Guest guest Posted December 12, 2004 Report Share Posted December 12, 2004 Hello Charmaime, I had my first balloon dilation back in 1993. Tha worked good for about 9 years. I then choose to have botox done cause I just did not want to have the surgery. About a year ago I had a laproscopic Heller done. I was in hospital for like four days and was off of work for like two weeks. I had a pretty easy recovery. I started having trouble again and I want back for another upper GI. Yuk I cannot stand that junk.....lol Well my GI DOC said it looks like I never even had surgery. He is looking for a surgein for me to see right now to have my second myotomy done. I think all of the balloon dilation's and the botox that I have done my have prohibited the success of my first myotomy. Look at all the options and try to read up on this disease as much as you can. That should help you out. If you have any other questions feel free to ask. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2004 Report Share Posted December 12, 2004 Charmaine wrote: .... my LES was unusually loose rather than tight as in most cases. He has put me on some reflux tablets for 6 weeks to " rule out " that it may just be gastric reflux disease. ... Hello, Charmaine. What you have been told sounds very odd to me. What in your tests does point to achalasia? The fact that your doctor is still trying to rule out " that it may just be " GERD suggests to me that he is not very confident that it is achalasia. Low LES pressure seems suggestive to me of secondary achalasia. If so, you should find out what it is secondary to. (Secondary means it is caused by something else, and is not the primary problem). It may be good to see a rheumatologist to rule out some kind of connective tissue disease. If it were me, I would not be quick to get a fix until it was proved to be just achalasia. Doctors don't always agree on things like LES pressure, but here is a quote that shows how strange some of them would think your low LES pressure is for primary achalasia. http://www-east.elsevier.com/ajg/issues/9412/ajg1639fla.htm " Some manometric abnormality of the LES is always present in patients with achalasia. The LES pressure is usually elevated but may be normal (10-45 mm Hg) in up to 45% of patients; however, a low LES pressure is never seen in patients with untreated achalasia. " notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2004 Report Share Posted December 12, 2004 Hi again I've just asked my boyfriend who was with me for the manometry and he said that my LES pressure showed as being normal with occassinonal peaks of high. I remember now, that that is right. The doc said that my LES was not as tight as most patients so I must have got it into my head that it was loose. Sorry for confusing you. Anyway, maybe I'll ask for a more in depth manometry test when I go back on 15 dec just to be certain before I opt for the surgery. I certainly won't let "A" spoil my Christmas dinner. My mums mashed potatoes and my boyfriends roast potatoes are to die for!notan_ostrich <hastings@...> wrote: Charmaine wrote: .... my LES was unusually loose rather than tight as in most cases. He has put me on some reflux tablets for 6 weeks to "rule out" that it may just be gastric reflux disease. ...Hello, Charmaine.What you have been told sounds very odd to me. What in your tests does point to achalasia? The fact that your doctor is still trying to rule out "that it may just be" GERD suggests to me that he is not very confident that it is achalasia. Low LES pressure seems suggestive to me of secondary achalasia. If so, you should find out what it is secondary to. (Secondary means it is caused by something else, and is not the primary problem). It may be good to see a rheumatologist to rule out some kind of connective tissue disease. If it were me, I would not be quick to get a fix until it was proved to be just achalasia. Doctors don't always agree on things like LES pressure, but here is a quote that shows how strange some of them would think your low LES pressure is for primary achalasia. http://www-east.elsevier.com/ajg/issues/9412/ajg1639fla.htm"Some manometric abnormality of the LES is always present in patients with achalasia. The LES pressure is usually elevated but may be normal (10-45 mm Hg) in up to 45% of patients; however, a low LES pressure is never seen in patients with untreated achalasia."notan ALL-NEW Messenger - all new features - even more fun! