Side Effects of LDN

[Guest guest]

Hi Everyone Can anyone tell me if they are experiencing itchiness from taking LDN. My brother who is suffering from Motor Neurone Disease (LGD/ALS) is now taking 5 mg. Would the increase in dosage bring about this itchiness. To date we have not seen any improvement in my brother, but we are hoping it is early days. I would appreciate hearing from anyone suffering from Motor Neurone Disease (LGD/ALS) who is finding taking LDN beneficial to them and in what areas they found an improvement. Bernadette Send instant messages to your online friends http://uk.messenger.

[Guest guest]

>

> Hi Everyone

>

> Can anyone tell me if

they are experiencing

itchiness from taking

LDN. My brother who is

suffering from Motor

Neurone Disease (LGD/ALS)

is now taking 5 mg. Would

the increase in dosage

bring about this

itchiness. To date we

have not seen any

improvement in my brother,

but we are hoping it is

early days. I would

appreciate hearing from

anyone suffering from

Motor Neurone Disease

(LGD/ALS) who is finding

taking LDN beneficial to

them and in what areas

they found an improvement.

>

> Bernadette

==========

Itchiness, hives, rashes,

etc. are good indications

of a yeasty gut. LDN has

most likely activated an

underlying yeast problem.

A very low carbohydrate

diet needs to be followed

for a year or more to

lower candida yeast

overgrowth. Eliminate

from the diet all sugar

(use Stevia sweetener),

all dairy, wheat, gluten

and soy. Use organic

meats that are steroid and

antibiotic free as these

two fuel yeast. You can

try a two week course of

Diflucan if diet is not an

option. Nystatin is not

the better prescription

drug to combat yeast in

the blood stream but

Diflucan is. If the diet

can be done let me know

and I will list the

supplements that you would

want to use in combo with

the diet.

If one has candida yeast

LDN struggles to perform

to it's maximum potential.

[Guest guest]

I wonder if the increase is somehow causing a release of histamins in his body, was he (no itching) ok with a lower dose?>> Hi Everyone> > Can anyone tell me if they are experiencing itchiness from taking LDN. My brother who is suffering from Motor Neurone Disease (LGD/ALS) is now taking 5 mg. Would the increase in dosage bring about this itchiness. To date we have not seen any improvement in my brother, but we are hoping it is early days. I would appreciate hearing from anyone suffering from Motor Neurone Disease (LGD/ALS) who is finding taking LDN beneficial to them and in what areas they found an improvement.> > Bernadette> > Send instant messages to your online friends http://uk.messenger.>

[Guest guest]

> >

> > Hi Everyone

> >

> > Can anyone tell me if

they are experiencing

itchiness from taking LDN.

> My brother who is

suffering from Motor

Neurone Disease (LGD/ALS)

is now

> taking 5 mg. Would the

increase in dosage bring

about this itchiness. To

> date we have not seen

any improvement in my

brother, but we are hoping

> it is early days. I

would appreciate hearing

from anyone suffering from

> Motor Neurone Disease

(LGD/ALS) who is finding

taking LDN beneficial to

> them and in what areas

they found an improvement.

> >

> > Bernadette

> >

=========

BTW, why is he taking 5mg

of LDN? He should not be

taking over 4.5mg.

[Guest guest]

Bernadette, I don't know anyone with your brother's condition, but why

is he taking 5 mg? Dr. Bihari has almost never prescribed more than

4.5.

[Guest guest]

Hi Just spoke to my brother's pharmacist and he said that it was a mistake and he should only be taking 4.5 mg. However, he did point out that the extra amount would not harm him in any way but it was just a waste. At least now we know what we are doing. Bernadettecreiaa <CLANDAU@...> wrote: Bernadette, I don't know anyone with your brother's condition, but why is he taking 5 mg? Dr. Bihari has almost

never prescribed more than 4.5. Send instant messages to your online friends http://uk.messenger.

