Guest guest Posted October 21, 2003 Report Share Posted October 21, 2003 In a message dated 10/21/2003 1:46:14 PM Central Standard Time, Gastric_Bypass_Family writes: I don't know if any of you feel this way, but I'm > beginning to feel > like a total alien with regards to my friends. Marla, I can sooo relate to this statement!! Its hard to discuss what goes on with my friends becuse I get the same type of comments. My mom actually told me she thought I didn't need to lose anymore weight---i'm still a 14/16, so I think I do. What I have found recently, is almost jealousy. Most of my friends used to be smaller than me, and now I am quite a bit smaller than them. They really don't want to hear about my weight loss, and I don't want to seem like I am bragging or rubbing it in. Friendship dynamics have certainly changed, and it has taken some getting used to. I just try to be sensitive to where they are coming from, and try not to let it discourage me. I just take everything with a grain of salt. Best of luck to you! Chrissy OpenRNY 02/19/03 310.8/194.6 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2006 Report Share Posted December 7, 2006 Marla, Thank you so much for your support and prayers and love. I have missed seeing you post, and knew you were busy with teaching. It can be hard to give up those short-time positions-- but in the long run, we have to be listening to our bodies, so that we don't end up wearing earmuffs because the old body is screaming. . . I'm looking forward to seeing you back online more when you can. Love to you, Tracie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2006 Report Share Posted December 11, 2006 Thanks Tracie, 4 ½ days to go, and then I’ll be around more!! Hope you have a blessed day. Marl a From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of tiodaat@... Sent: Friday, December 08, 2006 12:24 AM To: Neurosarcoidosis Subject: Re: Marla Marla, Thank you so much for your support and prayers and love. I have missed seeing you post, and knew you were busy with teaching. It can be hard to give up those short-time positions-- but in the long run, we have to be listening to our bodies, so that we don't end up wearing earmuffs because the old body is screaming. . . I'm looking forward to seeing you back online more when you can. Love to you, Tracie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2007 Report Share Posted January 16, 2007 Thanks , I need to slow down, not an easy thing for me to do, at least I’m not teaching now, so hopefully will slow down, I think it’s the nurse in me, always busy until we drop, I’m sure you all can relate. How are you doing, I hope better, you’re in my prayers, I just found out that my neighbor, who is maybe 30 at the most has two little kids, had a stroke and is in rehab, she is paralyzed on her right side, she has MS, but I’m thinking the stroke might be more related to the medication she is taking for the MS, I just found out, so haven’t had a chance to go and see her yet, really makes you think about life? God Bless, Marla " Faith sees the invisible, believes the incredible and receives the impossible " From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Sent: Tuesday, January 16, 2007 12:56 AM To: Neurosarcoidosis Subject: Marla Marla, I hope you feel better soon. Love ya, -- Faith Based Chat with Ron and Marla 11 pm central, 1/14/2007, 11:00 pm Reminder from: Neurosarcoidosis Yahoo! Group Title: Faith Based Chat with Ron and Marla 11 pm central Date: Sunday January 14, 2007 Time: 11:00 pm - 12:00 am Repeats: This event repeats every week. Next reminder: The next reminder for this event will be sent in 47 minutes. Location: http://www.emxpc.net/chat/index.php Notes: THIS IS CENTRAL TIME. CALENDER WILL ONLY TAKE CENTRAL OR EASTERN TIME ONE OR THE OTHER . I PUT IT ON CENTRAL TIME. Get reminders on your mobile, Yahoo! Messenger, and email. Edit reminder options Copyright © 2007 Yahoo! Inc. All Rights Reserved | Terms of Service | Privacy Policy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 Well I think putting everyone on hold is a great idea, don’t you wish you could put the world on hold sometimesJ Marla Bramer " Faith sees the invisible, believes the incredible and receives the impossible " From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Moish Pomeranc Sent: Sunday, April 01, 2007 2:02 AM To: Neurosarcoidosis Subject: Re: Marla Hi, Thanks Marla for the support. Thwe funny thing is, i work right now in reception and all of the work is on the phone. i can't quit because i am still fight ing ssdi to recognize the ailment and I need the money. It is so absurd. When I feel that i am having speech problems, I just put everyone on hold! From: " Marla Bramer " <mebramer (AT) gmail (DOT) com> Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: advise: asap Date: Wed, 28 Mar 2007 15:58:42 -0700 Pomy, I am sorry to hear this about your doctors, nothing worse then dealing with too many docs. your sx's YES, I have had all of them, the numbness i just got use to, the crawly feeling usually comes on when i am tired, the speech problem, same and again as is everything with this disease it worse the more tired i am. I just found out from a neuro that i have loss some function on the left side, and told my Pulm doc the one that takes care of me to increase my autoimmune drugs to the highest level my body can tolerate, he's already up the dose but i don't see him until the middle of April. the speech thing I've had for awhile and even quite teaching due to it, as i felt like i