carnaware

[Guest guest]

-

One more question.....Do you also give your children the ProEfa and the EPA?

I am currently giving him 2 EFA's and 1 EPA 2x per day. I guess I am

afraid of an " overload " and it may be that I don't need to worry about that

at all.

Thanks,

Margie

[Guest guest]

I give EFAs (omega-brite brand) but my children couldn't tolerate the

ProEFA/EPA brand. We saw a much bigger language boost with carnaware

than with EFAs (though of course EFAs are good for everyone, so I

wouldn't stop those).

>

> -

>

> One more question.....Do you also give your children the ProEfa and

the EPA?

> I am currently giving him 2 EFA's and 1 EPA 2x per day. I guess I am

> afraid of an " overload " and it may be that I don't need to worry

about that

> at all.

>

> Thanks,

> Margie

>

[Guest guest]

Hi...just starting carnaware with my sons who are 9 and 11 yrs old.

I am giving one a day. Can someone with experience with this guide me

here....is one a day enough? should i slowly add a 2nd maybe in a

week or so? Both my boys are big...around 80 lbs (9 yr old) and maybe

120lbs (11 yr old. Wondering if my older son would definitely need

more as he is pretty big. thanks for any advice....rita

[Guest guest]

I would definitely increase the dose we started My son three at the time on two

he now takes two twice a day. (he is four now) We have seen huge gains at this

dose. We recently stopped to see if he still needed it saw regression with

focus, asking questions, and three or more word sentences. So far carnaware

definitely been the best supplement for us for expressive language gains and

focus. But we have to maintain a dose of two carnaware twice a day. I believe

there is a study sited at the website for this dose also.

Kim

ritas2boys <gingras440@...> wrote:

Hi...just starting carnaware with my sons who are 9 and 11 yrs old.

I am giving one a day. Can someone with experience with this guide me

here....is one a day enough? should i slowly add a 2nd maybe in a

week or so? Both my boys are big...around 80 lbs (9 yr old) and maybe

120lbs (11 yr old. Wondering if my older son would definitely need

more as he is pretty big. thanks for any advice....rita

---------------------------------

Stay in the know. Pulse on the new .com. Check it out.

[Guest guest]

Unless you see a negative reaction in the first few days I would go up

to 4 a day (2 in the morning, 2 in the evening). In my experience you

will not see improvement on such a low dose. I don't think age or size

is a factor in dosage - both my kids needed 4 a day, and my oldest

weighs twice as much as my younger child.

>

> Hi...just starting carnaware with my sons who are 9 and 11 yrs old.

> I am giving one a day. Can someone with experience with this guide me

> here....is one a day enough? should i slowly add a 2nd maybe in a

> week or so? Both my boys are big...around 80 lbs (9 yr old) and maybe

> 120lbs (11 yr old. Wondering if my older son would definitely need

> more as he is pretty big. thanks for any advice....rita

>

[Guest guest]

I used 4 per day on my 3-year-old daughter, and I've heard of other

parents who used the same dose (I think and maryebe among other

but correct me if I'm wrong!). I'd go up to at least that dose for

your sons, but that's just my personal opinion. It may be that you

won't need anything higher. Unfortunately, it's rather expensive to

use this much, so if your sons do well on it you might want to

figure out if it's the vitamin E, zinc, or carnosine that's doing

it. Good Luck!

Kerri

>

> Hi...just starting carnaware with my sons who are 9 and 11 yrs old.

> I am giving one a day. Can someone with experience with this

guide me

> here....is one a day enough? should i slowly add a 2nd maybe in a

> week or so? Both my boys are big...around 80 lbs (9 yr old) and

maybe

> 120lbs (11 yr old. Wondering if my older son would definitely

need

> more as he is pretty big. thanks for any advice....rita

>

[Guest guest]

I have my daughter on the Nordic Naturals Omega 3-6-9. She takes 2 pills one

day and 3 the next. We alternate back and forth. On 3 pills a day she was

getting nose bleeds. I've been reading about the carnaware and just ordered

some. Should I keep giving her the omgea 3-6-9 and add in the carnaware or stop

the omega 3-6-9?

