, 30.5 inches, > periatctin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2003 Report Share Posted October 9, 2003 Just like if you were to NG tube feed. This is a tube that goes down the nose. With the pH probe they place the tube down the nose and tape it to the face for the 18 hours and you carry a little recorder with you. Maloy Re: 's endoscopy Dear Beth, I had read about other families discovering that their older child had 'silent reflux'. I mentioned it to the gasto doc and I asked about doing a 'test for reflux' and I think the ph probe is what I was talking about. She said, 'Well, we could do that but did your support group tell you how miserable that test is? You have to put a tube in their nose and leave it there for 18 hours. It is no fun. And, all it would tell us is how many times he is refluxing. We would still have to scope him to see if there is damage so....we might as well just go ahead and do the scope and check for damage and reflux all at once. Besides, we would put him to sleep for that one and so it would be much easier for him. " So....the short answer is no, they didn't do that test. I think they can do it on someone his age, but it is a miserable thing to do. How would they get the child to leave the tube alone for 18 hours. I cannot imagine. Conny, 's great aunt > > Yesterday, had his gastic endoscopy done. It all went > really > > well. They did fully anesthetize him, but he came through like a > > trooper. He did not even vomit. And, the really excellent news > is > > that he does not suffer from reflux, even silent reflux. Wow! I > > feel so fortunate. So, now we are just continuing to wait to see > > the dysmorphologist/geneticist in December. We have only been > > waiting since April for that appointment. LOL We also have an > > appointment with a Pediatric Endoncrinologist in January. > > > > Conny, great-aunt to , RSS? 18.5 months, 20 lbs, 30.5 > inches, > > periatctin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2003 Report Share Posted October 10, 2003 Dear Maloy, I think I am glad that so far we are not having to deal with tubes like this. The first thing did when he acheived fully awake status after his procedure was begin complaining and complaining until they removed the tiny little monitor from his toe! He hated the pulse/ox and was trying to take it off himself. I cannot imagine what he would do with a tube in his nose. What a fight that would be! The kid is small but he is feisty! Conny > > > Yesterday, had his gastic endoscopy done. It all went > > really > > > well. They did fully anesthetize him, but he came through like a > > > trooper. He did not even vomit. And, the really excellent news > > is > > > that he does not suffer from reflux, even silent reflux. Wow! I > > > feel so fortunate. So, now we are just continuing to wait to > see > > > the dysmorphologist/geneticist in December. We have only been > > > waiting since April for that appointment. LOL We also have an > > > appointment with a Pediatric Endoncrinologist in January. > > > > > > Conny, great-aunt to , RSS? 18.5 months, 20 lbs, 30.5 > > inches, > > > periatctin > > > Quote Link to comment Share on other sites More sharing options...
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