should of been the student instead of the teacher, i would forget what i was talking about, couldn't answer a question, knew it, just couldn't get it out. Hang in there and keep on pushing girl i do believe we have to keep doing what we can, and even pushing it a little, not to the point of more damage. the neuro said if you don't use it you will lose, so i asked him i should be doing PT or something and he said No, you can't be back what you've lost but keep on the treadmill exercise etc... so that's what i hope to do. hang in there Pomy. blessings, Marla On 3/27/07, Moish Pomeranc <moishpomeranc (AT) hotmail (DOT) com> wrote: Hi, Due to my ns, I have days where I don't speak well. I know what I want to say or explain, but it just doesn't come out as I want it to. Yesterday was one of those days, nothing came out that people could understand well. Does anyone have these days? Today, I had a real fright. In the morning, my face sarted to feel numb, like ants craweing over it. felted it even my nose and my front teeth. It was scary, I thought I was having a ns attack and the ambulance was coming to take me away. Does anyone ever have this feeling and what do you take for it? I don't want to go to the dr. whodx'ed me or my gp because the first one only says that that'ds the way it is and nothing can be done, the gp says I have to go to him right awaay so he can understand what's happening. The real problem is that i am alone in this fight and getting no support. It's all so frustrating. Voiced pomy Express yourself instantly with MSN Messenger! MSN Messenger Download today it's FREE! Express yourself instantly with MSN Messenger! MSN Messenger Download today it's FREE! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2007 Report Share Posted April 2, 2007 Marla, that's very tempting. I admit I turn off the ringer on my phone sometimes, because between my mom & my kids I feel so drained. Then when they complain that they called me & I didn't answer, I can say that I didn't hear the phone, which is true! Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: <Neurosarcoidosis >Subject: RE: Re: MarlaDate: Sun, 1 Apr 2007 18:48:55 -0600 Well I think putting everyone on hold is a great idea, don’t you wish you could put the world on hold sometimesJ Marla Bramer "Faith sees the invisible, believes the incredible and receives the impossible" From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Moish PomerancSent: Sunday, April 01, 2007 2:02 AMTo: Neurosarcoidosis Subject: Re: Marla Hi, Thanks Marla for the support. Thwe funny thing is, i work right now in reception and all of the work is on the phone. i can't quit because i am still fight ing ssdi to recognize the ailment and I need the money. It is so absurd. When I feel that i am having speech problems, I just put everyone on hold! From: "Marla Bramer" <mebramer (AT) gmail (DOT) com>Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: advise: asapDate: Wed, 28 Mar 2007 15:58:42 -0700 Pomy, I am sorry to hear this about your doctors, nothing worse then dealing with too many docs. your sx's YES, I have had all of them, the numbness i just got use to, the crawly feeling usually comes on when i am tired, the speech problem, same and again as is everything with this disease it worse the more tired i am. I just found out from a neuro that i have loss some function on the left side, and told my Pulm doc the one that takes care of me to increase my autoimmune drugs to the highest level my body can tolerate, he's already up the dose but i don't see him until the middle of April. the speech thing I've had for awhile and even quite teaching due to it, as i felt like i should of been the student instead of the teacher, i would forget what i was talking about, couldn't answer a question, knew it, just couldn't get it out. Hang in there and keep on pushing girl i do believe we have to keep doing what we can, and even pushing it a little, not to the point of more damage. the neuro said if you don't use it you will lose, so i asked him i should be doing PT or something and he said No, you can't be back what you've lost but keep on the treadmill exercise etc... so that's what i hope to do. hang in there Pomy. blessings, Marla On 3/27/07, Moish Pomeranc <moishpomeranc (AT) hotmail (DOT) com> wrote: Hi, Due to my ns, I have days where I don't speak well. I know what I want to say or explain, but it just doesn't come out as I want it to. Yesterday was one of those days, nothing came out that people could understand well. Does anyone have these days? Today, I had a real fright. In the morning, my face sarted to feel numb, like ants craweing over it. felted it even my nose and my front teeth. It was scary, I thought I was having a ns attack and the ambulance was coming to take me away. Does anyone ever have this feeling and what do you take for it? I don't want to go to the dr. whodx'ed me or my gp because the first one only says that that'ds the way it is and nothing can be done, the gp says I have to go to him right awaay so he can understand what's happening. The real problem is that i am alone in this fight and getting no support. It's all so frustrating. Voiced pomy Express yourself instantly with MSN Messenger! MSN Messenger Download today it's FREE! Express yourself instantly with MSN Messenger! MSN Messenger Download today it's FREE! 5.5%* 30 year fixed mortgage rate. Good credit refinance. Up to 5 free quotes - *Terms Quote Link to comment Share on other sites More sharing options...
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