Guest guest Posted November 19, 2002 Report Share Posted November 19, 2002 Dodie, When you go for your visit, please take your MRI's with you as this type of Doctor is also trained to read them. As with Deborah, it was the neuro-othamologist That actually got the real ball rolling for her correct Dx. Best Regards, See our personal website and photo site: http://www.pdhangout.com http://community.webshots.com/user/tenacitywins > >Reply-To: shydrager >To: <shydrager > >Subject: eyes >Date: Mon, 18 Nov 2002 10:58:40 -0600 > >I have an appointment with a neuro-othamologist (?) Dec. 4th. What can I >expect from him that my regular othamologist wouldn't provide? I feel eye >strain all the time now. Dodie in MO > > >If you do not wish to belong to shydrager, you may >unsubscribe by sending a blank email to > >shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2002 Report Share Posted November 19, 2002 Dodie, When you go for your visit, please take your MRI's with you as this type of Doctor is also trained to read them. As with Deborah, it was the neuro-othamologist That actually got the real ball rolling for her correct Dx. Best Regards, See our personal website and photo site: http://www.pdhangout.com http://community.webshots.com/user/tenacitywins > >Reply-To: shydrager >To: <shydrager > >Subject: eyes >Date: Mon, 18 Nov 2002 10:58:40 -0600 > >I have an appointment with a neuro-othamologist (?) Dec. 4th. What can I >expect from him that my regular othamologist wouldn't provide? I feel eye >strain all the time now. Dodie in MO > > >If you do not wish to belong to shydrager, you may >unsubscribe by sending a blank email to > >shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2002 Report Share Posted November 19, 2002 Greetings Dodie! You wonder: > What can I expect from him that my regular othamologist > wouldn't provide? I feel eye strain all the time now. Well, if you thought your ophthalmologist does lots of tests now, you will find it's just a small number of tests. I went through a battery of tests at my neuro-ophthalmologist (n-o). This included, but was not limited to, field of vision, intensity perception, tests with prisms, tests for dominance, cornea mapping, glocoma (they can only do the eye puff on me - i have a VERY strong reaction to anything near my eyes), normal eye exam (check retinas, check acuity, check glasses vs needed eye perscription, etc). It took several hours to complete all those tests. Once done, compiled and put together as a report, I saw the n-o, who checks for tremor, problems with gait, etc. as you enter his examining room area. The n-o may repeat some of the steps, such as using the most intense light I ever saw. Sheesh! I am photophobic (big time), so the n-o had to use a filter. Still bright, but not as bad. The n-o also checks the motions of the eye in several locations. Follow the finger, look at the finger in the upper right, upper center, upper left. Repeat for the center. Repeat for lower positions. From this I discovered I no longer can look at something in the upper left area. That is, if I move my eye up left, center or right (from worse to least) my eyes jump all around. He also checked how well I follow movement. He used a huge 'de-linter'. You know the idea, a handle with a cylinder that 'rolls' on one end of the handle. However, this cylinder had stripes that allows the doctor to check how well your eye follows those stripes. This was the confirmation of problems with my cerebellum. Other autonomic type problems indicate possible MSA. Since that time I developed a new trick, obviously related to problems with the eyes. Whenever you see a police car, the flashing lights are always on top of the car. Not me. Those flashes of light appear to be all around the car. It's weird. But it's a clear indication my eyes jump all over the place, even when I try to focus on one spot. The good news is the n-o may be able to help with correctable problems (such as using prisms to correct double vision). It's definitely worth the investment of time and money. Hope that helps. Regards, =jbf= B. Fisher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2002 Report Share Posted November 19, 2002 Greetings Dodie! You wonder: > What can I expect from him that my regular othamologist > wouldn't provide? I feel eye strain all the time now. Well, if you thought your ophthalmologist does lots of tests now, you will find it's just a small number of tests. I went through a battery of tests at my neuro-ophthalmologist (n-o). This included, but was not limited to, field of vision, intensity perception, tests with prisms, tests for dominance, cornea mapping, glocoma (they can only do the eye puff on me - i have a VERY strong reaction to anything near my eyes), normal eye exam (check retinas, check acuity, check glasses vs needed