Guest guest Posted September 23, 2001 Report Share Posted September 23, 2001 In a message dated 9/23/01 9:03:33 PM Pacific Daylight Time, okerdo@... writes: << What I'm talking about is the post that have nothing to do with anything like the address for a catalog. I just think that that kind of information would be best used by sending it directly to the person who is in need of it. >> Donna, I agree that there are tons of posts in this group...But I also think that the chit chat IS important to some... I love to laugh and this group keeps me on my toes... I agree with Roy too..... we did have another site just for RP information and maybe it's time that we check into this again...It just didn't seem to work out the first time.. I belonged to another support group (not for RP) and there were SO many restrictions that it was silly... it also was depressing... All you ever heard was about the disease and never got your mind on anything else...That kind of group is not for me. Maybe we could put in the subject line " not rp related " or something to that effect and those who don't want to read it can delete it.. I've always been happy with the way the group is (probably because I'm the blabber mouth)LOL and I too would like to get the catalog. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2001 Report Share Posted September 23, 2001 In a message dated 9/23/01 9:03:33 PM Pacific Daylight Time, okerdo@... writes: << What I'm talking about is the post that have nothing to do with anything like the address for a catalog. I just think that that kind of information would be best used by sending it directly to the person who is in need of it. >> Donna, I agree that there are tons of posts in this group...But I also think that the chit chat IS important to some... I love to laugh and this group keeps me on my toes... I agree with Roy too..... we did have another site just for RP information and maybe it's time that we check into this again...It just didn't seem to work out the first time.. I belonged to another support group (not for RP) and there were SO many restrictions that it was silly... it also was depressing... All you ever heard was about the disease and never got your mind on anything else...That kind of group is not for me. Maybe we could put in the subject line " not rp related " or something to that effect and those who don't want to read it can delete it.. I've always been happy with the way the group is (probably because I'm the blabber mouth)LOL and I too would like to get the catalog. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2001 Report Share Posted September 24, 2001 Hi : I think that your idea of labeling is a good one. I don't have time to read everything and at the same time I don't want to delete posts that are intended for the whole group. I too like to laugh and play and even enjoy the jokes. It is easy to identify the jokes by the title some of the time so I skip them and go back later when I have time to read them. I think you make a good point in addressing the need for a site that is not so sterile that your restricted, so labeling could be a way to meet everyone needs. Thanks for the in put Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2001 Report Share Posted September 24, 2001 Hi : I think that your idea of labeling is a good one. I don't have time to read everything and at the same time I don't want to delete posts that are intended for the whole group. I too like to laugh and play and even enjoy the jokes. It is easy to identify the jokes by the title some of the time so I skip them and go back later when I have time to read them. I think you make a good point in addressing the need for a site that is not so sterile that your restricted, so labeling could be a way to meet everyone needs. Thanks for the in put Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2001 Report Share Posted September 24, 2001 In a message dated 09/23/2001 10:44:20 PM Central Daylight Time, RLR1999@... writes: << On the other hand over the past years I have seen this group lose a lot of members because they could not keep up with the mail. Roy, I've been saying there has to be a better way for a while. I've been part of the group for a little over a year and I have been overwhelmed with the amount of mail. I'm trying to keep up with it, but it's a full time job and then some. I've asked Heidi to put me on Digest, but I'm not sure that is a solution. I know if I miss a day online, that I'll be catching up for days. There is just no way to deal with this amount of mail and do other things (like eat) actually do other things like teach a class (which I am trying to do, but I get so behind on my messages and then it becomes a choice of deleting hundreds of messages, or spending a week or more trying to catch up. Any solutions would be greatly appreciated. Thanks, Judy Ostry >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2001 Report Share Posted September 24, 2001 In a message dated 09/23/2001 10:44:20 PM Central Daylight Time, RLR1999@... writes: << On the other hand over the past years I have seen this group lose a lot of members because they could not keep up with the mail. Roy, I've been saying there has to be a better way for a while. I've been part of the group for a little over a year and I have been overwhelmed with the amount of mail. I'm trying to keep up with it, but it's a full time job and then some. I've asked Heidi to put me on Digest, but I'm not sure that is a solution. I know if I miss a day online, that I'll be catching up for days. There is just no way to deal with this amount of mail and do other things (like eat) actually do other things like teach a class (which I am trying to do, but I get so behind on my messages and then it becomes a choice of deleting hundreds of messages, or spending a week or more trying to catch up. Any solutions would be greatly appreciated. Thanks, Judy Ostry >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2001 Report Share Posted September 24, 2001 In a message dated 09/23/2001 11:03:39 PM Central Daylight Time, okerdo@... writes: << but I also noticed I haven't seen any posts for most of the people that used to in the group. >> Donna, I agree. As much as I try, I can't keep up with the mail and have a life too. I don't pretend to know what the solution is, but I know it is a problem. Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2001 Report Share Posted September 24, 2001 In a message dated 09/23/2001 11:03:39 PM Central Daylight Time, okerdo@... writes: << but I also noticed I haven't seen any posts for most of the people that used to in the group. >> Donna, I agree. As much as I try, I can't keep up with the mail and have a life too. I don't pretend to know what the solution is, but I know it is a problem. Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2001 Report Share Posted September 24, 2001 Donna, I agree. As much as I try, I can't keep up with the mail and have a life too. I don't pretend to know what the solution is, but I know it is a problem. Judy I believe that all of us basically want the same thing. A safe place to vent stress and share information regarding the RP. I don't really have any solutions but I think as a group, getting input and ideas from group members will allow us to find a solution that will meet all of our needs. It was suggested, that we could label the post as regarding the content of the post. I also want to everyone to know that I am in no way trying to point fingers at anybody I just would like us to find a way to meet all of our needs. I think that we should toss some ideas around and come to some sort of agreement. So far the suggestions that I have read were to: 1) label posts 2) send personal messages that don't include group to personal E-mail address 3) Condense posts so they address more that one response Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2001 Report Share Posted September 24, 2001 Donna, I agree. As much as I try, I can't keep up with the mail and have a life too. I don't pretend to know what the solution is, but I know it is a problem. Judy I believe that all of us basically want the same thing. A safe place to vent stress and share information regarding the RP. I don't really have any solutions but I think as a group, getting input and ideas from group members will allow us to find a solution that will meet all of our needs. It was suggested, that we could label the post as regarding the content of the post. I also want to everyone to know that I am in no way trying to point fingers at anybody I just would like us to find a way to meet all of our needs. I think that we should toss some ideas around and come to some sort of agreement. So far the suggestions that I have read were to: 1) label posts 2) send personal messages that don't include group to personal E-mail address 3) Condense posts so they address more that one response Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2001 Report Share Posted September 25, 2001 This is just a suggestion, and I do it as much as the next person but we need to quit the "one liners." Sometimes there is 10 messages from the same person for each individual person, they could be compressed into one message. I also love to read all my messages to stay in touch for support but it is overwhelming...Love as always. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2001 Report Share Posted September 25, 2001 This is just a suggestion, and I do it as much as the next person but we need to quit the "one liners." Sometimes there is 10 messages from the same person for each individual person, they could be compressed into one message. I also love to read all my messages to stay in touch for support but it is overwhelming...Love as always. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2003 Report Share Posted January 12, 2003 I will be in the boynton beach area of florida for two weeks and wanted to know if there are any support groups that meet regularly in that area? also if they are doctor/patient groups or could I crash for a meeting? sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2005 Report Share Posted February 17, 2005 Hi , Thanks for asking! The group went well. It was so fun to meet people I'd been talking or emailing with and to see them " on the right path " , so to speak! There were 2 other families besides and I. The next one is Sat. 26th at 1 pm at Borders in Fairfax. It was great to share our stories. I'd only heard bits and pieces of everyone's experience so far. One of our " topics " for this month will probably be transitioning to the shoes since the other two families' babies are going to be starting shoes very soon. Best, Joanne W. Message: 16 Date: Thu, 17 Feb 2005 16:21:43 -0000 Subject: RE:Re: strengthening calf muscle/occupational therapy Joanne, I was wondering how the support group went? Or did I miss a post about it? How many people came? When is the next one? Quote Link to comment Share on other sites More sharing options...
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