Re: GFCF diet for Golbal apraxia??

April 10, 2007

Look for my previous posts. Many of our kids have a true gluten-

sensitivity. Some are undiagnosed celiacs. It is quite possible that

there is some link between apraxia and gluten-sensitivity...at least

for a portion of apraxic kids. The majority of children screened for

celiac disease who posted their results here had elevated antibodies to

gliadin (wheat). This is more than one would expect just by chance. I

suspect this is a syndrome. Before going gluten-free, have a test for

celiac disease done (blood test). Once gluten-free the blood test is no

longer reliable. If your child has antibodies to gliadin, ie a wheat

allergy/sensitivity or celiac disease...than a gluten-free diet is not

just an option...its essential and life-long.

-

> Hello, We just saw a DAN! doctor and he suggested a GFCF diet for

our daughter....I know it's been helpful for children on the autism

spectrum. Has anyone had any success with it for global apraxia?

thanks. Tara in NJ

>

> ---------------------------------

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April 10, 2007

We just had a consultation with a nutritionist who knows supplements

and diets for children with apraxia(and many other problems). We had

our daughter who has global apraxia, low tone, sensory issues , on a

gluten free diet for the past month before we had the appointment

with the nutritionist just last week. She said since our daughter's

blood levels ,that just refered to in her post to you, were

normal and because we saw no obvious change with the diet, she felt

gluten was not an issue in impacting her condition. But to be sure we

could do a urine test that would indicate if there was a reaction

(sensitivity)to casein and/or gluten. The test is done by the GREAT

PLAINS LABORATORY 888-347-2781 and is called the Urinary Peptides for

gluten and casein. We took her off the restricted diet for a week now

so that when we do the urine test it will reflect her respose to

gluten. She has been more irritable but it is most likely do to no

naps and staying up later since all the children are off of

school.Cheryl

>

> Hello, We just saw a DAN! doctor and he suggested a GFCF diet for

our daughter....I know it's been helpful for children on the autism

spectrum. Has anyone had any success with it for global apraxia?

thanks. Tara in NJ

>

> ---------------------------------

> 8:00? 8:25? 8:40? Find a flick in no time

> with the Search movie showtime shortcut.

>

April 11, 2007

Hi -

We had my son on the GFCF diet for about 6 months. We took him off of

it about 3 months ago and so far we haven't seen any negative

reaction. His blood test was negative for gluten problems. However

his urine peptite test came back 3 times the normal limit for gluten

and casein. That urine test was done before we put him on the diet.

About 3 months after being on the diet we had another urine test

done. This time his gluten peptides were in range but his casein

peptides had actually increased to greater than what he had before we

started the diet. I found that strange.

Since he is still doing well we don't plan to put him back on the

diet. With our son the urine test seemed to be a bit flakey.

BTW - If anyone is in Charlotte, NC I have a bunch of GFCF food that

I would like to give to someone.

-

> >

> > Hello, We just saw a DAN! doctor and he suggested a GFCF diet

for

> our daughter....I know it's been helpful for children on the autism

> spectrum. Has anyone had any success with it for global apraxia?

> thanks. Tara in NJ

> >

> > ---------------------------------

> > 8:00? 8:25? 8:40? Find a flick in no time

> > with the Search movie showtime shortcut.

> >

April 11, 2007

My personal belief from reading posts here for that last year and

other autism boards. And from my experience with my son (verbal

apraxia & mild sensory). GFCF works but you have to go 100% -- then

slowly try adding an item back with Kirkman DPP-IV or Houston

Enzymes.

If you anwer yes to any of these questions, GFCF may be helpful.

Did your child have any of these more than once...

Constipation?

Diarrhea?

Ear infections?

Dark circles under eyes?

Cravings for bread, milk, or cheese?

Bloated tummy

> >

> > Hello, We just saw a DAN! doctor and he suggested a GFCF diet

for

> our daughter....I know it's been helpful for children on the

autism

> spectrum. Has anyone had any success with it for global apraxia?

> thanks. Tara in NJ

> >

> > ---------------------------------

> > 8:00? 8:25? 8:40? Find a flick in no time

> > with the Search movie showtime shortcut.

> >

April 11, 2007

GREAT NEWS! What DAN did you see and in what State? Was there a wait?

I would suggest doing the gf/cf diet. I pretty much knew my kid had a

problem with casien so I started that first. Then I started gluten

frree with the help of a mother who had 3 very sick (now recovered)

kids.

Many of our (toxic) kids have leaky gut. I would have never believed

it until testing proved it to me. My son's behavior 2 weeks into the

diet was beyond bad and then he continued to get better. It was very

subtle but he was more even, his contant ear infection/runny nose while

not completely healed started to go away.

It is important to heal the gut as the supplements that you are putting

in there has a better shot of absorbing properly.

I'd give it an honest try.. 6 mos minimum. I thaugt it would be

difficult, but found a bakery and it was easy to replace his foods.

>

> Hello, We just saw a DAN! doctor and he suggested a GFCF diet for

our daughter....I know it's been helpful for children on the autism

spectrum. Has anyone had any success with it for global apraxia?

thanks. Tara in NJ

>

> ---------------------------------

> 8:00? 8:25? 8:40? Find a flick in no time

> with the Search movie showtime shortcut.

>

April 11, 2007

Just wanted to add that there is a gene test that can be done as

well. It's expensive, so find out if your insurance covers it

first. It does NOT " prove " you have celiac disease at all, but if

you do not have the gene, you have less than 5% chance of having

celiac disease. The % of caucasians who carry the gene is pretty

high (in the 40's%?), so there's not a huge correlation in the

positive... Also keep in mind that there is such a thing as non-

celiac gluten intolerance.

in NJ

> Look for my previous posts. Many of our kids have a true gluten-

> sensitivity. Some are undiagnosed celiacs. It is quite possible

that

> there is some link between apraxia and gluten-sensitivity...at

least

> for a portion of apraxic kids. The majority of children screened

for

> celiac disease who posted their results here had elevated

antibodies to

> gliadin (wheat). This is more than one would expect just by chance.

I

> suspect this is a syndrome. Before going gluten-free, have a test

for

> celiac disease done (blood test). Once gluten-free the blood test

is no

> longer reliable. If your child has antibodies to gliadin, ie a

wheat

> allergy/sensitivity or celiac disease...than a gluten-free diet is

not

> just an option...its essential and life-long.

>

> -

>

> > Hello, We just saw a DAN! doctor and he suggested a GFCF diet

for

> our daughter....I know it's been helpful for children on the autism

> spectrum. Has anyone had any success with it for global apraxia?

> thanks. Tara in NJ

> >

> > ---------------------------------

> > 8:00? 8:25? 8:40? Find a flick in no time

> > with the Search movie showtime shortcut.

> >

April 11, 2007

Thanks for the update....Gayle Parr and I are coming for sure.... Kennedy is

a ?????....Fay

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