Re: Help w/rapid success w/some relapse?

[Guest guest]

My daughter does this and it freaks me out every time. Each time she

has been having a developmental surge in another area (i.e. her fine

motor skills are improving or her gross motor skills, whatever) or

learning a new skill (i.e. potty training in your case). Within a week

or two, it levels out. It still gives me a heart attack each time

however. Our slp reassures me each time that it is a phase and that

once she masters whatever it is, she'll level out. My daughter also

does this slurring thing when she is going through a vocabulary surge

as well. Then it levels out and the articulation comes back.

Hope this helps.

Kris

________________________________________________________________________

______________________________________________________________

Kris Haukoos

The Knitting Wannabe ( http://www.knittingwannabe.typepad.com )

Check out the shop:

Sonny & Shear: The I’ve Got Ewe, Babe Yarn Shop

http://www.sonnyandshear.com

On Apr 19, 2007, at 11:11 AM, cbmcleod73 wrote:

> I'd really appreciate some help. Here is our story:

>

> Our DS1 (now 3.5YO) was diagnosed with developmental verbal dyspraxia

> at his 3rd birthday. He spoke 5 words at that time, but knew over 200

> ASL signs so communication was smooth. This was August 2006.

>

> Oct. 2006 he started with an SLP experienced in cues & with dyspraxic

> kids. At the same time, I found this group & started DS on just ONE

> Omega Complete each day. (We also had an OT come in for some minor

> sensory seeking issues)

>

> Within 3 days of his first dose, he spoke 3 brand new words.

>

> By December 2006, he spoke in 1-3 word sentences. I added another

> dose of Omega Complete, along with 400iu of vitamin E per day.

>

> Now it is April and he speaks with 85% intelligibility with sentences

> up to 13 words! His SLP is excited for him and marvels at the

> impressive success, going from just 5 words to long, complex sentences

> in just 6-7 months. She hopes to see him not able to picked out as

> ever having had a speech delay by the age of 5 or 6YO.

>

> BUT....I am starting to see some slurring crop up. And his previously

> clear words are less articulate...is he simply no longer paying close

> attention to what he says, after having some time of being understood

> and feeling more comfortable with oral language?

>

> Does anyone have experience with such rapid spontaneous speech, or

> with a relapse? I am considering increasing his Omega Complete but

> the last time I tried it for a week, his sensory issues got worse, and

> we definitely saw behavioral concerns...whining, melt downs and such

> where they had never been before.

>

> Obviously we long for complete success with our son, as all parents

> do...so I am feeling very very concerned about this sluring and lack

> of clarity we've noticed.

>

> Anyone have experience with other milestones affecting speech, then

> seeing it improve again? (He just became comfortable peeing in the

> toilet and no longer needs the little potty!!!)

>

> Any thoughts or ideas or experience are greatly appreciated.

> I have never heard of a child having such rapid success, and it

> worries me that perhaps we got our hopes up too high, too fast.

>

> Thanks for reading and replying.

> Cheryl

>

> mom to A. and B.

>

>

[Guest guest]

First, I am no expert, but I have been dealing with this for a while.

Second, your story is amazing. You must be so proud of your little guy.

I would probably start by examining whether anything changed. If you

even changed your brand of Vitamin E, that might be the difference. I

have been adjusting the Vitamin E with my child, and I do notice

changes in the speech. (Some brands have gamma; others do not -- I

notice crisper (less slurred) speech with brands that have the gamma.

At least, I think I do.) But I read a message that had

posted which pointed out that vitamins are not strictly regulated --

so even if it looks like you are giving the same thing, it might be

different! It is pretty confusing, if you ask me.

I have also been reading archives here, and saw where it was

recommended that the ratio be two ProEFA to one ProEPA. ProEPA is

just omega 3, I think, with no omega 6 added. You might try adding a

ProEPA to the mix. I personally haven't used the ProEPA -- I used

Coromega because my child liked the taste. And, I think I did notice

a subtle improvement and I didn't notice any negative side effects

with the Coromega.

Unfortunately, I have not approached this as a scientist. I use some

of the nutritional supplements, vitamins, speech therapy, OT,

hippotherapy, Fast ForWord all at the same time. So it is hard to

know what is helping.

