Where did all of the support and recognition for Autism start

[Guest guest]

WHy is there not recognition for Apraxia as a complicated

neurological disorder that Autism and PPd have? Where did it all

start that studies on THOSE disorders started, that services were

approved, that foundations were established? Is there a resource that

anyone knows of that has started any recognition for apraxia so that

we too can have people stand up and say " oh, your child has Apraxia,

you are entitled to .... " . We are entitled to nothing. I just can't

imagine that. I look at my innocent little daughter not aware of what

she is NOT getting because we have hit a brick wall with our

insurance for not covering services, many of us are being let down by

our schools, our pediatricians don't have a clue about the biomedical

possibilities that are easily accessablto that have helped so many of

our children, and they even prevent some of us from getting an early

diagnosis because they say wait and see, or your child is moving at

their own pace etc....just to name a few. Is there anywhere to write

or contact to offer help in rallying support for families who have

apraxic children so we are not fighting these battles without some

substatiating backing? I'm sure there was a time when families with

autistic children were told " sorry ,this is devastating but under

your policy it states... or sorry but there's no hope for a disorder

like this, or there's just not much information out there on this

subject. " Why is Apraxia so obscure? Cheryl

[Guest guest]

Cheryl,

So far this message board has become my saving grace, and I thank all of you &

wish for strong happy voices every day for your children.

capetalker <capetalker@...> wrote:

WHy is there not recognition for Apraxia as a complicated

neurological disorder that Autism and PPd have? Where did it all

start that studies on THOSE disorders started, that services were

approved, that foundations were established? Is there a resource that

anyone knows of that has started any recognition for apraxia so that

we too can have people stand up and say " oh, your child has Apraxia,

you are entitled to .... " . We are entitled to nothing. I just can't

imagine that. I look at my innocent little daughter not aware of what

she is NOT getting because we have hit a brick wall with our

insurance for not covering services, many of us are being let down by

our schools, our pediatricians don't have a clue about the biomedical

possibilities that are easily accessablto that have helped so many of

our children, and they even prevent some of us from getting an early

diagnosis because they say wait and see, or your child is moving at

their own pace etc....just to name a few. Is there anywhere to write

or contact to offer help in rallying support for families who have

apraxic children so we are not fighting these battles without some

substatiating backing? I'm sure there was a time when families with

autistic children were told " sorry ,this is devastating but under

your policy it states... or sorry but there's no hope for a disorder

like this, or there's just not much information out there on this

subject. " Why is Apraxia so obscure? Cheryl

[Guest guest]

It comes from a very wealthy I believe TV PRODUCER...or Politician's

Grandson having autism....It brought this whole issue to the limelight..as

one of the previous writer's said, unless someone rich and famous has a

child or grandson with Apraxia, it will just be a fight amongst " us " .

Sad but true..

" capetalker "

<capetalker@

.com> To

Sent by:

childrensapraxian cc

et@...

m Subject

[ ] Where did all

of the support and recognition for

03/22/2007 01:16 Autism start

PM

Please respond to

childrensapraxian

et@...

m

WHy is there not recognition for Apraxia as a complicated

neurological disorder that Autism and PPd have? Where did it all

start that studies on THOSE disorders started, that services were

approved, that foundations were established? Is there a resource that

anyone knows of that has started any recognition for apraxia so that

we too can have people stand up and say " oh, your child has Apraxia,

you are entitled to .... " . We are entitled to nothing. I just can't

imagine that. I look at my innocent little daughter not aware of what

she is NOT getting because we have hit a brick wall with our

insurance for not covering services, many of us are being let down by

our schools, our pediatricians don't have a clue about the biomedical

possibilities that are easily accessablto that have helped so many of

our children, and they even prevent some of us from getting an early

diagnosis because they say wait and see, or your child is moving at

their own pace etc....just to name a few. Is there anywhere to write

or contact to offer help in rallying support for families who have

apraxic children so we are not fighting these battles without some

substatiating backing? I'm sure there was a time when families with

autistic children were told " sorry ,this is devastating but under

your policy it states... or sorry but there's no hope for a disorder

like this, or there's just not much information out there on this

subject. " Why is Apraxia so obscure? Cheryl

-----------------------------------------

This transmission may contain information that is privileged,

confidential, legally privileged, and/or exempt from disclosure

under applicable law. If you are not the intended recipient, you

are hereby notified that any disclosure, copying, distribution, or

use of the information contained herein (including any reliance

thereon) is STRICTLY PROHIBITED. Although this transmission and

any attachments are believed to be free of any virus or other

defect that might affect any computer system into which it is

received and opened, it is the responsibility of the recipient to

ensure that it is virus free and no responsibility is accepted by

JP Chase & Co., its subsidiaries and affiliates, as

applicable, for any loss or damage arising in any way from its use.

If you received this transmission in error, please immediately

contact the sender and destroy the material in its entirety,

whether in electronic or hard copy format. Thank you.

[Guest guest]

I thought the same exact thing yesterday when watching

Larry King Live's interview with celebraties with

Autistic kids. I feel like doing something to raise

apraxia awareness and start foundations, but not even

sure what to do.

My son has apraxia severe, so we are in this for the

long haul.

Michele

--- capetalker <capetalker@...> wrote:

> WHy is there not recognition for Apraxia as a

> complicated

> neurological disorder that Autism and PPd have?

> Where did it all

> start that studies on THOSE disorders started, that

> services were

> approved, that foundations were established? Is

> there a resource that

> anyone knows of that has started any recognition for

> apraxia so that

> we too can have people stand up and say " oh, your

> child has Apraxia,

> you are entitled to .... " . We are entitled to

> nothing. I just can't

> imagine that. I look at my innocent little daughter

> not aware of what

> she is NOT getting because we have hit a brick wall

> with our

> insurance for not covering services, many of us are

> being let down by

> our schools, our pediatricians don't have a clue

> about the biomedical

> possibilities that are easily accessablto that have

> helped so many of

> our children, and they even prevent some of us from

> getting an early

> diagnosis because they say wait and see, or your

> child is moving at

> their own pace etc....just to name a few. Is there

> anywhere to write

> or contact to offer help in rallying support for

> families who have

> apraxic children so we are not fighting these

> battles without some

> substatiating backing? I'm sure there was a time

> when families with

> autistic children were told " sorry ,this is

> devastating but under

> your policy it states... or sorry but there's no

> hope for a disorder

> like this, or there's just not much information out

> there on this

> subject. " Why is Apraxia so obscure? Cheryl

>

>

________________________________________________________________________________\

____

Now that's room service! Choose from over 150,000 hotels

in 45,000 destinations on Travel to find your fit.

http://farechase./promo-generic-14795097

[Guest guest]

Autism Speaks was founded by Bob and Suzanne , he is the former head

of NBC and naturally well-connected. They have done a stupendous job with their

fundraising efforts, and with raising awareness.

Here's something I bet you don't know . . .

Their grandson, who was dx'd with autism recently, is recovering via the use

of the BIOMEDICAL interventions that are occasionally discussed on this list

(DAN protocol, diet, chelation, etc.).

Unfortunately, the s have not publicized that particular information,

and the research funded by Autism Speaks does not touch on biomedical

treatments either (they continue to stick to the " genetics " theory). It is sad

that

all that money is wasted, yet they do not choose to say what is *really*

working for their family.

I believe that apraxia (as well as ADHD, sensory integration disorder, and

other speech disorders) are on the autism spectrum. I also believe that apraxia

can be successfully treated with biomed.

