Re: Re: LDN/type 1 Diabetes

[Guest guest]

Hi everyone,

It seems to me that someone had reported that LDN could be helpful with Type 1 diabetes. Does anyone have any information on this?

Thanks

Aletha

[Guest guest]

Aletha,

It may have been me. Sorry for not replying sooner but I was too busy at the time and then I just came across your message now while cleaning out my overrun email box.

My 19 year old son has Type 1 diabetes, diagnosed 4 years ago. He has been on 4.5 mg of LDN for nearing 2 years, per Dr. Bihari's experience with 6 other Type 1 patients at the time who's diabetes seemed to stop progression. In my son's case, it is rather hard to say. He has been on quite low doses of insulin ever since he was diagnosed, even before getting on LDN, so it's hard to say how much effect the LDN has had. At his last appointment with the nurse / educator that he works with, the three of us had a discussion about whether his pancreas is functioning at all any more or not. Both the nurse and I thought that it probably was because he is on a low dose of insulin. However, he maintains that his pancreas doesn't secrete any insulin, given the way and amount of insulin he has to take to cover various food amounts (he has always done all that management and figuring himself, right from the start, and has done a great job). We had quite a discussion back and forth but he convinced us that his low dose of insulin needed is because of his low carb diet, because his body is very efficient using insulin, or some combination. He convinced us that he is not producing any insulin as he says if he eats twice as much food (i.e. a whole sub instead of a half sub) he has to take twice as much insulin. His reasoning is that if his body was producing some insulin, which would cover part of the carbs in the first half sub he eats, he would need to take more the same amount of insulin to cover that second half sub (as there wouldn't be any self produced insulin left to cover it).

So that's the long story. We don't know if it is helping the diabetes or not, whereas previously I had thought it was because of his continued low use of insulin. But it certainly isn't hurting, so as long as he is living at home, I'll see that he has it to take.

I just went and found a message I had posted after our initial visit with Dr. Bihari. This is what I wrote based on our conversation:

For Type 1 diabetes--he has 6 patients and it does appear LDN has stopped progression in all 6 with the diabetes in all having become and stayed stable. The longest Type 1 patient has been on it for 7 years.

The LDN has not prevented him from getting occasional colds, sore throats, and the flu (although fairly mild).

Kathie

On Thu, 16 Nov 2006 19:52:52 -0800 "Aletha Wittmann" <Aletha@...> writes:

Hi everyone,

It seems to me that someone had reported that LDN could be helpful with Type 1 diabetes. Does anyone have any information on this?

Thanks

Aletha

__._,_.

[Guest guest]

Thank you so much for your reply Kathie,

I appreciate your taking the time out to explain to me the whole of the situation and what your thoughts are. I will forward this message onto my daughter. So far she has started an exercise and diet program with a doctor and she has lost 15 pounds and is working hard to get back to normal.

I am glad to hear your son is doing well and keeping good tabs on his diet and maintenance for diabetes.

My very best to you

Aletha

Re: [low dose naltrexone] Re: LDN/type 1 Diabetes

Aletha,

It may have been me. Sorry for not replying sooner but I was too busy at the time and then I just came across your message now while cleaning out my overrun email box.

My 19 year old son has Type 1 diabetes, diagnosed 4 years ago. He has been on 4.5 mg of LDN for nearing 2 years, per Dr. Bihari's experience with 6 other Type 1 patients at the time who's diabetes seemed to stop progression. In my son's case, it is rather hard to say. He has been on quite low doses of insulin ever since he was diagnosed, even before getting on LDN, so it's hard to say how much effect the LDN has had. At his last appointment with the nurse / educator that he works with, the three of us had a discussion about whether his pancreas is functioning at all any more or not. Both the nurse and I thought that it probably was because he is on a low dose of insulin. However, he maintains that his pancreas doesn't secrete any insulin, given the way and amount of insulin he has to take to cover various food amounts (he has always done all that management and figuring himself, right from the start, and has done a great job). We had quite a discussion back and forth but he convinced us that his low dose of insulin needed is because of his low carb diet, because his body is very efficient using insulin, or some combination. He convinced us that he is not producing any insulin as he says if he eats twice as much food (i.e. a whole sub instead of a half sub) he has to take twice as much insulin. His reasoning is that if his body was producing some insulin, which would cover part of the carbs in the first half sub he eats, he would need to take more the same amount of insulin to cover that second half sub (as there wouldn't be any self produced insulin left to cover it).

So that's the long story. We don't know if it is helping the diabetes or not, whereas previously I had thought it was because of his continued low use of insulin. But it certainly isn't hurting, so as long as he is living at home, I'll see that he has it to take.

I just went and found a message I had posted after our initial visit with Dr. Bihari. This is what I wrote based on our conversation:

For Type 1 diabetes--he has 6 patients and it does appear LDN has stopped progression in all 6 with the diabetes in all having become and stayed stable. The longest Type 1 patient has been on it for 7 years.

The LDN has not prevented him from getting occasional colds, sore throats, and the flu (although fairly mild).

Kathie

On Thu, 16 Nov 2006 19:52:52 -0800 "Aletha Wittmann" <Aletharedshift> writes:

Hi everyone,

It seems to me that someone had reported that LDN could be helpful with Type 1 diabetes. Does anyone have any information on this?

Thanks

Aletha

__._,_.