It is very frustrating when the speech gets less clear! Do others

notice the difference too? (Sometimes I am sure the speech is less

clear, when others -- like my husband -- think it is still about the

same!)

>

> I'd really appreciate some help. Here is our story:

>

> Our DS1 (now 3.5YO) was diagnosed with developmental verbal dyspraxia

> at his 3rd birthday. He spoke 5 words at that time, but knew over 200

> ASL signs so communication was smooth. This was August 2006.

>

> Oct. 2006 he started with an SLP experienced in cues & with dyspraxic

> kids. At the same time, I found this group & started DS on just ONE

> Omega Complete each day. (We also had an OT come in for some minor

> sensory seeking issues)

>

> Within 3 days of his first dose, he spoke 3 brand new words.

>

> By December 2006, he spoke in 1-3 word sentences. I added another

> dose of Omega Complete, along with 400iu of vitamin E per day.

>

> Now it is April and he speaks with 85% intelligibility with sentences

> up to 13 words! His SLP is excited for him and marvels at the

> impressive success, going from just 5 words to long, complex sentences

> in just 6-7 months. She hopes to see him not able to picked out as

> ever having had a speech delay by the age of 5 or 6YO.

>

> BUT....I am starting to see some slurring crop up. And his previously

> clear words are less articulate...is he simply no longer paying close

> attention to what he says, after having some time of being understood

> and feeling more comfortable with oral language?

>

> Does anyone have experience with such rapid spontaneous speech, or

> with a relapse? I am considering increasing his Omega Complete but

> the last time I tried it for a week, his sensory issues got worse, and

> we definitely saw behavioral concerns...whining, melt downs and such

> where they had never been before.

>

> Obviously we long for complete success with our son, as all parents

> do...so I am feeling very very concerned about this sluring and lack

> of clarity we've noticed.

>

> Anyone have experience with other milestones affecting speech, then

> seeing it improve again? (He just became comfortable peeing in the

> toilet and no longer needs the little potty!!!)

>

> Any thoughts or ideas or experience are greatly appreciated.

> I have never heard of a child having such rapid success, and it

> worries me that perhaps we got our hopes up too high, too fast.

>

> Thanks for reading and replying.

> Cheryl

>

> mom to A. and B.

>

[Guest guest]

If you saw that much progress on 400 iu vit E...you may want to go up

to 800 iu and add a gamma tocopherol prep as well.

Also as the sentenses get longer and more complex...ie your 3 year

old is tellin you a story with complet thoughts...you will still lose

some intelligibility. Although it " feels " like you are taking a step

back after 2 steps forward, some of this is still true progress. As

ph was rapidly improving...he went quickly from 6-7 words to 12-

13+ word sentenses. We could completely understand his short phrases,

but being true to apraxia...things fell apart with increased

complexity requiring more motor planning. Give it time, and make sure

you are not seeing a vocabulary/conversation explosion. If that is

the case...it will improve. More vit E may help it improve faster!

-

> I'd really appreciate some help. Here is our story:

>

> Our DS1 (now 3.5YO) was diagnosed with developmental verbal

dyspraxia

> at his 3rd birthday. He spoke 5 words at that time, but knew over

200

> ASL signs so communication was smooth. This was August 2006.

>

> Oct. 2006 he started with an SLP experienced in cues & with

dyspraxic

> kids. At the same time, I found this group & started DS on just ONE

> Omega Complete each day. (We also had an OT come in for some minor

> sensory seeking issues)

>

> Within 3 days of his first dose, he spoke 3 brand new words.

>

> By December 2006, he spoke in 1-3 word sentences. I added another

> dose of Omega Complete, along with 400iu of vitamin E per day.

>

> Now it is April and he speaks with 85% intelligibility with

sentences

> up to 13 words! His SLP is excited for him and marvels at the

> impressive success, going from just 5 words to long, complex

sentences

> in just 6-7 months. She hopes to see him not able to picked out as

> ever having had a speech delay by the age of 5 or 6YO.

>

> BUT....I am starting to see some slurring crop up. And his

previously

> clear words are less articulate...is he simply no longer paying

close

> attention to what he says, after having some time of being

understood

> and feeling more comfortable with oral language?

>

> Does anyone have experience with such rapid spontaneous speech, or

> with a relapse? I am considering increasing his Omega Complete but

> the last time I tried it for a week, his sensory issues got worse,

and

> we definitely saw behavioral concerns...whining, melt downs and such

> where they had never been before.