My son was dx'd with moderate autism, and severe apraxia. He has recovered

from BOTH diagnoses using the biomedical interventions that many medical

professionals perceive as quackery.

-BJ

************************************** AOL now offers free email to everyone.

Find out more about what's free from AOL at http://www.aol.com.

[Guest guest]

i agree with you. apraxia is commonly co-morbid with autism.( i am special

educator who works with autistic kids). not all autistic kids have apraxia. i

feel that apraxia is something that is in your words " obscure " . i wonder why

myself. I can think of one reason, these children are not labeled correctly and

so there are low numbers that diagnosed this disorder. less children diagnosed

less recognition. it stinks but i had a speech like this too at one time on

this website. its frustrating i know. but i feel that all this fund raising

for autism will also benefit apraxic kids as well. they are both nuerological

so something has to come to benefit both.

holding hands with ya sister

chris

[ ] Where did all of the support and recognition for

Autism start

WHy is there not recognition for Apraxia as a complicated

neurological disorder that Autism and PPd have? Where did it all

start that studies on THOSE disorders started, that services were

approved, that foundations were established? Is there a resource that

anyone knows of that has started any recognition for apraxia so that

we too can have people stand up and say " oh, your child has Apraxia,

you are entitled to .... " . We are entitled to nothing. I just can't

imagine that. I look at my innocent little daughter not aware of what

she is NOT getting because we have hit a brick wall with our

insurance for not covering services, many of us are being let down by

our schools, our pediatricians don't have a clue about the biomedical

possibilities that are easily accessablto that have helped so many of

our children, and they even prevent some of us from getting an early

diagnosis because they say wait and see, or your child is moving at

their own pace etc....just to name a few. Is there anywhere to write

or contact to offer help in rallying support for families who have

apraxic children so we are not fighting these battles without some

substatiating backing? I'm sure there was a time when families with

autistic children were told " sorry ,this is devastating but under

your policy it states... or sorry but there's no hope for a disorder

like this, or there's just not much information out there on this

subject. " Why is Apraxia so obscure? Cheryl

________________________________________________________________________________\

____

Food fight? Enjoy some healthy debate

in the Answers Food & Drink Q & A.

http://answers./dir/?link=list & sid=396545367

[Guest guest]

Autism treatment is often not covered by insurance policies, and

parents are still frequently told there are no useful interventions

and sent off to do speech and OT twice a week and nothing else. We pay

for a lot of our biomed treatment out of pocket, and ABA is not

covered by many insurance plans (when my oldest was first diagnosed, I

got out my policy and it said that ABA was not covered because it is

an " experimental " treatment). I understand your frustration, but it's

not easier for those of us with children who have autism. The reason

why there are organizations (founded by parents) is because the autism

rates are so high (1 in 150 now). We still battle for spec ed services

that are appropriate, insurance coverage, access to doctors who can

help our kids.

>

> WHy is there not recognition for Apraxia as a complicated

> neurological disorder that Autism and PPd have? Where did it all

> start that studies on THOSE disorders started, that services were

> approved, that foundations were established? Is there a resource that

> anyone knows of that has started any recognition for apraxia so that

> we too can have people stand up and say " oh, your child has Apraxia,

> you are entitled to .... " . We are entitled to nothing. I just can't

> imagine that. I look at my innocent little daughter not aware of what

> she is NOT getting because we have hit a brick wall with our

> insurance for not covering services, many of us are being let down by

> our schools, our pediatricians don't have a clue about the biomedical

> possibilities that are easily accessablto that have helped so many of

> our children, and they even prevent some of us from getting an early

> diagnosis because they say wait and see, or your child is moving at

> their own pace etc....just to name a few. Is there anywhere to write

> or contact to offer help in rallying support for families who have

> apraxic children so we are not fighting these battles without some

> substatiating backing? I'm sure there was a time when families with

> autistic children were told " sorry ,this is devastating but under

> your policy it states... or sorry but there's no hope for a disorder

> like this, or there's just not much information out there on this

> subject. " Why is Apraxia so obscure? Cheryl

>

[Guest guest]

I saw the transcript to this show. Toni Braxton stated her child

was initially diagnosed with apraxia which she said was a fancy term

for speech delay. Someone needs to educate her.

M.

>

> > WHy is there not recognition for Apraxia as a

> > complicated

> > neurological disorder that Autism and PPd have?

> > Where did it all

> > start that studies on THOSE disorders started, that

> > services were

> > approved, that foundations were established? Is

> > there a resource that

> > anyone knows of that has started any recognition for

> > apraxia so that

> > we too can have people stand up and say " oh, your

> > child has Apraxia,

> > you are entitled to .... " . We are entitled to

> > nothing. I just can't

> > imagine that. I look at my innocent little daughter

> > not aware of what

> > she is NOT getting because we have hit a brick wall

> > with our

> > insurance for not covering services, many of us are

> > being let down by

> > our schools, our pediatricians don't have a clue

> > about the biomedical

> > possibilities that are easily accessablto that have

> > helped so many of

> > our children, and they even prevent some of us from

> > getting an early

> > diagnosis because they say wait and see, or your

> > child is moving at

> > their own pace etc....just to name a few. Is there

> > anywhere to write

> > or contact to offer help in rallying support for

> > families who have

> > apraxic children so we are not fighting these

> > battles without some

> > substatiating backing? I'm sure there was a time

> > when families with

> > autistic children were told " sorry ,this is

> > devastating but under

> > your policy it states... or sorry but there's no

> > hope for a disorder

> > like this, or there's just not much information out

> > there on this

> > subject. " Why is Apraxia so obscure? Cheryl

> >

> >

>

>

>

>

>

_____________________________________________________________________

_______________

> Now that's room service! Choose from over 150,000 hotels

> in 45,000 destinations on Travel to find your fit.

> http://farechase./promo-generic-14795097

>

[Guest guest]

Hi -

This is an interesting question. I think some of it also might also come from

the buzz about the relationship between autism and thimerosal.

Everyone likes a good scandal, and somehow the thought that the government is

systematically hurting our kids made it very tangible. It was like, " Hey, that

could easily be my kid " . It increased empathy and awareness inadvertently.

Just a thought.

Re: [ ] Where did all of the support and

recognition for Autism start

It comes from a very wealthy I believe TV PRODUCER...or Politician's

Grandson having autism....It brought this whole issue to the limelight..as

one of the previous writer's said, unless someone rich and famous has a

child or grandson with Apraxia, it will just be a fight amongst " us " .

Sad but true..

