hello

[Guest guest]

Thank you so much Cammie and . I feel a little better.

I have an open bite and I am getting my upper jaw moved and opened.

My surgery is planned for after Christmas and my biggest concern is

if I will still be able to feel well enough for the Spring Semester

which begins on January 31st 2005. How did everyone go about

dealing with their daily lives afterward?

Curious,

Norma

> >

> > Hi everyone. I'm a 20 yr old femaled and I'm new to this

group.

> I

> > am getting orthognathic surgery after Christmas. I'm extremely

> > nervous. I don't know what to expect and I don't want to be

super

> > swollen. I know everyone heals differently...I guess what I'm

> > wondering is did anyone experience any sort of depression after

> > their surgery? I have had general anesthesia done on me before

> when

> > I got my wisdom teeth taken out and I was really depressed,

maybe

> > due to the swelling and bruising, but I'm not sure.

> >

> > Thank you for your time!

> >

> > Norma

[Guest guest]

Thank you so much Cammie and . I feel a little better.

I have an open bite and I am getting my upper jaw moved and opened.

My surgery is planned for after Christmas and my biggest concern is

if I will still be able to feel well enough for the Spring Semester

which begins on January 31st 2005. How did everyone go about

dealing with their daily lives afterward?

Curious,

Norma

> >

> > Hi everyone. I'm a 20 yr old femaled and I'm new to this

group.

> I

> > am getting orthognathic surgery after Christmas. I'm extremely

> > nervous. I don't know what to expect and I don't want to be

super

> > swollen. I know everyone heals differently...I guess what I'm

> > wondering is did anyone experience any sort of depression after

> > their surgery? I have had general anesthesia done on me before

> when

> > I got my wisdom teeth taken out and I was really depressed,

maybe

> > due to the swelling and bruising, but I'm not sure.

> >

> > Thank you for your time!

> >

> > Norma

[Guest guest]

Hi Norma,

I took it really easy for 5 weeks, then I had to go back for some

financial reporting deadlines. I felt great during the 5 weeks, but

when I returned, I realized I didn't have all the energy I thought I

had. Even so, I tried to squeeze in some 14 hour days (just like I

used to be able to do), which wiped me right out.

Some people can take a lot of time off, others can't. I think the

main thing you want to keep in mind is to pay close attention to your

body during this whole process. Don't overdo it, try to take it easy

if you can. Your body needs all the energy you can give it for proper

healing.

>

> Thank you so much Cammie and . I feel a little better.

>

> I have an open bite and I am getting my upper jaw moved and

opened.

>

> My surgery is planned for after Christmas and my biggest concern is

> if I will still be able to feel well enough for the Spring Semester

> which begins on January 31st 2005. How did everyone go about

> dealing with their daily lives afterward?

>

> Curious,

>

> Norma

[Guest guest]

Hi Norma,

I took it really easy for 5 weeks, then I had to go back for some

financial reporting deadlines. I felt great during the 5 weeks, but

when I returned, I realized I didn't have all the energy I thought I

had. Even so, I tried to squeeze in some 14 hour days (just like I

used to be able to do), which wiped me right out.

Some people can take a lot of time off, others can't. I think the

main thing you want to keep in mind is to pay close attention to your

body during this whole process. Don't overdo it, try to take it easy

if you can. Your body needs all the energy you can give it for proper

healing.

>

> Thank you so much Cammie and . I feel a little better.

>

> I have an open bite and I am getting my upper jaw moved and

opened.

>

> My surgery is planned for after Christmas and my biggest concern is

> if I will still be able to feel well enough for the Spring Semester

> which begins on January 31st 2005. How did everyone go about

> dealing with their daily lives afterward?

>

> Curious,

>

> Norma

[Guest guest]

Hello Anne.

Welcome to the group. It is very sweet of you to be 'in-tune' with

clubfoot for extra support for your daughter and grandson. I have a

question for you. Did Cameron have any casts applied or just the shoes

and bar (DBB)? I have never heard of a baby going directly into the

shoes. I know you said he is 4 weeks so I wonder if he has a really mild

case. Does he have unilateral (one foot affected) or bilateral (both

feet)? Where are you located?

Please ask us questions if you have any and please encourage your daughter

to join us as well.

Congratulations on your new arrival!

Shook

Retail Operations Manager/Baking Instructor

Vie de France Yamazaki, Inc.

2070 Chain Bridge Rd. Suite 500

Vienna, VA 22182

x374

x374

fax

[Guest guest]

Hello! You certainly must be a caring grannie! Welcome to our group,

and please don't hesitate to ask any questions you or your daughter

may have...or just seek out our reassurance & support! There's lots

of incredibly knowledgable & helpful people on here!

