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Re: Re: When to increase dose for Crohns

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>

> I also have Crohn's. I started at 3 mg for about 3 weeks and

> increased by .5 mg each night. at 4.5 mg. I felt terrible. I backed

> down to 4 mg. and found that to be my magic number! It's been about

> 2 or 3 weeks now of feeling better than I have ever felt in my life.

> I have to tell you, I was in a SEVERE flare lasting 6 solid months;

> vomiting, bloody diarrhea, 103 fever...24/7...I now have NO Crohn's

> symptoms and full of energy. I hope it works as well for you. By the

> way, I'm 5'6 " , 110 lbs.

> Vicky

>

Wow! I have CD, though I'm not currently in a terrible way. (Solid

bowel movements every day, but with mucus and inflammation.) Are there

other people with Crohn's on this list who have had similar results?

I've read sometimes the results can be short term, or can worsen over

time. Is the theory behind its efficacy in that it just kicks up the

immune system to fight whatever pathogen we are dealing with? With the

case of MS, if one is positive for something like chlaymidia pneumonia,

or in CD, if one were positive for MAP (paraturbuculosis avian

something) would this be sufficient to iradicate it; in other words,

does the immune system have the ability to overcome the source of these

disease, if it proves true that we are infected with these

mycobacteria? I asked my family practice doctor if he would prescribe

it, and he seemed to think one could get the same effect with aerobic

exercise. Are there any safety concerns in simply trying it? Does one

have to stay on it forever? Can one get pregnant and nurse safely at

this dose?

Debora

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