OK, I have made my decision

[Guest guest]

Hello everyone,

I want to thank everyone who has tryed to help me with as much

information as they can about me deciding whether to put on GH

or not. I have decided to do the six month trial. One of my major

concerns is reading everyones emails and realizing that is

really small for her age. I see peoples notes or progress markers

about their childrens height/weight/age and it's seems like is

too small for her age. She is currently 34 " and weights in at 19.01

lbs (as of last friday) and she is three years old. I never realized

not even by looking at her sister, measuring almost 5 whole inches

taller and ten whole pounds more, standing next to her how small

really was until I had this thought the other day. I was

putting them in the car and just tought, is almost able to be

able to turn her car seat around now (we all know that 20 lbs is the

marker weight), even though she has been facing forward for two years

(she wouldn't sit backwards after her sister turned around). I felt

really bad. Has anyone else had this low a weight and height in

their three year old marked time frame with their children? And if

so how has progress goen and where is your child now? But I just

pray that the GH will increase her muscle mass like they say it will

and improve her eating and weight gain. Also, 's doctors have

never refered her to a nutritionist. I know they said they would but

with endo and nero i think i forgot too. Do the families whoes

children take appetite incrasers see a improvement with adding

this/ese medications. Yall know i don't like to give medications

excessively, but I want my skinny minny to gain some weight. You

should just see her skinny legs and hear comments even other three

year olds make about her size. I am getting so fed up sometimes, but

just want the best. Can anyone else give me some feed back on what

to expect also, with starting the GH? I am apprehensive but open

minded right now. I will keep yall posted on 's progress.

Take rae everyone and God bless

In-ja

19 lbs, 34 " (RSS) and 30lbs, 38 " ; 3 years old

[Guest guest]

In-ja,

Hello! My name is and my son Christian has RSS. He will be 3 in about

4 weeks. He weighs about 21 lbs and is 31 3/4 in. tall. We are not GH right

now. Dr. H wants his weight-to-height to be in the 10-25th percentile. His

appetite isn't terrible. It's just not very good. His main source of

nutrition is Boost/Ensure via bottle. Anyway, just wanted to respond with my

little

guys history. Hope this helps.

(Mom to ,6, (non-RSS) and Christian,2.5, (RSS), Periactin and Zantac

[Guest guest]

Thank you

> In-ja,

> Hello! My name is and my son Christian has RSS. He will be

3 in about

> 4 weeks. He weighs about 21 lbs and is 31 3/4 in. tall. We are

not GH right

> now. Dr. H wants his weight-to-height to be in the 10-25th

percentile. His

> appetite isn't terrible. It's just not very good. His main source

of

> nutrition is Boost/Ensure via bottle. Anyway, just wanted to

respond with my little

> guys history. Hope this helps.

>

>

> (Mom to ,6, (non-RSS) and Christian,2.5, (RSS), Periactin and

Zantac

>

>

>

[Guest guest]

In-ja

Hi! My son Storm has RSS and is now 8 years old and 44 pounds and 46 "

At age 3 he was 19 pounds and 32 inches. He started Gh at age 6.5

yrs. He also takes prevacid and reglan for reflux and he takes

cyproheptadine for an appetite stimulant. His weight finally reached

the 3% mark at age 7y3m and his height is still not quite on the line

yet! I hope this gives you some idea.

Carmen, mom to Storm(8) and Paisley (10)

[Guest guest]

We are in the midst of making the same decision. My daughter, Abby,

is 5 years old and was diagnosed RSS about a year and a half ago.

She was born at 36 weeks, her weight was 2 lbs 11 oz and her twin

brother was 5 lbs 8 oz. He has continued to be about twice her size

in weight since they were born and has remained several inches taller.

I would really like to hear from anyone who chose not to do use

growth hormone. I have researched and researched as much as possible

and think we're looking at whether or not we want to increase Abby's

adult height from somewhere around 4 1/2 feet to 5 1/2 feet (give or

take of course). She has absolutely no health problems and is a very

confident (in fact, sometimes irritaing in her obstinance!)child. I

am struggling with height being the only reason to put her through

the process of using this treatment.

Your story sounds simliar to ours because at 5 1/2 years Abby is

about 36 1/2 inches tall and 23 pounds. She's seems to be much

smaller than most of the posts I've seen, yet many of the other kids

are on growth hormone so I don't know how that relates. At 3 years

she was 17 pounds.

I don't know if this is useful at all, but I couldn't help posting.

