Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 http://www.epa.gov/region8/sf/co_sf.html For your info, in case you find something that pertains to your area or some place you visit. My sons are recovering autism and digestive disturbance. SCD has been a miracle for us. We have done the rounds of " specialists " and what not, but development started becomming spontaneous with SCD and digestive enzymes and some other nutritional supports we use. Both children were nonverbal at the start of SCD, Hunter had severe behavoiral problems, tics, was a danger to himself, could not be potty trained, and Ben had fungal cysts on his rectum which a surgeon was going to perform surgery on, and had extreme, I mean extreme leaky gut, he always passed water. Healing takes time, and as you can see, we have been on the diet for 18 months, slightly longer than that as when we first started, we quit for abit out of sickness and frustration, only to realize we started losing ground! We got back on, and development has been slow, steady and spontaneous since (a few regressions we weathered, they become less and less overtime. We also homeschool, and part of homeschooling is to learn how to cook SCD foods! Not only are they learning to care for themselves, but they are learning a professional skill and basic division and all about food. Things I never learned in my own childhood. Well, except for division, I learned that. lol Also, it is just plain fun for kids to make a mess in the kitchen! I let them choose some of their own foods. Be sure to lay out the choices first though. heehee When the brain is able to be fed, it can start working again, and children have the capacity to form new connections like crazy. I am a pianist, and after a stroke while living in Leadville, I lost the use of my left arm and hand. I was told I would never play again. Even my old brain, through increased omega 3's, special herbs, then SCD, and then digestive enzymes, guess what? The specialists and doctors were wrong. Connections can be made, the brain can rewire itself! It is possible, scientists study it all the time, and part of this process and getting the fuel to the brain! People with malabsorption are not adequately supplying their brains with enough nutrients, which delays the formation of additional wiring. This is my belief. Another angle why SCD is a miracle and important for our family. Below is an older post I made a while back on how to culture your own butter. I am of the opinion cultured better is somewhat healthier than uncultured, because, like the yogurt, additional enzymes are formed by the probiotic bacteria digesting the casein. Somewhere on pecanbread, there is a detailed recipee for making your own ghee, basically you heat the butter " clarify it " until the fat and casein solids seperate from one another. I haven't made ghee before, perhaps someone else here has more detailed instructions. I really like the taste of making and culturing my own butter! Summer I got this information from a farm I buy things from: Okay, this website isn't all about doing it raw and right, but it's a great, easy-to-understand way to learn butter-making for yourself! And it has nice pictures (tho' small)! http://webexhibits.org/butter/doityourself.html Instead of using a food processor, try a blender or an upright mixer (I can use 2 qts of cream in my Kitchen Aid). Also, to culture butter, you can leave the cream on the counter for 12-24 hours before you 'butter' it.<<< I culture for 24 hours with SCD starter. I trust making this more than buying cultured butter, and it is cheaper. Better to buy fresh raw cream from a farm, but if not, heavy whipping cream will do. It takes so good and fresh! Summer Marilyn Sawyer marilyn1972@...> wrote: Whole Foods has it. Bunce ajbunce@...> wrote: My God that is awful! Are you guys doing better? I never knew that! Antoinette (SCD day 20 entire family) --------------------------------- Yahoo! Mail Bring photos to life! New PhotoMail makes sharing a breeze. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 You give me a lot of hope...after being over medicated for over a decade and a half with a supposed mental illness...now to be discovered caused by damaged intestines and related vitamin deficiencies (CELIAC DISEASE) my brain has not been working ever since. I too as a child was a protégé on the piano composing music and in art work...you would never know it now...my brain doesn't work like that anymore at the age of 38.....I have been sick most of my life.....I think the psychiatric meds may have kept me alive....but " starvation " and toxic reactions to meds damaged my brain...I ALWAYS FELT SO TOXIC AND POISONED BY THEM! 15 years later.....New evaluation by professional psychiatrist and psychologist said that I had been misdiagnosed! That my problem was not Bi-polar at all! To make