" capetalker "

<capetalker@

.com> To

Sent by:

childrensapraxian cc

et@...

m Subject

[ ] Where did all

of the support and recognition for

03/22/2007 01:16 Autism start

PM

Please respond to

childrensapraxian

et@...

m

WHy is there not recognition for Apraxia as a complicated

neurological disorder that Autism and PPd have? Where did it all

start that studies on THOSE disorders started, that services were

approved, that foundations were established? Is there a resource that

anyone knows of that has started any recognition for apraxia so that

we too can have people stand up and say " oh, your child has Apraxia,

you are entitled to .... " . We are entitled to nothing. I just can't

imagine that. I look at my innocent little daughter not aware of what

she is NOT getting because we have hit a brick wall with our

insurance for not covering services, many of us are being let down by

our schools, our pediatricians don't have a clue about the biomedical

possibilities that are easily accessablto that have helped so many of

our children, and they even prevent some of us from getting an early

diagnosis because they say wait and see, or your child is moving at

their own pace etc....just to name a few. Is there anywhere to write

or contact to offer help in rallying support for families who have

apraxic children so we are not fighting these battles without some

substatiating backing? I'm sure there was a time when families with

autistic children were told " sorry ,this is devastating but under

your policy it states... or sorry but there's no hope for a disorder

like this, or there's just not much information out there on this

subject. " Why is Apraxia so obscure? Cheryl

-----------------------------------------

This transmission may contain information that is privileged,

confidential, legally privileged, and/or exempt from disclosure

under applicable law. If you are not the intended recipient, you

are hereby notified that any disclosure, copying, distribution, or

use of the information contained herein (including any reliance

thereon) is STRICTLY PROHIBITED. Although this transmission and

any attachments are believed to be free of any virus or other

defect that might affect any computer system into which it is

received and opened, it is the responsibility of the recipient to

ensure that it is virus free and no responsibility is accepted by

JP Chase & Co., its subsidiaries and affiliates, as

applicable, for any loss or damage arising in any way from its use.

If you received this transmission in error, please immediately

contact the sender and destroy the material in its entirety,

whether in electronic or hard copy format. Thank you.

[Guest guest]

I believe (strongly) that there is an entirely missing diagnosis ---

speech and language disorder - ie. apraxia, with some sensory issues -

but very socially engaged. In some Dev Ped eyes it's PDD-NOS, but

in other's its not. Very frustrating.

>

> i agree with you. apraxia is commonly co-morbid with autism.( i am

special educator who works with autistic kids). not all autistic

kids have apraxia. i feel that apraxia is something that is in your

words " obscure " . i wonder why myself. I can think of one reason,

these children are not labeled correctly and so there are low numbers

that diagnosed this disorder. less children diagnosed less

recognition. it stinks but i had a speech like this too at one time

on this website. its frustrating i know. but i feel that all this

fund raising for autism will also benefit apraxic kids as well. they

are both nuerological so something has to come to benefit both.

> holding hands with ya sister

> chris

>

>

> [ ] Where did all of the support and

recognition for Autism start

>

> WHy is there not recognition for Apraxia as a complicated

> neurological disorder that Autism and PPd have? Where did it all

> start that studies on THOSE disorders started, that services were

> approved, that foundations were established? Is there a resource

that

> anyone knows of that has started any recognition for apraxia so

that

> we too can have people stand up and say " oh, your child has

Apraxia,

> you are entitled to .... " . We are entitled to nothing. I just can't

> imagine that. I look at my innocent little daughter not aware of

what

> she is NOT getting because we have hit a brick wall with our

> insurance for not covering services, many of us are being let down

by

> our schools, our pediatricians don't have a clue about the

biomedical

> possibilities that are easily accessablto that have helped so many

of

> our children, and they even prevent some of us from getting an

early

> diagnosis because they say wait and see, or your child is moving at

> their own pace etc....just to name a few. Is there anywhere to

write

> or contact to offer help in rallying support for families who have

> apraxic children so we are not fighting these battles without some

> substatiating backing? I'm sure there was a time when families with

> autistic children were told " sorry ,this is devastating but under

> your policy it states... or sorry but there's no hope for a

disorder

> like this, or there's just not much information out there on this

> subject. " Why is Apraxia so obscure? Cheryl

>

>

>

>

>

>

>

______________________________________________________________________

______________

> Food fight? Enjoy some healthy debate

> in the Answers Food & Drink Q & A.

> http://answers./dir/?link=list & sid=396545367

>

>

[Guest guest]

Connect to the autism community using the DAN protocal -

chelatingkids2 ( group) is beyond great. I think my kid which

better fits into the group is part of the " new " ASD. He is heavy

metal toxic - confirmed and reconfirmed. I went the usual channels

and got nowhere. Finally got apt with a DAN! that was the answer and

I hope that all parents who read this list do the same.

>

> i agree with you. apraxia is commonly co-morbid with autism.( i am

special educator who works with autistic kids). not all autistic

kids have apraxia. i feel that apraxia is something that is in your

words " obscure " . i wonder why myself. I can think of one reason,

these children are not labeled correctly and so there are low numbers

that diagnosed this disorder. less children diagnosed less

recognition. it stinks but i had a speech like this too at one time

on this website. its frustrating i know. but i feel that all this

fund raising for autism will also benefit apraxic kids as well. they

are both nuerological so something has to come to benefit both.

> holding hands with ya sister

> chris

>

>

> [ ] Where did all of the support and

recognition for Autism start

>

> WHy is there not recognition for Apraxia as a complicated

> neurological disorder that Autism and PPd have? Where did it all

> start that studies on THOSE disorders started, that services were

> approved, that foundations were established? Is there a resource

that

> anyone knows of that has started any recognition for apraxia so

that

> we too can have people stand up and say " oh, your child has

Apraxia,

> you are entitled to .... " . We are entitled to nothing. I just can't

> imagine that. I look at my innocent little daughter not aware of

what

> she is NOT getting because we have hit a brick wall with our

> insurance for not covering services, many of us are being let down

by

> our schools, our pediatricians don't have a clue about the

biomedical

> possibilities that are easily accessablto that have helped so many

of

> our children, and they even prevent some of us from getting an

early

> diagnosis because they say wait and see, or your child is moving at

> their own pace etc....just to name a few. Is there anywhere to

write

> or contact to offer help in rallying support for families who have

> apraxic children so we are not fighting these battles without some

> substatiating backing? I'm sure there was a time when families with

> autistic children were told " sorry ,this is devastating but under

> your policy it states... or sorry but there's no hope for a

disorder

> like this, or there's just not much information out there on this

> subject. " Why is Apraxia so obscure? Cheryl

>

>

>

>

>

>

>

______________________________________________________________________

______________

> Food fight? Enjoy some healthy debate

> in the Answers Food & Drink Q & A.

> http://answers./dir/?link=list & sid=396545367

>

>

[Guest guest]

Hi n,

I have been reading about the biomedical recovery of the 's grandson

on another group called EOHarm . . . I will query there to get the actual

source and post it to the list ASAP.

-BJ

************************************** AOL now offers free email to everyone.

Find out more about what's free from AOL at http://www.aol.com.

[Guest guest]

Check out Semantic-Pragmatic Language Disorder, aka hyperlexia.

http://www.hyperlexia.org/sp1.html My son is diagnosed with this as well as

developmental apraxia of speech.

n

I believe (strongly) that there is an entirely missing diagnosis ---

speech and language disorder - ie. apraxia, with some sensory issues -

but very socially engaged. In some Dev Ped eyes it's PDD-NOS, but

in other's its not. Very frustrating.

>

> i agree with you. apraxia is commonly co-morbid with autism.( i am

special educator who works with autistic kids). not all autistic

kids have apraxia. i feel that apraxia is something that is in your

words " obscure " . i wonder why myself. I can think of one reason,

these children are not labeled correctly and so there are low numbers

that diagnosed this disorder. less children diagnosed less

recognition. it stinks but i had a speech like this too at one time

on this website. its frustrating i know. but i feel that all this

fund raising for autism will also benefit apraxic kids as well. they

are both nuerological so something has to come to benefit both.

