Re: Bone pain

[Guest guest]

,

You and i both know that the bone spurs and pinched nerves are because of the sarcoidosis granulomas depositing on the spine and at the nerve roots.

I've got a couple of links on bone sarcoidosis in the LINKS or ARCHIVES--just search by bone pain or bone sarcoidosis.

This will explain it to the bozos.

Also, if you're not taking MSM powder-- then go to http://www.puremsm.com/

and order a pound or two. It is the most incredible pain relief I've had. MSM is a natural mineral that has been engineered out of our foods by all the processing etc, and so we don't get it. It is absolutely necessary for joint health.

You can't overdose on it-- I use a tablespoon in a half cup of water, drink it down, then follow with a full glass of water and within 10 mins-- my spine and bone pain is gone. You'll want to work up to taking it several times a day-- and I gotta tell ya, I swear by it. I take the capsule form with me if I'm travelling or going into town for the day.

I don't use the glucosamine with it-- that part didn't seem to do anything. this brand above is made by Blue Mountain Products in Oregon, and is the one that you see in the stuff at Costco. The powder form when ordered directly from this site is so much better- it's not "cut" with anything-- so you're really getting the true MSM.

Tkae care,

Tracie

NS Co-owner/moderator

[Guest guest]

I used bone pain with sarcoidosis.

http://www.mayoclinic.org/checkup-2006/sarcoidosis-sept.html

This one is from FSR:

http://www.stopsarcoidosis.org/sarcoidosis/symptoms.htm

Mayo Clinic Checkup / September 2006 (Vol. 13, No. 5)

A rare find

Mysterious bone pain leads doctors to unexpected diagnosis

Finally on the road to recovery, Sheri Wolfe is finding solid ground again in her garden as well as in her life.

Even as a child, Sheri Wolfe knew something wasn't right with her body. At age 10, she wrapped bandages around her knees because they hurt so much. Over the years, the pain persisted. Her bones and muscles ached constantly, and she was often fatigued. About 13 years ago, Wolfe was diagnosed with fibromyalgia, but her problems continued to worsen. In December 2005, she was so weak she couldn't stand. Then she started coughing. Hard. In early February, a violent coughing fit fractured three ribs and sent her to a hospital near her home in Orlando. She was treated for pneumonia, but follow-up tests indicated lung abnormalities and bone lesions hinting at advanced (or spreading) cancer. But no one could confirm a diagnosis. Frustrated by the uncertainty, Wolfe, 42, came to Mayo Clinic in April. After a thorough evaluation, Mayo doctors found that Wolfe had sarcoidosis, an inflammatory disease that typically starts in the lungs but can affect almost any organ in the body. In her case, the disease was also attacking her bones, a rare occurrence. "Bone involvement in sarcoidosis is seen in about 5 percent of patients, typically involving the hands and fingers. In this instance, the disease had spread to areas not usually associated with the disease," says Mayo Clinic surgeon Dr. O'Connor, who has seen only a handful of cases since arriving at the clinic in 1991. Sarcoidosis is a unique, systemic disease whose cause is unknown. It is often challenging to diagnose because it shows up differently in every patient, explains Dr. Pascual, a pulmonologist at Mayo Clinic. About 90 percent of patients have some involvement of the lungs, Pascual says.

"The pieces of the puzzle were finally put together and, believe me, that's priceless." --Sheri Wolfe

Sometimes sarcoidosis develops gradually, producing signs and symptoms on and off for years. Other times, it appears suddenly only to disappear. But the hallmark of the disease is the presence of small clusters of inflamed tissue called noncaseating grandulomas. These tiny cells, though smaller than a grain of sand, can "multiply, conglomerate and cause damage," says Pascual. Many people are unaware they have sarcoidosis. "Sarcoidosis is a disease that can cause no symptoms and doesn't require treatment," says Pascual, who sees roughly 20 cases a year. "But once diagnosed, it needs to be monitored because extensive tissue inflammation can cause scaring." Sarcoidosis patients typically have some sort of cough, shortness of breath or enlarged lymph nodes in the chest. Because these can be symptoms of other disorders, Pascual says initial diagnosis can be challenging, which explains why Wolfe probably had received so many conflicting opinions. Her case also was unusual in that she had bone pain and lesions. A full body X-ray revealed masses on her ribs, sternum and left and right hip bones. To confirm a diagnosis, O'Connor performed an open bone biopsy, "an uncomfortable procedure," she says, which was compounded by uncertainty. "In Sheri's particular case, we suspected sarcoidosis but needed a tissue sample from one of the bone lesions to confirm it," says O'Connor. "There was a higher level of stress for her and me. Are we going to get the tissue that will get the answers? Thankfully, we did."

