Guest guest Posted October 2, 2006 Report Share Posted October 2, 2006 Hi, I started on 3mg eleven nights ago and I didn't notice any difference so on my 5th night I took 4.5mg.That night I had to get up twice for the loo and I was able to walk to the bathroom and back reaching out to the walls for balance, normally I have to use a wheelchair.I was thrilled of course even when I felt my usual self in the morning because something was definately happening.Next day I felt a bit sick but still took 4.5mg that night.Next day felt sick again but I was trying to ignore it but that evening I was absolutely dying and felt my ms symptoms were worse but I still took 4.5mg that night because I had read that somepeople feel worse before better but the next day I still felt awful so I went back to 3mg that night. Now I just feel a little sick which I can get over and my legs seem heavier and when I wake during the night there's no improvement. I know it's early days but should I just wait a while on 3mg to see if anything happens, or will I try 4.5mg again? I have read that its recommended that msers with spasms should stay with 3mg and I have them but it's very tempting to have another go. Thanks for any advice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 > > > > Hi, I started on 3mg eleven nights ago and I didn't notice any > > difference so on my 5th night I took 4.5mg.That night I had to get > up > > twice for the loo and I was able to walk to the bathroom and back > > reaching out to the walls for balance, normally I have to use a > > wheelchair.I was thrilled of course even when I felt my usual self > in > > the morning because something was definately happening.Next day I > felt > > a bit sick but still took 4.5mg that night.Next day felt sick > again but > > I was trying to ignore it but that evening I was absolutely dying > and > > felt my ms symptoms were worse but I still took 4.5mg that night > > because I had read that somepeople feel worse before better but > the > > next day I still felt awful so I went back to 3mg that night. Now > I > > just feel a little sick which I can get over and my legs seem > heavier > > and when I wake during the night there's no improvement. I know > it's > > early days but should I just wait a while on 3mg to see if > anything > > happens, or will I try 4.5mg again? I have read that its > recommended > > that msers with spasms should stay with 3mg and I have them but > it's > > very tempting to have another go. Thanks for any advice. > > > ======== > > Wait awhile before trying to go up on dosage. Let your body adjust. > > Hi , Thanks for replying. Have you any idea how long I should stick this out (feeling sick) or should I stop for a while and try again? Did you have a similar experience? Thanks Selina. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 > > > > > > Hi, I started on 3mg eleven nights ago and I didn't notice any > > > difference so on my 5th night I took 4.5mg.That night I had to > get > > up > > > twice for the loo and I was able to walk to the bathroom and back > > > reaching out to the walls for balance, normally I have to use a > > > wheelchair.I was thrilled of course even when I felt my usual > self > > in > > > the morning because something was definately happening.Next day I > > felt > > > a bit sick but still took 4.5mg that night.Next day felt sick > > again but > > > I was trying to ignore it but that evening I was absolutely dying > > and > > > felt my ms symptoms were worse but I still took 4.5mg that night > > > because I had read that somepeople feel worse before better but > > the > > > next day I still felt awful so I went back to 3mg that night. Now > > I > > > just feel a little sick which I can get over and my legs seem > > heavier > > > and when I wake during the night there's no improvement. I know > > it's > > > early days but should I just wait a while on 3mg to see if > > anything > > > happens, or will I try 4.5mg again? Thanks for any advice. > > > > > ======== > > > > > Hi , > Thanks for replying. Have you any idea how long I should stick this > out (feeling sick) or should I stop for a while and try again? Did > you have a similar experience? > Thanks Selina. ========== You're not nauseated or headachey sick are you? The way I read it is your MS symptoms that have increased. If that's the case it may take you awhile to get adjusted to the increased endorphins. Also you may have particular food allergies and the LDN may be triggering that. Read Dr. Jaquelyn McCandless' last post on this forum even though the subject is List topics or something like that(not too far down the board). You may need to back down to 1.5mg for 1 month and then increase by 0.5mg each month. I started at 4.5mg and I experienced a few odd things but the most noticeable were extra stiffness for 3 months, numbness of my hands for 2 weeks and my eyelid twitched off and on for months. All finally faded. If symptoms are too severe for you to handle, back down your dose for awhile. