RE: Apraxia (dyspraxia) or Autism?(Liz)

[Guest guest]

Thanks Liz. I agree with what you say about labels-who cares? The only thing

that bothers me is that sometimes apraxia looks very much like autism and

someone who treats mainly autistic kids all day and doesn't know much about

apraxia may not be treating my son appropriately. Sometimes I still waver

between whether or not he's autistic but I'm almost sure it's apraxia. I'm not

sure how much our OT knows about apraxia.

Also, and I meant to ask this in my last e-mail. Do some of the treatments

for autism (diet, etc) work for apraxia as well? I have done quite a bit of

research on autism as well because I want to cover all my bases. As a matter of

fact, we have an appt with a DAN dr soon (first we have to go through all the

lab tests) and I was wondering if any of you had success with that approach for

your apraxia children?

Thanks Liz. I will be looking for articles comparing the two syndromes-that

would be helpful in guiding our therapies and treatments!

Liz <lizlaw@...> wrote:

My theory on labels goes like this: who cares what the label is so

long

as you feel the underlying problems you do see are being addressed.

Another thought I have is that if you think you need a label to get

proper services then you need to research yourself as to what you

believe the label should be. The reason is you are with the kid more

than the therapists or drs so their label could easily be wrong. In

order to do this right you should read as much as you can and compare

labels. Then, if you are not sure at least you will have better

questions to ask the professionals because that is where their expertise

lies. Tina sent me an email telling me how she read about apraxia and

autism and compared the signs of each. By the time she was done she knew

her son was apraxia (she knew it all along actually). She then went to a

dr. and guided him toward the right diagnosis by asking questions based

on her knowledge. The result was her son got the label he needed for the

right therapy and benefitted greatly. Lastly, I strongly suggest you

check out literature on autism. It is scarey because that seems to be

the diagnosis so many of us fear but the truth is whether or not your

kid has it becomes irrelevant. The autism literature is the best place

to get info on how to heal the kids, understand the science behind diet,

disabilities, limiting exposure to toxins and vitamin protocols. Some

good books on this for me were Special Diets 1 and 2. Some good video on

various maladies that plague our kids, autistic or not, can be found at

Fair Autism Now. My kid is not autistic and neither am I but I found

explanations in the literature for yeast problems I had and speech stuff

he has. It so saddens me that some of the best info. on something we all

share, toxicity that causes or contributes to a whole host of maladies,

is ignored or not found simply because it is filed under a word

everyone fears, autism. It saddens me that people fear it so much that

they can't benefit from good research.

It took a lot for me to get to this point, particularly a very

thoughtful and informed email from . I hope I have come close to

pointing you in the direction she sent me because it helped us so very much.

Best Wishes and God Bless!

Liz

Sherry wrote:

>Hey all. I have a problem that I'm sure is not new to this group. My son was

diagnosed (by a neuro-psychologist) as being dypsraxic with sensory integration

dysfunction. His SLP who has worked with numerous autistic children agrees with

this diagnosis. However, his OT who specializes in sensory integration therapy

is not totally in agreement with this. She won't totally go out on a limb and

say it but I suspect that she thinks he is autistic (just by the things that she

says). I am very happy with all of our therapists but I want to be sure my son

is receiving the right therapy for him. His OT says that the diagnosis doesn't

really matter b/c she treats the symptoms themselves. None of his therapists do

ABA therapy so I'm not concerned about anything that would be harmful to him but

I want to be sure that we are doing what is appropriate and most helpful for

him.

> How have the rest of you handled this and what should I do?

>

>

>---------------------------------

>Pinpoint customers who are looking for what you sell.

>

>

[Guest guest]

I've been wondering for quite awhile now apraxia is being compared to

autism? What do they have in common?

Thanks and sorry if this sound ignorant,but i really want to know lol!

Jennie

Mom to Lindsey 11 years old.

In a message dated 6/25/2007 7:47:42 A.M. Eastern Daylight Time,

houndog3_1@... writes:

Thanks Liz. I agree with what you say about labels-who cares? The only thing

that bothers me is that sometimes apraxia looks very much like autism and

someone who treats mainly autistic kids all day and doesn't know much about

apraxia may not be treating my son appropriately. Sometimes I still waver

between whether or not he's autistic but I'm almost sure it's apraxia. I'm not

sure

how much our OT knows about apraxia.