>

> Obviously we long for complete success with our son, as all parents

> do...so I am feeling very very concerned about this sluring and lack

> of clarity we've noticed.

>

> Anyone have experience with other milestones affecting speech, then

> seeing it improve again? (He just became comfortable peeing in the

> toilet and no longer needs the little potty!!!)

>

> Any thoughts or ideas or experience are greatly appreciated.

> I have never heard of a child having such rapid success, and it

> worries me that perhaps we got our hopes up too high, too fast.

>

> Thanks for reading and replying.

> Cheryl

>

> mom to A. and B.

>

[Guest guest]

THANK YOU, Kris.

I appreciate your taking the time to reply and share that your

daughter has experienced similar forward / back steps with language.

Is it the case that once an apraxic child " masters " something it is

unlikely to see that disappear? I certainly can see that there can be

mini-steps 'backwards' when there is great attention to another

milestone. In fact, our son has done that with every milestone, but

mostly related to sleep struggles.

Thanks again, for your reply.

Nice to know we are not alone.

Cheryl

>

> > I'd really appreciate some help. Here is our story:

> >

> > Our DS1 (now 3.5YO) was diagnosed with developmental verbal dyspraxia

> > at his 3rd birthday. He spoke 5 words at that time, but knew over 200

> > ASL signs so communication was smooth. This was August 2006.

> >

> > Oct. 2006 he started with an SLP experienced in cues & with dyspraxic

> > kids. At the same time, I found this group & started DS on just ONE

> > Omega Complete each day. (We also had an OT come in for some minor

> > sensory seeking issues)

> >

> > Within 3 days of his first dose, he spoke 3 brand new words.

> >

> > By December 2006, he spoke in 1-3 word sentences. I added another

> > dose of Omega Complete, along with 400iu of vitamin E per day.

> >

> > Now it is April and he speaks with 85% intelligibility with sentences

> > up to 13 words! His SLP is excited for him and marvels at the

> > impressive success, going from just 5 words to long, complex

sentences

> > in just 6-7 months. She hopes to see him not able to picked out as

> > ever having had a speech delay by the age of 5 or 6YO.

> >

> > BUT....I am starting to see some slurring crop up. And his previously

> > clear words are less articulate...is he simply no longer paying close

> > attention to what he says, after having some time of being understood

> > and feeling more comfortable with oral language?

> >

> > Does anyone have experience with such rapid spontaneous speech, or

> > with a relapse? I am considering increasing his Omega Complete but

> > the last time I tried it for a week, his sensory issues got

worse, and

> > we definitely saw behavioral concerns...whining, melt downs and such

> > where they had never been before.

> >

> > Obviously we long for complete success with our son, as all parents

> > do...so I am feeling very very concerned about this sluring and lack

> > of clarity we've noticed.

> >

> > Anyone have experience with other milestones affecting speech, then

> > seeing it improve again? (He just became comfortable peeing in the

> > toilet and no longer needs the little potty!!!)

> >

> > Any thoughts or ideas or experience are greatly appreciated.

> > I have never heard of a child having such rapid success, and it

> > worries me that perhaps we got our hopes up too high, too fast.

> >

> > Thanks for reading and replying.

> > Cheryl

> >

> > mom to A. and B.

> >

> >

>

>

>

>

>

[Guest guest]

For my daughter once she really masters something (not just learns it

but she really masters it) then it doesn't ever disappear. (At least

that has been the case so far.... knock on wood.)

Glad I was able to help.

Kris

_______________________________________________________________________

Kris Haukoos

The Knitting Wannabe ( http://www.knittingwannabe.typepad.com )

Check out the shop:

Sonny & Shear: The I’ve Got Ewe, Babe Yarn Shop

http://www.sonnyandshear.com

On Apr 20, 2007, at 2:05 PM, cbmcleod73 wrote:

> THANK YOU, Kris.

>

> I appreciate your taking the time to reply and share that your

> daughter has experienced similar forward / back steps with language.

>

> Is it the case that once an apraxic child " masters " something it is

> unlikely to see that disappear? I certainly can see that there can be

> mini-steps 'backwards' when there is great attention to another

> milestone. In fact, our son has done that with every milestone, but

> mostly related to sleep struggles.