[Guest guest]

Hi Bren Just spoke to my brother's pharmacist and he told me we should only be giving him 4.5 mg. Whoever printed the label on the bottle made a mistake, however, he pointed out that the extra amount would not harm him in any way, it was just a waste of the liquid. Paddy is being treated with anit-histamines at present, so hopefully the symptons should ease. Many thanks for your help and advice. BernadetteBren <b63powell@...> wrote: > >> > Hi Everyone> >> > Can anyone tell me if they are experiencing itchiness from taking LDN.> My brother who is suffering from Motor Neurone Disease (LGD/ALS) is now> taking 5 mg. Would the increase in dosage bring about this itchiness. To> date we have not seen any improvement in my brother, but we are hoping> it is early days. I would appreciate hearing from anyone suffering from> Motor Neurone Disease (LGD/ALS) who is finding

taking LDN beneficial to> them and in what areas they found an improvement.> >> > Bernadette> >=========BTW, why is he taking 5mg of LDN? He should not be taking over 4.5mg. Send instant messages to your online friends http://uk.messenger.

[Guest guest]

Hi Bernadette,

Most definitely can help with ALS/MND. See

http://low dose naltrexone.org/others.htm#ND (which I wrote and must

update when I find time) and also post 40568 on here (and to a lesser

extent 40624). Sorry, can't help on the itchiness thing but don't

remember ever hearing anybody else having that problem due to LDN.

Bernadette MacFarland wrote:

> Hi Everyone

>

> Can anyone tell me if they are experiencing itchiness from taking

> LDN. My brother who is suffering from Motor Neurone Disease (LGD/ALS)

> is now taking 5 mg. Would the increase in dosage bring about this

> itchiness. To date we have not seen any improvement in my brother,

> but we are hoping it is early days. I would appreciate hearing from

> anyone suffering from Motor Neurone Disease (LGD/ALS) who is finding

> taking LDN beneficial to them and in what areas they found an improvement.

>

> Bernadette

[Guest guest]

Bernadette, I'm glad it's been straightened out. I was concerned,

because some people HAVE had increased side effects because they were

taking too much.

[Guest guest]

no i 've never heard of anyone being itchy. but since its a liquid

you might want to ask what else is in there.

cyndi

On Oct 17, 2006, at 10:59 AM, C wrote:

> Hi Bernadette,

>

> Most definitely can help with ALS/MND. See

> http://low dose naltrexone.org/others.htm#ND (which I wrote and must

> update when I find time) and also post 40568 on here (and to a lesser

> extent 40624). Sorry, can't help on the itchiness thing but don't

> remember ever hearing anybody else having that problem due to LDN.

>

>

>

> Bernadette MacFarland wrote:

>

>> Hi Everyone

>>

>> Can anyone tell me if they are experiencing itchiness from taking

>> LDN. My brother who is suffering from Motor Neurone Disease (LGD/

>> ALS)

>> is now taking 5 mg. Would the increase in dosage bring about this

>> itchiness. To date we have not seen any improvement in my brother,

>> but we are hoping it is early days. I would appreciate hearing from

>> anyone suffering from Motor Neurone Disease (LGD/ALS) who is finding

>> taking LDN beneficial to them and in what areas they found an

>> improvement.

>>

>> Bernadette

>

>

>

>

[Guest guest]

> >

> >> Hi Everyone

> >>

> >> Can anyone tell me if they are experiencing itchiness from taking

> >> LDN. My brother who is suffering from Motor Neurone Disease

(LGD/

> >> ALS)

> >> is now taking 5 mg. Would the increase in dosage bring about

this

> >> itchiness. To date we have not seen any improvement in my

brother,

> >> but we are hoping it is early days. I would appreciate hearing

from

> >> anyone suffering from Motor Neurone Disease (LGD/ALS) who is

finding

> >> taking LDN beneficial to them and in what areas they found an

> >> improvement.

> >>

> >> Bernadette

> >

> > Bernadette,

it seems that you have gotten the dose straightened out, for

your brother, but seemed

to feel that the itchiness he's experiencing, may be from an

underlying yeast problem, which can be helped by diet.