Also, and I meant to ask this in my last e-mail. Do some of the treatments

for autism (diet, etc) work for apraxia as well? I have done quite a bit of

research on autism as well because I want to cover all my bases. As a matter of

fact, we have an appt with a DAN dr soon (first we have to go through all

the lab tests) and I was wondering if any of you had success with that approach

for your apraxia children?

Thanks Liz. I will be looking for articles comparing the two syndromes-that

would be helpful in guiding our therapies and treatments!

Liz <_lizlaw@..._ (mailto:lizlaw@...) > wrote:

My theory on labels goes like this: who cares what the label is so long

as you feel the underlying problems you do see are being addressed.

Another thought I have is that if you think you need a label to get

proper services then you need to research yourself as to what you

believe the label should be. The reason is you are with the kid more

than the therapists or drs so their label could easily be wrong. In

order to do this right you should read as much as you can and compare

labels. Then, if you are not sure at least you will have better

questions to ask the professionals because that is where their expertise

lies. Tina sent me an email telling me how she read about apraxia and

autism and compared the signs of each. By the time she was done she knew

her son was apraxia (she knew it all along actually). She then went to a

dr. and guided him toward the right diagnosis by asking questions based

on her knowledge. The result was her son got the label he needed for the

right therapy and benefitted greatly. Lastly, I strongly suggest you

check out literature on autism. It is scarey because that seems to be

the diagnosis so many of us fear but the truth is whether or not your

kid has it becomes irrelevant. The autism literature is the best place

to get info on how to heal the kids, understand the science behind diet,

disabilities, limiting exposure to toxins and vitamin protocols. Some

good books on this for me were Special Diets 1 and 2. Some good video on

various maladies that plague our kids, autistic or not, can be found at

Fair Autism Now. My kid is not autistic and neither am I but I found

explanations in the literature for yeast problems I had and speech stuff

he has. It so saddens me that some of the best info. on something we all

share, toxicity that causes or contributes to a whole host of maladies,

is ignored or not found simply because it is filed under a word

everyone fears, autism. It saddens me that people fear it so much that

they can't benefit from good research.

It took a lot for me to get to this point, particularly a very

thoughtful and informed email from . I hope I have come close to

pointing you in the direction she sent me because it helped us so very much.

Best Wishes and God Bless!

Liz

Sherry wrote:

>Hey all. I have a problem that I'm sure is not new to this group. My son

was diagnosed (by a neuro-psychologist) as being dypsraxic with sensory

integration dysfunction. His SLP who has worked with numerous autistic children

agrees with this diagnosis. However, his OT who specializes in sensory

integration therapy is not totally in agreement with this. She won't totally go

out on

a limb and say it but I suspect that she thinks he is autistic (just by the

things that she says). I am very happy with all of our therapists but I want

to be sure my son is receiving the right therapy for him. His OT says that the

diagnosis doesn't really matter b/c she treats the symptoms themselves. None

of his therapists do ABA therapy so I'm not concerned about anything that

would be harmful to him but I want to be sure that we are doing what is

appropriate and most helpful for him.

> How have the rest of you handled this and what should I do?

>

>

>---------------------------------

>Pinpoint customers who are looking for what you sell.

>

>[Non-text portions of this message have been removed]

>

>

>

>

[Guest guest]

I think Tina can help you with the comparisons between autism and

apraxia. You can probably conclude from there. As for treatments, my

reading tells me that a whole host of diseases, Alzheiners, Parkinsons,

ADHD, Dyslexia, perhaps apraxia and even depression have things in

common: toxins, metal, and malabsorption. So it would make sense that

treatments for autism have value for apraxia but it seems the $64,000

question becomes finding out what is making the apraxia worse and fixing

it and seeing if a so-called autism treatment is indicated.

Sherry wrote:

>Thanks Liz. I agree with what you say about labels-who cares? The only thing

that bothers me is that sometimes apraxia looks very much like autism and

someone who treats mainly autistic kids all day and doesn't know much about

apraxia may not be treating my son appropriately. Sometimes I still waver

between whether or not he's autistic but I'm almost sure it's apraxia. I'm not

sure how much our OT knows about apraxia.