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2004 Report Share Posted December 13, 2004 Charmaine wrote: Hi again I've just asked my boyfriend who was with me for the manometry and he said that my LES pressure showed as being normal with occassinonal peaks of high. OK, that sounds more like it. The other thing that the manometry should show is a failure of the LES to relax or incomplete or short relaxations, when it should fully relax. These LES relaxation failures are the key symptom of achalasia. notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 What is a typical day of eating? Are you taking a free day? Do you zig-zag your calories at all? What is your protein/carb breakdown like? What is your daily activity level outside of workouts? Sometimes fiddling with one or more of those variables can get things rolling again. > Ok here is my story. I started BFL in August 2004 and lost 27 pounds > doing 3 consecutive challenges. I also lost 6.3% bodyfat and about 30 > inches most being from my hips/sagging stomach. I am 5'2 " tall and > started at 210 pounds. I am currently at 173 pounds. It took me 4 > months to lose those 10 pounds. > > So in a nutshell I absolutely NEVER miss a workout and I am fanatical > about hitting my 10's. I am sore especially after a leg workout I love > to do legs > > I had my basil metabolic rate tested with one of those new MedGem > machines in November 2005 and I burned 1,490 calories. So I kept my > calories about 1,600 (and a free day) and took 4 months to lose 10 > pounds. Now I had it retested in March and I only burn 1,290 calories > now. I can't seem to lose eating 1,500 calories and if I go much below I > will end up binging. > > All I can tell you is I am working my butt off at the gym and have a > trainer who routinely kicks my ass. > > The only other variable in all this is I have hypothyroidism but my TSH > rate is currenly under 2 and we are trying to get it to .89 as that is > where I feel optimal. > > I agree with Swigg on the sticking with BFL but I feel my body has gotten > used to it so I have thrown in extra cardio, mixed up my sets, tried > Jillian s circuts. I am truely at a loss what should I do besides > throw in the towel I refuse to do that I have come so far even though I > have so far to go. > > Michele T > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 Ok here is a day from my food journal: 1. 1/2 cup egg beaters, slice whole wheat toast, 1/2 slice 2% cheese 205 calories 2. 3 oz turkey, 1/2 cup grapes 155 calories 3. 1 1/2 cups Chili, 1/2 oz 2% shredded cheese, 1 oz baked lays 520 calories 4. 1/2 cup cottage cheese, mini carrots 138 calories 5. 4 oz Spicy Pork, Orange Spinach Salad, 1/2 cup rice 385 calories Total calories 1,403 Protein 122 gm Carbs 143 gms Fat 46 gm Fiber 16 gm A typical day is like this but can range from 1,400 - 1,800 as I try to stack my calories. As for a free day I do take one free meal usually on a Saturday and a free meal would be going out to On the Border having 1/2 burrito, 15 chips (yes I count them pretty sick I know), rice beans and of course 2 margaritas the big ones! Daily activity is this for 3 of the 4 weeks a month: BFL lifting 3 days a week Cardio I am doing 3 days of intervals 30 minutes then doing an additional 30 minutes of steady state. Extra cardio I am walking 3 miles at least 3 days a week just for fun outside and I can do this in about 40 minutes. As for my life I am a stay at home mom of a 10 and 3 year old and I feel like I rarely sit down. But it isn't like doing a HIIT or anything just constant busyness. Now the 1 week a month I have terrible PMS I will do BFL lifting trying hard to work hard but not nearly what I can do the other 3 weeks. As for cardio I do the minimum 30 minutes and many times no HIIT. I feel lucky to make it through the week <smile>! Any help one can give me would be greatly appreciated I am so tired of treading water per say. I want to start losing no matter how slow that is. Michele T. On Wed, 7 Jun 2006 21:54:55 -0500 Skwigg writes: What is a typical day of eating? Are you taking a free day? Do you zig-zag your calories at all? What is your protein/carb breakdown like? What is your daily activity level outside of workouts? Sometimes fiddling with one or more of those variables can get things rolling again. > Ok here is my story. I started BFL in August 2004 and lost 27 pounds > doing 3 consecutive challenges. I also lost 6.3% bodyfat and about 30 > inches most being from my hips/sagging stomach. I am 5'2 " tall and > started at 210 pounds. I am currently at 173 pounds. It took me 4 > months to lose those 10 pounds. > > So in a nutshell I absolutely NEVER miss a workout and I am fanatical > about hitting my 10's. I am sore especially after a leg workout I love > to do legs > > I had my basil metabolic rate tested with one of those new MedGem > machines in November 2005 and I burned 1,490 calories. So I kept my > calories about 1,600 (and a free day) and took 4 months to lose 10 > pounds. Now I had it retested in March and I only burn 1,290 calories > now. I can't seem to lose eating 1,500 calories and if I go much below I > will