She will be 4 in a couple weeks. She has verbal apraxia and auditory sensory

integration. She went from zero words to being able to speak 3-4 words in a

row. However we seem to have stalled now and her speech is still not clear. I

can understand her 50% but other people can not.

Kathy

Phoebe's mom

[Guest guest]

I give my son the carnaware along with the Pro-EFA & EPA & Vitamin E; not

all at the same time but all in the same day.

KStan2222@...

Sent by:

@yaho cc:

ogroups.com Subject:

[ ] Re: carnaware

10/24/2006 07:36 PM

Please respond to

I have my daughter on the Nordic Naturals Omega 3-6-9. She takes 2 pills

one

day and 3 the next. We alternate back and forth. On 3 pills a day she was

getting nose bleeds. I've been reading about the carnaware and just ordered

some. Should I keep giving her the omgea 3-6-9 and add in the carnaware or

stop

the omega 3-6-9?

She will be 4 in a couple weeks. She has verbal apraxia and auditory

sensory

integration. She went from zero words to being able to speak 3-4 words in

a

row. However we seem to have stalled now and her speech is still not clear.

I

can understand her 50% but other people can not.

Kathy

Phoebe's mom

[Guest guest]

So you don't think Zinc and Carnosine is as good? Aggie

Re: [ ] Carnaware

Carnware is the only such product on the market ..there are no other

competitive brands. It is pricey but I feel that it is well worth it. I

found that this supplement helped mind son focus & gave him clarity. Prior

to giving him this capsule, he was kind of in a fog....and almost seemed

like he was autistic. I empty out the tasteless powder in his fruit daily.

At this time I just give it to him once a day. But I did start out with 2x

a day.

" Anne Devlin

Hoag "

<annedevlinhoag@g To

mail.com>

Sent by: cc

childrensapraxian

et@... Subject

m [ ] Carnaware

09/20/2007 12:46

AM

Please respond to

childrensapraxian

et@...

m

Thinking about starting my son on Carnaware--

have any of you tried this and had success ?

What dosage should I give ??

Is Carnaware the best brand or have you found something better?

Thanks!

Annie

[Guest guest]

Thanks all.

I just ordered Liam some Carnaware. I am kind of peeved I never had a

doctor recommend this. I know they are not into alternative at all ..

but sheesh. My family is vegetarian, and all of our doctors know that.

I do remind them of this frequently. I looked up the deficiency of the

main ingredient of Carnaware on wikipedia and it says vegetarians are

often deficient in this~! Well thanks, Doc, for maybe, uhh mentioning

that!! Ugg, I am starting to feel that mainstream doctors are

completely useless. Seriously, they never give me any advice now that

I can't get on the computer. So fed up with mainstream docs. I wish

DAN docs would be covered by insurance, because that is what I really

want for my son to be tested, find his deficiencies, food

sensitivities etc. But his regular doc won't test for that. They are

sending him to an allergist, hopefully we get a true reading.

American mainstream Doctors are really failing parents of autism and

other neurodevelopmental disorders.

Ok there is my rant of the day, lol.

On the optimistic side! Can't wait to get Carnaware and hoping it will

help Liam! Will let you all know the positive results, let us hope.

[Guest guest]

Actually, Carnaware is just a blend of L-carnosine (which you can buy separately

for MUCH cheaper), zinc (also very cheap), and Vit E (also very cheap). Not

quite sure why they are charging such an arm and a leg for this one supplement.

Seems to me you could just supplement the 3 things separately for a lot less

money.

Kim with 4 cuties

myra.bauza@... wrote:

Carnware is the only such product on the market ..there are no other

competitive brands. It is pricey but I feel that it is well worth it. I

found that this supplement helped mind son focus & gave him clarity. Prior

to giving him this capsule, he was kind of in a fog....and almost seemed

like he was autistic. I empty out the tasteless powder in his fruit daily.

At this time I just give it to him once a day. But I did start out with 2x

a day.