>

> Also, and I meant to ask this in my last e-mail. Do some of the treatments

for autism (diet, etc) work for apraxia as well? I have done quite a bit of

research on autism as well because I want to cover all my bases. As a matter of

fact, we have an appt with a DAN dr soon (first we have to go through all the

lab tests) and I was wondering if any of you had success with that approach for

your apraxia children?

>

> Thanks Liz. I will be looking for articles comparing the two syndromes-that

would be helpful in guiding our therapies and treatments!

>

>

>Liz <lizlaw@...> wrote:

> My theory on labels goes like this: who cares what the label is so

long

>as you feel the underlying problems you do see are being addressed.

>Another thought I have is that if you think you need a label to get

>proper services then you need to research yourself as to what you

>believe the label should be. The reason is you are with the kid more

>than the therapists or drs so their label could easily be wrong. In

>order to do this right you should read as much as you can and compare

>labels. Then, if you are not sure at least you will have better

>questions to ask the professionals because that is where their expertise

>lies. Tina sent me an email telling me how she read about apraxia and

>autism and compared the signs of each. By the time she was done she knew

>her son was apraxia (she knew it all along actually). She then went to a

>dr. and guided him toward the right diagnosis by asking questions based

>on her knowledge. The result was her son got the label he needed for the

>right therapy and benefitted greatly. Lastly, I strongly suggest you

>check out literature on autism. It is scarey because that seems to be

>the diagnosis so many of us fear but the truth is whether or not your

>kid has it becomes irrelevant. The autism literature is the best place

>to get info on how to heal the kids, understand the science behind diet,

>disabilities, limiting exposure to toxins and vitamin protocols. Some

>good books on this for me were Special Diets 1 and 2. Some good video on

>various maladies that plague our kids, autistic or not, can be found at

>Fair Autism Now. My kid is not autistic and neither am I but I found

>explanations in the literature for yeast problems I had and speech stuff

>he has. It so saddens me that some of the best info. on something we all

>share, toxicity that causes or contributes to a whole host of maladies,

>is ignored or not found simply because it is filed under a word

>everyone fears, autism. It saddens me that people fear it so much that

>they can't benefit from good research.

>

>It took a lot for me to get to this point, particularly a very

>thoughtful and informed email from . I hope I have come close to

>pointing you in the direction she sent me because it helped us so very much.

>

>Best Wishes and God Bless!

>Liz

>

>Sherry wrote:

>

>

>

>>Hey all. I have a problem that I'm sure is not new to this group. My son was

diagnosed (by a neuro-psychologist) as being dypsraxic with sensory integration

dysfunction. His SLP who has worked with numerous autistic children agrees with

this diagnosis. However, his OT who specializes in sensory integration therapy

is not totally in agreement with this. She won't totally go out on a limb and

say it but I suspect that she thinks he is autistic (just by the things that she

says). I am very happy with all of our therapists but I want to be sure my son

is receiving the right therapy for him. His OT says that the diagnosis doesn't

really matter b/c she treats the symptoms themselves. None of his therapists do

ABA therapy so I'm not concerned about anything that would be harmful to him but

I want to be sure that we are doing what is appropriate and most helpful for

him.

>>How have the rest of you handled this and what should I do?

>>

>>

>>---------------------------------

>>Pinpoint customers who are looking for what you sell.

>>

>>

[Guest guest]

I have found that limiting/avoiding foods high in chemicals, food dyes, etc.

has had a huge difference in my kids' behavior. (even the neuro-typical one)

I can always tell when they come back from sleep overs or playdates and are

acting out of sorts that they have eaten crap.

Recently, I discovered that #3 and #4 probably have casin intolerances.

Since eliminating casin from our diet I have seen huge changes in their

behavior for the good. Developmental milestones are now being met, higher

levels of energy, more attempts at verbalizing, etc.

I would try to gradually move toward a diet free of chemicals, food dyes,

preservatives, casin, gluten, soy as much as possible. Also , try and keep

a food diary so that you can see what the trigger foods are, do certain

foods cause noticeable reactions? Try the diet for 1-3 months and then re

evaluate. Think of it as a game or a lark.