end up binging. > > All I can tell you is I am working my butt off at the gym and have a > trainer who routinely kicks my ass. > > The only other variable in all this is I have hypothyroidism but my TSH > rate is currenly under 2 and we are trying to get it to .89 as that is > where I feel optimal. > > I agree with Swigg on the sticking with BFL but I feel my body has gotten > used to it so I have thrown in extra cardio, mixed up my sets, tried > Jillian s circuts. I am truely at a loss what should I do besides > throw in the towel I refuse to do that I have come so far even though I > have so far to go. > > Michele T > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 Michele, I am sure others will post with some great insights (n, Skwigg?). At quick glance, it appears there is a fair amount of processed food in your diet? Skip the toast and eat oatmeal. How about some cottage cheese instead of regular cheese? Is the turkey the real thing or sliced deli meat? Is the chili homemade or from a can? Drop the baked lays (processed) and eat a piece of fruit. where is meal 6? Why is meal 3 so big? And alcohol is a killer....it completely stalls fat loss as your body processes the toxins. More than one drink can stall progress for a week. It sounds like you are on target with your exercise. The biggest part of making the program work is nutrition --- about 80% I think. Those are just my thoughts though...... > Ok here is a day from my food journal: > > 1. 1/2 cup egg beaters, slice whole wheat toast, 1/2 slice 2% cheese > 205 calories > 2. 3 oz turkey, 1/2 cup grapes 155 calories > 3. 1 1/2 cups Chili, 1/2 oz 2% shredded cheese, 1 oz baked lays 520 > calories > 4. 1/2 cup cottage cheese, mini carrots 138 calories > 5. 4 oz Spicy Pork, Orange Spinach Salad, 1/2 cup rice 385 calories > > Total calories 1,403 Protein 122 gm Carbs 143 gms Fat 46 gm Fiber 16 > gm > > A typical day is like this but can range from 1,400 - 1,800 as I try to > stack my calories. As for a free day I do take one free meal usually on > a Saturday and a free meal would be going out to On the Border having 1/2 > burrito, 15 chips (yes I count them pretty sick I know), rice beans and > of course 2 margaritas the big ones! > > Daily activity is this for 3 of the 4 weeks a month: > BFL lifting 3 days a week > Cardio I am doing 3 days of intervals 30 minutes then doing an additional > 30 minutes of steady state. > Extra cardio I am walking 3 miles at least 3 days a week just for fun > outside and I can do this in about 40 minutes. > As for my life I am a stay at home mom of a 10 and 3 year old and I feel > like I rarely sit down. But it isn't like doing a HIIT or anything just > constant busyness. > Now the 1 week a month I have terrible PMS I will do BFL lifting trying > hard to work hard but not nearly what I can do the other 3 weeks. As for > cardio I do the minimum 30 minutes and many times no HIIT. I feel lucky > to make it through the week <smile>! > > Any help one can give me would be greatly appreciated I am so tired of > treading water per say. I want to start losing no matter how slow that > is. > Michele T. > > > > On Wed, 7 Jun 2006 21:54:55 -0500 Skwigg writes: > What is a typical day of eating? > Are you taking a free day? > Do you zig-zag your calories at all? > What is your protein/carb breakdown like? > What is your daily activity level outside of workouts? > > Sometimes fiddling with one or more of those variables can get things > rolling again. > > > > > > Ok here is my story. I started BFL in August 2004 and lost 27 pounds > > doing 3 consecutive challenges. I also lost 6.3% bodyfat and about 30 > > inches most being from my hips/sagging stomach. I am 5'2 " tall and > > started at 210 pounds. I am currently at 173 pounds. It took me 4 > > months to lose those 10 pounds. > > > > So in a nutshell I absolutely NEVER miss a workout and I am fanatical > > about hitting my 10's. I am sore especially after a leg workout I love > > to do legs > > > > I had my basil metabolic rate tested with one of those new MedGem > > machines in November 2005 and I burned 1,490 calories. So I kept my > > calories about 1,600 (and a free day) and took 4 months to lose 10 > > pounds. Now I had it retested in March and I only burn 1,290 calories > > now. I can't seem to lose eating 1,500 calories and if I go much below > I > > will end up binging. > > > > All I can tell you is I am working my butt off at the gym and have a > > trainer who routinely kicks my ass. > > > > The only other variable in all this is I have hypothyroidism but my TSH > > rate is currenly under 2 and we are trying to get it to .89 as that is > > where I feel optimal. > > > > I agree with Swigg on the sticking with BFL but I feel my body has > gotten > > used to it so I have thrown in extra cardio, mixed up my sets, tried > > Jillian s circuts. I am truely at a loss what should I do > besides > > throw in the towel I refuse to do that I have come so far even though I > > have so far to go. > > > > Michele T > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 Just skimming through, the one thing that really jumps out at me is that you are not eating nearly enough fiber. 