Re: The Patient's SourceBook on Pancreatitis.

[Guest guest]

(This is sent from Karyn through another computer)

>>>...I came across book at & Noble called " The Patient's sourcebook on

Pancreatitis " .

..... Kimber <<<

Kimber,

I purchased that book several months ago. It is available to purchase as text or

as an e-book. There are strict copyright protection, and appropriately so. I am

looking at how to best share some of the information and honor the copyright.

The biggest kick of the whole book is........There is a section on Pancreatitis

Organizations. You should have seen my face when I saw the Pancreatitis

Association International listed as one of the top 3 providers of support and

information.

I should say I was smiling proud. Look at what can be done when you believe in

something. The Regional Representatives and State Representatives are important

and do make a difference. You have reached out your hand to scared, angry,

confused new comers; you have shared from your own experiences and given them

hope from your strength. Everyone, members, contacts, advocates, and adjunct

volunteers, have played an important role in affecting change. It means so much

to see your willingness to participate and give the group substance. I thank all

of you with all my heart.

Since its inception, August 4, 1999, the growth and development of the PAI has

had growing pains, occasional gossip and smirk comments ; some have called the

group pretentious, asking if we didn't realize we were just a handful of people

with Pancreatitis posting on a message board. We never let our pain color our

vision. And, that vision is as clear today as it was then. I see an Association

whose mission is to provide information, support, and advocacy to anyone whose

lives have been affected by Pancreatitis. The PAI offers numerous services.

With the development of the Pancreatitis in the Schools Project, I realized just

how Many People that entails. It isn't just the patient, their family, and

their healthcare provider. The pain of this disease can be seen in Many Faces,

our teachers, cross guards, bus drivers...the grocery clerk, postal worker,

service men and woman, .....our neighbors.

Every person who has shared and everyone who listened has given the PAI voice,

One Voice. It was heard.........and published.

Karyn , RN

Founder / Exec. Director

[Guest guest]

Karyn,

Thanks for letting me know our group is even published.

I look forward to getting the book. I ordered the printed

version of the book as I didn't know it was available as an

E-book. I periodically do search of books on pancreatitis

and there is a new one at Amazon.com that is due to be

published in Nov. 2003. It's horribly expensive though at

$125.00

Kimber

--

Kimber

Vallejo, CA

hominid2@...

[Guest guest]

Karyn,

Thanks for letting me know our group is even published.

I look forward to getting the book. I ordered the printed

version of the book as I didn't know it was available as an

E-book. I periodically do search of books on pancreatitis

and there is a new one at Amazon.com that is due to be

published in Nov. 2003. It's horribly expensive though at

$125.00

Kimber

--

Kimber

Vallejo, CA

hominid2@...

[Guest guest]

Karyn,

Thanks for letting me know our group is even published.

I look forward to getting the book. I ordered the printed

version of the book as I didn't know it was available as an

E-book. I periodically do search of books on pancreatitis

and there is a new one at Amazon.com that is due to be

published in Nov. 2003. It's horribly expensive though at

$125.00

Kimber

--

Kimber

Vallejo, CA

hominid2@...

[Guest guest]

<<

>>

I would like to add my congratulations to Karyn and everyone that is

so dedicated to responding to the posts each day they are able. You

are a wonderful group of people. Keep up the good work as the

support everyone gives each other is often vital.

Gail West, Indiana Representative

Pancreatitis Association Internatinal

www.pancassociation.org

[Guest guest]

<<

>>

I would like to add my congratulations to Karyn and everyone that is

so dedicated to responding to the posts each day they are able. You

are a wonderful group of people. Keep up the good work as the

support everyone gives each other is often vital.

Gail West, Indiana Representative

Pancreatitis Association Internatinal

www.pancassociation.org