>

> Thanks again, for your reply.

> Nice to know we are not alone.

>

> Cheryl

>

>

> >

> > > I'd really appreciate some help. Here is our story:

> > >

> > > Our DS1 (now 3.5YO) was diagnosed with developmental verbal

> dyspraxia

> > > at his 3rd birthday. He spoke 5 words at that time, but knew over

> 200

> > > ASL signs so communication was smooth. This was August 2006.

> > >

> > > Oct. 2006 he started with an SLP experienced in cues & with

> dyspraxic

> > > kids. At the same time, I found this group & started DS on just

> ONE

> > > Omega Complete each day. (We also had an OT come in for some minor

> > > sensory seeking issues)

> > >

> > > Within 3 days of his first dose, he spoke 3 brand new words.

> > >

> > > By December 2006, he spoke in 1-3 word sentences. I added another

> > > dose of Omega Complete, along with 400iu of vitamin E per day.

> > >

> > > Now it is April and he speaks with 85% intelligibility with

> sentences

> > > up to 13 words! His SLP is excited for him and marvels at the

> > > impressive success, going from just 5 words to long, complex

> sentences

> > > in just 6-7 months. She hopes to see him not able to picked out as

> > > ever having had a speech delay by the age of 5 or 6YO.

> > >

> > > BUT....I am starting to see some slurring crop up. And his

> previously

> > > clear words are less articulate...is he simply no longer paying

> close

> > > attention to what he says, after having some time of being

> understood

> > > and feeling more comfortable with oral language?

> > >

> > > Does anyone have experience with such rapid spontaneous speech, or

> > > with a relapse? I am considering increasing his Omega Complete but

> > > the last time I tried it for a week, his sensory issues got

> worse, and

> > > we definitely saw behavioral concerns...whining, melt downs and

> such

> > > where they had never been before.

> > >

> > > Obviously we long for complete success with our son, as all

> parents

> > > do...so I am feeling very very concerned about this sluring and

> lack

> > > of clarity we've noticed.

> > >

> > > Anyone have experience with other milestones affecting speech,

> then

> > > seeing it improve again? (He just became comfortable peeing in the

> > > toilet and no longer needs the little potty!!!)

> > >

> > > Any thoughts or ideas or experience are greatly appreciated.

> > > I have never heard of a child having such rapid success, and it

> > > worries me that perhaps we got our hopes up too high, too fast.

> > >

> > > Thanks for reading and replying.

> > > Cheryl

> > >

> > > mom to A. and B.

> > >

> > >

> >

> >

> >

> >

[Guest guest]

> > >

> > > > I'd really appreciate some help. Here is our story:

> > > >

> > > > Our DS1 (now 3.5YO) was diagnosed with developmental verbal

> > dyspraxia

> > > > at his 3rd birthday. He spoke 5 words at that time, but knew

over

> > 200

> > > > ASL signs so communication was smooth. This was August 2006.

> > > >

> > > > Oct. 2006 he started with an SLP experienced in cues & with

> > dyspraxic

> > > > kids. At the same time, I found this group & started DS on

just

> > ONE

> > > > Omega Complete each day. (We also had an OT come in for some

minor

> > > > sensory seeking issues)

> > > >

> > > > Within 3 days of his first dose, he spoke 3 brand new words.

> > > >

> > > > By December 2006, he spoke in 1-3 word sentences. I added

another

> > > > dose of Omega Complete, along with 400iu of vitamin E per

day.

> > > >

> > > > Now it is April and he speaks with 85% intelligibility with

> > sentences

> > > > up to 13 words! His SLP is excited for him and marvels at the

> > > > impressive success, going from just 5 words to long, complex

> > sentences

> > > > in just 6-7 months. She hopes to see him not able to picked

out as

> > > > ever having had a speech delay by the age of 5 or 6YO.

> > > >

> > > > BUT....I am starting to see some slurring crop up. And his

> > previously

> > > > clear words are less articulate...is he simply no longer

paying

> > close

> > > > attention to what he says, after having some time of being

> > understood

> > > > and feeling more comfortable with oral language?