> >

[Guest guest]

The results of the poll would be meaningless as it will not reflect ALL people taking LDN.... and, even some of those on this group would not participate.

mjh"The Basil Book"http://foxhillfarm.us/FireBasil/

Posted by: "Aletha Wittmann" Aletha@...

Wed Oct 18, 2006 8:54 am (PST)

Hi ,Maybe it is time for another poll. I really don't think that the percentages are correct.Thanks for your very thoughtful replyAletha

[Guest guest]

EXACTLY!! There are benifits to looking for the best.

>

> Here's my thought for what's it's worth. We can't ignore the

> mind/body connection regarding LDN treatment. Just the sheer

> possibility and new hope involved when you learn of LDN is a tonic.

> If you begin LDN and feel your energy start to return a bit or even

> feel " something " inside that tells you your progression is

> stopping (whether symptoms improve or not) the change in mental

> attitude could have a huge effect - even physically. If your

thinking

> regarding your situation changes to a more optimistic line due to LDN

> there is great power in that - probably more than we'll ever know!

> It's just another factor involved in all of this.

>

[Guest guest]

I'm sure there is...We have to take some responsibilty ourselves. Say

LDN has boosted our immune system and we have more energy, but we stay

up too late chatting online. Tomorrow when we don't have that energy,

LDN hasn't 'let us down'... Isn't it our own fault? Same with our diet

and exercise.

As I understand about LDN, it simply benifits our immune system. Our

immune systems NATURAL function is to protect and aid our body to heal

ON ITS OWN.

LDN is just one of the things we do to improve our health.

>

> I dont doubt you, but I have a hard time believing that there isnt

SOMETHING else going on other than simply using LDN.

[Guest guest]

I think that SammyJoe had done a poll a while back. She most likely has it posted on her website. Sammie Joe’s web site and her time line

http://www.ldners.org/mission.htm

http://www.ldners.org/SJW_LDN.pdf#search='LDN%20MS'

Aletha

[low dose naltrexone] Re: Side Effects of LDN

The results of the poll would be meaningless as it will not reflect ALL people taking LDN.... and, even some of those on this group would not participate.

mjh"The Basil Book"http://foxhillfarm.us/FireBasil/

Posted by: "Aletha Wittmann" Aletha@...

Wed Oct 18, 2006 8:54 am (PST)

Hi ,Maybe it is time for another poll. I really don't think that the percentages are correct.Thanks for your very thoughtful replyAletha

[Guest guest]

,

This is from post #84 by Dr. Gluck on 4/10/03. It puts the group with

symptom improvement at " approximately two-thirds of MS patients " .

Surely, other autoimmune diseases have a similar response.

Dear Group Members,

The following excerpts from the website's linked page, called " LDN and

MS " , may serve to clarify certain questions and misunderstandings

reflected in recent Group messages:

" In addition to the apparent ability of LDN to stop disease

progression,

approximately two-thirds of MS patients starting LDN have some

symptomatic

improvement generally apparent within the first few days. There are

two

types of such improvement:

One is reduction in spasticity when this is present, sometimes

allowing

easier ambulation when spasticity in the legs has been a prominent

element

of a patient's difficulty in walking or standing. This is unlikely to

represent a direct effect of LDN on the disease process, but rather

reduction in the irritability in nervous tissue surrounding plaques.

Endorphins have been shown to reduce irritability of nervous tissue,

e.g.,

by reducing seizures in patients with epilepsy.

The other area of symptomatic improvement in some patients is a

reduction

in MS-related fatigue. This is, also, not likely due to a direct

effect on

the MS disease process, but rather an indirect one caused by

restoration

of normal endorphin levels improving energy. "

.........................................

> Possibly I was being slightly pessimistic as was quoting the lower

end

> of the scale but I have seen it quoted on here (not sure who by or

how

> they arrived at the figure) that 30% - 40% experience symptom

> improvement for MS/ALS and everything else neurological.

