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Re: Start at 3.0 and move up to 4.5 ??

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Anita, I pray it helps you! Parmajak1@..., fellow MSer that takes Avonex.

From: Anita

low dose naltrexone

Sent: Saturday, November 25, 2006 11:11 AM

Subject: [low dose naltrexone] Start at 3.0 and move up to 4.5 ??

Greetings everyone...After my blood work and MRI,doc is prescribing the LDN.....oo !! Should I start at the 3.0 doseage for a week or two and then go to the 4.5? I've read that most women do best at the 4.5 and men at 3.0 Any suggestions or advice ? The LDN is for MS in my case. THANX for all ur help and guidence....I REALLY appreciate u all !! Anita

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Anita, Dr. Bihari recommends beginning at 3 mg if you have or are

presently experiencing spasticity (stiffness, spasms). It may be true

that most women do better on 4.5 mg, but I've been on 3 mg for almost

three years, and Dr. Bihari sees no reason for me to change that.

I think it's terrific that you're starting. How you been to the LDN

website? (www.ldninfo.org)

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we recommend people start with 1.5 and stay on it for  a month then go to 3 for a month then 4.5cyndiOn Nov 25, 2006, at 12:11 PM, Anita wrote:Greetings everyone...After my blood work and MRI,doc is prescribing the LDN.....oo !! Should I start at the 3.0 doseage for a week or two and then go to the 4.5? I've read that most women do best at the 4.5 and men at 3.0 Any suggestions or advice ? The LDN is for MS in my case. THANX for all ur help and guidence....I REALLY appreciate u all !! Anita

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Maybe I'm wrong Cyndi (first time for everything .... joke!) but I have

been given the impression from things I've read that people who start on

only 1.5mg are the ones who sometimes then have problems getting to even

3.0mg, let alone 4.5mg. Am happy to be proven wrong of course but would

be interested to hear comments from people who started at 1.5mg.

Cyndi Lenz wrote:

> we recommend people start with 1.5 and stay on it for a month then go

> to 3 for a month then 4.5

> cyndi

> On Nov 25, 2006, at 12:11 PM, Anita wrote:

>

>> Greetings everyone...After my blood work and MRI,doc is prescribing

>> the LDN.....oo !! Should I start at the 3.0 doseage for a week

>> or two and then go to the 4.5? I've read that most women do best at

>> the 4.5 and men at 3.0 Any suggestions or advice ? The LDN is for MS

>> in my case. THANX for all ur help and guidence....I REALLY appreciate

>> u all !! Anita

>>

>

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Yeah, I always recommend Starting at 3, stay there for a while, and then when you are happy with your results, try 4.5.

Or you can try 4.5 to start, if you wish, and drop down to 3 if you don't like how it feels.

1.5 was unheard of. All the info said less than 1.75 was useless. Reg from Canada and I were talking about 'how to try 4.5' when you take 3.0; so it was mentioned to ask the doc for a 4.5 script, filled in 1.5 caps, 3 times a day. Then you can take 2 every day normally, and when ready to try 4.5, take 3 of them. That was the ONLY reason to have 1.5s.

Then people started to get creative, and have more problems.

But that's JMHO, YMMV, do it how ya like it.

Re: [low dose naltrexone] Start at 3.0 and move up to 4.5 ??

Maybe I'm wrong Cyndi (first time for everything .... joke!) but I have been given the impression from things I've read that people who start on only 1.5mg are the ones who sometimes then have problems getting to even 3.0mg, let alone 4.5mg. Am happy to be proven wrong of course but would be interested to hear comments from people who started at 1.5mg.Cyndi Lenz wrote:> we recommend people start with 1.5 and stay on it for a month then go > to 3 for a month then 4.5> cyndi> On Nov 25, 2006, at 12:11 PM, Anita wrote:>>> Greetings everyone...After my blood work and MRI,doc is prescribing>> the LDN.....oo !! Should I start at the 3.0 doseage for a week>> or two and then go to the 4.5? I've read that most women do best at>> the 4.5 and men at 3.0 Any suggestions or advice ? The LDN is for MS>> in my case. THANX for all ur help and guidence....I REALLY appreciate>> u all !! Anita>>>

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this is our recommendation for everyone in our pharmacy who seem to be doing really well. cyndiOn Nov 26, 2006, at 3:49 AM, C wrote:Maybe I'm wrong Cyndi (first time for everything .... joke!) but I have been given the impression from things I've read that people who start on only 1.5mg are the ones who sometimes then have problems getting to even 3.0mg, let alone 4.5mg. Am happy to be proven wrong of course but would be interested to hear comments from people who started at 1.5mg.Cyndi Lenz wrote:> we recommend people start with 1.5 and stay on it for a month then go > to 3 for a month then 4.5> cyndi> On Nov 25, 2006, at 12:11 PM, Anita wrote:>>> Greetings everyone...After my blood work and MRI,doc is prescribing>> the LDN.....oo !! Should I start at the 3.0 doseage for a week>> or two and then go to the 4.5? I've read that most women do best at>> the 4.5 and men at 3.0 Any suggestions or advice ? The LDN is for MS>> in my case. THANX for all ur help and guidence....I REALLY appreciate>> u all !! Anita>>>