I have found that strategies developed for recovering stroke patients have

worked very well with my son. For example, when chewing meat, give a

teaspoon of apple sauce to bind the meat and help it go down. Give chewy

foods for breakfast/lunch instead of dinner as they are more awake and have

more energy earlier in the day, Swimming, etc.

There has been no evidence in any of the testing that my son had a stroke.

Good Luck

_____

From:

[mailto: ] On Behalf Of Sherry

Sent: Sunday, June 24, 2007 10:18 PM

Subject: Re: [ ] Apraxia (dyspraxia) or Autism?(Liz)

Thanks Liz. I agree with what you say about labels-who cares? The only thing

that bothers me is that sometimes apraxia looks very much like autism and

someone who treats mainly autistic kids all day and doesn't know much about

apraxia may not be treating my son appropriately. Sometimes I still waver

between whether or not he's autistic but I'm almost sure it's apraxia. I'm

not sure how much our OT knows about apraxia.

Also, and I meant to ask this in my last e-mail. Do some of the treatments

for autism (diet, etc) work for apraxia as well? I have done quite a bit of

research on autism as well because I want to cover all my bases. As a matter

of fact, we have an appt with a DAN dr soon (first we have to go through all

the lab tests) and I was wondering if any of you had success with that

approach for your apraxia children?

Thanks Liz. I will be looking for articles comparing the two syndromes-that

would be helpful in guiding our therapies and treatments!

Liz <lizlawoptonline (DOT) <mailto:lizlaw%40optonline.net> net> wrote:

My theory on labels goes like this: who cares what the label is so long

as you feel the underlying problems you do see are being addressed.

Another thought I have is that if you think you need a label to get

proper services then you need to research yourself as to what you

believe the label should be. The reason is you are with the kid more

than the therapists or drs so their label could easily be wrong. In

order to do this right you should read as much as you can and compare

labels. Then, if you are not sure at least you will have better

questions to ask the professionals because that is where their expertise

lies. Tina sent me an email telling me how she read about apraxia and

autism and compared the signs of each. By the time she was done she knew

her son was apraxia (she knew it all along actually). She then went to a

dr. and guided him toward the right diagnosis by asking questions based

on her knowledge. The result was her son got the label he needed for the

right therapy and benefitted greatly. Lastly, I strongly suggest you

check out literature on autism. It is scarey because that seems to be

the diagnosis so many of us fear but the truth is whether or not your

kid has it becomes irrelevant. The autism literature is the best place

to get info on how to heal the kids, understand the science behind diet,

disabilities, limiting exposure to toxins and vitamin protocols. Some

good books on this for me were Special Diets 1 and 2. Some good video on

various maladies that plague our kids, autistic or not, can be found at

Fair Autism Now. My kid is not autistic and neither am I but I found

explanations in the literature for yeast problems I had and speech stuff

he has. It so saddens me that some of the best info. on something we all

share, toxicity that causes or contributes to a whole host of maladies,

is ignored or not found simply because it is filed under a word

everyone fears, autism. It saddens me that people fear it so much that

they can't benefit from good research.

It took a lot for me to get to this point, particularly a very

thoughtful and informed email from . I hope I have come close to

pointing you in the direction she sent me because it helped us so very much.

Best Wishes and God Bless!

Liz

Sherry wrote:

>Hey all. I have a problem that I'm sure is not new to this group. My son

was diagnosed (by a neuro-psychologist) as being dypsraxic with sensory

integration dysfunction. His SLP who has worked with numerous autistic

children agrees with this diagnosis. However, his OT who specializes in

sensory integration therapy is not totally in agreement with this. She won't

totally go out on a limb and say it but I suspect that she thinks he is

autistic (just by the things that she says). I am very happy with all of our

therapists but I want to be sure my son is receiving the right therapy for

him. His OT says that the diagnosis doesn't really matter b/c she treats the

symptoms themselves. None of his therapists do ABA therapy so I'm not

concerned about anything that would be harmful to him but I want to be sure

that we are doing what is appropriate and most helpful for him.

> How have the rest of you handled this and what should I do?

>

>

>---------------------------------

>Pinpoint customers who are looking for what you sell.

>

>

[Guest guest]

#3 and #4 ?? Is this dye?

