Children's Hospital Milw - RESULTS!!!!

[Guest guest]

Hello all!!

First of all I would like to thank each and every one of you for yor

responses, prayers, etc. these past 8 weeks. On 1/25 my 4 year old son Lucas

was diagnosed with Sanfillipo which is a fatal disease that effects the brain

and eventually causes death between the ages of 10 to late teen years. This is

the reason for the speech delay, cognitive delay, etc. There currently is NOT a

cure for this disease but the MPS society is trying hard to find one. I will

join the MPS society in this fight by holding a walk-a-thon in WI sometime this

summer as it is our only hope for Lucas' survival.

I will probably drop this group in the next week or so as Lukie is in a

different place than most of your kids. I love this group and you guys have

helped me through so many bad times. Your support has been just wonderful.

Keep on working with your kids and enjoy every day with them as it is more

precious then you may know.

Jill - Wisconsin

Lucas (4.0)

---------------------------------

Everyone is raving about the all-new beta.

[Guest guest]

>

> Hello all!!

> First of all I would like to thank each and every one of you for

yor responses, prayers, etc. these past 8 weeks. On 1/25 my 4 year

old son Lucas was diagnosed with Sanfillipo which is a fatal disease

that effects the brain and eventually causes death between the ages

of 10 to late teen years. This is the reason for the speech delay,

cognitive delay, etc. There currently is NOT a cure for this disease

but the MPS society is trying hard to find one. I will join the MPS

society in this fight by holding a walk-a-thon in WI sometime this

summer as it is our only hope for Lucas' survival.

>

> I will probably drop this group in the next week or so as Lukie

is in a different place than most of your kids. I love this group

and you guys have helped me through so many bad times. Your support

has been just wonderful. Keep on working with your kids and enjoy

every day with them as it is more precious then you may know.

>

> Jill - Wisconsin

> Lucas (4.0)

>

> Jill,

Jeanne here. I will keep your family in my prayers.

>

> ---------------------------------

> Everyone is raving about the all-new beta.

>

>

[Guest guest]

Jill, I am so very, very sorry. My prayers are with you always.

Suzanne

[ ] Children's Hospital Milw - RESULTS!!!!

Hello all!!

First of all I would like to thank each and every one of you for yor

responses, prayers, etc. these past 8 weeks. On 1/25 my 4 year old son Lucas

was diagnosed with Sanfillipo which is a fatal disease that effects the brain

and eventually causes death between the ages of 10 to late teen years. This is

the reason for the speech delay, cognitive delay, etc. There currently is NOT a

cure for this disease but the MPS society is trying hard to find one. I will

join the MPS society in this fight by holding a walk-a-thon in WI sometime this

summer as it is our only hope for Lucas' survival.

I will probably drop this group in the next week or so as Lukie is in a

different place than most of your kids. I love this group and you guys have

helped me through so many bad times. Your support has been just wonderful.

Keep on working with your kids and enjoy every day with them as it is more

precious then you may know.

Jill - Wisconsin

Lucas (4.0)

------------ --------- --------- ---

Everyone is raving about the all-new beta.

[Guest guest]

Hi Jill,

I wish you & your family well. You will be in my thoughts & prayers.

Yvette

> Hello all!!

> First of all I would like to thank each and every one of you for

yor responses, prayers, etc. these past 8 weeks. On 1/25 my 4 year

old son Lucas was diagnosed with Sanfillipo which is a fatal disease

that effects the brain and eventually causes death between the ages

of 10 to late teen years. This is the reason for the speech delay,

cognitive delay, etc. There currently is NOT a cure for this disease

but the MPS society is trying hard to find one. I will join the MPS

society in this fight by holding a walk-a-thon in WI sometime this

summer as it is our only hope for Lucas' survival.

>

> I will probably drop this group in the next week or so as Lukie

is in a different place than most of your kids. I love this group

and you guys have helped me through so many bad times. Your support

has been just wonderful. Keep on working with your kids and enjoy

every day with them as it is more precious then you may know.