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the reason to start at the 1.5 -it just avoids the beginning side effectscyndiOn Nov 26, 2006, at 4:12 AM, LarryGC wrote:Yeah, I always recommend Starting at 3, stay there for a while, and then when you are happy with your results, try 4.5. Or you can try 4.5 to start, if you wish, and drop down to 3 if you don't like how it feels. 1.5 was unheard of.  All the info said less than 1.75 was useless.  Reg from Canada and I were talking about 'how to try 4.5' when you take 3.0; so it was mentioned to ask the doc for a 4.5 script, filled in 1.5 caps, 3 times a day.  Then you can take 2 every day normally, and when ready to try 4.5, take 3 of them.  That was the ONLY reason to have 1.5s. Then people started to get creative, and have more problems. But that's JMHO, YMMV, do it how ya like it.   Re: [low dose naltrexone] Start at 3.0 and move up to 4.5 ??Maybe I'm wrong Cyndi (first time for everything .... joke!) but I have been given the impression from things I've read that people who start on only 1.5mg are the ones who sometimes then have problems getting to even 3.0mg, let alone 4.5mg.  Am happy to be proven wrong of course but would be interested to hear comments from people who started at 1.5mg.Cyndi Lenz wrote:> we recommend people start with 1.5 and stay on it for  a month then go > to 3 for a month then 4.5> cyndi> On Nov 25, 2006, at 12:11 PM, Anita wrote:>>> Greetings everyone...After my blood work and MRI,doc is prescribing>> the LDN.....oo !! Should I start at the 3.0 doseage for a week>> or two and then go to the 4.5? I've read that most women do best at>> the 4.5 and men at 3.0 Any suggestions or advice ? The LDN is for MS>> in my case. THANX for all ur help and guidence....I REALLY appreciate>> u all !! Anita>>>

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>

> we recommend people start with 1.5 and stay on it for a month then

> go to 3 for a month then 4.5

> cyndi

==============

What does Jill recommend for Crohn's, starting at 1.5mg and

gradually working up or starting at full LDN dose? I know that on my

forum that the more quickly crohn's patients go to 4.5mg the crohn's

gets much better.

And for the autistic kids Dr. McCandless recommends ramping to full

dose(for the size of child) as quickly as possible.

And cancer patients should all be started at 4.5mg unless they are

less than 100 pounds, Bihari likes that maximum dose for cancer

patients.

Are there other diseases that warrant ramping up to the maximum dose

of 4.5mg as quickly as possible? Maybe ALS(Lou Gehrig's)? Anyone

know on ALS if one should start small or at 4.5mg? ALS is such a fast

killer that I would think 4.5mg immediately would be recommended.

Cyndi, do you know on ALS? On my board I've always recommended an ALS

patient start at 4.5mg, can they start lower than 4.5mg and still be

safe?

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>

> Maybe I'm wrong Cyndi (first time for everything .... joke!) but I

have

> been given the impression from things I've read that people who

start on

> only 1.5mg are the ones who sometimes then have problems getting to

even

> 3.0mg, let alone 4.5mg. Am happy to be proven wrong of course but

would

> be interested to hear comments from people who started at 1.5mg.

>

>

=============

,

You're not imagining it, I've noticed the same thing on several

different forums. Many who start at 1.5mg can then only make it to

possibly 2.0mg and not go further and they stay at 1.5mg or 2.0mg not

realizing they are not protocted from progression at such low doses.

I've noticed more whining and agony from those who start at the lower

dose of 1.5mg. Each time they have to ramp up they have to go through

the negative side effcts all over again with each ramp up. Of course

this doesn't happen with all who start at 1.5mg but it does with many.

When I started LDN starting at 1.5mg was not even heard of, it was

3.0mg or 4.5mg for those with MS.

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we have hundreds of patients-this is what we recommend based on issues we saw.

and the people are doing great.

we've had a much better sucess rate.

cyndi

[low dose naltrexone] Re: Start at 3.0 and move up to 4.5 ??

>> Maybe I'm wrong Cyndi (first time for everything .... joke!) but I have > been given the impression from things I've read that people who start on > only 1.5mg are the ones who sometimes then have problems getting to even > 3.0mg, let alone 4.5mg. Am happy to be proven wrong of course but would > be interested to hear comments from people who started at 1.5mg.> > =============,You're not imagining it, I've noticed the same thing on several different forums. Many who start at 1.5mg can then only make it to possibly 2.0mg and not go further and they stay at 1.5mg or 2.0mg not realizing they are not protocted from progression at such low doses. I've noticed more whining and agony from those who start at the lower dose of 1.5mg. Each time they have to ramp up they have to go through the negative side effcts all over again with each ramp up. Of course this doesn't happen with all who start at 1.5mg but it does with many.When I started LDN starting at 1.5mg was not even heard of, it was 3.0mg or 4.5mg for those with MS.