Sherri

> Hello everyone,

> I want to thank everyone who has tryed to help me with as much

> information as they can about me deciding whether to put on

GH

> or not. I have decided to do the six month trial. One of my major

> concerns is reading everyones emails and realizing that is

> really small for her age. I see peoples notes or progress markers

> about their childrens height/weight/age and it's seems like

is

> too small for her age. She is currently 34 " and weights in at

19.01

> lbs (as of last friday) and she is three years old. I never

realized

> not even by looking at her sister, measuring almost 5 whole inches

> taller and ten whole pounds more, standing next to her how small

> really was until I had this thought the other day. I was

> putting them in the car and just tought, is almost able to

be

> able to turn her car seat around now (we all know that 20 lbs is

the

> marker weight), even though she has been facing forward for two

years

> (she wouldn't sit backwards after her sister turned around). I

felt

> really bad. Has anyone else had this low a weight and height in

> their three year old marked time frame with their children? And if

> so how has progress goen and where is your child now? But I just

> pray that the GH will increase her muscle mass like they say it

will

> and improve her eating and weight gain. Also, 's doctors

have

> never refered her to a nutritionist. I know they said they would

but

> with endo and nero i think i forgot too. Do the families whoes

> children take appetite incrasers see a improvement with adding

> this/ese medications. Yall know i don't like to give medications

> excessively, but I want my skinny minny to gain some weight. You

> should just see her skinny legs and hear comments even other three

> year olds make about her size. I am getting so fed up sometimes,

but

> just want the best. Can anyone else give me some feed back on what

> to expect also, with starting the GH? I am apprehensive but open

> minded right now. I will keep yall posted on 's progress.

>

> Take rae everyone and God bless

>

> In-ja

> 19 lbs, 34 " (RSS) and 30lbs, 38 " ; 3 years old

[Guest guest]

We are in the midst of making the same decision. My daughter, Abby,

is 5 years old and was diagnosed RSS about a year and a half ago.

She was born at 36 weeks, her weight was 2 lbs 11 oz and her twin

brother was 5 lbs 8 oz. He has continued to be about twice her size

in weight since they were born and has remained several inches taller.

I would really like to hear from anyone who chose not to do use

growth hormone. I have researched and researched as much as possible

and think we're looking at whether or not we want to increase Abby's

adult height from somewhere around 4 1/2 feet to 5 1/2 feet (give or

take of course). She has absolutely no health problems and is a very

confident (in fact, sometimes irritaing in her obstinance!)child. I

am struggling with height being the only reason to put her through

the process of using this treatment.

Your story sounds simliar to ours because at 5 1/2 years Abby is

about 36 1/2 inches tall and 23 pounds. She's seems to be much

smaller than most of the posts I've seen, yet many of the other kids

are on growth hormone so I don't know how that relates. At 3 years

she was 17 pounds.

I don't know if this is useful at all, but I couldn't help posting.

Sherri

> Hello everyone,

> I want to thank everyone who has tryed to help me with as much

> information as they can about me deciding whether to put on

GH

> or not. I have decided to do the six month trial. One of my major

> concerns is reading everyones emails and realizing that is

> really small for her age. I see peoples notes or progress markers

> about their childrens height/weight/age and it's seems like

is

> too small for her age. She is currently 34 " and weights in at

19.01

> lbs (as of last friday) and she is three years old. I never

realized

> not even by looking at her sister, measuring almost 5 whole inches

> taller and ten whole pounds more, standing next to her how small

> really was until I had this thought the other day. I was

> putting them in the car and just tought, is almost able to

be

> able to turn her car seat around now (we all know that 20 lbs is

the

> marker weight), even though she has been facing forward for two

years

> (she wouldn't sit backwards after her sister turned around). I

felt

> really bad. Has anyone else had this low a weight and height in

> their three year old marked time frame with their children? And if

> so how has progress goen and where is your child now? But I just

> pray that the GH will increase her muscle mass like they say it

will

> and improve her eating and weight gain. Also, 's doctors

have

> never refered her to a nutritionist. I know they said they would

but

> with endo and nero i think i forgot too. Do the families whoes

> children take appetite incrasers see a improvement with adding

> this/ese medications. Yall know i don't like to give medications

> excessively, but I want my skinny minny to gain some weight. You

> should just see her skinny legs and hear comments even other three

> year olds make about her size. I am getting so fed up sometimes,

but

> just want the best. Can anyone else give me some feed back on what

> to expect also, with starting the GH? I am apprehensive but open

> minded right now. I will keep yall posted on 's progress.

>

> Take rae everyone and God bless

>

> In-ja

> 19 lbs, 34 " (RSS) and 30lbs, 38 " ; 3 years old

[Guest guest]

Sherri,

With Abby at 5 1/2, you still have time to make the decision of

whether or not to use gh. It is a very personal decision and you

have to feel very comfortable, or at least over 50% comfortable,

before you try it. Perhaps Abby herself will let you know in time.