25g is the bare minimum recommendation, and I feel like I'm really slacking off if I don't hit 50g. I think looking at fiber intake is the number one indication of whether or not you're eating a healthy diet. You need to knock off junk food like Lays--doesn't matter if they're baked or not, you could be eating a huge bowl of broccoli for the same number of calories. And I can tell you like putting cheese on stuff! You really should try to break yourself of that habit--those cheese calories add up quickly, even with 2%. Get some good, fresh salsa and slop as much of that as you want all over your food, instead. Naomi ****** Michele Templeman wrote: Ok here is a day from my food journal: > > > 1. 1/2 cup egg beaters, slice whole wheat toast, 1/2 slice 2% cheese > 205 calories > 2. 3 oz turkey, 1/2 cup grapes 155 calories > 3. 1 1/2 cups Chili, 1/2 oz 2% shredded cheese, 1 oz baked lays 520 > calories > 4. 1/2 cup cottage cheese, mini carrots 138 calories > 5. 4 oz Spicy Pork, Orange Spinach Salad, 1/2 cup rice 385 calories > > Total calories 1,403 Protein 122 gm Carbs 143 gms Fat 46 gm Fiber 16 > gm > > A typical day is like this but can range from 1,400 - 1,800 as I try to > stack my calories. As for a free day I do take one free meal usually on > a Saturday and a free meal would be going out to On the Border having 1/2 > burrito, 15 chips (yes I count them pretty sick I know), rice beans and > of course 2 margaritas the big ones! > > Daily activity is this for 3 of the 4 weeks a month: > BFL lifting 3 days a week > Cardio I am doing 3 days of intervals 30 minutes then doing an additional > 30 minutes of steady state. > Extra cardio I am walking 3 miles at least 3 days a week just for fun > outside and I can do this in about 40 minutes. > As for my life I am a stay at home mom of a 10 and 3 year old and I feel > like I rarely sit down. But it isn't like doing a HIIT or anything just > constant busyness. > Now the 1 week a month I have terrible PMS I will do BFL lifting trying > hard to work hard but not nearly what I can do the other 3 weeks. As for > cardio I do the minimum 30 minutes and many times no HIIT. I feel lucky > to make it through the week <smile>! > > Any help one can give me would be greatly appreciated I am so tired of > treading water per say. I want to start losing no matter how slow that > is. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 or make the salsa yourself. very easy infinite # of variations n At 03:47 PM 6/8/2006, you wrote: >Get some good, fresh salsa and slop as much of that as you >want all over your food, instead. > >Naomi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 Mmm, salsa is my saving grace! I put it on everything! That and hot sauce Re: What should I do now? or make the salsa yourself. very easy infinite # of variations n At 03:47 PM 6/8/2006, you wrote: >Get some good, fresh salsa and slop as much of that as you >want all over your food, instead. > >Naomi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 Thanks Naomi, n, and for your suggestions. I do eat too much cheese I will try to cut that out <ouch I love it!>. I don't eat processed I cook the chili using the EFL cookbook love that cookbook. Other cookbooks I use are Cooking Light and Weight Watchers. All good suggestions but as we all know the nutrition is sooooo hard to be good all the time I do want to see more results however so am going to try to make the sacrifices necessary. Thanks everyone for your help! Michele T. On Thu, 08 Jun 2006 12:47:27 -0700 DRAGONMAMMA writes: Just skimming through, the one thing that really jumps out at me is that you are not eating nearly enough fiber. 25g is the bare minimum recommendation, and I feel like I'm really slacking off if I don't hit 50g. I think looking at fiber intake is the number one indication of whether or not you're eating a healthy diet. You need to knock off junk food like Lays--doesn't matter if they're baked or not, you could be eating a huge bowl of broccoli for the same number of calories. And I can tell you like putting cheese on stuff! You really should try to break yourself of that habit--those cheese calories add up quickly, even with 2%. Get some good, fresh salsa and slop as much of that as you want all over your food, instead. Naomi ****** Michele Templeman wrote: Ok here is a day from my food journal: > > > 1. 1/2 cup egg beaters, slice whole wheat toast, 1/2 slice 2% cheese > 205 calories > 2. 