> holding hands with ya sister

> chris

>

>

> [ ] Where did all of the support and

recognition for Autism start

>

> WHy is there not recognition for Apraxia as a complicated

> neurological disorder that Autism and PPd have? Where did it all

> start that studies on THOSE disorders started, that services were

> approved, that foundations were established? Is there a resource

that

> anyone knows of that has started any recognition for apraxia so

that

> we too can have people stand up and say " oh, your child has

Apraxia,

> you are entitled to .... " . We are entitled to nothing. I just can't

> imagine that. I look at my innocent little daughter not aware of

what

> she is NOT getting because we have hit a brick wall with our

> insurance for not covering services, many of us are being let down

by

> our schools, our pediatricians don't have a clue about the

biomedical

> possibilities that are easily accessablto that have helped so many

of

> our children, and they even prevent some of us from getting an

early

> diagnosis because they say wait and see, or your child is moving at

> their own pace etc....just to name a few. Is there anywhere to

write

> or contact to offer help in rallying support for families who have

> apraxic children so we are not fighting these battles without some

> substatiating backing? I'm sure there was a time when families with

> autistic children were told " sorry ,this is devastating but under

> your policy it states... or sorry but there's no hope for a

disorder

> like this, or there's just not much information out there on this

> subject. " Why is Apraxia so obscure? Cheryl

>

>

>

>

>

>

>

__________________________________________________________

______________

> Food fight? Enjoy some healthy debate

> in the Answers Food & Drink Q & A.

> http://answers./dir/?link=list & sid=396545367

>

>

[Guest guest]

Can you give the source that states the recovery of their grandson via

biomedical treatments? I'd like to read it.

n

Autism Speaks was founded by Bob and Suzanne , he is the former head

of NBC and naturally well-connected. They have done a stupendous job with

their

fundraising efforts, and with raising awareness.

Here's something I bet you don't know . . .

Their grandson, who was dx'd with autism recently, is recovering via the use

of the BIOMEDICAL interventions that are occasionally discussed on this list

(DAN protocol, diet, chelation, etc.).

Unfortunately, the s have not publicized that particular information,

and the research funded by Autism Speaks does not touch on biomedical

treatments either (they continue to stick to the " genetics " theory). It is sad

that

all that money is wasted, yet they do not choose to say what is *really*

working for their family.

I believe that apraxia (as well as ADHD, sensory integration disorder, and

other speech disorders) are on the autism spectrum. I also believe that

apraxia

can be successfully treated with biomed.

My son was dx'd with moderate autism, and severe apraxia. He has recovered

from BOTH diagnoses using the biomedical interventions that many medical

professionals perceive as quackery.

-BJ

************************************** AOL now offers free email to everyone.

Find out more about what's free from AOL at http://www.aol.com.

[Guest guest]

The s' grandson Christian has not recovered, though he is

treated biomedically. Suzanne was on Larry King Live the other

night, and said he still talks very little. My impression is that he

also has an ABA program, but I didn't tape the show, so I can't check

that.

>

> Can you give the source that states the recovery of their grandson

via biomedical treatments? I'd like to read it.

> n

>

> Autism Speaks was founded by Bob and Suzanne , he is the

former head

> of NBC and naturally well-connected. They have done a stupendous

job with their

> fundraising efforts, and with raising awareness.

>

> Here's something I bet you don't know . . .

>

> Their grandson, who was dx'd with autism recently, is recovering

via the use

> of the BIOMEDICAL interventions that are occasionally discussed on

this list

> (DAN protocol, diet, chelation, etc.).

>

> Unfortunately, the s have not publicized that particular

information,

> and the research funded by Autism Speaks does not touch on biomedical

> treatments either (they continue to stick to the " genetics "

theory). It is sad that

> all that money is wasted, yet they do not choose to say what is

*really*

> working for their family.

>

> I believe that apraxia (as well as ADHD, sensory integration

disorder, and

> other speech disorders) are on the autism spectrum. I also believe

that apraxia

> can be successfully treated with biomed.

>

> My son was dx'd with moderate autism, and severe apraxia. He has

recovered

> from BOTH diagnoses using the biomedical interventions that many

medical

> professionals perceive as quackery.

>

> -BJ

>

> ************************************** AOL now offers free email

to everyone.

> Find out more about what's free from AOL at http://www.aol.com.

>

>

[Guest guest]

Can someone provide me a link to the biomedical. I have seen it but know

nothing about it.

Thank you.

jennifer

[ ] Re: Where did all of the support and recognition

for Autism start

Hi n,

I have been reading about the biomedical recovery of the 's grandson

on another group called EOHarm . . . I will query there to get the actual

source and post it to the list ASAP.

-BJ

************ ********* ********* ******** AOL now offers free email to everyone.

Find out more about what's free from AOL at http://www.aol. com.

[Guest guest]

that's very true. I see a lot of kids that are very autistic at the beginning

and through therapy and the grace of god the child has less of non social

behavior. so what is it when you have a child you described? I think Apraxia

should have other things as symptoms with it. meaning not just speech related

descriptions. I think that child has Apraxia. it should be a syndrome.

chris

[childrensapraxiane t] Where did all of the support and

recognition for Autism start

>

> WHy is there not recognition for Apraxia as a complicated

> neurological disorder that Autism and PPd have? Where did it all

> start that studies on THOSE disorders started, that services were

> approved, that foundations were established? Is there a resource

that

> anyone knows of that has started any recognition for apraxia so

that

> we too can have people stand up and say " oh, your child has

Apraxia,

> you are entitled to .... " . We are entitled to nothing. I just can't

> imagine that. I look at my innocent little daughter not aware of

what

> she is NOT getting because we have hit a brick wall with our

> insurance for not covering services, many of us are being let down

by

> our schools, our pediatricians don't have a clue about the

biomedical

> possibilities that are easily accessablto that have helped so many

of

> our children, and they even prevent some of us from getting an

early

> diagnosis because they say wait and see, or your child is moving at

> their own pace etc....just to name a few. Is there anywhere to

write

> or contact to offer help in rallying support for families who have

> apraxic children so we are not fighting these battles without some

> substatiating backing? I'm sure there was a time when families with

> autistic children were told " sorry ,this is devastating but under

> your policy it states... or sorry but there's no hope for a

disorder

> like this, or there's just not much information out there on this

> subject. " Why is Apraxia so obscure? Cheryl

>

>

>

>

>

>

>

____________ _________ _________ _________ _________ _________ _

____________ __

> Food fight? Enjoy some healthy debate

> in the Answers Food & Drink Q & A.

> http://answers. / dir/?link= list & sid= 396545367

>

>

[Guest guest]

-

You are absolutely right. My almost 4 year old is diagnosed with only

appraxia. She has so many other symptoms in Pdd but so subtle that I

see a common thread as I look back at maybe 10 evaluations now with

various professionals that these problems are briefly mentioned but

always attributed to " the child got tired " , or " didn't want to

cooperate " , etc. Or sometimes they are not noticed because she TRIES

to follow directions and is social ,with us , but in a very immature

way with the evaluators.. Even our neuro Dr. indicated once the

apraxic child is up and talking, many times, once they are in school

a whole new problem comes to sight. This has to be part of a syndrome

not identified.

-- In , Rome

<christinerome@...> wrote:

>

> that's very true. I see a lot of kids that are very autistic at

the beginning and through therapy and the grace of god the child has

less of non social behavior. so what is it when you have a child you

described? I think Apraxia should have other things as symptoms with

it. meaning not just speech related descriptions. I think that child

has Apraxia. it should be a syndrome.