If she begins to complain about being so much smaller, then you may

have your answer right there. There is a big difference between

being 4.5 feet and 5 feet and it may bother her as she gets further

along in her school years. For now, though, I would recommend that

you keep your mind open and go with what your heart tells you.

I will admit that even though Max has been on gh since he was just

about 3, there is not a night when he gets his shot that I don't say

a little prayer that he will be okay. Everyone has told us that gh

is safe, and we have seen NO side effects of a negative nature, but

we never anticipated that he would still be on them at 15 along with

other meds he needs to supress puberty so he can grow more. I do

worry that a few years down the road, someone will find some

condition that relates to longterm gh usage, but we knew this from

the beginning and just hope that if they do find something, then

medical knowledge will be more advanced to help us deal with

whatever may happen, IF it happens.

Now that Max is almost 5 feet, we are tempted to wind things down a

bit. WE know that he will have a final spurt of a couple of inches,

so he would probably make it to 5'2 " and that is okay. We intend to

discuss this with Dr. H. in two weeks.

On the other hand, we did not start gh only for the extra height

that Max may have gained. We had to use it because Dr. H. thought

it would increase his muscle mass, his appetite and help stabilize

his blood sugars. And it did do that for him. Many people find it

hard to believe that Max even has RSS because he is not skinny and

he loves to eat. They should only know what we have been through to

get to where he is now....

So, I guess my message is that you have to do what you think is

right. You always have the option of a trial on gh, too. Whatever

your decision, most of us will support you because there is no right

or wrong answer unless your child's health is at stake. I remember

one family at the convention who had not been advised to use gh and

their son is now in his teens and he is quite short-statured. There

is nothing that can be done to help him grow, so they have to work

on his self-esteem and other things to help him feel good about

himself and move on in his life. At least you know about gh and can

think about it for awhile. Good luck in your ventures.

Jodi Z.

[Guest guest]

Hi everyone!

we too have just made the decision to start gh. my biggest fear

actually is more selfish or made up in my own mind, i worry that

christopher is going to be afraid of me or angry at me for having to

give him the shots. how has anyone else delt with this. its hard to

explain to him since he is 2 1/2 yrs. i know i am doing it to help

him in the long run. he is now 33 " and 22lbs. his 4 month old brother

is 15lbs and 25 " . if anyone has any pointers on how to deal with

giving him the shots please share. he doesn't even like when i trim

his nails.

Jodie

(nicholas-5 nonrss, christopher- 2 1/2 rss, johnathon-4 months

n0onrss)

> > Hello everyone,

> > I want to thank everyone who has tryed to help me with as much

> > information as they can about me deciding whether to put

on

> GH

> > or not. I have decided to do the six month trial. One of my

major

> > concerns is reading everyones emails and realizing that is

> > really small for her age. I see peoples notes or progress

markers

> > about their childrens height/weight/age and it's seems like

> is

> > too small for her age. She is currently 34 " and weights in at

> 19.01

> > lbs (as of last friday) and she is three years old. I never

> realized

> > not even by looking at her sister, measuring almost 5 whole

inches

> > taller and ten whole pounds more, standing next to her how small

> > really was until I had this thought the other day. I was

> > putting them in the car and just tought, is almost able to

> be

> > able to turn her car seat around now (we all know that 20 lbs is

> the

> > marker weight), even though she has been facing forward for two

> years

> > (she wouldn't sit backwards after her sister turned around). I

> felt

> > really bad. Has anyone else had this low a weight and height in

> > their three year old marked time frame with their children? And

if

> > so how has progress goen and where is your child now? But I just

> > pray that the GH will increase her muscle mass like they say it

> will

> > and improve her eating and weight gain. Also, 's doctors

> have

> > never refered her to a nutritionist. I know they said they would

> but

> > with endo and nero i think i forgot too. Do the families whoes

> > children take appetite incrasers see a improvement with adding

> > this/ese medications. Yall know i don't like to give medications

> > excessively, but I want my skinny minny to gain some weight. You

> > should just see her skinny legs and hear comments even other

three

> > year olds make about her size. I am getting so fed up sometimes,

> but

> > just want the best. Can anyone else give me some feed back on

what

> > to expect also, with starting the GH? I am apprehensive but open

> > minded right now. I will keep yall posted on 's progress.

