Guest guest Posted February 11, 2007 Report Share Posted February 11, 2007 My son , now 3 1/2 was just diagnosed a few months ago with apraxia. He is VERY smart, and you can tell that he WANTS to say things, but... he just can't. You can see his little mind working, and it just breaks my heart that he can't get it out. We just had him evaluated before the end of the year because we thought it was about time to find out if something was wrong. There are some late talkers in our family, so.. we just assumed it was hereditary. Through evaluating him at school, they told us he has apraxia. Through researching online, it says they believe that a lot of cases are caused from a lack of oxygen at birth. This makes PERFECT sense!! When was born, he had a heart defect that no one knew about til 15 hours later. He had gone 15 hours at only 30% oxygen. We are SO thankful that he has no other issues that we know of, and he is very inteligant. It would have been MUCH worse!! I was curious if anyone else's children had low oxygen at birth also, and for how long. I would say that ' apraxia is VERY bad. He can say things to others, and no one has ANY CLUE what he's saying- besides mom, dad, baby, and when he " sings " the star wars theme (his fav. movie) using " na na na naaaa na, na na na naaaaa na.... " lol we work with him constantly, and it is getting better, but it's frustrating mostly to me I think because I know he's smart, and it breaks my heart that he can't say what he wants to! I hope to get some good info here, and I look forward to hearing success stories too! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2007 Report Share Posted February 12, 2007 hello i really dont know if my son was lack of oxgen or not but he didnt talk nether until like 2 months or so ago he started talking and he is now 4 years old and he will be 5 on his due date august 7th 02 he had apraxica if u like to chat i am all open my id name is april_scoggins2006 april " Tara O. " <taralowen@...> wrote: My son , now 3 1/2 was just diagnosed a few months ago with apraxia. He is VERY smart, and you can tell that he WANTS to say things, but... he just can't. You can see his little mind working, and it just breaks my heart that he can't get it out. We just had him evaluated before the end of the year because we thought it was about time to find out if something was wrong. There are some late talkers in our family, so.. we just assumed it was hereditary. Through evaluating him at school, they told us he has apraxia. Through researching online, it says they believe that a lot of cases are caused from a lack of oxygen at birth. This makes PERFECT sense!! When was born, he had a heart defect that no one knew about til 15 hours later. He had gone 15 hours at only 30% oxygen. We are SO thankful that he has no other issues that we know of, and he is very inteligant. It would have been MUCH worse!! I was curious if anyone else's children had low oxygen at birth also, and for how long. I would say that ' apraxia is VERY bad. He can say things to others, and no one has ANY CLUE what he's saying- besides mom, dad, baby, and when he " sings " the star wars theme (his fav. movie) using " na na na naaaa na, na na na naaaaa na.... " lol we work with him constantly, and it is getting better, but it's frustrating mostly to me I think because I know he's smart, and it breaks my heart that he can't say what he wants to! I hope to get some good info here, and I look forward to hearing success stories too! img scr=*http://i2.photobucket.com --------------------------------- Don't pick lemons. See all the new 2007 cars at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2007 Report Share Posted February 12, 2007 My son was navy blue when he was born. He didn't get any add'l oxygen at birth since he pinked up relatively quickly. I had oxygen about half way through the birth. It was a pretty traumatic birth 2 hrs and 45 min from start to finish. Our ENT said it appeared that he had a birth defect in the Eustachian tubes (which he would eventually outgrow), and that he had non infected fluid in the middle ear for a " very long time " Have you had your son to see an ENT? We found all this out at 18-24 months and had tubes put in at 26 months. We are currently doing an auditory retraining program to exercise the middle ear muscle and stimulate the brain. This has really helped with the speech. He now has a couple of 3 syllable words. _____ From: [mailto: ] On Behalf Of Tara O. Sent: Sunday, February 11, 2007 7:45 PM Subject: [ ] New here- introduction My son , now 3 1/2 was just diagnosed a few months ago with apraxia. He is VERY smart, and you can tell that he WANTS to say things, but... he just can't. You can see his little mind working, and it just breaks my heart that he can't get it out. We just had him evaluated before the end of the year because we thought it was about time to find out if something was wrong. There are some late talkers in our family, so.. we just assumed it was hereditary. Through evaluating him at school, they told us he has apraxia. Through researching online, it says they believe that a lot of cases are caused from a lack of oxygen at birth. This makes PERFECT sense!! When was born, he had a heart defect that no one knew about til 15 hours later. He had gone 15 hours at only 30% oxygen. We are SO thankful that he has no other issues that we know of, and he is very inteligant. It would have been MUCH worse!! I was curious if anyone else's children had low oxygen at birth also, and for how long. I would say that ' apraxia is VERY bad. He can say things to others, and no one has ANY CLUE what he's saying- besides mom, dad, baby, and when he " sings " the star wars theme (his fav. movie) using " na na na naaaa na, na na na naaaaa na.... " lol we work with him constantly, and it is getting better, but it's frustrating mostly to me I think because I know he's smart, and it breaks my heart that he can't say what he wants to! I hope to get some good info here, and I look forward to hearing success stories too! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2007 Report Share Posted February 13, 2007 Zeissler <hzeissler@...> wrote: My son was navy blue when he was born. He didn't get any add'l oxygen at birth since he pinked up relatively quickly. I had oxygen about half way through the birth. It was a pretty traumatic birth 2 hrs and 45 min from start to finish. Our ENT said it appeared that he had a birth defect in the Eustachian tubes (which he would eventually outgrow), and that he had non infected fluid in the middle ear for a " very long time " Have you had your son to see an ENT? We found all this out at 18-24 months and had tubes put in at 26 months. We are currently doing an auditory retraining program to exercise the middle ear muscle and stimulate the brain. This has really helped with the speech. He now has a couple of 3 syllable words. _____ From: [mailto: ] On Behalf Of Tara O. Sent: Sunday, February 11, 2007 7:45 PM Subject: [ ] New here- introduction My son , now 3 1/2 was just diagnosed a few months ago with apraxia. He is VERY smart, and you can tell that he WANTS to say things, but... he just can't. You can see his little mind working, and it just breaks my heart that he can't get it out. We just had him evaluated before the end of the year because we thought it was about time to find out if something was wrong. There are some late talkers in our family, so.. we just assumed it was hereditary. Through evaluating him at school, they told us he has apraxia. Through researching online, it says they believe that a lot of cases are caused from a lack of oxygen at birth. This makes PERFECT sense!! When was born, he had a heart defect that no one knew about til 15 hours later. He had gone 15 hours at only 30% oxygen. We are SO thankful that he has no other issues that we know of, and he is very inteligant. It would have been MUCH worse!! I was curious if anyone else's children had low oxygen at birth also, and for how long. I would say that ' apraxia is VERY bad. He can say things to others, and no one has ANY CLUE what he's saying- besides mom, dad, baby, and when he " sings " the star wars theme (his fav. movie) using " na na na naaaa na, na na na naaaaa na.... " lol we work with him constantly, and it is getting better, but it's frustrating mostly to me I think because I know he's smart, and it breaks my heart that he can't say what he wants to! I hope to get some good info here, and I look forward to hearing success stories too! Quote Link to comment Share on other sites More sharing options...
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