>

> Jill - Wisconsin

> Lucas (4.0)

>

> Jill,

Jeanne here. I will keep your family in my prayers.

>

> ---------------------------------

> Everyone is raving about the all-new beta.

>

>

[Guest guest]

>

> Hello all!!

> First of all I would like to thank each and every one of you for

yor responses, prayers, etc. these past 8 weeks. On 1/25 my 4 year

old son Lucas was diagnosed with Sanfillipo which is a fatal disease

that effects the brain and eventually causes death between the ages

of 10 to late teen years. This is the reason for the speech delay,

cognitive delay, etc. There currently is NOT a cure for this

disease but the MPS society is trying hard to find one. I will join

the MPS society in this fight by holding a walk-a-thon in WI

sometime this summer as it is our only hope for Lucas' survival.

>

> I will probably drop this group in the next week or so as Lukie

is in a different place than most of your kids. I love this group

and you guys have helped me through so many bad times. Your support

has been just wonderful. Keep on working with your kids and enjoy

every day with them as it is more precious then you may know.

>

> Jill - Wisconsin

> Lucas (4.0)

>

>

>

> ---------------------------------

> Everyone is raving about the all-new beta.

>

>

[Guest guest]

Dear Jill,

My thoughts and prayers are with you, Lucas and your

entire family. I hope a cure is found quickly, and your

precious son beats all the odds. I can not even begin

to imagine what you must be going through. Suddenly

apraxia isn't so terrible.

Sue

jbmistletoe <jbmistletoe@...> wrote:

>

> Hello all!!

> First of all I would like to thank each and every one of you for

yor responses, prayers, etc. these past 8 weeks. On 1/25 my 4 year

old son Lucas was diagnosed with Sanfillipo which is a fatal disease

that effects the brain and eventually causes death between the ages

of 10 to late teen years. This is the reason for the speech delay,

cognitive delay, etc. There currently is NOT a cure for this disease

but the MPS society is trying hard to find one. I will join the MPS

society in this fight by holding a walk-a-thon in WI sometime this

summer as it is our only hope for Lucas' survival.

>

> I will probably drop this group in the next week or so as Lukie

is in a different place than most of your kids. I love this group

and you guys have helped me through so many bad times. Your support

has been just wonderful. Keep on working with your kids and enjoy

every day with them as it is more precious then you may know.

>

> Jill - Wisconsin

> Lucas (4.0)

>

> Jill,

Jeanne here. I will keep your family in my prayers.

>

> ---------------------------------

> Everyone is raving about the all-new beta.

>

>

[Guest guest]

Dear Jill,

I am so very sorry. My heart is breaking for you. Enjoy every day. \

-

> Hello all!!

> First of all I would like to thank each and every one of you for

yor responses, prayers, etc. these past 8 weeks. On 1/25 my 4 year

old son Lucas was diagnosed with Sanfillipo which is a fatal disease

that effects the brain and eventually causes death between the ages

of 10 to late teen years. This is the reason for the speech delay,

cognitive delay, etc. There currently is NOT a cure for this disease

but the MPS society is trying hard to find one. I will join the MPS

society in this fight by holding a walk-a-thon in WI sometime this

summer as it is our only hope for Lucas' survival.

>

> I will probably drop this group in the next week or so as Lukie

is in a different place than most of your kids. I love this group

and you guys have helped me through so many bad times. Your support

has been just wonderful. Keep on working with your kids and enjoy

every day with them as it is more precious then you may know.

>

> Jill - Wisconsin

> Lucas (4.0)

>

>

>

> ---------------------------------

> Everyone is raving about the all-new beta.

>

>

[Guest guest]

hi Jill,

My prayers are with you and Luke and your family through this difficult time

in your lives.

Jill Valdez <jmv_weinc@...> wrote:

Hello all!!