[Guest guest]

Hi Ethel Like Rory, Paddy is very frustrated at present. Not being able to talk has to be the worst. An active mind, but no voice. We have just had a lift installed to take him from his bedroom to living room, a change of scenery is what he needs. His new wheelchair comes this week, so hopefully we will be able to get him out into the fresh air. Paddy's disease seems to be quite rapid, however, we live in hope that LDN will make a difference soon. However, we cannot lose sight of reality and the destructiveness of this horrible disease and unfortunately we have had two cousins who have died from Motor Neurone Disease over the past eight years. Unfortunately they did not get the chance to try LDN. I had a phone call from a lady in Derry just last week asking me for details of LDN. Her 52 year old sister was diagnosed in April and the disease has,

like Paddy's, moved quite rapidly. She was making arrangements to see Dr Phil Boyle in Galway, so I will let you know how she got on when I hear from her again. Like us she is trying everything possible to give her sister a better quality of life. We have to remain positive. Hope and faith in God is all we have, so we'll keep up the fight for our loved ones and all those in this group. I pass on my best wishes for good health to all on this site. BernadetteEthel.S.Galligan@... wrote: Hi BernadetteRory started on 3.5mg for the first month and then increased the dose to4mg. He has been taking LDN since July. We are happy with LDNin that there is no side effects.Initial changes on LDN for Rory was that he thought it helped his balance,improved strength and lessened the tiredness on his legs in theearly morning, he looks great, he is in good form and has nonegative attitude towards the disease as yet.He finds the condition very frustrating in that his tiredness is constant,if he does too much one day he will be able to do little thenext day. He has dis-improved in strength and walking.Twitchingis increased in his shoulders and he suffers badly with cramps,which are more so in his unaffected leg.Maybe the disease has progressed or he has been doing too much. He rests alittle bit more now, more a case of been forced to

rather thantaking it easy. He is restricted though walking and lifting anyweight, stairs and steps are an issue, he has to be careful offalling as he descends steps.Rory was on 2 Rilutek a day, he stopped for a week and noted the stiffnessin his legs has eased. He is now back to 1/day and then will goto nil to assess if this is a real effect.I have faith in LDN, I just hope that Rory will start to hold his own fromhere on in and that the 'evil disease' inside him will beslowed downhttp://news.bbc.co.uk/2/hi/health/6054572.stmThis could be the start of clinical proof at last and speed up much neededresearch for MND/ALSEthel Send instant messages to your online friends http://uk.messenger.

[Guest guest]

Hello Bernadette,

I'm the parent of a young adult who is vaccine damaged. Her formal

label is PDD-NOS among others. She has been plagued with migraines,

seizures, gi problems, hypothyroid, immune dysfunction – almost every

system in her body shows chronic illness from her biological injury.

It was simple diet changes that lead me to the vaccine/mercury

connection. Her major decline began about 6 weeks after a booster

when she was 6 years old [just a dt and polio]. Even though my `mommy

gut' said it was related, medical mainstream told me absolutely not.

Seizures were unresponsive to medication. However, taking gluten,

casein[millk], and soy out of her diet when she was 15 has offered

remarkable seizure control. This simple dietary intervention is what

lead me to the heavy metal connection. I had NO idea that mercury [as

well as many other contaminants] was in vaccines and was there in

such a huge amount. One of mercury's effects is to disable the enzyme

that helps us digest these large proteins.