Sarcoidosis tends to affect adults between 20 and 40.

People of Scandinavian, German or Irish descent and African-Americans appear to be at greater risk.

The disease affects men and women equally, although black women get the disease twice as often as black men do.

Wolfe is glad to finally know what ails her. "To have so many doctors at other places tell you it's something else, and then to finally get the diagnosis -- it's wonderful," she says. Wolfe is now being treated with an oral steroid to reduce the inflammation in her body. Pascual says that over time he hopes the lesions will dissipate, her lungs will be spared much scarring and her bones will begin to regenerate. So far, she's tolerating the treatment well, despite an array of side effects. "I'm still coughing, but not as badly as in the past," she says. "I keep telling myself that treatment will not last forever. I'm very hopeful." She's looking forward to the day when she can once again enjoy the active lifestyle she had given up. "I think of everything I want to do -- travel, garden, take hikes," Wolfe says. "Hiking was a huge thing for me. I loved to hike, but I had such a hard time walking. I can see that now in the future."

To request an appointment at Mayo Clinic ville, call or complete our online appointment request form:

document.write("");

Home | About Mayo | Medical Services | Patient's Guide | College of Medicine | Jobs | Contact

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Use of This Site Signifies Your Agreement To the Terms of Use

Copyright ©2001-2006 Mayo Foundation for Medical Education and Research. All Rights Reserved.

Mayo Clinic Checkup / September 2006 (Vol. 13, No. 5)

A rare find

Mysterious bone pain leads doctors to unexpected diagnosis

Finally on the road to recovery, Sheri Wolfe is finding solid ground again in her garden as well as in her life.

Even as a child, Sheri Wolfe knew something wasn't right with her body. At age 10, she wrapped bandages around her knees because they hurt so much. Over the years, the pain persisted. Her bones and muscles ached constantly, and she was often fatigued. About 13 years ago, Wolfe was diagnosed with fibromyalgia, but her problems continued to worsen.

In December 2005, she was so weak she couldn't stand. Then she started coughing. Hard. In early February, a violent coughing fit fractured three ribs and sent her to a hospital near her home in Orlando. She was treated for pneumonia, but follow-up tests indicated lung abnormalities and bone lesions hinting at advanced (or spreading) cancer. But no one could confirm a diagnosis.

Frustrated by the uncertainty, Wolfe, 42, came to Mayo Clinic in April. After a thorough evaluation, Mayo doctors found that Wolfe had sarcoidosis, an inflammatory disease that typically starts in the lungs but can affect almost any organ in the body.

In her case, the disease was also attacking her bones, a rare occurrence.

"Bone involvement in sarcoidosis is seen in about 5 percent of patients, typically involving the hands and fingers. In this instance, the disease had spread to areas not usually associated with the disease," says Mayo Clinic surgeon Dr. O'Connor, who has seen only a handful of cases since arriving at the clinic in 1991.

Sarcoidosis is a unique, systemic disease whose cause is unknown. It is often challenging to diagnose because it shows up differently in every patient, explains Dr. Pascual, a pulmonologist at Mayo Clinic. About 90 percent of patients have some involvement of the lungs, Pascual says.

"The pieces of the puzzle were finally put together and, believe me, that's priceless." --Sheri Wolfe

Sometimes sarcoidosis develops gradually, producing signs and symptoms on and off for years. Other times, it appears suddenly only to disappear. But the hallmark of the disease is the presence of small clusters of inflamed tissue called noncaseating grandulomas. These tiny cells, though smaller than a grain of sand, can "multiply, conglomerate and cause damage," says Pascual.

Many people are unaware they have sarcoidosis.

"Sarcoidosis is a disease that can cause no symptoms and doesn't require treatment," says Pascual, who sees roughly 20 cases a year. "But once diagnosed, it needs to be monitored because extensive tissue inflammation can cause scaring."

