Guest guest Posted December 16, 2006 Report Share Posted December 16, 2006 I am supposed to go to see my Neuro in January. I think I am going to keep the appointment, but I'm going to be ready for him. It wii most likely be my last! He's wanting me to do the Novantrone (chemo) or Tysabri. First - I'm going to ask for something to sign that says there is NO risk and that I will see absolute improvement. Second - I'm going to remind him that I nearly died from a UTI this past summer and have not regained my strength yet, so why would I want to induce myself with ilness? Third - I'm going to remind him that he works for ME. I make informed decisions. My legs may not work, but my brain does. My GP prescribes my LDN. So the Neuro won't even discuss it. It's my choice for treatment. I can't say that it is halting disease progression, but I know it is not hurting me. Until something better comes along, I'll keep trying different alternative treatments. I'm doing high dose Vit C IVs and Hydrogen Peroxide IVs. I think I may finally be getting a little energy back. Marcie Quote Link to comment Share on other sites More sharing options...
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