, mommy of:

Guinevere, on & Ava 8/4/04 RCF ABS DBB 18/7

>

> Hello everyone, I have just joined as 4 weeks ago my daughter gave

birth to her first child Cameron. Cameron was 6 weeks premature and

has talipes. We had our first visit the hospital this week for his

boots, and I must admit it was a little scary to see the boots being

put on his tiny little feet. I joined this group to see how others

are getting on and for some reasurrance.

>

> regards

> caringgrannie

>

> Send instant messages to your online friends

http://uk.messenger.yahoo.com

>

>

[Guest guest]

cat, go to obesityhelp.com. click on your state, then

on insurance carriers. There will be tons of people

listed there telling how they got approved. This list

is for people with Kaiser HMO, so I'm afraid we won't

be much help.

Good luck!

Laurie

__________________________________

Yahoo! Mail - PC Magazine Editors' Choice 2005

http://mail.yahoo.com

[Guest guest]

Before coming to Kaiser, my PCP with a different insurance carrier wanted me to have this surgery, when I called the insurance did the same stuff to me. So my PCP sent me for sleep study, for all kinds of test because my muscles hurt bad, found out I had arthritis, fybromyalgia, also I already had brittle bones, they break fairly easy, reflux, IBS, and the list goes on not to say the weight itself as a health issue for having a heart attack, or getting diabetes. She wrote up a special request form and it had to go in front of a board of the insurance carrier, it was approved, I started doing the things to get the surgery done. Then for me my husbands union made us switch to Kaiser right in the middle, I got health papers from every doctor I ever saw, and took them in to my new Kaiser PCP, I had to start all the procedures over but was approved, had my surgery and I am a happy lady. Sometimes it takes a lot for what we want and need, but you have to push,

push, push. Talk to your PCP and have them do all the request. Good Luck. Donnacatbooker wrote: I joined this group a while back, but then was so depressed about my inquiry to the insurance company, I decided not to even participate.I was given a referral by my internist about a year ago. When I called the office of the doctor to whom he had referred me, his assistant said that I could not be seen unless I got approval from my insurance company for the procedure. Fine. So I contact my insurance company, as well as the benefits office where I work, and was told flatly that the surgery was not one of my benefits.Geez, they're paying a lot of money to keep me fat. I am beginning to wonder now if there wasn't some trick. Like maybe I didn't ask in the right way, or maybe I wasn't holding the phone in my left hand when I was talking to them. I've got BC/BS PPO - I thought that was one of the

best health insurances around. Is there something special I need to know or do when I ask next time?catbookerDonna JordonDSJordon@...

Yahoo! Music Unlimited - Access over 1 million songs. Try it free.

[Guest guest]

For my company, open enrollment is getting ready to start. You may want to look into the EPO for BC/BS. A friend of mine at work had that and with the PPO they would not have paid for the surgery, but with the EPO they did.

Just something to look into....

Good luck,

Barbara (LTLJSMOM)

-----Original Message-----From: Donna Jordon Sent: Monday, October 17, 2005 7:56 AMTo: gastric-bypass-support-kaiser-patients Subject: Re: Hello

Before coming to Kaiser, my PCP with a different insurance carrier wanted me to have this surgery, when I called the insurance did the same stuff to me. So my PCP sent me for sleep study, for all kinds of test because my muscles hurt bad, found out I had arthritis, fybromyalgia, also I already had brittle bones, they break fairly easy, reflux, IBS, and the list goes on not to say the weight itself as a health issue for having a heart attack, or getting diabetes. She wrote up a special request form and it had to go in front of a board of the insurance carrier, it was approved, I started doing the things to get the surgery done. Then for me my husbands union made us switch to Kaiser right in the middle, I got health papers from every doctor I ever saw, and took them in to my new Kaiser PCP, I had to start all the procedures over but was approved, had my surgery and I am a happy lady. Sometimes it takes a lot for what we want and need, but you have to push, push, push. Talk to your PCP and have them do all the request. Good Luck. Donnacatbooker wrote: I joined this group a while back, but then was so depressed about my inquiry to the insurance company, I decided not to even participate.I was given a referral by my internist about a year ago. When I called the office of the doctor to whom he had referred me, his assistant said that I could not be seen unless I got approval from my insurance company for the procedure. Fine. So I contact my insurance company, as well as the benefits office where I work, and was told flatly that the surgery was not one of my benefits.Geez, they're paying a lot of money to keep me fat. I am beginning to wonder now if there wasn't some trick. Like maybe I didn't ask in the right way, or maybe I wasn't holding the phone in my left hand when I was talking to them. I've got BC/BS PPO - I thought that was one of the best health insurances around. Is there something special I need to know or do when I ask next time?catbookerDonna JordonDSJordon@...