> chris

>

>

> [childrensapraxiane t] Where did all of the support and

> recognition for Autism start

> >

> > WHy is there not recognition for Apraxia as a complicated

> > neurological disorder that Autism and PPd have? Where did it all

> > start that studies on THOSE disorders started, that services were

> > approved, that foundations were established? Is there a resource

> that

> > anyone knows of that has started any recognition for apraxia so

> that

> > we too can have people stand up and say " oh, your child has

> Apraxia,

> > you are entitled to .... " . We are entitled to nothing. I just

can't

> > imagine that. I look at my innocent little daughter not aware of

> what

> > she is NOT getting because we have hit a brick wall with our

> > insurance for not covering services, many of us are being let

down

> by

> > our schools, our pediatricians don't have a clue about the

> biomedical

> > possibilities that are easily accessablto that have helped so

many

> of

> > our children, and they even prevent some of us from getting an

> early

> > diagnosis because they say wait and see, or your child is moving

at

> > their own pace etc....just to name a few. Is there anywhere to

> write

> > or contact to offer help in rallying support for families who

have

> > apraxic children so we are not fighting these battles without

some

> > substatiating backing? I'm sure there was a time when families

with

> > autistic children were told " sorry ,this is devastating but under

> > your policy it states... or sorry but there's no hope for a

> disorder

> > like this, or there's just not much information out there on this

> > subject. " Why is Apraxia so obscure? Cheryl

> >

> >

> >

> >

> >

> >

> >

> ____________ _________ _________ _________ _________ _________ _

> ____________ __

> > Food fight? Enjoy some healthy debate

> > in the Answers Food & Drink Q & A.

> > http://answers. / dir/?link= list & sid= 396545367

> >

> >

[Guest guest]

Cheryl...did you ever get on the Vit K website? I did but I can't understand

most of it. I guess now I understand why new people are so confused at first

about the omegas and E and all the other things we talk about. Aggie

[childrensapraxiane t] Where did all of the support and

> recognition for Autism start

> >

> > WHy is there not recognition for Apraxia as a complicated

> > neurological disorder that Autism and PPd have? Where did it all

> > start that studies on THOSE disorders started, that services were

> > approved, that foundations were established? Is there a resource

> that

> > anyone knows of that has started any recognition for apraxia so

> that

> > we too can have people stand up and say " oh, your child has

> Apraxia,

> > you are entitled to .... " . We are entitled to nothing. I just

can't

> > imagine that. I look at my innocent little daughter not aware of

> what

> > she is NOT getting because we have hit a brick wall with our

> > insurance for not covering services, many of us are being let

down

> by

> > our schools, our pediatricians don't have a clue about the

> biomedical

> > possibilities that are easily accessablto that have helped so

many

> of

> > our children, and they even prevent some of us from getting an

> early

> > diagnosis because they say wait and see, or your child is moving

at

> > their own pace etc....just to name a few. Is there anywhere to

> write

> > or contact to offer help in rallying support for families who

have

> > apraxic children so we are not fighting these battles without

some

> > substatiating backing? I'm sure there was a time when families

with

> > autistic children were told " sorry ,this is devastating but under

> > your policy it states... or sorry but there's no hope for a

> disorder

> > like this, or there's just not much information out there on this

> > subject. " Why is Apraxia so obscure? Cheryl

> >

> >

> >

> >

> >

> >

> >

> ____________ _________ _________ _________ _________ _________ _

> ____________ __

> > Food fight? Enjoy some healthy debate

> > in the Answers Food & Drink Q & A.

> > http://answers. / dir/?link= list & sid= 396545367

> >

> >

[Guest guest]

I'm not a perfect resource -- but I will help if I can. I have

learned so much in the past few years -- especially the past year --

I swear I should be half way to another degree!

> > >

> > > i agree with you. apraxia is commonly co-morbid with autism.(

i

> am

> > special educator who works with autistic kids). not all

autistic

> > kids have apraxia. i feel that apraxia is something that is in

your

> > words " obscure " . i wonder why myself. I can think of one

reason,

> > these children are not labeled correctly and so there are low

> numbers

> > that diagnosed this disorder. less children diagnosed less

> > recognition. it stinks but i had a speech like this too at one

time

> > on this website. its frustrating i know. but i feel that all

this

> > fund raising for autism will also benefit apraxic kids as well.

> they

> > are both nuerological so something has to come to benefit both.

> > > holding hands with ya sister

> > > chris

> > >

> > >

> > > [childrensapraxiane t] Where did all of the support

and

> > recognition for Autism start

> > >

> > > WHy is there not recognition for Apraxia as a complicated

> > > neurological disorder that Autism and PPd have? Where did it

all

> > > start that studies on THOSE disorders started, that services

were

> > > approved, that foundations were established? Is there a

resource

> > that

> > > anyone knows of that has started any recognition for apraxia

so

> > that

> > > we too can have people stand up and say " oh, your child has

> > Apraxia,

> > > you are entitled to .... " . We are entitled to nothing. I just

> can't

> > > imagine that. I look at my innocent little daughter not aware

of

> > what

> > > she is NOT getting because we have hit a brick wall with our

> > > insurance for not covering services, many of us are being let

> down

> > by

> > > our schools, our pediatricians don't have a clue about the

> > biomedical

> > > possibilities that are easily accessablto that have helped so

> many

> > of

> > > our children, and they even prevent some of us from getting

an

> > early

> > > diagnosis because they say wait and see, or your child is

moving

> at

> > > their own pace etc....just to name a few. Is there anywhere

to

> > write

> > > or contact to offer help in rallying support for families who

> have

> > > apraxic children so we are not fighting these battles without

> some

> > > substatiating backing? I'm sure there was a time when

families

> with

> > > autistic children were told " sorry ,this is devastating but

under

> > > your policy it states... or sorry but there's no hope for a

> > disorder

> > > like this, or there's just not much information out there on

this

> > > subject. " Why is Apraxia so obscure? Cheryl

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > ____________ _________ _________ _________ _________ _________ _

> > ____________ __

> > > Food fight? Enjoy some healthy debate

> > > in the Answers Food & Drink Q & A.

> > > http://answers. / dir/?link= list & sid= 396545367

> > >

> > >

[Guest guest]

>

> Can you give the source that states the recovery of their grandson

via biomedical treatments? I'd like to read it.

> n

>

> Autism Speaks was founded by Bob and Suzanne , he is the

former head

> of NBC and naturally well-connected. They have done a stupendous

job with their

> fundraising efforts, and with raising awareness.

>

> Here's something I bet you don't know . . .

>

> Their grandson, who was dx'd with autism recently, is recovering

via the use

> of the BIOMEDICAL interventions that are occasionally discussed

on this list

> (DAN protocol, diet, chelation, etc.).

