Re: Vit E and omega 3 treatment for apraxia talk at the Pediatric Acad Meetings

[Guest guest]

Awesome........

Question: Does one know the dosage/mg of Vit E and Omega 3?

...... and how the supplements were given?? I have a 3 year old!!

I would consult a nutritionist or accredited member of a medical team

before giving my son this? Or NO?

I have been wanting to start him on GFCF diet. I'm dragging my feet,

but this is quite fascinating to me. Maybe this is what I needed to

read to get the ball rolling.

My son is 3 about to turn 4 and has been diagnosed with PDD-NOS with

apraxia of speech. Speech is his major delay.

Thank you,

> >

> > I have great news! The below abstract has been accepted at the

> Late-

> > Breaking Platform at the Pediatric Academy Society meetings in

> > Toronto this May 2007 for an oral presentation. This is one of the

> > largest annual pediatric meetings and many general pediatricians

> will

> > be there. This is an incredible opportunity to get information on

> > apraxia out to the general pediatric community. This session is

> also

> > well attended by the media which will likely pick up this story.

> > Hopefully the next step will be a funded clinical trial! Marilyn

> Agin

> > is going to join me there. Anyway this is something you can now

> print

> > out for your pediatrician. It will be published in the PAS/AAP

> > meeting proceedings - so now at least " something " will be

> published.

> > We have a long way to go, since this is still the summary of

> > anecdotal stories, but it is an excellent start. Many thanks to all

> > the families who emailed me clinical information after trying vit E

> +

> > omega 3. You have helped to move this forward. I stopped counting

> > once we hit 50 families. I know there are dozens more out there

> now.

> > And of course, many thanks to

[Guest guest]

_____

From: LEO AND ROXANNE LEONARD [mailto:LEOROXIE@...]

Sent: Sunday, April 01, 2007 1:46 AM

'claudiamorris@...'

Subject: RE: [ ] Re: Vit E and omega 3 treatment for

apraxia talk at the Pediatric Acad Meetings

..I hope these help for your presentation...

Here are my daughters carnitine tests results

Carnitine, serum

Total 28-83 umol/L 21L

Free 22-66 umol/L 16L

Acylcarnitine 3-32 umo1/L 5

AC/FC Ratio 0.1-0.9 0.3 Carnitine Interpretation 09/11/06 1100

In this sample, the total and free carnitine fractions were moderately

reduced, with no accumulation of esterefied species. These findings are

indicative of mild secondary carnitine deficiency, a finding of uncertain

clinical significance.

Vitamin A and Vitamin E

Retinol 776 ug/L range 360-1200

Alpha Tocopherol mg/L 16.8 range Alpha Tocopherol 5.5-17.0

We are anxiously awaiting the results of your presentation.Good Luck

Roxanne

>

> I have great news! The below abstract has been accepted at the

Late-

> Breaking Platform at the Pediatric Academy Society meetings in

> Toronto this May 2007 for an oral presentation. This is one of the

> largest annual pediatric meetings and many general pediatricians

will

> be there. This is an incredible opportunity to get information on

> apraxia out to the general pediatric community. This session is

also

> well attended by the media which will likely pick up this story.

> Hopefully the next step will be a funded clinical trial! Marilyn

Agin

> is going to join me there. Anyway this is something you can now

print

> out for your pediatrician. It will be published in the PAS/AAP

> meeting proceedings - so now at least " something " will be

published.

> We have a long way to go, since this is still the summary of

> anecdotal stories, but it is an excellent start. Many thanks to all

> the families who emailed me clinical information after trying vit E

+

> omega 3. You have helped to move this forward. I stopped counting

> once we hit 50 families. I know there are dozens more out there

now.

> And of course, many thanks to