RemedyFind LDN

[Guest guest]

I found this story on the Remedyfind site. Sounds hopeful. Dan

" Featured Member - BillR

My name is (Bill) ; I am 57 years old, was diagnosed

with RRMS in 1998, and upgraded to Secondary Progressive in 2002. My

chief symptoms are (were) extreme mixed sleep apnea, COPD, inability

to walk, total deafness in my left ear, and inability to concentrate

for any period of time. I have been treated with Avonex, Copaxone,

and Rebif of the ABCR drugs, chemotherapy (Cytoxan, plasma exchange,

as well as many many sessions of IV steroids (Solumedrol).

As of June, 2005, I was on oxygen 24/7, wheelchair bound, having a

flair of my MS on an average of once a month, and doctors had told me

that my breathing difficulties, caused by the MS, would ultimately

result in my demise. I had also ballooned in weight to 289 pounds.

Two of the top neurologists in Birmingham consulted and agreed that,

while continuing on rebif, I should begin taking a week of IV

steroids every three months, regardless of my condition. I did not

feel that the steroids were offering enough positive results any

longer, and I did not want to take any more. I asked if they would

mind my getting an alternate opinion from another neurologist. They

agreed.

My new neuro reran all of the standard MS tests, including MRIs.

After studying the results, she suggested I stay on the Rebif and see

what the next two months showed with regard to flares or episodes,

then to probably go back on chemotherapy. I asked her, at that time,

if she would prescribe a drug LDN (Low Dose Naltrexone), for me. I

had read a great deal about it and talked to a number of MS sufferers

who had improved with the use of LDN, a medication that is FDA

approved as a treatment for Heroin addiction and alcoholism. She said

she had never prescribed it but had also read a lot about it. She

agreed to prescribe it.

I began, around the first of July, 2005, with 1.5 Mg per day for the

first week, then increased to 3.0 Mg from then, on. I also stopped

taking the Rebif at that time. While I did not notice any improvement

for the first three months, I also had NO flares either. Then, I

began to notice that my breathing was improving - I could take time

off from the oxygen for extended periods of time; the strength in my

legs and arms was improving- I began to be able to take short walks

with a walker, then longer walks, then changed to a cane, then

actually walked to the bathroom without assistance! My sleep began to

improve, as well.

Improvement continued and actually increased, so that when I went for

my six month check-up with my neurologist, I did not even take my

cane, and I blew away my neuro by acing all the tests. I am now

driving again after four years, walking totally without assistance,

and have dropped my weight down to 232 pounds. I hope to get back to

my normal weight of 195 by year's end. In April, after my wife was

dxd as a borderline diabetic, I walked in a " Walk For Diabetes. " I

walked just over 21/2 miles, with no assistance, beginning with the

first group out and finishing with the first group in! I was both

pleased and proud to accomplish something else I never thought I

would be able to do again.

Now, I plan to spend the summer building a fence in our back yard and

relandscaping it. LDN is NOT a cure for MS. I still have it, and I

still have issues with it that I have to deal with everyday, but I

attribute my miraculous improvement to LDN, attitude, faith, and my

new neurologist's willingness to prescribe LDN for me. It is allowing

me to do things I never thought I would be able to do again, and if

it were to become an approved treatment for MS it could not only

possibly do the same for others that it has done for me, but it could

also possibly free up millions of dollars that could be used to find

the cause of diseases such as MS. Finding the cause for a disease

brings researchers MUCH closer to finding a true cure. "