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 Bren, It must have felt great even if it was only one day. Side effects must be real bad. My doctor will not let me try it because I can get by with a cane and have a high quality of life. More research should be done! Parmajak ---- Bren <b63powell@...> wrote: > > > > > > > > > Hi, I started on > 3mg eleven nights ago and > I didn't notice any > > > > difference so on my > 5th night I took > 4.5mg.That night I had to > > get > > > up > > > > twice for the loo > and I was able to walk to > the bathroom and back > > > > reaching out to the > walls for balance, > normally I have to use a > > > > wheelchair.I was > thrilled of course even > when I felt my usual > > self > > > in > > > > the morning because > something was definately > happening.Next day I > > > felt > > > > a bit sick but > still took 4.5mg that > night.Next day felt sick > > > again but > > > > I was trying to > ignore it but that > evening I was absolutely > dying > > > and > > > > felt my ms symptoms > were worse but I still > took 4.5mg that night > > > > because I had read > that somepeople feel > worse before better but > > > the > > > > next day I still > felt awful so I went back > to 3mg that night. Now > > > I > > > > just feel a little > sick which I can get over > and my legs seem > > > heavier > > > > and when I wake > during the night there's > no improvement. I know > > > it's > > > > early days but > should I just wait a > while on 3mg to see if > > > anything > > > > happens, or will I > try 4.5mg again? Thanks > for any advice. > > > > > > > ======== > > > > > > > > Hi , > > Thanks for replying. > Have you any idea how > long I should stick this > > out (feeling sick) or > should I stop for a while > and try again? Did > > you have a similar > experience? > > Thanks Selina. > ========== > > You're not nauseated or > headachey sick are you? > The way I read it is your > MS symptoms that have > increased. If that's the > case it may take you > awhile to get adjusted to > the increased > endorphins. Also you may > have particular food > allergies and the LDN may > be triggering that. Read > Dr. Jaquelyn McCandless' > last post on this forum > even though the subject > is List topics or > something like that(not > too far down the board). > You may need to back down > to 1.5mg for 1 month and > then increase by 0.5mg > each month. I started at > 4.5mg and I experienced a > few odd things but the > most noticeable were > extra stiffness for 3 > months, numbness of my > hands for 2 weeks and my > eyelid twitched off and > on for months. All > finally faded. If > symptoms are too severe > for you to handle, back > down your dose for awhile. > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 Bren, It must have felt great even if it was only one day. Side effects must be real bad. My doctor will not let me try it because I can get by with a cane and have a high quality of life. More research should be done! Parmajak ---- Bren <b63powell@...> wrote: > > > > > > > > > Hi, I started on > 3mg eleven nights ago and > I didn't notice any > > > > difference so on my > 5th night I took > 4.5mg.That night I had to > > get > > > up > > > > twice for the loo > and I was able to walk to > the bathroom and back > > > > reaching out to the > walls for balance, > normally I have to use a > > > > wheelchair.I was > thrilled of course even > when I felt my usual > > self > > > in > > > > the morning because > something was definately > happening.Next day I > > > felt > > > > a bit sick but > still took 4.5mg that > night.Next day felt sick > > > again but > > > > I was trying to > ignore it but that > evening I was absolutely > dying > > > and > > > > felt my ms symptoms > were worse but I still > took 4.5mg that night > > > > because I had read > that somepeople feel > worse before better but > > > the > > > > next day I still > felt awful so I went back > to 3mg that night. Now > > > I > > > > just feel a little > sick which I can get over > and my legs seem > > > heavier > > > > and when I wake > during the night there's > no improvement. I know > > > it's > > > > early days but > should I just wait a > while on 3mg to see if > > > anything > > > > happens, or will I > try 4.5mg again? Thanks > for any advice. > > > > > > > ======== > > > > > > > > Hi , > > Thanks for replying. > Have you any idea how > long I should stick this > > out (feeling sick) or > should I stop for a while > and try again? Did > > you have a similar > experience? > > Thanks Selina. > ========== > > You're not nauseated or > headachey sick are you? > The way I read it is your > MS symptoms that have > increased. If that's the > case it may take you > awhile to get adjusted to > the increased > endorphins. Also you may > have particular food > allergies and the LDN may > be triggering that. Read > Dr. Jaquelyn McCandless' > last post on this forum > even though the subject > is List topics or > something like that(not > too far down the board). > You may need to back down > to 1.5mg for 1 month and > then increase by 0.5mg > each month. I started at > 4.5mg and I experienced a > few odd things but the > most noticeable were > extra stiffness for 3 > months, numbness of my > hands for 2 weeks and my > eyelid twitched off and > on for months. All > finally faded. If > symptoms are too severe > for you to handle, back > down your dose for awhile. > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2006 Report Share Posted October 5, 2006 > > 're not nauseated or > > headachey sick are you? > > The way I read it is your > > MS symptoms that have > > increased. If that's the > > case it may take you > > awhile to get adjusted to > > the increased > > endorphins. Also you may > > have particular food > > allergies and the LDN may > > be triggering that. Read > > Dr. Jaquelyn McCandless' > > last post on this forum > > even though the subject > > is List topics or > > something like that(not > > too far down the board). > > You may need to back down > > to 1.5mg for 1 month and > > then increase by 0.5mg > > each month. I started at > > 4.5mg and I experienced a > > few odd things but the > > most noticeable were > > extra stiffness for 3 > > months, numbness of my > > hands for 2 weeks and my > > eyelid twitched off and > > on for months. All > > finally faded. If > > symptoms are too severe > > for you to handle, back > > down your dose for awhile. > > > > > > > > > > Thanks , It's nauseated and headachey alright but not too major. Ill read the post you suggested thanks, Selina > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2006 Report Share Posted October 5, 2006 > > > > > > Thanks , > It's nauseated and headachey alright but not too major. Ill read the > post you suggested thanks, > Selina ======= Selina, What is the filler that's being used in your LDN capsules? I had touble with Avicel (cellulose) causing headache, nausea and near vomiting. I had been on LDN with lactose filler for about 4 months and had no problems and then switched my filler to Avicel and became quite ill. Switched back to lactose and all was great again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2006 Report Share Posted October 6, 2006 --- > > > > ======= > > Selina, > > What is the filler that's > being used in your LDN > capsules? > > I had touble with Avicel > (cellulose) causing > headache, nausea and near > vomiting. I had been on > LDN with lactose filler > for about 4 months and > had no problems and then > switched my filler to > Avicel and became quite > ill. Switched back to > lactose and all was great > again. > > >Hi , I,m on liquid ldn it says its nalorex in 100ml keltrol. Does this mean anything to you? Thanks Selina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2006 Report Share Posted October 7, 2006 > > > >Hi , > I,m on liquid ldn it says its nalorex in 100ml keltrol. Does this > mean anything to you? > Thanks Selina > ========= Try to get your liquid LDN made from Pure Naltrexone Powder. Your LDN is being mixed from the Naltrexone/Nalexone tablets which have lots of various fillers. Ask your pharmacy if they can get pure Naltrexone Powder, it contains no fillers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2006 Report Share Posted October 7, 2006 --- In > ========= > > Try to get your liquid > LDN made from Pure > Naltrexone Powder. Your > LDN is being mixed from > the Naltrexone/Nalexone > tablets which have lots > of various fillers. Ask > your pharmacy if they can > get pure Naltrexone > Powder, it contains no > fillers. > > >Thanks , will do. Selina Quote Link to comment Share on other sites More sharing options...
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