Happy to report that, today, (daughter of NBC head Bob

) is posting to the group Evidence of Harm (EOHarm). Her

son Christian sees DAN doctor Krigsman, and they are following

biomedical interventions and seeing progress. I am not at liberty to

copy the post to this list, if anyone wishes to see the EOH thread

please subscribe to that group by sending an email to this link:

EOHarm-subscribe

-BJ

[Guest guest]

Can you tell me what SCD is? Aggie

[childrensapraxiane t] Where did all of the support

and

> > recognition for Autism start

> > >

> > > WHy is there not recognition for Apraxia as a complicated

> > > neurological disorder that Autism and PPd have? Where did it

all

> > > start that studies on THOSE disorders started, that services

were

> > > approved, that foundations were established? Is there a

resource

> > that

> > > anyone knows of that has started any recognition for apraxia

so

> > that

> > > we too can have people stand up and say " oh, your child has

> > Apraxia,

> > > you are entitled to .... " . We are entitled to nothing. I just

> can't

> > > imagine that. I look at my innocent little daughter not aware

of

> > what

> > > she is NOT getting because we have hit a brick wall with our

> > > insurance for not covering services, many of us are being let

> down

> > by

> > > our schools, our pediatricians don't have a clue about the

> > biomedical

> > > possibilities that are easily accessablto that have helped so

> many

> > of

> > > our children, and they even prevent some of us from getting

an

> > early

> > > diagnosis because they say wait and see, or your child is

moving

> at

> > > their own pace etc....just to name a few. Is there anywhere

to

> > write

> > > or contact to offer help in rallying support for families who

> have

> > > apraxic children so we are not fighting these battles without

> some

> > > substatiating backing? I'm sure there was a time when

families

> with

> > > autistic children were told " sorry ,this is devastating but

under

> > > your policy it states... or sorry but there's no hope for a

> > disorder

> > > like this, or there's just not much information out there on

this

> > > subject. " Why is Apraxia so obscure? Cheryl

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > ____________ _________ _________ _________ _________ _________ _

> > ____________ __

> > > Food fight? Enjoy some healthy debate

> > > in the Answers Food & Drink Q & A.

> > > http://answers. / dir/?link= list & sid= 396545367

> > >

> > >

[Guest guest]

>

> Can you tell me what SCD is? Aggie

The Specific Carbohydrate Diet™ (SCD™)

The Specific Carbohydrate Diet™ (SCD™) and other grain-free or starch-

free dietary interventions.

The SCD™ is based on the premise that limiting the diet to simple

sugars (usually for at least a year) will starve out toxic organisms

in the gastrointestinal (GI) tract and restore gut integrity and

immune function.

It eliminates starches and most sugars, and consists mainly of meats,

fish, eggs, vegetables, fruits, nuts, and seeds. Although it was used

previously for adults with IBD and other GI disorders, some parents

of children with autism who have tried the SCD™ have reported relief

from symptoms like diarrhea and constipation, and after a time, from

multiple food intolerances. Some significant behavioral improvements

have also been reported.

There are several different theories about why the SCD™, and related

programs advocated by DAN! doctors may be beneficial for certain

children with Autism Spectrum Disorders.

Theories about the effectiveness of a grain-free and/or starch-free

diet:

It is theorized that yeast and bacteria in the gut are responsible

for causing damage to the gut lining, and their continued presence is

preventing it from healing properly. This could be responsible for

allowing peptides such as those from gluten and dairy to pass into

the bloodstream and affect brain function.

It is possible that the yeasts and bacteria that live in the gut

actually cause or contribute to behavioral disruptions. The finding

of dermorphin (an opiate substance produced by bacteria) in the urine

of some autistic children may indicate that in some cases this is

where the abnormal behaviors are coming from.

Many children with autism have multiple food intolerances, often

unidentified. High on that list are corn, rice, and other grains.

Eliminating all of these foods for a time may allow the GI immune

system to stabilize, and will usually provide relief from GI problems

like constipation and diarrhea.

The most promising things about this type of intervention are:

Some children with autism and their parents have found that food

intolerances are greatly reduced after a year or so, and some foods

can be safely re-introduced.

Removing starchy carbohydrates results in a much more healthful

diet, as " carb-addicted " ASD children will usually begin to accept

more meat, vegetables, and fruit.

Behavioral improvements such as better sleep, eye contact, and

increased cognitive function have been reported by many, and are

usually apparent within a month.

The most difficult things about this type of intervention are:

Many of the children are already on an extremely limited diet due to

allergies, intolerances, and sensory issues, and they may have

problems getting adequate nutrition on this diet.

There is often an initial adverse reaction to the removal of sugars

and starches which is similar to that which is seen with anti-fungal

treatment. This is called a " Herxheimer reaction " or " die-off

reaction, " as yeasts and bacteria die, and release toxins along with

their stronghold in the gut. This effect usually lasts from a few

days to a few weeks, and is generally considered to be a good sign

which will result in improvements after it is over.

There is much conflicting information on the Internet and on various

support lists about which diets are " best. " Further, some of the

reasons given for a food being excluded are not always clear. For a

table that compares the recommendations for food restrictions on the

GF/CF Diet, the SCD™, and the BED, click here.

Note: There is some concern among DAN! Doctors, such as Dr.

Hicks, about the effects of excess protein on the kidneys. Many

advise a more moderate approach: removing potatoes, white rice, and

corn, but allowing certain grains like brown rice, amaranth, quinoa,

buckwheat, millet, and montina. (See article, ANDI News, Volume VI,

Issue 4.)

How strict does this diet need to be?

For GI disorders like ulcerative colitis and Crohns Disease, it has

been reported that strict adherence to the SCD™ is required for

healing and the relief of symptoms. In the case of autism disorders,

many people believe that such rigor is necessary to the achieve full

results, while others have noted that cutting a substantial amount of

starches and sugars will yield significant benefits, and that the

level of adherence can be fine-tuned to meet the needs of the

individual and the family.

The Dairy Debate:

Most of the grain-free diets allow dairy products, however, they were

not designed for children on the autism spectrum. Many children with

autism are seriously affected by opiate peptides resulting from

improperly digested milk and wheat proteins (see studies). Most

autism medical practitioners who support dietary interventions are

adamant that it is important to keep the dairy out of the diet,

regardless of claims that certain yogurts or cheeses will be

tolerated after the gut has healed.

Those who maintain that specially-prepared goat-milk yogurt should be

introduced after some time on the SCD™ argue that:

Although the benefits of the SCD™ are not limited to those who use

this goat yogurt, it has been reported to have sped up healing and

led to improvements in health and functioning in some ASD children

and others on the SCD™.

After the gut has healed, some ASD children will tolerate this

yogurt, which is abundant in beneficial bacteria.

The special way that the yogurt is processed may not eliminate casein

and lactose, but seems to reduce the quantity.

The arguments against using specially-prepared goat-milk yogurt are:

De-natured milk proteins - goat or otherwise - can still become

opiate peptides during the digestive process. Although a mild short-

term regression might be due to a die-off from the natural probiotics

in the yogurt, some children have been reported to experience opiate-

like symptoms such as change in pupil size, severely increased

stimming, pain insensitivity, and serious behavioral regressions.

There is some concern that even after some time on the GF/CF diet,

each dietary infringement raises the sensitivity of the opiate

receptor sites, and it is theorized that this could allow these

children to react adversely to all kinds of opiate exposures,

including the body's natural endorphins. 3. We have no way of

knowing when the gut is fully healed, which children can tolerate

this yogurt, and which cannot. It is unclear whether the yogurt

would be safe for every child after some period of time, or whether

there are some children for whom it will never be safe.

The main benefits of such a yogurt are the quality and quantity of

probiotics contained within. These can be obtained in high-quality

dairy-free capsules and powders. Milk fat may also be helpful as a

nesting ground for these probiotics, but the benefits of this should

be obtainable using ghee, which is a form of clarified butter in

which the proteins have been almost completely removed.

We do not believe there is sufficient data to support either

argument, and we caution parents against those who claim that they

have such data. As with any intervention, we recommend that you look

for facts, listen to opinions, and make up your own mind. Until there

is considerably more science behind diets like the SCD™ for autism,

and until we fully understand the mechanism by which dairy is doing

damage in these children, our current stand on this issue is to

continue to avoid dairy products for children who have reacted

adversely to them in the past.