3 oz turkey, 1/2 cup grapes 155 calories > 3. 1 1/2 cups Chili, 1/2 oz 2% shredded cheese, 1 oz baked lays 520 > calories > 4. 1/2 cup cottage cheese, mini carrots 138 calories > 5. 4 oz Spicy Pork, Orange Spinach Salad, 1/2 cup rice 385 calories > > Total calories 1,403 Protein 122 gm Carbs 143 gms Fat 46 gm Fiber 16 > gm > > A typical day is like this but can range from 1,400 - 1,800 as I try to > stack my calories. As for a free day I do take one free meal usually on > a Saturday and a free meal would be going out to On the Border having 1/2 > burrito, 15 chips (yes I count them pretty sick I know), rice beans and > of course 2 margaritas the big ones! > > Daily activity is this for 3 of the 4 weeks a month: > BFL lifting 3 days a week > Cardio I am doing 3 days of intervals 30 minutes then doing an additional > 30 minutes of steady state. > Extra cardio I am walking 3 miles at least 3 days a week just for fun > outside and I can do this in about 40 minutes. > As for my life I am a stay at home mom of a 10 and 3 year old and I feel > like I rarely sit down. But it isn't like doing a HIIT or anything just > constant busyness. > Now the 1 week a month I have terrible PMS I will do BFL lifting trying > hard to work hard but not nearly what I can do the other 3 weeks. As for > cardio I do the minimum 30 minutes and many times no HIIT. I feel lucky > to make it through the week <smile>! > > Any help one can give me would be greatly appreciated I am so tired of > treading water per say. I want to start losing no matter how slow that > is. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 Due to the extremely low dose of the drug however, this risk is believed to be minimal. When starting this therapy in the treatment of MS, there may also be some initial transient, though temporary, increase in MS symptoms. Experience in using this method has demonstrated most commonly, such as disturbed sleep, occasionally with vivid, bizarre and disturbing dreams, tiredness, fatigue, spasm and pain. These increased symptoms would not normally be expected to last more than seven to ten days. Rarely, other transient symptoms have included more severe pain and spasm, headache, diarrhoea or vomiting. These additional symptoms would appear to be associated with the previous frequent use of strong analgesics, which effectively create an addiction and dependency, thus increasing the body’s sensitivity to pain. This temporary increase in symptoms may also perhaps be explained when we consider the manner in which this drug is expected to work. This info is from Dr. Bob Lawrence from the following site. Kiki http://www.msrc.co.uk/index.cfm?fuseaction=show & pageid=651 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 I'm having a bit of a dilemma and am hoping that some of the experienced LDN users can give me some advice. I have been on LDN for a month. I started at 3 mg and just a few days ago started 4.5 mg. The first week or so that I was on LDN, I felt great. Decreased symptoms, more energy and better mood. However, the last few weeks I haven't felt good at all. I have terrible leg weakness (not stiffness) and some sensory symptoms have returned as well. (this all started on the 3 mg dose). Mostly, I'm just very concerned about my weakness; it's really bad. I can hardly drag myself up the stairs. I am a little discouraged to say the least. My question is, how long do I stick with LDN before I can say it isn't working for me? I know that it doesn't work for everyone and I would be really sad if I'm one of the few that doesn't see results. Should I stick it out 2 months, 3 months or more? What is reasonable? I've had some tell me that there is an adjustment period when symptoms can get worse but I suppose that there is a point when one has to call it quits if disease progression is apparent. I feel like I'm having a pretty bad flare-up right now and that scares me... Thanks everyone, kris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 Kris I started in February and just like you I felt almost human for a week or two and I was really happy. But then I started feeling really bad again. I went up to 4.5 for a while, but I was having very bad stiffness and I went back down to 3. I've been on 3 ever since. I think everyone will tell you to stick with it for at least 6 months. I know how you feel though, when you get a taste of normalcy you want it so bad! I think it really helps me though. I have good and bad days, but if you get rest, eat right and decrease your stress, you should feel a little better with LDN. I would say that unless you get really bad, you should hang in there. helped me in the beginning, telling me I might have a virus or something, which I think she was right because after a week or so of bad feelings, I felt