Last winter our daughter participated in Dr. McC's ldn study. Hence,

I was guided to this list to read what I could about the drug. It's

difficult for me to read this ldn line sometimes because I think

there's a larger picture that's being overlooked. I know the

desperation that accompanies chronic debilitating illness from

watching and can understand the need to do what it takes to forestall

demise. During my learning experience with my child, my Aunt became

ill with a motor neuron disease that had no label initially. ALS was

the given label when she passed 2.5 years ago after three years of

continuing decline. It was not until shortly before her death that

she let me send a hair test. You can read about the test @

http://home.earthlink.net/~moriam/

There is also much info/help on how to interpret this @

/

An adult oriented group can be found @

frequent-dose-chelation/?

yguid=140279175

Counting this test out as Cutler suggests put my Aunt in the 99%

category for probable mercury poisoning. By this time she was down to

75# and really would not have been able to tolerate the interventions

necessary to sustain life. In order to take aggressive measures to

chelate she would have needed to remove a mouthful of mercury and

other metal devices as well as to be able to absorb

supplements/decent diet to help in the process.

I have used this test to monitor our daughter's progress. Just this

past month, we had additional confirmation of the heavy metal

connection. We ran a urine prophyrins test through a french lab.

http://www.labbio.net/pages/index_vh_eng.htm

Results still show a problem with several toxic metals. This test is

much more mainstream oriented than the hair test.

There is a good general reference about toxic metals @

http://www.dartmouth.edu/~toxmetal/HM.shtml

I would like to encourage you to read along these lines and to

consider this simple hair test. You and your family will be in my

prayers,

> Hi Bernadette

>

> Rory started on 3.5mg for the first month and then increased the

dose to

> 4mg. He has been taking LDN since July. We are happy with LDN

> in that there is no side effects.

>

> Initial changes on LDN for Rory was that he thought it helped his

balance,

> improved strength and lessened the tiredness on his legs in the

> early morning, he looks great, he is in good form and has no

> negative attitude towards the disease as yet.

>

> He finds the condition very frustrating in that his tiredness is

constant,

> if he does too much one day he will be able to do little the

> next day. He has dis-improved in strength and walking.Twitching

> is increased in his shoulders and he suffers badly with cramps,

> which are more so in his unaffected leg.

>

> Maybe the disease has progressed or he has been doing too much. He

rests a

> little bit more now, more a case of been forced to rather than

> taking it easy. He is restricted though walking and lifting any

> weight, stairs and steps are an issue, he has to be careful of

> falling as he descends steps.

>

> Rory was on 2 Rilutek a day, he stopped for a week and noted the

stiffness

> in his legs has eased. He is now back to 1/day and then will go

> to nil to assess if this is a real effect.

>

> I have faith in LDN, I just hope that Rory will start to hold his

own from

> here on in and that the 'evil disease' inside him will be

> slowed down

>

> http://news.bbc.co.uk/2/hi/health/6054572.stm

>

> This could be the start of clinical proof at last and speed up much

needed

> research for MND/ALS

>

> Ethel

>

>

>

>

>

> Send instant messages to your online friends

http://uk.messenger.

>

[Guest guest]

Hi Many thanks for your Email. I will look into the website suggested. I have been asked by my doctor if I wanted to be tested for the gene which brings about Motor Neurone Disease. I declined as I don't know what I would do with the information if the test proved to be positive. My brother's wife looked into having all the mercury fillings removed from my brothers teeth, however, it was suggested that it was not a good idea as it could do more harm than good disturbing the mercury and running the risk of releasing it into his system. Hope your daughter continues to improve and with the help of researchers and people like ourselves who will not give up hope of find a cure for these dibilitating diseases. God Belss - Bernadettembrookh <mbrookh@...> wrote: Hello Bernadette,I'm the parent of a young adult who is vaccine damaged. Her formal label is PDD-NOS among others. She has been plagued with migraines, seizures, gi problems, hypothyroid, immune dysfunction – almost every system in her body shows chronic illness from her biological injury. It was simple diet changes that lead me to the vaccine/mercury connection. Her major decline began about 6 weeks after a booster when she was 6 years old [just a dt and polio]. Even though my `mommy gut' said it was related, medical mainstream told me absolutely

