Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 Hi all again Although I haven't seen online or heard of anyone with a hereditary ataxia such as SCA using LDN, was hoping some of you could offer me tips for when I go in to discuss with my neuro. I have seen or spoken with ppl that has benefited from LDN while having MS, ALS, and/or PLS. MS and PLS was initially suspected for me but ruled out due to MRI's for MS, and PLS based on symptoms. So the SCA seems the " now " diagnosis based on the gait/truncal ataxia along with sensorimotor polyneuropathy, foot drop, lack of muscle endurance etc... I would like to be able to discuss with my neuro what the possible benefits would me for me in my situation, plus just be able to intelligently discuss LDN factors. So if he asks me what or why do I believe LDN may offer something, I want to be prepared in how to respond. If anyone can offer me tips/hints on how to respond to his possible questions, respond to his possible not so sure, respond in a way that at least will provide him with the willingness to allow me to try LDN. please if anyone can offer me words, facts, etc... that I can use in discussing with neurologist please share them with me. thanks in advance marfla orlando fl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 sorry forgot to mention that I did email Skip here in Florida asking him if he knew of anyone with SCA trying LDN. He responded that he didn't but suggested I post again on the boards to see if anyone here may know more. thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2006 Report Share Posted October 20, 2006 http://www.gazorpa.com/index.html The above information from a very sharp lady 'may' be what you need 'ammunition/explanation-wise' with/for your doctor. Just a thought. Cap'n Caveman now back down to the salt mines...zzzzz [low dose naltrexone] Re: SCA-LDN tips > Hi all again > > Although I haven't seen online or heard of anyone with a hereditary > ataxia such as SCA using LDN, was hoping some of you could offer me > tips for when I go in to discuss with my neuro. > > I have seen or spoken with ppl that has benefited from LDN while > having MS, ALS, and/or PLS. MS and PLS was initially suspected for > me but ruled out due to MRI's for MS, and PLS based on symptoms. So > the SCA seems the " now " diagnosis based on the gait/truncal ataxia > along with sensorimotor polyneuropathy, foot drop, lack of muscle > endurance etc... > > I would like to be able to discuss with my neuro what the possible > benefits would me for me in my situation, plus just be able to > intelligently discuss LDN factors. > > So if he asks me what or why do I believe LDN may offer something, I > want to be prepared in how to respond. > > If anyone can offer me tips/hints on how to respond to his possible > questions, respond to his possible not so sure, respond in a way that > at least will provide him with the willingness to allow me to try LDN. > > please if anyone can offer me words, facts, etc... that I can use in > discussing with neurologist please share them with me. > > thanks in advance > marfla > orlando fl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2006 Report Share Posted October 20, 2006 thanks great site. marfla Be Blessed [low dose naltrexone] Re: SCA-LDN tips > > >> Hi all again >> >> Although I haven't seen online or heard of anyone with a hereditary >> ataxia such as SCA using LDN, was hoping some of you could offer me >> tips for when I go in to discuss with my neuro. >> >> I have seen or spoken with ppl that has benefited from LDN while >> having MS, ALS, and/or PLS. MS and PLS was initially suspected for >> me but ruled out due to MRI's for MS, and PLS based on symptoms. So >> the SCA seems the " now " diagnosis based on the gait/truncal ataxia >> along with sensorimotor polyneuropathy, foot drop, lack of muscle >> endurance etc... >> >> I would like to be able to discuss with my neuro what the possible >> benefits would me for me in my situation, plus just be able to >> intelligently discuss LDN factors. >> >> So if he asks me what or why do I believe LDN may offer something, I >> want to be prepared in how to respond. >> >> If anyone can offer me tips/hints on how to respond to his possible >> questions, respond to his possible not so sure, respond in a way that >> at least will provide him with the willingness to allow me to try LDN. >> >> please if anyone can offer me words, facts, etc... that I can use in >> discussing with neurologist please share them with me. >> >> thanks in advance >> marfla >> orlando fl > > > > > Quote Link to comment Share on other sites More sharing options...
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