> > > >

> > > > Does anyone have experience with such rapid spontaneous

speech, or

> > > > with a relapse? I am considering increasing his Omega

Complete but

> > > > the last time I tried it for a week, his sensory issues got

> > worse, and

> > > > we definitely saw behavioral concerns...whining, melt downs

and

> > such

> > > > where they had never been before.

> > > >

> > > > Obviously we long for complete success with our son, as all

> > parents

> > > > do...so I am feeling very very concerned about this sluring

and

> > lack

> > > > of clarity we've noticed.

> > > >

> > > > Anyone have experience with other milestones affecting

speech,

> > then

> > > > seeing it improve again? (He just became comfortable peeing

in the

> > > > toilet and no longer needs the little potty!!!)

> > > >

> > > > Any thoughts or ideas or experience are greatly appreciated.

> > > > I have never heard of a child having such rapid success, and

it

> > > > worries me that perhaps we got our hopes up too high, too

fast.

> > > >

> > > > Thanks for reading and replying.

> > > > Cheryl

> > > >

> > > > mom to A. and B.

> > > >

> > > >

> > >

> > >

> > >

> > >

>

>

>

[Guest guest]

The theory that the balance between healing, physical growth, mental

growth and emotional growth needs to be honored makes sense to me.

On an absolute level -- think of the child who's going through a

growth spurt -- balance, sleep and eating cyles are all thrown off.

For our kids, I believe that they are healing -- putting the right

vitamins, minerals and nutrients in to their bodies, while

(hopefully) pushing the toxins and heavy metals out, the body then

rebalances for awhile. That's why there are so many chelation

therapies that have 'cycles'.

So, I try to look at the whole child when it appears there are stalls

in development. My son recently had a homeopathic treatment for his

sulfer allergies -- (ie sulphation process off in his body). He

actually regressed a little and exhibited poor behavior. But, now

two weeks later -- he grew a 1/2 shoe size (no kidding), and his

speech and behavior is back to where it was.

The next step is to work on the mercury levels, which is a very scary

one!

> > >

> > > > I'd really appreciate some help. Here is our story:

> > > >

> > > > Our DS1 (now 3.5YO) was diagnosed with developmental verbal

> > dyspraxia

> > > > at his 3rd birthday. He spoke 5 words at that time, but knew

over

> > 200

> > > > ASL signs so communication was smooth. This was August 2006.

> > > >

> > > > Oct. 2006 he started with an SLP experienced in cues & with

> > dyspraxic

> > > > kids. At the same time, I found this group & started DS on

just

> > ONE

> > > > Omega Complete each day. (We also had an OT come in for some

minor

> > > > sensory seeking issues)

> > > >

> > > > Within 3 days of his first dose, he spoke 3 brand new words.

> > > >

> > > > By December 2006, he spoke in 1-3 word sentences. I added

another

> > > > dose of Omega Complete, along with 400iu of vitamin E per

day.

> > > >

> > > > Now it is April and he speaks with 85% intelligibility with

> > sentences

> > > > up to 13 words! His SLP is excited for him and marvels at the

> > > > impressive success, going from just 5 words to long, complex

> > sentences

> > > > in just 6-7 months. She hopes to see him not able to picked

out as

> > > > ever having had a speech delay by the age of 5 or 6YO.

> > > >

> > > > BUT....I am starting to see some slurring crop up. And his

> > previously

> > > > clear words are less articulate...is he simply no longer

paying

> > close

> > > > attention to what he says, after having some time of being

> > understood

> > > > and feeling more comfortable with oral language?

> > > >

> > > > Does anyone have experience with such rapid spontaneous

speech, or

> > > > with a relapse? I am considering increasing his Omega

Complete but

> > > > the last time I tried it for a week, his sensory issues got

> > worse, and

> > > > we definitely saw behavioral concerns...whining, melt downs

and

> > such

> > > > where they had never been before.

> > > >

> > > > Obviously we long for complete success with our son, as all

> > parents

> > > > do...so I am feeling very very concerned about this sluring

and

> > lack

> > > > of clarity we've noticed.

> > > >

> > > > Anyone have experience with other milestones affecting

speech,

> > then

> > > > seeing it improve again? (He just became comfortable peeing

in the

> > > > toilet and no longer needs the little potty!!!)

> > > >

> > > > Any thoughts or ideas or experience are greatly appreciated.