Sharon

Zeissler <hzeissler@...> wrote:

I have found that limiting/avoiding foods high in chemicals, food

dyes, etc.

has had a huge difference in my kids' behavior. (even the neuro-typical one)

I can always tell when they come back from sleep overs or playdates and are

acting out of sorts that they have eaten crap.

Recently, I discovered that #3 and #4 probably have casin intolerances.

Since eliminating casin from our diet I have seen huge changes in their

behavior for the good. Developmental milestones are now being met, higher

levels of energy, more attempts at verbalizing, etc.

I would try to gradually move toward a diet free of chemicals, food dyes,

preservatives, casin, gluten, soy as much as possible. Also , try and keep

a food diary so that you can see what the trigger foods are, do certain

foods cause noticeable reactions? Try the diet for 1-3 months and then re

evaluate. Think of it as a game or a lark.

I have found that strategies developed for recovering stroke patients have

worked very well with my son. For example, when chewing meat, give a

teaspoon of apple sauce to bind the meat and help it go down. Give chewy

foods for breakfast/lunch instead of dinner as they are more awake and have

more energy earlier in the day, Swimming, etc.

There has been no evidence in any of the testing that my son had a stroke.

Good Luck

_____

From:

[mailto: ] On Behalf Of Sherry

Sent: Sunday, June 24, 2007 10:18 PM

Subject: Re: [ ] Apraxia (dyspraxia) or Autism?(Liz)

Thanks Liz. I agree with what you say about labels-who cares? The only thing

that bothers me is that sometimes apraxia looks very much like autism and

someone who treats mainly autistic kids all day and doesn't know much about

apraxia may not be treating my son appropriately. Sometimes I still waver

between whether or not he's autistic but I'm almost sure it's apraxia. I'm

not sure how much our OT knows about apraxia.

Also, and I meant to ask this in my last e-mail. Do some of the treatments

for autism (diet, etc) work for apraxia as well? I have done quite a bit of

research on autism as well because I want to cover all my bases. As a matter

of fact, we have an appt with a DAN dr soon (first we have to go through all

the lab tests) and I was wondering if any of you had success with that

approach for your apraxia children?

Thanks Liz. I will be looking for articles comparing the two syndromes-that

would be helpful in guiding our therapies and treatments!

Liz <lizlawoptonline (DOT) <mailto:lizlaw%40optonline.net> net> wrote:

My theory on labels goes like this: who cares what the label is so long

as you feel the underlying problems you do see are being addressed.

Another thought I have is that if you think you need a label to get

proper services then you need to research yourself as to what you

believe the label should be. The reason is you are with the kid more

than the therapists or drs so their label could easily be wrong. In

order to do this right you should read as much as you can and compare

labels. Then, if you are not sure at least you will have better

questions to ask the professionals because that is where their expertise

lies. Tina sent me an email telling me how she read about apraxia and

autism and compared the signs of each. By the time she was done she knew

her son was apraxia (she knew it all along actually). She then went to a

dr. and guided him toward the right diagnosis by asking questions based

on her knowledge. The result was her son got the label he needed for the

right therapy and benefitted greatly. Lastly, I strongly suggest you

check out literature on autism. It is scarey because that seems to be

the diagnosis so many of us fear but the truth is whether or not your

kid has it becomes irrelevant. The autism literature is the best place

to get info on how to heal the kids, understand the science behind diet,

disabilities, limiting exposure to toxins and vitamin protocols. Some

good books on this for me were Special Diets 1 and 2. Some good video on

various maladies that plague our kids, autistic or not, can be found at

Fair Autism Now. My kid is not autistic and neither am I but I found

explanations in the literature for yeast problems I had and speech stuff

he has. It so saddens me that some of the best info. on something we all

share, toxicity that causes or contributes to a whole host of maladies,

is ignored or not found simply because it is filed under a word

everyone fears, autism. It saddens me that people fear it so much that

they can't benefit from good research.

It took a lot for me to get to this point, particularly a very

thoughtful and informed email from . I hope I have come close to

pointing you in the direction she sent me because it helped us so very much.

Best Wishes and God Bless!

