Guest guest Posted June 5, 2007 Report Share Posted June 5, 2007 With the current theory that my son has generalized malabsorption problems I was curious about cystic fibrosis. We live in NJ and I know that he and my daughter were tested at birth and the results were negative. I am just curious about the reliability of the testing. From the little bit I know about CF it involves pancreatic insufficiency, malabsorption and breathing difficulties. I would think he'd have had more respiratory problems (though he had striders for over a year) for it to be CF but after missing so much and learning that there are often more than one test for everything and some are more reliable than others I was afraid not to ask. Thanks much! Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2007 Report Share Posted June 5, 2007 THIS IS NOT CF. This is something yet undefined, affecting a great number of children. There is an allergic component...which is where the respiratory symptoms are coming in (asthma). Allergy of the gut and lungs - it seems. Not a stretch to pull the symptoms together. But not CF. Don't worry about things you don't need to worry about. - > With the current theory that my son has generalized malabsorption > problems I was curious about cystic fibrosis. We live in NJ and I know > that he and my daughter were tested at birth and the results were > negative. I am just curious about the reliability of the testing. From > the little bit I know about CF it involves pancreatic insufficiency, > malabsorption and breathing difficulties. I would think he'd have had > more respiratory problems (though he had striders for over a year) for > it to be CF but after missing so much and learning that there are often > more than one test for everything and some are more reliable than others > I was afraid not to ask. > > Thanks much! > Liz > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2007 Report Share Posted June 6, 2007 Big relief! Thanks! claudia.morris wrote: > > > >THIS IS NOT CF. This is something yet undefined, affecting a great >number of children. There is an allergic component...which is where >the respiratory symptoms are coming in (asthma). Allergy of the gut >and lungs - it seems. Not a stretch to pull the symptoms together. >But not CF. Don't worry about things you don't need to worry about. > >- > > > >>With the current theory that my son has generalized malabsorption >>problems I was curious about cystic fibrosis. We live in NJ and I >> >> >know > > >>that he and my daughter were tested at birth and the results were >>negative. I am just curious about the reliability of the testing. >> >> >>From > > >>the little bit I know about CF it involves pancreatic >> >> >insufficiency, > > >>malabsorption and breathing difficulties. I would think he'd have >> >> >had > > >>more respiratory problems (though he had striders for over a year) >> >> >for > > >>it to be CF but after missing so much and learning that there are >> >> >often > > >>more than one test for everything and some are more reliable than >> >> >others > > >>I was afraid not to ask. >> >>Thanks much! >>Liz >> >> >> > > > > > Quote Link to comment Share on other sites More sharing options...
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