Sarcoidosis patients typically have some sort of cough, shortness of breath or enlarged lymph nodes in the chest. Because these can be symptoms of other disorders, Pascual says initial diagnosis can be challenging, which explains why Wolfe probably had received so many conflicting opinions. Her case also was unusual in that she had bone pain and lesions. A full body X-ray revealed masses on her ribs, sternum and left and right hip bones.

To confirm a diagnosis, O'Connor performed an open bone biopsy, "an uncomfortable procedure," she says, which was compounded by uncertainty.

"In Sheri's particular case, we suspected sarcoidosis but needed a tissue sample from one of the bone lesions to confirm it," says O'Connor. "There was a higher level of stress for her and me. Are we going to get the tissue that will get the answers? Thankfully, we did."

Sarcoidosis tends to affect adults between 20 and 40.

People of Scandinavian, German or Irish descent and African-Americans appear to be at greater risk.

The disease affects men and women equally, although black women get the disease twice as often as black men do.

Wolfe is glad to finally know what ails her.

"To have so many doctors at other places tell you it's something else, and then to finally get the diagnosis -- it's wonderful," she says.

Wolfe is now being treated with an oral steroid to reduce the inflammation in her body. Pascual says that over time he hopes the lesions will dissipate, her lungs will be spared much scarring and her bones will begin to regenerate. So far, she's tolerating the treatment well, despite an array of side effects.

"I'm still coughing, but not as badly as in the past," she says. "I keep telling myself that treatment will not last forever. I'm very hopeful."

She's looking forward to the day when she can once again enjoy the active lifestyle she had given up.

"I think of everything I want to do -- travel, garden, take hikes," Wolfe says. "Hiking was a huge thing for me. I loved to hike, but I had such a hard time walking. I can see that now in the future."

To request an appointment at Mayo Clinic ville, call or complete our online appointment request form:

document.write("");

Home | About Mayo | Medical Services | Patient's Guide | College of Medicine | Jobs | Contact

TERMS OF USE AND INFORMATION APPLICABLE TO THIS SITE

Use of This Site Signifies Your Agreement To the Terms of Use

Copyright ©2001-2006 Mayo Foundation for Medical Education and Research. All Rights Reserved.

[Guest guest]

Very interesting and helpful...thanks again!tiodaat@... wrote: I used bone pain with sarcoidosis. http://www.mayoclinic.org/checkup-2006/sarcoidosis-sept.html This one is from FSR: http://www.stopsarcoidosis.org/sarcoidosis/symptoms.htm Mayo Clinic Checkup / September 2006 (Vol. 13, No. 5) A rare find Mysterious bone

pain leads doctors to unexpected diagnosis Finally on the road to recovery, Sheri Wolfe is finding solid ground again in her garden as well as in her life. Even as a child, Sheri Wolfe knew something wasn't right with her body. At age 10, she wrapped bandages around her knees because they hurt so much. Over the years, the pain persisted. Her bones and muscles ached constantly, and she was often fatigued. About 13 years ago, Wolfe was diagnosed with fibromyalgia, but her problems continued to worsen. In December 2005, she was so

weak she couldn't stand. Then she started coughing. Hard. In early February, a violent coughing fit fractured three ribs and sent her to a hospital near her home in Orlando. She was treated for pneumonia, but follow-up tests indicated lung abnormalities and bone lesions hinting at advanced (or spreading) cancer. But no one could confirm a diagnosis. Frustrated by the uncertainty, Wolfe, 42, came to Mayo Clinic in April. After a thorough evaluation, Mayo doctors found that Wolfe had sarcoidosis, an inflammatory disease that typically starts in the lungs but can affect almost any organ in the body. In her case, the disease was also attacking her bones, a rare occurrence. "Bone involvement in sarcoidosis is seen in about 5 percent of patients, typically involving the hands and fingers. In this instance, the disease had spread to areas not usually associated with the disease," says Mayo Clinic surgeon Dr.