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Hi Anita,

It seemed a long while back that women were doing better on the higher dosage, but then a poll was taken and it was determined that everyone reacts a bit differently and there was no correlation to gender, age or weight. The best recommendation now is to start off at 1.5mg, build your way up to 3mg and see how you are doing. If you feel you are doing fine then try 4.5. You are the best judge of what dosage is working best for you.

My best

Aletha

[low dose naltrexone] Start at 3.0 and move up to 4.5 ??

Greetings everyone...After my blood work and MRI,doc is prescribing the LDN.....oo !! Should I start at the 3.0 doseage for a week or two and then go to the 4.5? I've read that most women do best at the 4.5 and men at 3.0 Any suggestions or advice ? The LDN is for MS in my case. THANX for all ur help and guidence....I REALLY appreciate u all !! Anita

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Anita, I just want to add to Aletha's message that you should get up to

3 mg as soon as possible, because it's only at that dosage that LDN

prevents disease progression (per Dr. Bihari).

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Yep, I've told people with ALS I've got started on LDN to start at 3.0

mg and try to get to 4.5 mg ASAP. None of them has had any great

problems getting to 4.5mg.

Bren wrote:

>Are there other diseases that warrant ramping up to the maximum dose

>of 4.5mg as quickly as possible? Maybe ALS(Lou Gehrig's)? Anyone

>know on ALS if one should start small or at 4.5mg? ALS is such a fast

>killer that I would think 4.5mg immediately would be recommended.

>Cyndi, do you know on ALS? On my board I've always recommended an ALS

>patient start at 4.5mg, can they start lower than 4.5mg and still be

>safe?

>

>

>

>

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> 1.5 was unheard of. All the info said less than 1.75 was

useless. Reg from Canada and I were talking about 'how to try 4.5'

when you take 3.0; so it was mentioned to ask the doc for a 4.5

script, filled in 1.5 caps, 3 times a day. Then you can take 2

every day normally, and when ready to try 4.5, take 3 of them. That

was the ONLY reason to have 1.5s.

>

> Then people started to get creative, and have more problems.

>

--

One of the papers from the Brewer Science Library mentioned that the

lowest dose of naltrexone that would do anything was 1.75mg. I got

the idea reading all of these posts that one should start at 1.5mg

for 30 days, then move up to 3.0mg. After reading the paper, I

doubled up my 1.5 mg capsules and had the 3.0mg script filled.

The jury is still out.

Real

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>

.........The best recommendation now is to start off at 1.5mg, build

your way up to 3mg and see how you are doing. If you feel you are

doing fine then try 4.5. You are the best judge of what dosage is

working best for you.

>

What in the heck do all of the alcoholics do to get to 50mg/day?? I

washed my 3.0mg capsule of naltrexone down last night with a cup of

wine.

blah

Real

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Anita, good luck to you on LDN! Parmajak1@...

[low dose naltrexone] Start at 3.0 and move up to 4.5 ??

Greetings everyone...After my blood work and MRI,doc is prescribing the LDN.....oo !! Should I start at the 3.0 doseage for a week or two and then go to the 4.5? I've read that most women do best at the 4.5 and men at 3.0 Any suggestions or advice ? The LDN is for MS in my case. THANX for all ur help and guidence....I REALLY appreciate u all !! Anita

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According to the info on the LDN webpage the dose that stops MS

progression 4.5mgs. Anything lower does it still work?

> > 1.5 was unheard of. All the info said less than 1.75 was

> useless. Reg from Canada and I were talking about 'how to try 4.5'

> when you take 3.0; so it was mentioned to ask the doc for a 4.5

> script, filled in 1.5 caps, 3 times a day. Then you can take 2

> every day normally, and when ready to try 4.5, take 3 of them. That

> was the ONLY reason to have 1.5s.

> >

> > Then people started to get creative, and have more problems.

> >

>

> --

> One of the papers from the Brewer Science Library mentioned that the

> lowest dose of naltrexone that would do anything was 1.75mg. I got

> the idea reading all of these posts that one should start at 1.5mg

> for 30 days, then move up to 3.0mg. After reading the paper, I

> doubled up my 1.5 mg capsules and had the 3.0mg script filled.

>

> The jury is still out.

>

> Real

>

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Vivicienna, according to Dr. Bihari and Dr. Lawrence, 3 mg is also an

appropriate dosage to prevent MS disease progression. Some people do

better on 4.5, some on 3. It seems that people experiencing spasticity

often do better on 3. I believe the LDN website mentions this.

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