not. Seizures were unresponsive to medication. However, taking gluten, casein[millk], and soy out of her diet when she was 15 has offered remarkable seizure control. This simple dietary intervention is what lead me to the heavy metal connection. I had NO idea that mercury [as well as many other contaminants] was in vaccines and was there in such a huge amount. One of mercury's effects is to disable the enzyme that helps us digest these large proteins. Last winter our daughter participated in Dr. McC's ldn study. Hence, I was guided to this list to read what I could about the drug. It's difficult for me to read this ldn line sometimes because I think there's a larger picture that's being overlooked. I know the desperation that accompanies chronic debilitating illness from watching and can understand the need to do what it takes to forestall demise. During my learning experience with my child, my Aunt became

ill with a motor neuron disease that had no label initially. ALS was the given label when she passed 2.5 years ago after three years of continuing decline. It was not until shortly before her death that she let me send a hair test. You can read about the test @ http://home.earthlink.net/~moriam/There is also much info/help on how to interpret this @ /An adult oriented group can be found @frequent-dose-chelation/?yguid=140279175Counting this test out as Cutler suggests put my Aunt in the 99% category for probable mercury poisoning. By this time she was down to 75# and really would not have been able

to tolerate the interventions necessary to sustain life. In order to take aggressive measures to chelate she would have needed to remove a mouthful of mercury and other metal devices as well as to be able to absorb supplements/decent diet to help in the process. I have used this test to monitor our daughter's progress. Just this past month, we had additional confirmation of the heavy metal connection. We ran a urine prophyrins test through a french lab.http://www.labbio.net/pages/index_vh_eng.htmResults still show a problem with several toxic metals. This test is much more mainstream oriented than the hair test.There is a good general reference about toxic metals @http://www.dartmouth.edu/~toxmetal/HM.shtmlI would like to encourage you to read along these lines and to

consider this simple hair test. You and your family will be in my prayers, > Hi Bernadette> > Rory started on 3.5mg for the first month and then increased the dose to> 4mg. He has been taking LDN since July.

We are happy with LDN> in that there is no side effects.> > Initial changes on LDN for Rory was that he thought it helped his balance,> improved strength and lessened the tiredness on his legs in the> early morning, he looks great, he is in good form and has no> negative attitude towards the disease as yet.> > He finds the condition very frustrating in that his tiredness is constant,> if he does too much one day he will be able to do little the> next day. He has dis-improved in strength and walking.Twitching> is increased in his shoulders and he suffers badly with cramps,> which are more so in his unaffected leg.> > Maybe the disease has progressed or he has been doing too much. He rests a> little bit more now, more a case of been forced to rather than> taking it easy. He is restricted though walking and lifting any> weight, stairs and steps

are an issue, he has to be careful of> falling as he descends steps.> > Rory was on 2 Rilutek a day, he stopped for a week and noted the stiffness> in his legs has eased. He is now back to 1/day and then will go> to nil to assess if this is a real effect.> > I have faith in LDN, I just hope that Rory will start to hold his own from> here on in and that the 'evil disease' inside him will be> slowed down> > http://news.bbc.co.uk/2/hi/health/6054572.stm> > This could be the start of clinical proof at last and speed up much needed> research for MND/ALS> > Ethel> > > > > > Send instant messages to your online friends http://uk.messenger.> Send instant messages to your online friends http://uk.messenger.

[Guest guest]

Hi Aletha,

I don't have a problem with someone running one but as someone with a

statistics major I doubt the value. Only a small number of people ever

respond to surveys on here (well less than 10% on other surveys) and at

any one time I would suggest that this group has only a very small

percentage of people for whom LDN hasn't worked as those people would

generally tend to drop off the group. Basically I would suggest that

any such poll would be intrinsically flawed.

I am very surprised that the people who usually chime in to say " the aim

of LDN is to slow or stop progression and any improvements are a bonus "

(as I have also been known to do in order not to build false hope), some

of whom have previously quoted the 30% - 40% figures, have suddenly

disappeared from sight........ :-(

Aletha Wittmann wrote:

>Hi ,

>

>Maybe it is time for another poll. I really don't think that the

>percentages are correct.