O'Connor, who has seen only a handful of cases since arriving at the clinic in 1991. Sarcoidosis is a unique, systemic disease whose cause is unknown. It is often challenging to diagnose because it shows up differently in every patient, explains Dr. Pascual, a pulmonologist at Mayo Clinic. About 90 percent of patients have some involvement of the lungs, Pascual says. "The pieces of the puzzle were finally put together and, believe me, that's priceless." --Sheri Wolfe

Sometimes sarcoidosis develops gradually, producing signs and symptoms on and off for years. Other times, it appears suddenly only to disappear. But the hallmark of the disease is the presence of small clusters of inflamed tissue called noncaseating grandulomas. These tiny cells, though smaller than a grain of sand, can "multiply, conglomerate and cause damage," says Pascual. Many people are unaware they have sarcoidosis. "Sarcoidosis is a disease that can cause no symptoms and doesn't require treatment," says Pascual, who sees roughly 20 cases a year. "But once diagnosed, it needs to be monitored because extensive tissue inflammation can cause scaring." Sarcoidosis patients typically have some sort of cough, shortness of breath or enlarged lymph nodes in the chest. Because these can be symptoms of other disorders, Pascual says initial

diagnosis can be challenging, which explains why Wolfe probably had received so many conflicting opinions. Her case also was unusual in that she had bone pain and lesions. A full body X-ray revealed masses on her ribs, sternum and left and right hip bones. To confirm a diagnosis, O'Connor performed an open bone biopsy, "an uncomfortable procedure," she says, which was compounded by uncertainty. "In Sheri's particular case, we suspected sarcoidosis but needed a tissue sample from one of the bone lesions to confirm it," says O'Connor. "There was a higher level of stress for her and me. Are we going to get the tissue that will get the answers? Thankfully, we did." Sarcoidosis tends to affect adults between 20 and 40. People of Scandinavian, German or Irish descent and African-Americans appear to be at greater risk. The disease affects men and women equally, although black women get the disease twice as often as black men do. Wolfe is glad to finally know what ails her. "To have so many doctors at other places tell you it's something else, and then to finally get the diagnosis -- it's wonderful," she says. Wolfe is now being treated with an oral steroid to reduce the inflammation in her body. Pascual says that over time he hopes the lesions will dissipate, her lungs will be spared much scarring and her bones will begin to regenerate. So far, she's tolerating the

treatment well, despite an array of side effects. "I'm still coughing, but not as badly as in the past," she says. "I keep telling myself that treatment will not last forever. I'm very hopeful." She's looking forward to the day when she can once again enjoy the active lifestyle she had given up. "I think of everything I want to do -- travel, garden, take hikes," Wolfe says. "Hiking was a huge thing for me. I loved to hike, but I had such a hard time walking. I can see that now in the future." To request an appointment at Mayo Clinic ville, call or complete our online appointment request form: document.write(""); Home | About Mayo | Medical Services | Patient's Guide | College of Medicine | Jobs | Contact TERMS OF USE AND INFORMATION APPLICABLE TO THIS SITE Use of This Site Signifies Your Agreement To the Terms of Use Copyright ©2001-2006 Mayo Foundation for Medical Education and Research. All Rights Reserved. Mayo Clinic Checkup / September 2006 (Vol. 13, No. 5) A rare find Mysterious bone pain leads doctors to unexpected diagnosis Finally on the road to recovery, Sheri Wolfe is finding solid ground again in her garden as well as in her life. Even as a child, Sheri Wolfe knew something wasn't right with her body. At age 10, she wrapped bandages around her knees because they hurt so much. Over the years, the pain persisted. Her bones and muscles ached constantly, and she was often

fatigued. About 13 years ago, Wolfe was diagnosed with fibromyalgia, but her problems continued to worsen. In December 2005, she was so weak she couldn't stand. Then she started coughing. Hard. In early February, a violent coughing fit fractured three ribs and sent her to a hospital near her home in Orlando. She was treated for pneumonia, but follow-up tests indicated lung abnormalities and bone lesions hinting at advanced (or spreading) cancer. But no one could confirm a diagnosis. Frustrated by the uncertainty, Wolfe, 42, came to Mayo Clinic in April. After a thorough evaluation, Mayo doctors found that Wolfe had sarcoidosis, an inflammatory disease that typically starts in the lungs but can affect almost any organ in the body. In her case, the disease was also attacking her bones, a rare occurrence. "Bone involvement in sarcoidosis is seen in about 5 percent of patients, typically involving the hands and fingers. In this instance,

