Guest guest Posted December 11, 2006 Report Share Posted December 11, 2006 Caveman, Sounds like you are doing pretty well considering this nasty disease. What kind of diet are you on? Do you feel it has helped? Thanks, -- [low dose naltrexone] LDN Check-in: Well, at the end of today it will be three years on LDN. No further progression and a turn-around of a lot of symptoms. Some have returned that I initially thought were gone for good, but for the most part are now mild enough to be easily ignored. Fatigue...comes and goes, if I'm upright and moving, I can fight it off. Weakness still an issue but better. Burning sensations are now very mild. Critters are pretty much gone. (The feeling of something 'crawling' on the skin.) Stabbing pains are gone. Double vision still there but now mild, and gets worse if I read too much. MS 'hug' gone. Bladder, good to go! Bowels still an issue but working on it. Balance pretty good but once in awhile it fails me. Dizziness every once in awhile, not all the time anymore. Cognitive issues improved. Can now follow a conversation if I focus on it. Also have a memory.....hmmm...what was I saying? :-) Legs still weak, and tend to drag my feet as I walk but still don't need the cane for support or the wheelchair for any distances as before...I do have to "pace" myself or the weakness can come on and blindside me. Headache/Migraine...still gone!!! All of the above was really bad pre-ldn, and now much better. I still want more, and am slowly working on it. Realistically this 'may' be as good as it gets but, I think I can still do better. We'll see. Have to try to improve or become a dust bunny. ? Now....hmmm....memory memory....hmmm....cave....!Cave!....it's around here somewhere. Shuffle shuffle...(sound of knuckles dragging on the ground)....nice dark in here...zzzzzzz Cap'n Caveman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2006 Report Share Posted December 11, 2006 Hello, HELP! My face is being attacked......I can feel the sensations all the time and I have aged 10 years in the last year!! Any help out there? Also chronic contipation extreemly bad! Any suggestions? I'm in Oklahoma....does anyone know doctors this way that will start me on LDN? Thanks, Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2006 Report Share Posted December 11, 2006 Have you asked your general practitioner for a prescription. I do not have any OK LDN docs but I do have a doc on the list that does phone consultations for $200.00 for an LDN script. If you're interested let me know. This is the cheapest LDN phone consultation doc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2006 Report Share Posted December 11, 2006 WOW!!!! WAY TO GO CAVEMAN!!!!!!!jsgarvin <jsgarvin@...> wrote: Well, at the end of today it will be three years on LDN. No further progression and a turn-around of a lot of symptoms. Some have returned that I initially thought were gone for good, but for the most part are now mild enough to be easily ignored. Fatigue...comes and goes, if I'm upright and moving, I can fight it off. Weakness still an issue but better. Burning sensations are now very mild. Critters are pretty much gone. (The feeling of something 'crawling' on the skin.) Stabbing pains are gone. Double vision still there but now mild, and gets worse if I read too much. MS 'hug' gone. Bladder, good to go! Bowels still an issue but working on it. Balance pretty good but once in awhile it fails me. Dizziness every once in awhile, not all the time anymore. Cognitive issues improved. Can now follow a conversation if I focus on it. Also have a memory.....hmmm...what was I saying? :-) Legs still weak, and tend to drag my feet as I walk but still don't need the cane for support or the wheelchair for any distances as before...I do have to "pace" myself or the weakness can come on and blindside me. Headache/Migraine...still gone!!! All of the above was really bad pre-ldn, and now much better. I still want more, and am slowly working on it. Realistically this 'may' be as good as it gets but, I think I can still do better. We'll see. Have to try to improve or become a dust bunny. ? Now....hmmm....memory memory....hmmm....cave....!Cave!....it's around here somewhere. Shuffle shuffle...(sound of knuckles dragging on the ground)....nice dark in here...zzzzzzz Cap'n Caveman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2006 Report Share Posted December 11, 2006 When did you first start noticing the improvements. My boy friend and I have been on Naltrexone for 6 months. [low dose naltrexone] LDN Check-in: Well, at the end of today it will be three years on LDN. No further progression and a turn-around of a lot of symptoms. Some have returned that I initially thought were gone for good, but for the most part are now mild enough to be easily ignored. Fatigue...comes and goes, if I'm upright and moving, I can fight it off. Weakness still an issue but better. Burning sensations are now very mild. Critters are pretty much gone. (The feeling of something 'crawling' on the skin.) Stabbing pains are gone. Double vision still there but now mild, and gets worse if I read too much. MS 'hug' gone. Bladder, good to go! Bowels still an issue but working on it. Balance pretty good but once in awhile it fails me. Dizziness every once in awhile, not all the time anymore. Cognitive issues improved. Can now follow a conversation if I focus on it. Also have a memory.....hmmm...what was I saying? :-) Legs still weak, and tend to drag my feet as I walk but still don't need the cane for support or the wheelchair for any distances as before...I do have to "pace" myself or the weakness can come on and blindside me. Headache/Migraine...still gone!!! All of the above was really bad pre-ldn, and now much better. I still want more, and am slowly working on it. Realistically this 'may' be as good as it gets but, I think I can still do better. We'll see. Have to try to improve or become a dust bunny. ? Now....hmmm....memory memory....hmmm....cave....!Cave!....it's around here somewhere. Shuffle shuffle...(sound of knuckles dragging on the ground)....nice dark in here...zzzzzzz Cap'n Caveman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2006 Report Share Posted December 11, 2006 , unfortunately, not everyone experiences symptom improvement on LDN. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2006 Report Share Posted December 12, 2006 Re: [low dose naltrexone] LDN Check-in: Hello, HELP! My face is being attacked......I can feel the sensations all the time and I have aged 10 years in the last year!! Any help out there? Also chronic contipation extreemly bad! Any suggestions? I'm in Oklahoma....does anyone know doctors this way that will start me on LDN? Thanks, Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2006 Report Share Posted December 14, 2006 My Symptoms started originally with tingling in the face. The symptoms never returned after starting LDN. 500 mg magnesium tablets help with constipation for some sufferers. Re: [low dose naltrexone] LDN Check-in: Re: [low dose naltrexone] LDN Check-in: Hello, HELP! My face is being attacked......I can feel the sensations all the time and I have aged 10 years in the last year!! Any help out there? Also chronic contipation extreemly bad! Any suggestions? I'm in Oklahoma....does anyone know doctors this way that will start me on LDN? Thanks, Jan Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2006 Report Share Posted December 14, 2006 Magnesium is more easily absorbed in liquid rather than tablet form. www.naturalcalm.net and Milk of Magnesia are two liquid options mjh"The Basil Book"http://foxhillfarm.us/FireBasil/ Posted by: "herbfrosch@..." herbfrosch@... herbfrosch Wed Dec 13, 2006 7:59 pm (PST) My Symptoms started originally with tingling in the face. The symptoms never returned after starting LDN. 500 mg magnesium tablets help with constipation for some sufferers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2006 Report Share Posted December 14, 2006 Magnesium is more easily absorbed in liquid rather than tablet form. www.naturalcalm.net and Milk of Magnesia are two liquid options mjh"The Basil Book"http://foxhillfarm.us/FireBasil/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2006 Report Share Posted December 15, 2006 Hello, Yes, could you please give me the info of who I should call to get LDN by phone.......that would be so helpful! Do you have any ideas on how to stop the face attack? Is candida a major issue with this disease? Thanks! Jan Quote Link to comment Share on other sites More sharing options...
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