Liz

Sherry wrote:

>Hey all. I have a problem that I'm sure is not new to this group. My son

was diagnosed (by a neuro-psychologist) as being dypsraxic with sensory

integration dysfunction. His SLP who has worked with numerous autistic

children agrees with this diagnosis. However, his OT who specializes in

sensory integration therapy is not totally in agreement with this. She won't

totally go out on a limb and say it but I suspect that she thinks he is

autistic (just by the things that she says). I am very happy with all of our

therapists but I want to be sure my son is receiving the right therapy for

him. His OT says that the diagnosis doesn't really matter b/c she treats the

symptoms themselves. None of his therapists do ABA therapy so I'm not

concerned about anything that would be harmful to him but I want to be sure

that we are doing what is appropriate and most helpful for him.

> How have the rest of you handled this and what should I do?

>

>

>---------------------------------

>Pinpoint customers who are looking for what you sell.

>

>

[Guest guest]

See, that's the way I was able to see such a dramatic difference via

GFCF. My daughter, age 4, has had 3 pieces of food that had dye in them

her whole life. I was crazy about limiting that stuff because she had

citrus issues so most of the dye stuff, ice pops, candy, etc. were never

a part of her life. Son, age 2, has had 2 pieces of food with dye, 2

didrent birthday cake pieces his whole life. I think GFCFSF has show us

that son definitely has a casein issue and daughter has a gluten issue.

I am not sure what else yet and will have to play around. The soy I am

limiting because son seems to have an issue and the whole estrogen thing.

Eggs are not a problem and both kids seem to " wake up " he verbally and

she generally when eating them.

We are not totally chemical-free as the fruit and veggie issue (mostly

organic though).

Wow, that stroke victim advice is great! Thanks!

It does seem we can hide anything in applesauce and both kids are ready

for variety. Son, with dyspraxia, wants to try everything. I can't

believe it.

I think variety is also key. Celiac or not my kids had very little

variety before and GFCF brought that. The food diary is going to be key

though, to see what produces what results.

Thanks for the help. Once I got over the paralysis of what to feed them

the experimenting has been quite enjoyable.

Zeissler wrote:

>I have found that limiting/avoiding foods high in chemicals, food dyes, etc.

>has had a huge difference in my kids' behavior. (even the neuro-typical one)

>I can always tell when they come back from sleep overs or playdates and are

>acting out of sorts that they have eaten crap.

>

>

>

>Recently, I discovered that #3 and #4 probably have casin intolerances.

>Since eliminating casin from our diet I have seen huge changes in their

>behavior for the good. Developmental milestones are now being met, higher

>levels of energy, more attempts at verbalizing, etc.

>

>

>

>I would try to gradually move toward a diet free of chemicals, food dyes,

>preservatives, casin, gluten, soy as much as possible. Also , try and keep

>a food diary so that you can see what the trigger foods are, do certain

>foods cause noticeable reactions? Try the diet for 1-3 months and then re

>evaluate. Think of it as a game or a lark.

>

>

>

>I have found that strategies developed for recovering stroke patients have

>worked very well with my son. For example, when chewing meat, give a

>teaspoon of apple sauce to bind the meat and help it go down. Give chewy

>foods for breakfast/lunch instead of dinner as they are more awake and have

>more energy earlier in the day, Swimming, etc.

>

>There has been no evidence in any of the testing that my son had a stroke.

>

>Good Luck

>

>

>

>

>

> _____

>

>From:

>[mailto: ] On Behalf Of Sherry

>Sent: Sunday, June 24, 2007 10:18 PM

>

>Subject: Re: [ ] Apraxia (dyspraxia) or Autism?(Liz)

>

>

>

>Thanks Liz. I agree with what you say about labels-who cares? The only thing

>that bothers me is that sometimes apraxia looks very much like autism and

>someone who treats mainly autistic kids all day and doesn't know much about

>apraxia may not be treating my son appropriately. Sometimes I still waver

>between whether or not he's autistic but I'm almost sure it's apraxia. I'm

>not sure how much our OT knows about apraxia.

>

>Also, and I meant to ask this in my last e-mail. Do some of the treatments

>for autism (diet, etc) work for apraxia as well? I have done quite a bit of

>research on autism as well because I want to cover all my bases. As a matter

>of fact, we have an appt with a DAN dr soon (first we have to go through all

>the lab tests) and I was wondering if any of you had success with that

>approach for your apraxia children?

>

>Thanks Liz. I will be looking for articles comparing the two syndromes-that

>would be helpful in guiding our therapies and treatments!