" Anne Devlin

Hoag "

<annedevlinhoag@g To

mail.com>

Sent by: cc

childrensapraxian

et@... Subject

m [ ] Carnaware

09/20/2007 12:46

AM

Please respond to

childrensapraxian

et@...

m

Thinking about starting my son on Carnaware--

have any of you tried this and had success ?

What dosage should I give ??

Is Carnaware the best brand or have you found something better?

Thanks!

Annie

[Guest guest]

Just did some looking. Kirkman's L-carnosine is $28 for a bottle of

90 - 200mg. non-allergic capsules. Good quality company and the

easiest dosage. the 200 mg is not easy to find elsewhere.

>

> Carnware is the only such product on the market ..there are no other

> competitive brands. It is pricey but I feel that it is well worth it. I

> found that this supplement helped mind son focus & gave him clarity.

Prior

> to giving him this capsule, he was kind of in a fog....and almost seemed

> like he was autistic. I empty out the tasteless powder in his fruit

daily.

> At this time I just give it to him once a day. But I did start out

with 2x

> a day.

>

> " Anne Devlin

> Hoag "

> <annedevlinhoag@g To

> mail.com>

> Sent by: cc

> childrensapraxian

> et@... Subject

> m [ ] Carnaware

>

>

> 09/20/2007 12:46

> AM

>

>

> Please respond to

> childrensapraxian

> et@...

> m

>

>

>

> Thinking about starting my son on Carnaware--

> have any of you tried this and had success ?

>

> What dosage should I give ??

> Is Carnaware the best brand or have you found something better?

>

> Thanks!

>

> Annie

>

>

[Guest guest]

Unfortunately, the majority of funding for medical schools comes from

pharmaceutical companies. Docs (in the U.S. anyway) are given about

20 minutes of nutrition education - or so I've been told by doctors

who realize the absurdity. We have doctors in here; I am sure they

know.... I'm betting your doc has very little clue as to what you

need to know as a vegetarian.

>

> Thanks all.

>

> I just ordered Liam some Carnaware. I am kind of peeved I never had a

> doctor recommend this. I know they are not into alternative at all ..

> but sheesh. My family is vegetarian, and all of our doctors know that.

> I do remind them of this frequently. I looked up the deficiency of the

> main ingredient of Carnaware on wikipedia and it says vegetarians are

> often deficient in this~! Well thanks, Doc, for maybe, uhh mentioning

> that!! Ugg, I am starting to feel that mainstream doctors are

> completely useless. Seriously, they never give me any advice now that

> I can't get on the computer. So fed up with mainstream docs. I wish

> DAN docs would be covered by insurance, because that is what I really

> want for my son to be tested, find his deficiencies, food

> sensitivities etc. But his regular doc won't test for that. They are

> sending him to an allergist, hopefully we get a true reading.

>

> American mainstream Doctors are really failing parents of autism and

> other neurodevelopmental disorders.

>

> Ok there is my rant of the day, lol.

>

> On the optimistic side! Can't wait to get Carnaware and hoping it will

> help Liam! Will let you all know the positive results, let us hope.

>

[Guest guest]

There is no test for carnosine (not carnitine), which is what's in

carnaware. It has been shown to help kids with apraxia and autism in

Dr. Chez's studies, so if your child has either, I think it is

definitely worth a try. Carnaware contains zinc and vit E to make the

carnosine more effective - if you give those any way, you can use a

different brand. Just make sure you give at least 800 mg/day (in two

doses). I use Jarrow brand now. I used carnaware for a long time, and

was happy with it (it has no taste, unlike some other brands of

carnosine), but my kids haven't regressed on Jarrow carnosine.

>

> Thinking about starting my son on Carnaware--

> have any of you tried this and had success ?

>

> What dosage should I give ??

> Is Carnaware the best brand or have you found something better?

>

> Thanks!

>

> Annie

>

>

>

[Guest guest]

Annie I don't believe in censorship so yes you can share your views

here -but since I own this grouplist I am free to share too. We

were not talking about the political issues of insurance which is an

entirely different subject which I'm sure we all agree is a problem -

what I first responded to was the irony of the message specifically

speaking about

" an American mainstream's doctors inability to know about carn-aware "

....which was CREATED BY AN AMERICAN MAINSTREAM MEDICAL DOCTOR. Now

you get it?...the irony?