First of all I would like to thank each and every one of you for yor responses,

prayers, etc. these past 8 weeks. On 1/25 my 4 year old son Lucas was diagnosed

with Sanfillipo which is a fatal disease that effects the brain and eventually

causes death between the ages of 10 to late teen years. This is the reason for

the speech delay, cognitive delay, etc. There currently is NOT a cure for this

disease but the MPS society is trying hard to find one. I will join the MPS

society in this fight by holding a walk-a-thon in WI sometime this summer as it

is our only hope for Lucas' survival.

I will probably drop this group in the next week or so as Lukie is in a

different place than most of your kids. I love this group and you guys have

helped me through so many bad times. Your support has been just wonderful. Keep

on working with your kids and enjoy every day with them as it is more precious

then you may know.

Jill - Wisconsin

Lucas (4.0)

---------------------------------

Everyone is raving about the all-new beta.

[Guest guest]

Hello, Jill -

Good luck to you, our thoughts and prayers will be with you and Lucas and the

rest of your family through this journey.

Sherry and Josh

Jill Valdez <jmv_weinc@...> wrote:

Hello all!!

First of all I would like to thank each and every one of you for yor responses,

prayers, etc. these past 8 weeks. On 1/25 my 4 year old son Lucas was diagnosed

with Sanfillipo which is a fatal disease that effects the brain and eventually

causes death between the ages of 10 to late teen years. This is the reason for

the speech delay, cognitive delay, etc. There currently is NOT a cure for this

disease but the MPS society is trying hard to find one. I will join the MPS

society in this fight by holding a walk-a-thon in WI sometime this summer as it

is our only hope for Lucas' survival.

I will probably drop this group in the next week or so as Lukie is in a

different place than most of your kids. I love this group and you guys have

helped me through so many bad times. Your support has been just wonderful. Keep

on working with your kids and enjoy every day with them as it is more precious

then you may know.

Jill - Wisconsin

Lucas (4.0)

---------------------------------

Everyone is raving about the all-new beta.

[Guest guest]

I will continue to keep your precious son in my prayers.

Robin

>

> Hello all!!

> First of all I would like to thank each and every one of you for

yor responses, prayers, etc. these past 8 weeks. On 1/25 my 4 year

old son Lucas was diagnosed with Sanfillipo which is a fatal disease

that effects the brain and eventually causes death between the ages

of 10 to late teen years. This is the reason for the speech delay,

cognitive delay, etc. There currently is NOT a cure for this disease

but the MPS society is trying hard to find one. I will join the MPS

society in this fight by holding a walk-a-thon in WI sometime this

summer as it is our only hope for Lucas' survival.

>

> I will probably drop this group in the next week or so as Lukie

is in a different place than most of your kids. I love this group

and you guys have helped me through so many bad times. Your support

has been just wonderful. Keep on working with your kids and enjoy

every day with them as it is more precious then you may know.

>

> Jill - Wisconsin

> Lucas (4.0)

>

>

>

> ---------------------------------

> Everyone is raving about the all-new beta.

>

>

[Guest guest]

My thoughts and prayers are with you and your family. {{{{Lucas}}}}

>

>

>

> >

> > Hello all!!

> > First of all I would like to thank each and every one of you for

> yor responses, prayers, etc. these past 8 weeks. On 1/25 my 4 year

> old son Lucas was diagnosed with Sanfillipo which is a fatal disease

> that effects the brain and eventually causes death between the ages

> of 10 to late teen years. This is the reason for the speech delay,

> cognitive delay, etc. There currently is NOT a cure for this disease

> but the MPS society is trying hard to find one. I will join the MPS

> society in this fight by holding a walk-a-thon in WI sometime this

> summer as it is our only hope for Lucas' survival.

> >

> > I will probably drop this group in the next week or so as Lukie

> is in a different place than most of your kids. I love this group

> and you guys have helped me through so many bad times. Your support

> has been just wonderful. Keep on working with your kids and enjoy

> every day with them as it is more precious then you may know.

> >

> > Jill - Wisconsin

> > Lucas (4.0)

> >

> >

> >

> > ---------------------------------

> > Everyone is raving about the all-new beta.

> >

> >