the disease had spread to areas not usually associated with the disease," says Mayo Clinic surgeon Dr. O'Connor, who has seen only a handful of cases since arriving at the clinic in 1991. Sarcoidosis is a unique, systemic disease whose cause is unknown. It is often challenging to diagnose because it shows up differently in every patient, explains Dr. Pascual, a pulmonologist at Mayo Clinic. About 90 percent of patients have some involvement of the lungs, Pascual says. "The pieces of the puzzle were finally put together and, believe me, that's priceless." --Sheri Wolfe Sometimes sarcoidosis develops gradually, producing signs and symptoms on and off for years. Other times, it appears suddenly only to disappear. But the hallmark of the disease is the presence of small clusters of inflamed tissue called noncaseating grandulomas.

These tiny cells, though smaller than a grain of sand, can "multiply, conglomerate and cause damage," says Pascual. Many people are unaware they have sarcoidosis. "Sarcoidosis is a disease that can cause no symptoms and doesn't require treatment," says Pascual, who sees roughly 20 cases a year. "But once diagnosed, it needs to be monitored because extensive tissue inflammation can cause scaring." Sarcoidosis patients typically have some sort of cough, shortness of breath or enlarged lymph nodes in the chest. Because these can be symptoms of other disorders, Pascual says initial diagnosis can be challenging, which explains why Wolfe probably had received so many conflicting opinions. Her case also was unusual in that she had bone pain and lesions. A full body X-ray revealed masses on her ribs, sternum and left and right hip bones. To confirm a diagnosis, O'Connor performed an open bone biopsy, "an uncomfortable procedure," she says,

which was compounded by uncertainty. "In Sheri's particular case, we suspected sarcoidosis but needed a tissue sample from one of the bone lesions to confirm it," says O'Connor. "There was a higher level of stress for her and me. Are we going to get the tissue that will get the answers? Thankfully, we did." Sarcoidosis tends to affect adults between 20 and 40. People of Scandinavian, German or Irish descent and African-Americans appear to be at greater risk. The disease affects men and women equally, although black women get the disease twice as often as black men do. Wolfe is glad to finally know what ails her. "To have so many doctors at other places tell you it's

something else, and then to finally get the diagnosis -- it's wonderful," she says. Wolfe is now being treated with an oral steroid to reduce the inflammation in her body. Pascual says that over time he hopes the lesions will dissipate, her lungs will be spared much scarring and her bones will begin to regenerate. So far, she's tolerating the treatment well, despite an array of side effects. "I'm still coughing, but not as badly as in the past," she says. "I keep telling myself that treatment will not last forever. I'm very hopeful." She's looking forward to the day when she can once again enjoy the active lifestyle she had given up. "I think of everything I want to do -- travel, garden, take hikes," Wolfe says. "Hiking was a huge thing for me. I loved to hike, but I had such a hard time walking. I can see that now in the future." To request an appointment at Mayo Clinic ville, call or complete our online appointment request form: document.write(""); Home | About Mayo | Medical Services | Patient's Guide | College of Medicine | Jobs | Contact TERMS OF USE AND INFORMATION APPLICABLE TO THIS SITE Use of This Site Signifies Your Agreement To the Terms of Use Copyright ©2001-2006 Mayo Foundation for Medical Education and Research. All Rights Reserved.

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[Guest guest]

Im having a new pain that i havent experienced before, my ankles

and wrists are painful and feel swollen although they dont look it,

but thats not new, just hasnt happened for the last year or so, the

new one is pain in my right forearm that feels so deep it could almost

be in the bone more than the soft tissue. This is very, very, did I

mention very unpleasant, and is bothering me almost all the time the

last few days.

Part of what is happening is that your adrenals aren't putting out the cortisol that they should. The solu-medrol (prednisone) has made it so that you aren't producing this natural hormone that kills pain.

I do hope that they've given you oral prednisone to wean you off the solu-medrol infusions. Even a low dose 10mg may be helpful in addition to the MTX.

One of the biggest challenges to control is that wonderful "inside the bone" pain. What I've found is that MSM (puremsm.com) is wonderful for this pain. It is a natural mineral that should be in our foods and soil. However, the genetic scientists decided we could do without it, and have engineered it out of our foods and soils. The other component is that the steroids have depleted the calcium in your bones-- and you need addl -- right now your body is leaching the calcium and the magnesium from your bones-- and that makes for bone pain. Nasty, nasty, nasty bone pain.

