Re: eyes -RP

[Guest guest]

Although the eyes do not have catilage in them , they have something (

sclera?) that has the same reaction as cartilage. In my case, currently my

eyes are the worst problem and I have almost constant inflamations of one or

both eyes. This is very painful and also quite damaging to the eyes and

vision. After many years of seeing my ophthmologist and treating my monthly

and more inflamations, the drops that were used just stopped working. I went

to see an inflamatory disease of the eye specialist at Columbia Presbyterian

Hospital/Harkness Pavilion in NYC named Dr. Weiss and after a very

thorough exam ( even ultrasound of the eyes!) he found that my inflamations

were no longer epi-scleritis but are now scleritis and could not be helped

with cortisone drops any more and I need to switch to systemic meds.

Also, using the cortisone drops all those years has caused glaucoma in my

eyes.

Good Luck !

[Guest guest]

In a message dated 06/09/2001 7:57:28 AM Eastern Daylight Time,

bklyn1429@... writes:

> Hospital/Harkness Pavilion in NYC named Dr. Weiss and after a very

> thorough exam ( even ultrasound of the eyes!) he found that my inflamations

>

Hi- Pete went to Harkness Eye Pavillion too...he saw a Dr.Trokel who was very

nice and very thorough but admitted he knew nothing about RP..I brought some

info about the eyes and RP which he took the time to read...so now we are

trying to set up an appointment with C. in Boston who is

knowledgeable in RP and the eyes. Pete's eyes are getting worse and the only

thing that seems to help is the pred which makes the eyes worse at the same

time...very frustrating. Janet