New book to read The Cure How a Father Raised $100 Million...

[Guest guest]

....And Bucked the Medical

Establishment--In a Quest to Save His Children "

Has anyone else heard of this book? I heard the author on the radio

and plan on reading it, but wanted to see if anyone already has?

If not, hope that I can spread the word about this new " Lorenzo's

Oil " type amazing true story.

Information about it from the publisher:

The Cure

How a Father Raised $100 Million--And Bucked the Medical

Establishment--In a Quest to Save His Children

By Geeta Anand

Price: $25.95

On Sale: 8/29/2006

Formats: Hardcover

The remarkable true story of one father's race against time to found

a business that would cure his sick children.

and Aileen Crowley were on top of the world. With a brand-new

Harvard Business School degree, three beautiful children, a new

house, and a great job, they thought that they had just entered the

best years of life. Then doctors diagnosed their two youngest

children with Pompe disease, and everything changed.

Fifteen-month-old and five-month-old were given only

months to live. Pompe disease, the Crowleys were told, was so rare

that no company had bothered spending the money needed to sponsor

research. There was no cure, no treatment—only the gradual

degeneration of muscle so that at the end, the children would be

unable to walk, eat, or even breathe on their own. It was a

nightmare the Crowleys could hardly comprehend.

But Crowley refused to accept this death sentence—and in the

absence of other options, he made his own. Determined to find

scientists who could develop a replacement enzyme that would keep

the disease at bay and his children alive, Crowley quit his job as a

financial consultant and invested himself and his life savings in a

biotechnology start-up company. In just over a year, Novazyme

Pharmaceuticals, Inc., went from an endowment of $37,000 to $27

million, and was sold to Genzyme Corp. soon thereafter for a news-

breaking $137.5 million. But the struggle wasn't over yet, and

scientific setbacks, accusations of conflict of interest, business

troubles, and the children's own worsening condition would test the

limits of and Aileen's minds and hearts as they fought towards

a cure.

With deft prose and devastating clarity, Pulitzer Prize-winning Wall

Street Journal reporter Geeta Anand weaves together the disparate

threads of this remarkable story of cutting-edge science; of

business acumen and daring; and of the indomitable fighting spirit

of a family that refuses to give in.

Heart-wrenching yet triumphant, The Cure takes readers from the

boardrooms and laboratories to hospital beds and kindergarten

classrooms. With its captivating and ultimately deeply uplifting

narrative, The Cure is a wholly American story of commerce and

technology, of determination and daring, and of family and the power

of a belief in happy endings.

http://www.harpercollins.com/books/9780060734398/The_Cure/index.aspx

Wall Street Journal clip:

" Crowley was desperate. When his year-old daughter, , was diagnosed

with the rare and rapidly fatal Pompe disease, he and his wife were told there

was no treatment. Months later, doctors diagnosed their new baby, , with

the same genetic disease that progressively weakens muscles.

Frustrated with the slow pace of drug development, Mr. Crowley decided to take

matters into his own hands. The Bristol-Myers Squibb Co. executive quit his job

and took over as chief executive of a tiny biotechnology firm with a promising

approach to treating Pompe. His immediate goal: Find deep-pocketed investors.

But Mr. Crowley's pedigree ... "

http://online.wsj.com/google_login.html?url=http%3A%2F%2Fonline.wsj.com%2Farticl\

e%2FSB115689722809749013.html%3Fmod%3Dgooglenews_wsj

=====