For more information on the SCD™, you can buy or borrow a copy

of " Breaking the Vicious Cycle " by Elaine Gottschall, or use other

resources on the Internet to fully understand the guidelines for the

SCD™, including the ASD & SCD™ Website at http://www.pecanbread.com/.

There are several other sources of information about grains, health,

and chronic illness. A well-known advocate of the grain-free diet is

Dr. ph Mercola. You may also be interested in reading about the

Paleolithic Diet or the SCD™ at the Healing Crow website. Another

similar approach can be found at the Body Ecology Diet website:

www.bodyecologydiet.com and at our BED summary.

For a comparison of the many published low-carbohydrate diets that

are most commonly used for weight-loss or health in adults, visit

http://www.lowcarb.ca/atkins-diet-and-low-carb-plans/.

[Guest guest]

>

> Can you tell me what SCD is? Aggie

The Specific Carbohydrate Diet™ (SCD™)

The Specific Carbohydrate Diet™ (SCD™) and other grain-free or starch-

free dietary interventions.

The SCD™ is based on the premise that limiting the diet to simple

sugars (usually for at least a year) will starve out toxic organisms

in the gastrointestinal (GI) tract and restore gut integrity and

immune function.

It eliminates starches and most sugars, and consists mainly of meats,

fish, eggs, vegetables, fruits, nuts, and seeds. Although it was used

previously for adults with IBD and other GI disorders, some parents

of children with autism who have tried the SCD™ have reported relief

from symptoms like diarrhea and constipation, and after a time, from

multiple food intolerances. Some significant behavioral improvements

have also been reported.

There are several different theories about why the SCD™, and related

programs advocated by DAN! doctors may be beneficial for certain

children with Autism Spectrum Disorders.

Theories about the effectiveness of a grain-free and/or starch-free

diet:

It is theorized that yeast and bacteria in the gut are responsible

for causing damage to the gut lining, and their continued presence is

preventing it from healing properly. This could be responsible for

allowing peptides such as those from gluten and dairy to pass into

the bloodstream and affect brain function.

It is possible that the yeasts and bacteria that live in the gut

actually cause or contribute to behavioral disruptions. The finding

of dermorphin (an opiate substance produced by bacteria) in the urine

of some autistic children may indicate that in some cases this is

where the abnormal behaviors are coming from.

Many children with autism have multiple food intolerances, often

unidentified. High on that list are corn, rice, and other grains.

Eliminating all of these foods for a time may allow the GI immune

system to stabilize, and will usually provide relief from GI problems

like constipation and diarrhea.

The most promising things about this type of intervention are:

Some children with autism and their parents have found that food

intolerances are greatly reduced after a year or so, and some foods

can be safely re-introduced.

Removing starchy carbohydrates results in a much more healthful

diet, as " carb-addicted " ASD children will usually begin to accept

more meat, vegetables, and fruit.

Behavioral improvements such as better sleep, eye contact, and

increased cognitive function have been reported by many, and are

usually apparent within a month.

The most difficult things about this type of intervention are:

Many of the children are already on an extremely limited diet due to

allergies, intolerances, and sensory issues, and they may have

problems getting adequate nutrition on this diet.

There is often an initial adverse reaction to the removal of sugars

and starches which is similar to that which is seen with anti-fungal

treatment. This is called a " Herxheimer reaction " or " die-off

reaction, " as yeasts and bacteria die, and release toxins along with

their stronghold in the gut. This effect usually lasts from a few

days to a few weeks, and is generally considered to be a good sign

which will result in improvements after it is over.

There is much conflicting information on the Internet and on various

support lists about which diets are " best. " Further, some of the

reasons given for a food being excluded are not always clear. For a

table that compares the recommendations for food restrictions on the

GF/CF Diet, the SCD™, and the BED, click here.

Note: There is some concern among DAN! Doctors, such as Dr.

Hicks, about the effects of excess protein on the kidneys. Many

advise a more moderate approach: removing potatoes, white rice, and

corn, but allowing certain grains like brown rice, amaranth, quinoa,

buckwheat, millet, and montina. (See article, ANDI News, Volume VI,

Issue 4.)

How strict does this diet need to be?

For GI disorders like ulcerative colitis and Crohns Disease, it has

been reported that strict adherence to the SCD™ is required for

healing and the relief of symptoms. In the case of autism disorders,

many people believe that such rigor is necessary to the achieve full

results, while others have noted that cutting a substantial amount of

starches and sugars will yield significant benefits, and that the

level of adherence can be fine-tuned to meet the needs of the

individual and the family.

The Dairy Debate:

Most of the grain-free diets allow dairy products, however, they were

not designed for children on the autism spectrum. Many children with

autism are seriously affected by opiate peptides resulting from

improperly digested milk and wheat proteins (see studies). Most

autism medical practitioners who support dietary interventions are

adamant that it is important to keep the dairy out of the diet,

regardless of claims that certain yogurts or cheeses will be

tolerated after the gut has healed.

Those who maintain that specially-prepared goat-milk yogurt should be

introduced after some time on the SCD™ argue that:

Although the benefits of the SCD™ are not limited to those who use

this goat yogurt, it has been reported to have sped up healing and

led to improvements in health and functioning in some ASD children

and others on the SCD™.

After the gut has healed, some ASD children will tolerate this

yogurt, which is abundant in beneficial bacteria.

The special way that the yogurt is processed may not eliminate casein

and lactose, but seems to reduce the quantity.

The arguments against using specially-prepared goat-milk yogurt are:

De-natured milk proteins - goat or otherwise - can still become

opiate peptides during the digestive process. Although a mild short-

term regression might be due to a die-off from the natural probiotics

in the yogurt, some children have been reported to experience opiate-

like symptoms such as change in pupil size, severely increased

stimming, pain insensitivity, and serious behavioral regressions.

There is some concern that even after some time on the GF/CF diet,

each dietary infringement raises the sensitivity of the opiate

receptor sites, and it is theorized that this could allow these

children to react adversely to all kinds of opiate exposures,

including the body's natural endorphins. 3. We have no way of

knowing when the gut is fully healed, which children can tolerate

this yogurt, and which cannot. It is unclear whether the yogurt

would be safe for every child after some period of time, or whether

there are some children for whom it will never be safe.

The main benefits of such a yogurt are the quality and quantity of

probiotics contained within. These can be obtained in high-quality

dairy-free capsules and powders. Milk fat may also be helpful as a

nesting ground for these probiotics, but the benefits of this should

be obtainable using ghee, which is a form of clarified butter in

which the proteins have been almost completely removed.

We do not believe there is sufficient data to support either

argument, and we caution parents against those who claim that they

have such data. As with any intervention, we recommend that you look

for facts, listen to opinions, and make up your own mind. Until there

is considerably more science behind diets like the SCD™ for autism,

and until we fully understand the mechanism by which dairy is doing

damage in these children, our current stand on this issue is to

continue to avoid dairy products for children who have reacted

adversely to them in the past.

For more information on the SCD™, you can buy or borrow a copy

of " Breaking the Vicious Cycle " by Elaine Gottschall, or use other

resources on the Internet to fully understand the guidelines for the

SCD™, including the ASD & SCD™ Website at http://www.pecanbread.com/.