pretty good. My main symptom improvement had been fatigue and mental strength. I hope this helps you. I'm here with you, [low dose naltrexone] What should I do now? I'm having a bit of a dilemma and am hoping that some of the experienced LDN users can give me some advice. I have been on LDN for a month. I started at 3 mg andjust a few days ago started 4.5 mg. The first week or so that I was on LDN, I felt great. Decreased symptoms, more energy and better mood. However, the last few weeks I haven't felt good at all. I have terrible leg weakness (not stiffness) and some sensory symptomshave returned as well. (this all started on the 3 mg dose).Mostly, I'm just very concerned about my weakness; it's really bad. I can hardly drag myself up the stairs. I am a little discouraged to say the least. My question is, how long do I stick with LDN before I can say it isn't working for me? I know that it doesn't work for everyone and I would be really sad if I'm one of the few that doesn't see results. Should I stick it out 2 months, 3 months or more? What is reasonable? I've had some tell me that there is an adjustment period when symptoms can get worse but I suppose that there is a point when one has to callit quits if disease progression is apparent.I feel like I'm having a pretty bad flare-up right now and that scares me...Thanks everyone,kris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 Thank you for your encouraging words, . I really appreciate it. It is good to hear your story and experiences because I have to tell you, I've had a lot of anxiety about making the right decisions. Lately I've been questioning my decision to get off of interferon and on LDN. I had a pretty good summer but since August have really been struggling. I haven't lost hope in LDN yet but I have my dark days... When you say that you have stiffness, what do you mean by that? Spasticity? Weakness? Cramps? or just trouble moving? My legs are always fatigued; like I've recently worked-out strenuously and there is lactic acid buildup and muscle fatigue. Do you know what I mean? Like I've just run a marathon or something (I wish, because I couldn't run even if I wanted to). However that started before I started the LDN; it became worse after I started the LDN but that may be the initial worsening of symptoms that some report. I just have to keep telling myself " patience, patience, patience " .... kris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 Hi Kris I am on Copaxone, and have been for a few years, so I continue to take it with the LDN. Betaseron made me sick! From all I have heard, the Interferons are not good! When I say stiffness, I mean walking like a tin soldier, most all of the time. Mostly morning though, as soon as I get up I need to stretch out my muscles for a few minutes or I really can't walk, which alot of times is hard if I have to go to the bathroom first thing! My muscles are weak I'm sure, I can't run either and walking is hard. I get fatigued easily and have to rest alot. I would keep with LDN. Do you do stretches? I find it really helps. LDN is very safe, and I would think your body is still going through the adjustment period? How long have you had MS and what kind do you have? I've had it for 15 years, RRMS, and LDN is the first that's ever made me feel close to human again! I am encouraged that it will come back one day like it was when I first started LDN. I may even try to move up to 4.5 again sometime in the future. Hang in there. I'm right there with you. Feel free to write anytime to vent or whatever. PS you can email me direct at jmbell88@... ---- kricket <kris@...> wrote: > Thank you for your encouraging words, . I really appreciate it. > It is good to hear your story and experiences because I have to tell you, > I've had a lot of anxiety about making the right decisions. Lately I've been > questioning my decision to get off of interferon and on LDN. I had a pretty > good summer but since August have really been struggling. I haven't lost > hope in LDN yet but I have my dark days... > > When you say that you have stiffness, what do you mean by that? > Spasticity? Weakness? Cramps? or just trouble moving? My legs are always > fatigued; like I've recently worked-out strenuously and there is lactic acid > buildup and muscle fatigue. Do you know what I mean? Like I've just > run a marathon or something (I wish, because I couldn't run even if I wanted to). > However that started before I started the LDN; it became worse after I started > the LDN but that may be the initial worsening of symptoms that some report. > > I just have to keep telling myself " patience, patience, patience " .... > > kris > > > > > Quote Link to comment Share on other sites More sharing options...
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