> >

> > Take rae everyone and God bless

> >

> > In-ja

> > 19 lbs, 34 " (RSS) and 30lbs, 38 " ; 3 years old

[Guest guest]

> > Hello everyone,

> > I want to thank everyone who has tryed to help me with as much

> > information as they can about me deciding whether to put

on

> GH

> > or not. I have decided to do the six month trial. One of my

major

> > concerns is reading everyones emails and realizing that

is

> > really small for her age. I see peoples notes or progress

markers

> > about their childrens height/weight/age and it's seems like

> is

> > too small for her age. She is currently 34 " and weights in at

> 19.01

> > lbs (as of last friday) and she is three years old. I never

> realized

> > not even by looking at her sister, measuring almost 5 whole

inches

> > taller and ten whole pounds more, standing next to her how small

> > really was until I had this thought the other day. I was

> > putting them in the car and just tought, is almost able

to

> be

> > able to turn her car seat around now (we all know that 20 lbs is

> the

> > marker weight), even though she has been facing forward for two

> years

> > (she wouldn't sit backwards after her sister turned around). I

> felt

> > really bad. Has anyone else had this low a weight and height in

> > their three year old marked time frame with their children? And

if

> > so how has progress goen and where is your child now? But I

just

> > pray that the GH will increase her muscle mass like they say it

> will

> > and improve her eating and weight gain. Also, 's doctors

> have

> > never refered her to a nutritionist. I know they said they

would

> but

> > with endo and nero i think i forgot too. Do the families whoes

> > children take appetite incrasers see a improvement with adding

> > this/ese medications. Yall know i don't like to give

medications

> > excessively, but I want my skinny minny to gain some weight.

You

> > should just see her skinny legs and hear comments even other

three

> > year olds make about her size. I am getting so fed up

sometimes,

> but

> > just want the best. Can anyone else give me some feed back on

what

> > to expect also, with starting the GH? I am apprehensive but

open

> > minded right now. I will keep yall posted on 's progress.

> >

> > Take rae everyone and God bless

> >

> > In-ja

> > 19 lbs, 34 " (RSS) and 30lbs, 38 " ; 3 years old

[Guest guest]

Jodi,

Thanks for your response. I had a great email typed up last night

and then my computer locked up and I lost it.

You're right, it's a very personal decision. Whichever way we

decide, there is always the fear that our child will come back as an

adult and be unhappy with our decision. We can only do the best we

can and pray it was the right thing.

Abby has not say anything to us indicating that she is aware of her

size difference, although now that she's in school we can be sure the

other kids will point it out for her. If only we could keep them

isolated and protected until they were full grown!

Sherri

> Sherri,

>

> With Abby at 5 1/2, you still have time to make the decision of

> whether or not to use gh. It is a very personal decision and you

> have to feel very comfortable, or at least over 50% comfortable,

> before you try it. Perhaps Abby herself will let you know in

time.

> If she begins to complain about being so much smaller, then you may

> have your answer right there. There is a big difference between

> being 4.5 feet and 5 feet and it may bother her as she gets further

> along in her school years. For now, though, I would recommend that

> you keep your mind open and go with what your heart tells you.

>

> I will admit that even though Max has been on gh since he was just

> about 3, there is not a night when he gets his shot that I don't

say

> a little prayer that he will be okay. Everyone has told us that gh

> is safe, and we have seen NO side effects of a negative nature, but

> we never anticipated that he would still be on them at 15 along

with

> other meds he needs to supress puberty so he can grow more. I do

> worry that a few years down the road, someone will find some

> condition that relates to longterm gh usage, but we knew this from

> the beginning and just hope that if they do find something, then

> medical knowledge will be more advanced to help us deal with

> whatever may happen, IF it happens.

>

> Now that Max is almost 5 feet, we are tempted to wind things down a

> bit. WE know that he will have a final spurt of a couple of

inches,

> so he would probably make it to 5'2 " and that is okay. We intend

to

> discuss this with Dr. H. in two weeks.

>

> On the other hand, we did not start gh only for the extra height

> that Max may have gained. We had to use it because Dr. H. thought

> it would increase his muscle mass, his appetite and help stabilize

> his blood sugars. And it did do that for him. Many people find it

> hard to believe that Max even has RSS because he is not skinny and

> he loves to eat. They should only know what we have been through to

> get to where he is now....

>

> So, I guess my message is that you have to do what you think is

> right. You always have the option of a trial on gh, too. Whatever

> your decision, most of us will support you because there is no

right

> or wrong answer unless your child's health is at stake. I remember

> one family at the convention who had not been advised to use gh and

> their son is now in his teens and he is quite short-statured.

There

> is nothing that can be done to help him grow, so they have to work

> on his self-esteem and other things to help him feel good about

> himself and move on in his life. At least you know about gh and

can

> think about it for awhile. Good luck in your ventures.

>

> Jodi Z.