There are several other sources of information about grains, health,

and chronic illness. A well-known advocate of the grain-free diet is

Dr. ph Mercola. You may also be interested in reading about the

Paleolithic Diet or the SCD™ at the Healing Crow website. Another

similar approach can be found at the Body Ecology Diet website:

www.bodyecologydiet.com and at our BED summary.

For a comparison of the many published low-carbohydrate diets that

are most commonly used for weight-loss or health in adults, visit

http://www.lowcarb.ca/atkins-diet-and-low-carb-plans/.

[Guest guest]

>

> Can you tell me what SCD is? Aggie

The Specific Carbohydrate Diet™ (SCD™)

The Specific Carbohydrate Diet™ (SCD™) and other grain-free or starch-

free dietary interventions.

The SCD™ is based on the premise that limiting the diet to simple

sugars (usually for at least a year) will starve out toxic organisms

in the gastrointestinal (GI) tract and restore gut integrity and

immune function.

It eliminates starches and most sugars, and consists mainly of meats,

fish, eggs, vegetables, fruits, nuts, and seeds. Although it was used

previously for adults with IBD and other GI disorders, some parents

of children with autism who have tried the SCD™ have reported relief

from symptoms like diarrhea and constipation, and after a time, from

multiple food intolerances. Some significant behavioral improvements

have also been reported.

There are several different theories about why the SCD™, and related

programs advocated by DAN! doctors may be beneficial for certain

children with Autism Spectrum Disorders.

Theories about the effectiveness of a grain-free and/or starch-free

diet:

It is theorized that yeast and bacteria in the gut are responsible

for causing damage to the gut lining, and their continued presence is

preventing it from healing properly. This could be responsible for

allowing peptides such as those from gluten and dairy to pass into

the bloodstream and affect brain function.

It is possible that the yeasts and bacteria that live in the gut

actually cause or contribute to behavioral disruptions. The finding

of dermorphin (an opiate substance produced by bacteria) in the urine

of some autistic children may indicate that in some cases this is

where the abnormal behaviors are coming from.

Many children with autism have multiple food intolerances, often

unidentified. High on that list are corn, rice, and other grains.

Eliminating all of these foods for a time may allow the GI immune

system to stabilize, and will usually provide relief from GI problems

like constipation and diarrhea.

The most promising things about this type of intervention are:

Some children with autism and their parents have found that food

intolerances are greatly reduced after a year or so, and some foods

can be safely re-introduced.

Removing starchy carbohydrates results in a much more healthful

diet, as " carb-addicted " ASD children will usually begin to accept

more meat, vegetables, and fruit.

Behavioral improvements such as better sleep, eye contact, and

increased cognitive function have been reported by many, and are

usually apparent within a month.

The most difficult things about this type of intervention are:

Many of the children are already on an extremely limited diet due to

allergies, intolerances, and sensory issues, and they may have

problems getting adequate nutrition on this diet.

There is often an initial adverse reaction to the removal of sugars

and starches which is similar to that which is seen with anti-fungal

treatment. This is called a " Herxheimer reaction " or " die-off

reaction, " as yeasts and bacteria die, and release toxins along with

their stronghold in the gut. This effect usually lasts from a few

days to a few weeks, and is generally considered to be a good sign

which will result in improvements after it is over.

There is much conflicting information on the Internet and on various

support lists about which diets are " best. " Further, some of the

reasons given for a food being excluded are not always clear. For a

table that compares the recommendations for food restrictions on the

GF/CF Diet, the SCD™, and the BED, click here.

Note: There is some concern among DAN! Doctors, such as Dr.

Hicks, about the effects of excess protein on the kidneys. Many

advise a more moderate approach: removing potatoes, white rice, and

corn, but allowing certain grains like brown rice, amaranth, quinoa,

buckwheat, millet, and montina. (See article, ANDI News, Volume VI,

Issue 4.)

How strict does this diet need to be?

For GI disorders like ulcerative colitis and Crohns Disease, it has

been reported that strict adherence to the SCD™ is required for

healing and the relief of symptoms. In the case of autism disorders,

many people believe that such rigor is necessary to the achieve full

results, while others have noted that cutting a substantial amount of

starches and sugars will yield significant benefits, and that the

level of adherence can be fine-tuned to meet the needs of the

individual and the family.

The Dairy Debate:

Most of the grain-free diets allow dairy products, however, they were

not designed for children on the autism spectrum. Many children with

autism are seriously affected by opiate peptides resulting from

improperly digested milk and wheat proteins (see studies). Most

autism medical practitioners who support dietary interventions are

adamant that it is important to keep the dairy out of the diet,

regardless of claims that certain yogurts or cheeses will be

tolerated after the gut has healed.

Those who maintain that specially-prepared goat-milk yogurt should be

introduced after some time on the SCD™ argue that:

Although the benefits of the SCD™ are not limited to those who use

this goat yogurt, it has been reported to have sped up healing and

led to improvements in health and functioning in some ASD children

and others on the SCD™.

After the gut has healed, some ASD children will tolerate this

yogurt, which is abundant in beneficial bacteria.

The special way that the yogurt is processed may not eliminate casein

and lactose, but seems to reduce the quantity.

The arguments against using specially-prepared goat-milk yogurt are:

De-natured milk proteins - goat or otherwise - can still become

opiate peptides during the digestive process. Although a mild short-

term regression might be due to a die-off from the natural probiotics

in the yogurt, some children have been reported to experience opiate-

like symptoms such as change in pupil size, severely increased

stimming, pain insensitivity, and serious behavioral regressions.

There is some concern that even after some time on the GF/CF diet,

each dietary infringement raises the sensitivity of the opiate

receptor sites, and it is theorized that this could allow these

children to react adversely to all kinds of opiate exposures,

including the body's natural endorphins. 3. We have no way of

knowing when the gut is fully healed, which children can tolerate

this yogurt, and which cannot. It is unclear whether the yogurt

would be safe for every child after some period of time, or whether

there are some children for whom it will never be safe.

The main benefits of such a yogurt are the quality and quantity of

probiotics contained within. These can be obtained in high-quality

dairy-free capsules and powders. Milk fat may also be helpful as a

nesting ground for these probiotics, but the benefits of this should

be obtainable using ghee, which is a form of clarified butter in

which the proteins have been almost completely removed.

We do not believe there is sufficient data to support either

argument, and we caution parents against those who claim that they

have such data. As with any intervention, we recommend that you look

for facts, listen to opinions, and make up your own mind. Until there

is considerably more science behind diets like the SCD™ for autism,

and until we fully understand the mechanism by which dairy is doing

damage in these children, our current stand on this issue is to

continue to avoid dairy products for children who have reacted

adversely to them in the past.

For more information on the SCD™, you can buy or borrow a copy

of " Breaking the Vicious Cycle " by Elaine Gottschall, or use other

resources on the Internet to fully understand the guidelines for the

SCD™, including the ASD & SCD™ Website at http://www.pecanbread.com/.

There are several other sources of information about grains, health,

and chronic illness. A well-known advocate of the grain-free diet is

Dr. ph Mercola. You may also be interested in reading about the

Paleolithic Diet or the SCD™ at the Healing Crow website. Another

similar approach can be found at the Body Ecology Diet website:

www.bodyecologydiet.com and at our BED summary.

For a comparison of the many published low-carbohydrate diets that

are most commonly used for weight-loss or health in adults, visit

http://www.lowcarb.ca/atkins-diet-and-low-carb-plans/.