eye perscription, etc). It took several hours to complete all those tests. Once done, compiled and put together as a report, I saw the n-o, who checks for tremor, problems with gait, etc. as you enter his examining room area. The n-o may repeat some of the steps, such as using the most intense light I ever saw. Sheesh! I am photophobic (big time), so the n-o had to use a filter. Still bright, but not as bad. The n-o also checks the motions of the eye in several locations. Follow the finger, look at the finger in the upper right, upper center, upper left. Repeat for the center. Repeat for lower positions. From this I discovered I no longer can look at something in the upper left area. That is, if I move my eye up left, center or right (from worse to least) my eyes jump all around. He also checked how well I follow movement. He used a huge 'de-linter'. You know the idea, a handle with a cylinder that 'rolls' on one end of the handle. However, this cylinder had stripes that allows the doctor to check how well your eye follows those stripes. This was the confirmation of problems with my cerebellum. Other autonomic type problems indicate possible MSA. Since that time I developed a new trick, obviously related to problems with the eyes. Whenever you see a police car, the flashing lights are always on top of the car. Not me. Those flashes of light appear to be all around the car. It's weird. But it's a clear indication my eyes jump all over the place, even when I try to focus on one spot. The good news is the n-o may be able to help with correctable problems (such as using prisms to correct double vision). It's definitely worth the investment of time and money. Hope that helps. Regards, =jbf= B. Fisher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2003 Report Share Posted January 3, 2003 Iam having orbital decompression surgery on my eyes cause of aches and pressure I get in my eye area and also my forehead area, but I thing that has alot to do with Graves a thryoid condition Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2003 Report Share Posted May 18, 2003 The first thing for me was a sensitivity to light and the want to wear my sun glasses all the time - when I hadn't worn them much before. Then I felt as if my prescription needed adjusting - as if I couldn't see as well. Then night driving became more and more difficult - even after the new prescription. Then my husband started asking my why I was staring at him - when I wasn't. Then one eye started looking a little buggy. And like it was open more than the other. Then they started to hurt and feel swollen - hurting behind the eye and into the brain feeling. Then they started looking kind of baggy and dark underneath them. -------- Then I discovered Omega 3 and things quickly started reversing themselves and my eyes are as good as new (except I'm still using the same prescription - maybe I should get that checked out, hu?) I posted a big long post about Omega 3 a couple of days ago, but you can also see it here: http://www.webmosaics.com/thyroid/omega3.htm Hope that helps - and since Omega 3 is good for everyone and does so much more than just helping eyes, you might want to consider putting the whole family on some sort of Omega 3 supplement for general good health and preventative against TED for your child. Pam B. -- Eyes Hi I was wondering if someone could tell me some of the signs to look for in the eye disease. My 10 year old has GD. I would like to know what to look for. Thank you all Carole Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2006 Report Share Posted September 29, 2006 Saw eye dr yesterday and he said sarcoid inflammation left eye (for some reason only affects left) and placed me on prednisolone eye drops every hour until better then couple of times per day...also started me on Nevanac eye drops twice per day (is an NSAID for the eye...never heard of it before). Right hand (mostly thumb) hurting and heart doing some weird skips so upped my pred by 2.5 mg this morning (my local rheum has told me to do this if have a flare). Becky, I know that initially it's important to use those pred drops every hour, and then SLOWLY wean off them. If you go off too quickly (from hourly drops to every 4hrs to every 8 hrs to 2x day, etc) you should find you have better success at your eyes not continuing to go back into flare. Just like oral pred-- the eye drops HAVE to be tapered also. As for the thumb pain-- uping the pred is ok-- but if you see that your flare is more systemic (you have eyes and sarc arthritis right now) so it is effecting more than one system- you really need to add something other than the prednisone to get this under control. Both Methotrexate and Plaquenil are good 'steroid' sparing adjuncts that should be added one at a time. You will find that with the MTX- alot