The MTX is going to take another month or two to really kick in, and it may be that you'll need to have them add Plaquenil (hydroxychloroquine) to the cocktail. This really helped with the lymph and lung pain.

Also-- and I know that I hit on this every time this issue comes up-- if you are not hydrating well-- and it's the beginning of summertime, the constant inflammation in your system is sucking you dry. Take a couple of days, and keep a written journal of how much you are drinking. Eliminate sodas, caffeine drinks, and those fake juices-- that are primarily sugar and high fructose corn syrup.

Decaf teas, and water, and 100% natural juice is good. If you run high blood sugars- be aware of how much juice you're downing, as it does work extremely fast to raise blood sugar.

Seriously, many of us have that nasty bone pain-- and it is the MSM powder (1 tbsp in 1/4 cup water) and follow it with a full glass of water, and within minutes the pain subsides. If you don't like the taste of the MSM-- then add a small amount of honey or brown sugar to the water, or add the MSM to your tea. You can't overdose on it, and it has no side effects or drug interactions. It truly is a natural mineral that we are supposed to have in our body in order for muscles and ligaments to heal, and it is water soluble, so just like Vit C-- to high a dose and you pee it out.

Hope this helps,

Tracie

NS Co-owner/moderator

************************************** See what's free at http://www.aol.com.

[Guest guest]

I'm not much of a meat eater so I have been adding a tablespoon of Blackstrap Molasses to my first cup of coffee everyday. That one little tablespoon has 70% of the daily iron requirement. Won't help your bone pain but I know my eating habits are horrible especially when the weather heats up like it has been. It's been 90 for days & we don't usually get this crap until August! grannylunatic@...

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[Guest guest]

Thanks everyone, at least now I have some idea of whats causing this,

I see the neuro next week so will bark at him about it then. In the

meantime, I jsut ordered some of the msm and will give it a shot, hell

at this point Id take a chance on just about anything! As far as the

steriods go, they never took me off the oral pred whicl I ws having

the solumed infrsions, so am still taking the 20mg daily. I was

thingking the other day, its now been almost 12 years since i have

been off the pred, bet thats not such a good thing eh?

anyway, have a great weekend folks, here in Spoknae its supposd to be

in the med 70's, perfect weather for workig in the garden, so when my

kids are done doing that, Ill feel much better!!!!!!LOL

Stu

>

> I'm not much of a meat eater so I have been adding a tablespoon of

Blackstrap Molasses to my first cup of coffee everyday. That one

little tablespoon has 70% of the daily iron requirement. Won't help

your bone pain but I know my eating habits are horrible especially

when the weather heats up like it has been. It's been 90 for days & we

don't usually get this crap until August!

>

>

>

>

>

> grannylunatic@...

>

> ---------------------------------

> Got a little couch potato?

> Check out fun summer activities for kids.

>

[Guest guest]

12 yrs on pred-- I am totally sure you'll never get off that one. No wonder your bones are hurting-- hell, you've probably not got much in the way of bones left. Needless to say, your adrenals aren't going to be able to produce cortisol, so you are a lifer on that one.

Do you have hypercalcemia or hypercaluria? If not, talk to him about getting a good calcium magnesium supplement. YOu might want to look at www.arthritis.org and check out the Vitamin/Mineral supplement issue--

arthritis today magazine has both a drug issue and a vitamin issue. It explains which calcium is most effectively asborbed. (It can't be absorbed without magnesium-- so it has to have that component also) For me, ARTHRITIS TODAY is the best $20 bucks I spend a year on any magazine. The money goes to the Arthritis Foundation- so it is tax deductible.

You will be amazed at the MSM-- those that have tried it (with the exception of Rose who doesn't like the taste) have had good results with lowering their pain levels.

Take care, and have a good time with the Neuro next week.

tracie

ns co-owner/moderator

************************************** See what's free at http://www.aol.com.

[Guest guest]

so I have been adding a tablespoon of Blackstrap Molasses to my first cup of coffee everyday. That one little tablespoon has 70% of the daily iron requirement. Won't help your bone pain but I know my eating habits are horrible especially when the weather heats up

This sounds really good, and I bet that if you added a shot of Irish Whiskey to it in addition-- oh lalala!!!!!!!!!!la************************************** See what's free at http://www.aol.com.