>

>Thanks for your very thoughtful reply

>Aletha

>

>

[Guest guest]

Hi Sandi,

I posted something on ALS success the other day. I know of two people

here in Australia with ALS for whom LDN has made a significant

difference. Check the archives for my recent post on ALS.

Sandi Sharp wrote:

> Hi,

>

> I am taking LDN for chronic pelvic pain related to fibro/Lyme. I have

> friends with MS and one with ALS. It would be great to know the % of

> people that have symptom improvement with LDN for MS and ALS as

> compared to the % with lessening or haulting the progression. What %

> does it help slow or stop progression? Also does anyone have any

> success stories of LDN for chronic pain?

> I know some of these percentages are unknown, but it would be great to

> have a survey. Perhaps it would be good to survey prescribing physicians.

>

> Thanks for any insight you can give me on LDNs success with pain or ALS.

>

> Sandi

>

[Guest guest]

Hi ,

I don't remember hearing only 30 to 40% before your comment.

Aletha

Re: [low dose naltrexone] Re: Side Effects of LDN

> Hi Aletha,

>

> I don't have a problem with someone running one but as someone with a

> statistics major I doubt the value. Only a small number of people ever

> respond to surveys on here (well less than 10% on other surveys) and at

> any one time I would suggest that this group has only a very small

> percentage of people for whom LDN hasn't worked as those people would

> generally tend to drop off the group. Basically I would suggest that

> any such poll would be intrinsically flawed.

>

> I am very surprised that the people who usually chime in to say " the aim

> of LDN is to slow or stop progression and any improvements are a bonus "

> (as I have also been known to do in order not to build false hope), some

> of whom have previously quoted the 30% - 40% figures, have suddenly

> disappeared from sight........ :-(

>

>

>

> Aletha Wittmann wrote:

>

>>Hi ,

>>

>>Maybe it is time for another poll. I really don't think that the

>>percentages are correct.

>>

>>Thanks for your very thoughtful reply

>>Aletha

>>

>>

>

>

>

>

>

[Guest guest]

PSD,

OK, seems higher to me than what I have seen quoted on here since I

joined but am happy to go with that given the source. Just didn't want

to build false hope of an improvement up because then if/when people

don't experience actual improvement they may feel LDN has failed them.

perfectlysunnyday wrote:

>,

>

>This is from post #84 by Dr. Gluck on 4/10/03. It puts the group with

>symptom improvement at " approximately two-thirds of MS patients " .

>Surely, other autoimmune diseases have a similar response.

>

>.............. etc

>

[Guest guest]

Numbers dont lie, I would think those percentages would be important for LDN's future. I would love to see the percentage of folks who have had symptom relief, either major or minor, and the percentage of people that have had their progression either stopped or slowed down. I know Skip was/is doing a study/poll, but since Gluck posted that back in 03, a lot of folks have started LDN, including many abroad. I wonder if there would be a way to put those percentages together.

Re: [low dose naltrexone] Re: Side Effects of LDN

PSD,OK, seems higher to me than what I have seen quoted on here since I joined but am happy to go with that given the source. Just didn't want to build false hope of an improvement up because then if/when people don't experience actual improvement they may feel LDN has failed them.perfectlysunnyday wrote:>,>>This is from post #84 by Dr. Gluck on 4/10/03. It puts the group with >symptom improvement at "approximately two-thirds of MS patients".>Surely, other autoimmune diseases have a similar response.>>.............. etc>

[Guest guest]

>

> Numbers dont lie, I

would think those

percentages would be

important for LDN's

future. I would love to

see the percentage of

folks who have had

symptom relief, either

major or minor, and the

percentage of people that

have had their

progression either

stopped or slowed down. I

know Skip was/is doing a

study/poll, but since

Gluck posted that back in

03, a lot of folks have

started LDN, including

many abroad. I wonder if

there would be a way to

put those percentages

together.

=========

The two-thirds comes from

the LDN website and from

Dr. Bihari's personal

patients only. Only

Bihari's personal

patients have been

tallied.