And speaking of carn-aware it was not created for autism or even

apraxia -it was created for children with severe seizures issues.

However just like Dr. is having trouble securing any funding

for her work which already helps so many but could help the masses

with apraxia/autism and a variety of other multifaceted communication

impairments -it won't be funded unless it's just for autism since

that's where the research money is. I learned that from head legal

from an American mainstream hospital years ago that research is done

where the money is -and not necessarily where it's needed most. And

even if such research will also help those with other types of

conditions it probably will not even be mentioned! That's already

happened -any " study " about fish oil and it's just for autism. (and

we all know there are far more apraxic children then autistic) -you

want to talk frustration!

So back to your message -you say

" my frustration at how doctors are treating children with

neurodevelopmental disorders "

there lays the problem since once again you are placing blame

on " doctors " rather then on the one/two/or what -ten?! doctors that

you have taken your child to. My first experience with a medical

doctor for both Dakota and Tanner was with doctors that not only

helped my child -but helped comfort me. My first son almost died at

birth -there were quite a few that saved him but I have information

about Dr. De Souza here

http://www.cherab.org/information/familiesrelate/workandfamily.html

Tanner's neuroMD is Dr. Marilyn Agin who I co-wrote the book The Late

Talker book and to this day I would choose her over anyone else in

the world if I had to do it again.

http://www.cherab.org/information/familiesrelate/letter.html

I have two children that both went through issues and both are

thriving today at 11 and 13 -thanks to me and my husband, alternative

and traditional speech/occupational therapies and teachers and

mainstream medical doctors. (Tanner's mainstream pediatrician

ordered the huge amount of testing for Tanner as recommended by

, another mainstream MD -and it was all covered by our

mainstream BC/BS insurance too -which was shocking!)

=====

[Guest guest]

>

What we can recommend as physicians needs to be evidence based. None

of these " alternative medicine " options are evidence based. If the

DAN doctors with their vast experience using these interventions ever

published their work...then it would be out there for all to use.

Until then, our hands are tied, and the interventions will be viewed

with skepticism. This also protects your children...that doctors

don't offer therapies that have not been proven. -

> Yeah, I did not mean any disrespect to any doctors on this list or

> other professionals working for our kids.

>

> And , after reading some of her posts, she seems like

an

> excellent doctor and just the kind I would love to be able to take

my

> son to see.

>

> I am frustrated with doctors that I have seen, for some different

> reasons that really don't matter now.. as well as I am frustrated

> about doctors who give no treatment options for children with autism

> and other related disorders. Because I see that there are many

> different options out there, that have had some success. I have a

> friend whose child was diagnosed with autism, her doctor gave her no

> treatment recommendations other than school therapy. He did not

> mention diet modification, or supplements, or test for any

> nutriotional deficiency. I feel like that is a diservice to parents,

> because some of these methods work. So I don't really understand why

> many don't mention these ? There are lots of parents like me and

> everyone on this list who research on their own, and find out

> information about different treatment options.. but there are many

> parents who would never do any research like that and just trust the

> doctor 100%- so I feel for those parents and those kids who have no

> idea about any of these treatment options that are working so well

for

> many of us. I don't understand why many doctors don't recommend

these

> options, maybe their hands are tied by insurance/liscensing issues,

or

> maybe they just don't know, maybe they don't believe it or who

knows.

> But that upsets me just for all those parents out there whose

children

> could be doing better, if they only had that information. I feel

> blessed that I am smart enough to research all of this, and have the

> resources to do so.. but not everyone does.. ya know ? Everyone in

> America still doesn't have a computer.. What said about doctors

> really makes sense. But, sigh, it is just so disheartening to know

> that there are families suffering with a lack of knowledge.

>

> My original words were not chosen carefully, because I was in the

> midst of some emotional frustration, it was just a vent, not meant

to

> be disrespectful to anyone.

>

> I still would really like for my son to have a complete workup.. so

I

> continue to be frustrated trying to get that accomplished.

>