Yahoo! Music Unlimited - Access over 1 million songs. Try it free.

[Guest guest]

Kathleen

Welcome to the group. I am glad you introduced yourself.

I am 63 and have a complex I and III defect, by muscle biopsies.

I don't have any eye issues, at least yet. I'm sure that others can

address this issue with you.

Hypothyroidism can be a part of mito. I have it, but mine happens to

be autoimmune and not due to mito. The exercise intolerance, feeling

cold when stressed, and GI symptoms sound familiar.

Are you on the mito cocktail of supplements? I have to take large

doses, but they have helped me. I also have to listen to my body and

rest when I need to or I suffer the consequences.

laurie

> I am a 44 year-old female, with ptosis and lack of movement in both eyes,

> which first

> became noticeable 14 years ago, when I was diagnosed with CPEO. I had

> double

> bletharoplasty 12 years ago, and my eyelids mostly remain above my pupils.

> I was told

> that I needed to have an EKG every six months, and if my heart had no

> problems, I would

> have a normal life expectancy, with some probable vision issues. I was told

> there was no

> risk of passing the disease to offspring.

>

> The CPEO does not seem to have progressed much, and most of the time both

> eyelids still

> open to above my pupil line. My vision has worsened somewhat and my left

> lid is pretty

> droopy.

>

> About 5 years ago, after the birth of my second child, I began noticing

> lack of tone in my

> right arm, and both muscle loss and lack of movement on the right side of

> my face. I have

> been experiencing some exercise resistance and increased cramping in my

> legs and weird

> gastro-intestinal activity in the last year or so. I was a competitive

> athlete when I was

> younger, and after a 10 year lay-off, have been trying to get back in

> shape. I've been

> walking 4-5 miles a day at a brisk pace for several years, I find I grow

> progressively more

> tired as the week progresses, and it seems like after walking, I am cold

> and can't get warm

> again for hours.

>

> Last summer I was diagnosed with hypothyroidism, and venous insufficiency.

> I do not

> know if there is any relationship to my mitochondrial problems. No one in

> my family

> shares my symptoms, but my mother's brother died of ALS seven years ago, at

> age 51.

>

> When I was first diagnosed, my then doctor (an opthamalogist) refused to do

> a muscle

> biopsy. I saw a neurologist for the first time 16 months ago and he only

> agreed to the

> procedure after tests for MG proved negative and an EEG and MRI were

> normal. The

> biopsy was done at the end of November '05, and the initial pathology

> results were

> " myopathy of an unknown type " . The lab was supposed to forward the sample

> to another

> lab for additional testing, but there was a mix up, and the samples were

> only recently sent

> out.

>

> Last week, based on the initial lab results, I was diagnosed with KSS and

> referred to the

> local MDA clinic. The neurologist believes there is risk I have passed this

> to my two

> children. I have been researching like crazy, and haven't found much to

> support a KSS

> diagnosis, other than the CPEO. My symptoms did not occur until I was 30,

> my heart is

> good, and my hearing is great. I am concerned about my children (neither

> have symptoms)

> and what my prognosis is. I really would like to see a mitochondrial

> specialist, and am

> trying to figure out how to do that.

>

> Does anyone have any ideas? My healthcare provider (a university health

> system) has been

> really bad with referrals and scheduling. I have all kinds of questions

> about supplements,

> nutrition, exercise, and general preventative maintenance to try to slow or

> halt the

> progression of what ever is happening to me. I'm scared and desperate to

> talk with

> someone who knows what they're doing

>

> Thank you very much for any help or guidance you can provide.

>

> Kathleen

>

>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

> are not necessarily those of the list moderators. The author of this e mail

> is entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with

> their physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the attack.

>

>

>

>

>

>

[Guest guest]

Terri

It's good to see you post. Do take care of yourself, and hang in there.

Sincerely,

Tracie

NSCo-owner/moderator

[Guest guest]

Hi I haven't been around for awhile also. I had thought that my husband agreed to move closer to the medical center. Now he out and out refuses, I told him if it were him I would have been there long ago. I have mainly cardiac sarc have had three open heart surgeries. Im reliant on the pacemaker and I am three hrs south of the medical center. And the local Drs cant treat me they have tried just tried to kill me

with prescriptions. and took my pain meds away. with sarc systemic you cant do that its insane. Mayo gave it back to me and had to just up the dosage. I am still freezing and thawing. I had thought that my premarin dosage made me have the sweats but I also Freeze. I think my thermostat is messed up.

M