>

>

>Liz <lizlawoptonline (DOT) <mailto:lizlaw%40optonline.net> net> wrote:

>My theory on labels goes like this: who cares what the label is so long

>as you feel the underlying problems you do see are being addressed.

>Another thought I have is that if you think you need a label to get

>proper services then you need to research yourself as to what you

>believe the label should be. The reason is you are with the kid more

>than the therapists or drs so their label could easily be wrong. In

>order to do this right you should read as much as you can and compare

>labels. Then, if you are not sure at least you will have better

>questions to ask the professionals because that is where their expertise

>lies. Tina sent me an email telling me how she read about apraxia and

>autism and compared the signs of each. By the time she was done she knew

>her son was apraxia (she knew it all along actually). She then went to a

>dr. and guided him toward the right diagnosis by asking questions based

>on her knowledge. The result was her son got the label he needed for the

>right therapy and benefitted greatly. Lastly, I strongly suggest you

>check out literature on autism. It is scarey because that seems to be

>the diagnosis so many of us fear but the truth is whether or not your

>kid has it becomes irrelevant. The autism literature is the best place

>to get info on how to heal the kids, understand the science behind diet,

>disabilities, limiting exposure to toxins and vitamin protocols. Some

>good books on this for me were Special Diets 1 and 2. Some good video on

>various maladies that plague our kids, autistic or not, can be found at

>Fair Autism Now. My kid is not autistic and neither am I but I found

>explanations in the literature for yeast problems I had and speech stuff

>he has. It so saddens me that some of the best info. on something we all

>share, toxicity that causes or contributes to a whole host of maladies,

>is ignored or not found simply because it is filed under a word

>everyone fears, autism. It saddens me that people fear it so much that

>they can't benefit from good research.

>

>It took a lot for me to get to this point, particularly a very

>thoughtful and informed email from . I hope I have come close to

>pointing you in the direction she sent me because it helped us so very much.

>

>Best Wishes and God Bless!

>Liz

>

>Sherry wrote:

>

>

>

>>Hey all. I have a problem that I'm sure is not new to this group. My son

>>

>>

>was diagnosed (by a neuro-psychologist) as being dypsraxic with sensory

>integration dysfunction. His SLP who has worked with numerous autistic

>children agrees with this diagnosis. However, his OT who specializes in

>sensory integration therapy is not totally in agreement with this. She won't

>totally go out on a limb and say it but I suspect that she thinks he is

>autistic (just by the things that she says). I am very happy with all of our

>therapists but I want to be sure my son is receiving the right therapy for

>him. His OT says that the diagnosis doesn't really matter b/c she treats the

>symptoms themselves. None of his therapists do ABA therapy so I'm not

>concerned about anything that would be harmful to him but I want to be sure

>that we are doing what is appropriate and most helpful for him.

>

>

>>How have the rest of you handled this and what should I do?

>>

>>

>>---------------------------------

>>Pinpoint customers who are looking for what you sell.

>>

>>

[Guest guest]

OH no.. I meant child #3 and Child #4

Sorry for the confusion!

_____

From:

[mailto: ] On Behalf Of sharon lang

Sent: Monday, June 25, 2007 11:43 AM

Subject: RE: [ ] Apraxia (dyspraxia) or Autism?(Liz)

#3 and #4 ?? Is this dye?

Sharon

Zeissler <hzeissler@frontiern <mailto:hzeissler%40frontiernet.net>

et.net> wrote:

I have found that limiting/avoiding foods high in chemicals, food dyes, etc.

has had a huge difference in my kids' behavior. (even the neuro-typical one)

I can always tell when they come back from sleep overs or playdates and are

acting out of sorts that they have eaten crap.

Recently, I discovered that #3 and #4 probably have casin intolerances.

Since eliminating casin from our diet I have seen huge changes in their

behavior for the good. Developmental milestones are now being met, higher

levels of energy, more attempts at verbalizing, etc.

I would try to gradually move toward a diet free of chemicals, food dyes,

preservatives, casin, gluten, soy as much as possible. Also , try and keep

a food diary so that you can see what the trigger foods are, do certain

foods cause noticeable reactions? Try the diet for 1-3 months and then re

evaluate. Think of it as a game or a lark.