> > > > I have never heard of a child having such rapid success, and

it

> > > > worries me that perhaps we got our hopes up too high, too

fast.

> > > >

> > > > Thanks for reading and replying.

> > > > Cheryl

> > > >

> > > > mom to A. and B.

> > > >

> > > >

> > >

> > >

> > >

> > >

>

>

>

[Guest guest]

Supplements " unlocking " some motor planning is what I suspect with our

son. His success has been so fast, and so dramatic, we have a hard to

actually remembering what it was like when he used only ASL and

grunts. (Heartbreaking to watch home movies of pre-3YO though!)

We see him as bright, of course, but others are starting to comment

now that he can articulate his ideas. (For example, he was building

with coffee cans on an uneven surface and they kept toppling. He

stood back, looked around and proceeded to bring over some sand from

the sand box and " level " the ground so the cans could be built taller.

The 2 parents watching him were amazed!) Interesting that apraxic

kids have so much inside and more time to observe, as opposed to

express.....I wonder what else they have developed & worked on during

their silent periods.

Perhaps I was not clear with our supplements.

At this time we give him the following 2x a day (morning/night):

1 Omega Complete 3-6-9

1 400 iu vitamin E

So he is already getting 800iu vitamin E per day.

Any other thoughts on what to add? Try more gamma?

He has been doing so well with the toilet & even his sleep patterns

are improving. He is also cooperating with gentle cue corrections

throughout the day...currently trying to have him self-correct the

/TH/ sounds.

Once again, thank you for your feedback!

Cheryl

> > > >

> > > > > I'd really appreciate some help. Here is our story:

> > > > >

> > > > > Our DS1 (now 3.5YO) was diagnosed with developmental verbal

> > > dyspraxia

> > > > > at his 3rd birthday. He spoke 5 words at that time, but knew

> over

> > > 200

> > > > > ASL signs so communication was smooth. This was August 2006.

> > > > >

> > > > > Oct. 2006 he started with an SLP experienced in cues & with

> > > dyspraxic

> > > > > kids. At the same time, I found this group & started DS on

> just

> > > ONE

> > > > > Omega Complete each day. (We also had an OT come in for some

> minor

> > > > > sensory seeking issues)

> > > > >

> > > > > Within 3 days of his first dose, he spoke 3 brand new words.

> > > > >

> > > > > By December 2006, he spoke in 1-3 word sentences. I added

> another

> > > > > dose of Omega Complete, along with 400iu of vitamin E per

> day.

> > > > >

> > > > > Now it is April and he speaks with 85% intelligibility with

> > > sentences

> > > > > up to 13 words! His SLP is excited for him and marvels at the

> > > > > impressive success, going from just 5 words to long, complex

> > > sentences

> > > > > in just 6-7 months. She hopes to see him not able to picked

> out as

> > > > > ever having had a speech delay by the age of 5 or 6YO.

> > > > >

> > > > > BUT....I am starting to see some slurring crop up. And his

> > > previously

> > > > > clear words are less articulate...is he simply no longer

> paying

> > > close

> > > > > attention to what he says, after having some time of being

> > > understood

> > > > > and feeling more comfortable with oral language?

> > > > >

> > > > > Does anyone have experience with such rapid spontaneous

> speech, or

> > > > > with a relapse? I am considering increasing his Omega

> Complete but

> > > > > the last time I tried it for a week, his sensory issues got

> > > worse, and

> > > > > we definitely saw behavioral concerns...whining, melt downs

> and

> > > such

> > > > > where they had never been before.

> > > > >

> > > > > Obviously we long for complete success with our son, as all

> > > parents

> > > > > do...so I am feeling very very concerned about this sluring

> and

> > > lack

> > > > > of clarity we've noticed.

> > > > >

> > > > > Anyone have experience with other milestones affecting

> speech,

> > > then

> > > > > seeing it improve again? (He just became comfortable peeing

> in the

> > > > > toilet and no longer needs the little potty!!!)

> > > > >

> > > > > Any thoughts or ideas or experience are greatly appreciated.

> > > > > I have never heard of a child having such rapid success, and

> it

> > > > > worries me that perhaps we got our hopes up too high, too

> fast.

> > > > >

> > > > > Thanks for reading and replying.

> > > > > Cheryl

> > > > >

> > > > > mom to A. and B.

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