[Guest guest]

Stu I envy your weather! It's been in the 90's here and no where near enough rain. I did my "rain dance" in the moonlight but it didn't help. Rose, can you help us out here? At midnight tomorrow we all rain dance for the farmers! grannylunatic@...

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[Guest guest]

Well I do already walk like I'm drunk so I might as well try the Irish whiskey! I wonder how that would mix with 60 mg Cymbalta & 800 mg Neurontin????? Might start having flashbacks! LOL Ok, I'll stick to honey in the coffee. Less visits to the ER that way & I did just break my foot. One thing I have noticed since I started the Cytoxan is that I have almost no muscle tone left. Could be because I've been a conscious veggie for 2 years? Not that I was ever all that fit. I am concerned since my bones are also thinning that I might break something. My bone doc said I am gaining bone in my spine(a little) but he's concerned about the neck of my hip that's losing bone mass. You would think you had your hand wrapped around an 80 year old. Guess I need to drag out the hand weights? I've been on Actonel

for a couple of years but I admit I forget to take it so that could also be a problem. I think I found a new apartment! It's on the first floor of a 2 family and there are only 2 steps to get out so I could at least start walking again. I love the apt I am in but can't get outside without help. Sometimes it feels like solitary confinement especially since I'm awake from 5 pm to 5 am. The suns starting to come up so it's time to get back in the bed. Have a good daylight y'all! grannylunatic@...

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[Guest guest]

You say you walk like your drinking as if thats a bad thing. Heck at

this point if Im walking at all Im one happy camper!! ( and a bit of

a nip once in a great while dont hurt much either).........inn fact my

buddy if coming over today to take me out for some pool and a cold one

or two. Havent gotten to do that in months and months so am looking

forward to it, but I sure hope I dont shoot the damned cue ball across

the bar and knockout the bartender. You kow they frown on that kind

of stuff, and last time I tried to play pool on my own table in the

basement I shot out the window, I was shaking so badly I had no

control. My son was sure happy about having to reglaze that one,hee

hee! Now he barks at me if I even go past the stupid table, Dad!!!!

dont you even think about it!!!!!!!!

Little does the rotten kid know I go down in the middle of the night,

you know thats when normal people sleep, not like us vampires, and

knock around the balls, and I havent shattered even one window since

the first inicident,,,,,,of course that might just be self

preservation, that kid can get pretty excited!!

Hes kinda fun to tease when hes mad though.

Cya

>

> Well I do already walk like I'm drunk so I might as well try the

Irish whiskey! I wonder how that would mix with 60 mg Cymbalta & 800

mg Neurontin????? Might start having flashbacks! LOL Ok, I'll stick to

honey in the coffee. Less visits to the ER that way & I did just break

my foot.

>

> One thing I have noticed since I started the Cytoxan is that I

have almost no muscle tone left. Could be because I've been a

conscious veggie for 2 years? Not that I was ever all that fit. I am

concerned since my bones are also thinning that I might break

something. My bone doc said I am gaining bone in my spine(a little)

but he's concerned about the neck of my hip that's losing bone mass.

You would think you had your hand wrapped around an 80 year old. Guess

I need to drag out the hand weights? I've been on Actonel for a couple

of years but I admit I forget to take it so that could also be a

problem. I think I found a new apartment! It's on the first floor of a

2 family and there are only 2 steps to get out so I could at least

start walking again. I love the apt I am in but can't get outside

without help. Sometimes it feels like solitary confinement especially

since I'm awake from 5 pm to 5 am. The suns starting to come up so

it's time to get back in the bed. Have a good

> daylight y'all!

>

>

>

>

>

>

>

> grannylunatic@...

>

> ---------------------------------

> Park yourself in front of a world of choices in alternative vehicles.

> Visit the Yahoo! Auto Green Center.

>

[Guest guest]

Stu It's not the drunken walk I mind it's the falling down part I hate! Have a beer & shoot some pool for me! I haven't gotten to do that in years. I used to close the bars down but now all I close down is the local Goodwill! LOL The cashiers even comment if my cart isn't as full as my usual. I guess the GW is my version of the bar "Cheers". They may not know my name but they know my face & shopping habits. LOL grannylunatic@...

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