I have found that strategies developed for recovering stroke patients have

worked very well with my son. For example, when chewing meat, give a

teaspoon of apple sauce to bind the meat and help it go down. Give chewy

foods for breakfast/lunch instead of dinner as they are more awake and have

more energy earlier in the day, Swimming, etc.

There has been no evidence in any of the testing that my son had a stroke.

Good Luck

_____

[Guest guest]

One of the 3 main areas of autism diagnosis is delayed language

(except for Aspergers, which has normal onset of language). Autism

and apraxia often have other overlapping symptoms like sensory

processing disorder (SPD) and low tone. For some evaluators, just

seeing language delay with sensory issues is enough to get you an

autism diagnosis. In fact, a pediatric neurologist I took my son to

when he was 2 told me he considers language delay BY ITSELF to mean

autism spectrum! Certainly not everyone agrees with this though.

Also, some people still do not accept apraxia as a true disorder,

though that is hopefully changing. And to confuse things even more,

you can have autism AND apraxia; they are not mutually exclusive.

It can be very tough to sort out a correct diagnosis for your child,

especially at a young age.

>

> >Hey all. I have a problem that I'm sure is not new to this

group. My son

> was diagnosed (by a neuro-psychologist) as being dypsraxic with

sensory

> integration dysfunction. His SLP who has worked with numerous

autistic children

> agrees with this diagnosis. However, his OT who specializes in

sensory

> integration therapy is not totally in agreement with this. She

won't totally go out on

> a limb and say it but I suspect that she thinks he is autistic

(just by the

> things that she says). I am very happy with all of our therapists

but I want

> to be sure my son is receiving the right therapy for him. His OT

says that the

> diagnosis doesn't really matter b/c she treats the symptoms

themselves. None

> of his therapists do ABA therapy so I'm not concerned about

anything that

> would be harmful to him but I want to be sure that we are doing

what is

> appropriate and most helpful for him.

> > How have the rest of you handled this and what should I do?

> >

> >

> >---------------------------------

> >Pinpoint customers who are looking for what you sell.

> >

> >[Non-text portions of this message have been removed]

> >

> >

> >

> >

[Guest guest]

My daughter had a language 'issue' due to congenitally 'HUGE' adenoids, chronic

tonsilitis, etc. We had the work done, a couple of years of SLP and she was off

and running with no sign of autism.

I think that your nuerologist is wrong but is erring to be safe given the

preponderence of autism these days. At one time he probably saw many kids with

language issues who were not ASD, now he probably sees mostly ASD.

Janice

[sPAM] [ ] Re: Apraxia (dyspraxia) or Autism?(Liz)

One of the 3 main areas of autism diagnosis is delayed language

(except for Aspergers, which has normal onset of language). Autism

and apraxia often have other overlapping symptoms like sensory

processing disorder (SPD) and low tone. For some evaluators, just

seeing language delay with sensory issues is enough to get you an

autism diagnosis. In fact, a pediatric neurologist I took my son to

when he was 2 told me he considers language delay BY ITSELF to mean

autism spectrum! Certainly not everyone agrees with this though.

Also, some people still do not accept apraxia as a true disorder,

though that is hopefully changing. And to confuse things even more,

you can have autism AND apraxia; they are not mutually exclusive.

It can be very tough to sort out a correct diagnosis for your child,

especially at a young age.

>

> >Hey all. I have a problem that I'm sure is not new to this

group. My son

> was diagnosed (by a neuro-psychologist) as being dypsraxic with

sensory

> integration dysfunction. His SLP who has worked with numerous

autistic children

> agrees with this diagnosis. However, his OT who specializes in

sensory

> integration therapy is not totally in agreement with this. She

won't totally go out on

> a limb and say it but I suspect that she thinks he is autistic

(just by the

> things that she says). I am very happy with all of our therapists

but I want

> to be sure my son is receiving the right therapy for him. His OT

says that the

> diagnosis doesn't really matter b/c she treats the symptoms

themselves. None

> of his therapists do ABA therapy so I'm not concerned about

anything that

> would be harmful to him but I want to be sure that we are doing

what is

> appropriate and most helpful for him.

> > How have the rest of you handled this and what should I do?

> >

> >

> >---------------------------------

> >Pinpoint customers who are looking for what you sell.

> >

> >