leah

[Guest guest]

Kudos, Leah, on how you are handling it. You are right, her hands

are small!!!! And the school classroom education is the perfect way

to go. It has worked wonders for us. Last year when had to

be fed through the PIC-catheter line (backpack on her pack, line

going up her arm) we did show-and-tell with the class. Kids asked

lots of questions, and then they were fine.

The amazing thing is how many never even mentioned it to their

parents!!!! The kids just thought it was fine because they

understood it, and the teacher and school weren't making a big deal

out of it, etc. to this day still has her bag of snacks on

her desk, and no one ever says a word.

> > At what age did you start to explain to your child about RSS and

> > what it means? We are going to the conference again this summer

> and

> > I'm not sure how to explain it to him. Also, Colin is a twin and

> the

> > size difference has really increased lately since he hasn't

gained

> > weight (and not much height) and his twin sister is 90%ile for

> > height. I hear her telling him " I'm bigger than you " all the

time

> > and it makes me so sad for him.

> >

> > Thanks,

> >

> > Colin (RSS) and Hayden - 3-1/2

> > Grant - 5 mo.