Guest guest Posted August 10, 2001 Report Share Posted August 10, 2001 Cristine, I feel exactly as you do. I don't know what the future holds. My faith and hope is challenged. I've been active all my life and am afraid of a life in wheelchair, crutches, etc. As I said in an earlier msg, the thought of getting a handicapped placard was a big step for me, but now I welcome it (can't wait to get it) because of the problem I'm having with breathing. Do you guys ever find yourselves sort of " bargaining " (for lack of a better word) for one part of RP and not another? I remember saying to myself I would settle with tracheal involvement if I didn't have a saddle nose. But now that I have both, the saddle nose isn't that obvious (I'm hoping that plastic surgery can fix. Yes or no????) and you don't want tracheal involvement...not that you can make a choice. And I also find myself comparing my disease with other kinds and saying, " well if only I had that I could do ok " , or " thank God I don't have that, " .... Maybe this is a stage in which everyone goes through? It's been suggested that I see a therapist who specializes in chronic illnesses and/or stress management (since the breathing problems can come via stressful situations). Besides this group, a therapist can help you deal with your illness. Cristine, what do you mean when you say you blow up during flights? I flew out to Europe last october and felt ok, though I was on 30mgs of Pred. My feet were swollen during the vacation because we walked alot. I also continued with my exercise regimen. I jump-roped in the hotel room and did abs every night because i insisted that I wasn't going to get fat on Prednisone. I had known about my disease for only 3 mos. I now know that I did too much, but who knew? So what do you do to take care not to " blow up " the next time you go on a trip? Just curious. ________________________________________________________________________ Message: 1 Date: Wed, 8 Aug 2001 21:45:06 EDT From: cmz212@... Subject: Re: Digest Number 1896 I work from home. I'm an arts critic for English publications. I just found out about this disease--I don't know what the future holds--I worry about my mother's capacity to cope with the truth as well, and wonder why my dead father didn't protect me, and dread getting fat frm. steroids, wonder how to keep my dignity if I wind up looking like Quasimodo (floppy ear, saddle nose), am losing my Catholic certitudes (what little I had of them)--and my heart goes out to you, 1896. ===== When choosing the lesser of two evils, I always like the one I haven't tried. -- Mae West __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 Dear , please let us know what your doc wants you to do. I am sorry that none of us in this group can say what *you* might need regarding these highly potent drugs. Even if we had an MD on staff, they would need to see your entire health history. I know that docs often ask several changes on meds before surgery for some. Your doc will help you I am sure. Friday will come soon. hang in there love, ceep In a message dated 1/7/03 1:45:19 PM, Graduate-OSSG writes: << Today, I found out that I can have my TT on January 17--with the surgeon that did my open RNY --his patients rave that his TT's are really great -so quick because I'm, as usual, a self-pay. Anyway I had a question that I don't think has been covered recently--Here goes: I am currently on three meds for my heart (two leaking valves probably phen-phen created)--Anyway, I take: Digoxin--0.25mg Coumadin (Warfarin Sodium)--5mg Coreg--6.25mg Is there a period of time you should stop the drugs--especially the coumadin? I have an appt. with my cardiologist on Friday, but was curious--- Thanks in advance for the help. >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2004 Report Share Posted March 6, 2004 Tracee---yes, I too was on my period---it is not really a big deal. I am also a nurse who works in surgery so trust me when i say that happens all of the time. No one can wear a tampon in surgery anyway---so all i did and what we do for all women that this happens to is wear a pad---no underwear is allowed either--but they stay in place okay---dont worry about it---just be sure to tell the nurse going into surgery so they will know and can help---CIndy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2004 Report Share Posted March 6, 2004 Tracee---yes, I too was on my period---it is not really a big deal. I am also a nurse who works in surgery so trust me when i say that happens all of the time. No one can wear a tampon in surgery anyway---so all i did and what we do for all women that this happens to is wear a pad---no underwear is allowed either--but they stay in place okay---dont worry about it---just be sure to tell the nurse going into surgery so they will know and can help---CIndy Quote Link to comment Share on other sites More sharing options...
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