more of the arthritic part will mellow out. Also, I can't stress enough the issues of hydration and sugar control when we go into flare. Since all our body joints and ligaments should be "floating" in synovial fluid-- any smallest amount of dehydration causes acute pain. Do take care, Tracie NS Co-owner/moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2006 Report Share Posted September 29, 2006 Tracie,I tried plaquenil (hospitalized for heart problems r/t to it) and mtx (severe GI problems...had GI bleed in past and have diverticulosis so it was stopped). I'm to start cellcept but I talked to my s Hopkins dr today and he said not to start the cellcept until weeks from now b/c didn't want to confuse any side effects from the med with what my body is doing right now...plus he reminded me the cellcept takes months to work so wouldn't do anything for this flare. This is going to sound strange but a couple of minutes after using the eye drops I can taste a bitter taste in my throat...also, have had diarrhea today and I'm wondering if it could be due to the eye drops...I appreciate your reply very much. My pred (oral( was increased more than it was at first (25 per day) so I hope that helps.........again, thank you, Beckyb itiodaat@... wrote: In a message dated 9/29/06 1:49:49 PM Pacific Daylight Time, macandtosh626 (AT) yahoo (DOT) com writes: Saw eye dr yesterday and he said sarcoid inflammation left eye (for some reason only affects left) and placed me on prednisolone eye drops every hour until better then couple of times per day...also started me on Nevanac eye drops twice per day (is an NSAID for the eye...never heard of it before). Right hand (mostly thumb) hurting and heart doing some weird skips so upped my pred by 2.5 mg this morning (my local rheum has told me to do this if have a flare). Becky, I know that initially it's important to use those pred drops every hour, and then SLOWLY wean off them. If you go off too quickly (from hourly drops to every 4hrs to every 8 hrs to 2x day, etc) you should find you have better success at your eyes not continuing to go back into flare. Just like oral pred-- the eye drops HAVE to be tapered also. As for the thumb pain-- uping the pred is ok-- but if you see that your flare is more systemic (you have eyes and sarc arthritis right now) so it is effecting more than one system- you really need to add something other than the prednisone to get this under control. Both Methotrexate and Plaquenil are good 'steroid' sparing adjuncts that should be added one at a time. You will find that with the MTX- alot more of the arthritic part will mellow out. Also, I can't stress enough the issues of hydration and sugar control when we go into flare. Since all our body joints and ligaments should be "floating" in synovial fluid-- any smallest amount of dehydration causes acute pain. Do take care, Tracie NS Co-owner/moderator All-new Yahoo! Mail - Fire up a more powerful email and get things done faster. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2006 Report Share Posted September 29, 2006 This is going to sound strange but a couple of minutes after using the eye drops I can taste a bitter taste in my throat...also, have had diarrhea today and I'm wondering if it could be due to the eye drops...I appreciate your reply very much. My pred (oral( was increased more than it was at first (25 per day) so I hope that helps.........again, thank you, It's not weird. Remember that the lacrimal ducts in the eyes, drain into the nasal cavity, (cry and you get a runny nose) and then the medication drains down the back of your throat. As far as the eye drops causing the diarrhea-- not likely. But I know when I'm on prednisone- I will have loose stools and bowel movements every few hours. (gets everything into high gear.) Get the acidophyllus and make sure you take the prednisone with food on your stomach-- and see if that helps. The reason I doubt the eye drops is that the amount you apply each time is so small, and even though some of it goes down the back of the throat, it's not enough to do in the gut. Have you tried imuran? That too is an immunosuppresant, and has alot less side effects-- and man it knocks the inflammation out within a couple of days. For me, it was hard on my liver- but surprisingly, with the Remicade, my liver enzymes are all in the "normal" range now. I'll have to read up on Cellcept. It is not a new drug, but not one that I've seen anything on it being used for sarc. Take care, Tracie PS. When you put the drops in-- take your finger and push gently against the lacrimal duct in the corner (nasally) of the eye lid-- and that will close off that duct-- give it about a minute- and more of the drop will actually stay on the eye surface- and work better. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.