a very long and complicated story SHORT....that I had PTSD and CELIAC DISEASE! Yet guess what...my creativity seems to have been Robed from me and I want it back! The GF and CF diet DID NOT WORK! Thank you for sharing your story! and how to make GHEE and cultured butter! Antoinette (SCD day 20 entire family) Re: Leadville and cultured butter Antoinette http://www.epa.gov/region8/sf/co_sf.htmlhttp://www.epa.gov/region8/sf/co_sf.htm\ l> For your info, in case you find something that pertains to your area or some place you visit. My sons are recovering autism and digestive disturbance. SCD has been a miracle for us. We have done the rounds of " specialists " and what not, but development started becomming spontaneous with SCD and digestive enzymes and some other nutritional supports we use. Both children were nonverbal at the start of SCD, Hunter had severe behavoiral problems, tics, was a danger to himself, could not be potty trained, and Ben had fungal cysts on his rectum which a surgeon was going to perform surgery on, and had extreme, I mean extreme leaky gut, he always passed water. Healing takes time, and as you can see, we have been on the diet for 18 months, slightly longer than that as when we first started, we quit for abit out of sickness and frustration, only to realize we started losing ground! We got back on, and development has been slow, steady and spontaneous since (a few regressions we weathered, they become less and less overtime. We also homeschool, and part of homeschooling is to learn how to cook SCD foods! Not only are they learning to care for themselves, but they are learning a professional skill and basic division and all about food. Things I never learned in my own childhood. Well, except for division, I learned that. lol Also, it is just plain fun for kids to make a mess in the kitchen! I let them choose some of their own foods. Be sure to lay out the choices first though. heehee When the brain is able to be fed, it can start working again, and children have the capacity to form new connections like crazy. I am a pianist, and after a stroke while living in Leadville, I lost the use of my left arm and hand. I was told I would never play again. Even my old brain, through increased omega 3's, special herbs, then SCD, and then digestive enzymes, guess what? The specialists and doctors were wrong. Connections can be made, the brain can rewire itself! It is possible, scientists study it all the time, and part of this process and getting the fuel to the brain! People with malabsorption are not adequately supplying their brains with enough nutrients, which delays the formation of additional wiring. This is my belief. Another angle why SCD is a miracle and important for our family. Below is an older post I made a while back on how to culture your own butter. I am of the opinion cultured better is somewhat healthier than uncultured, because, like the yogurt, additional enzymes are formed by the probiotic bacteria digesting the casein. Somewhere on pecanbread, there is a detailed recipee for making your own ghee, basically you heat the butter " clarify it " until the fat and casein solids seperate from one another. I haven't made ghee before, perhaps someone else here has more detailed instructions. I really like the taste of making and culturing my own butter! Summer I got this information from a farm I buy things from: Okay, this website isn't all about doing it raw and right, but it's a great, easy-to-understand way to learn butter-making for yourself! And it has nice pictures (tho' small)! http://webexhibits.org/butter/doityourself.htmlhttp://webexhibits.org/butter/do\ ityourself.html> Instead of using a food processor, try a blender or an upright mixer (I can use 2 qts of cream in my Kitchen Aid). Also, to culture butter, you can leave the cream on the counter for 12-24 hours before you 'butter' it.<<< I culture for 24 hours with SCD starter. I trust making this more than buying cultured butter, and it is cheaper. Better to buy fresh raw cream from a farm, but if not, heavy whipping cream will do. It takes so good and fresh! Summer Marilyn Sawyer marilyn1972@...> wrote: Whole Foods has it. Bunce ajbunce@...> wrote: My God that is awful! Are you guys doing better? I never knew that! Antoinette (SCD day 20 entire family) --------------------------------- Yahoo! Mail Bring photos to life! New PhotoMail makes sharing a breeze. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 You give me a lot of hope...after being over medicated for over a decade and a half with a supposed mental illness...now to be discovered caused by damaged intestines and related vitamin deficiencies (CELIAC DISEASE) my brain has not been working ever since. I too as a child was a protégé on the piano composing music and in art work...you would never know it now...my brain doesn't work like that anymore at the age of 38.....I have been sick most of my life.....I think the psychiatric meds may have kept me alive....but " starvation " and toxic reactions to meds damaged my brain...I ALWAYS FELT SO TOXIC AND POISONED BY THEM! 15 years later.....New evaluation by professional psychiatrist and psychologist said that I had been misdiagnosed! That my problem was not Bi-polar at all! To make a very long and complicated story SHORT....that I had PTSD and CELIAC DISEASE! Yet guess what...my creativity seems to have been Robed from me and I want it back! The GF and CF diet DID NOT WORK! Thank you for sharing your story! and how to make GHEE and cultured butter! Antoinette (SCD day 20 entire family) Re: Leadville and cultured butter Antoinette http://www.epa.gov/region8/sf/co_sf.htmlhttp://www.epa.gov/region8/sf/co_sf.htm\ l> For your info, in case you find something that pertains to your area or some place you visit. My sons are recovering autism and digestive disturbance. SCD has been a miracle for us. We have done the rounds of " specialists " and what not, but development started becomming spontaneous with SCD and digestive enzymes and some other nutritional supports we use. Both children were nonverbal at the start of SCD, Hunter had severe behavoiral problems, tics, was a danger to himself, could not be potty trained, and Ben had fungal cysts on his rectum which a surgeon was going to perform surgery on, and had extreme, I mean extreme leaky gut, he always passed water. Healing takes time, and as you can see, we have been on the diet for 18 months, slightly longer than that as when we first started, we quit for abit out of sickness and frustration, only to realize we started losing ground! We got back on, and development has been slow, steady and spontaneous since (a few regressions we weathered, they become less and less overtime. We also homeschool, and part of homeschooling is to learn how to cook SCD foods! Not only are they learning to care for themselves, but they are learning a professional skill and basic division and all about food. Things I never learned in my own childhood. Well, except for division, I learned that. lol Also, it is just plain fun for kids to make a mess in the kitchen! I let them choose some of their own foods. Be sure to lay out the choices first though. heehee When the brain is able to be fed, it can start working again, and children have the capacity to form new connections like crazy. I am a pianist, and after a stroke while living in Leadville, I lost the use of my left arm and hand. I was told I would never play again. Even my old brain, through increased omega 3's, special herbs, then SCD, and then digestive enzymes, guess what? The specialists and doctors were wrong. Connections can be made, the brain can rewire itself! It is possible, scientists study it all the time, and part of this process and getting the fuel to the brain! People with malabsorption are not adequately supplying their brains with enough nutrients, which delays the formation of additional wiring. This is my belief. Another angle why SCD is a miracle and important for our family. Below is an older post I made a while back on how to culture your own butter. I am of the opinion cultured better is somewhat healthier than uncultured, because, like the yogurt, additional enzymes are formed by the probiotic bacteria digesting the casein. Somewhere on pecanbread, there is a detailed recipee for making your own ghee, basically you heat the butter " clarify it " until the fat and casein solids seperate from one another. I haven't made ghee before, perhaps someone else here has more detailed instructions. I really like the taste of making and culturing my own butter! Summer I got this information from a farm I buy things from: Okay, this website isn't all about doing it raw and right, but it's a great, easy-to-understand way to learn butter-making for yourself! And it has nice pictures (tho' small)! http://webexhibits.org/butter/doityourself.htmlhttp://webexhibits.org/butter/do\ ityourself.html> Instead of using a food processor, try a blender or an upright mixer (I can use 2 qts of cream in my Kitchen Aid). Also, to culture butter, you can leave the cream on the counter for 12-24 hours before you 'butter' it.<<< I culture for 24 hours with SCD starter. I trust making this more than buying cultured butter, and it is cheaper. Better to buy fresh raw cream from a farm, but if not, heavy whipping cream will do. It takes so good and fresh! Summer Marilyn Sawyer marilyn1972@...> wrote: Whole Foods has it. Bunce ajbunce@...> wrote: My God that is awful! Are you guys doing better? I never knew that! Antoinette (SCD day 20 entire family) --------------------------------- Yahoo! Mail Bring photos to life! New PhotoMail makes sharing a breeze. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 You give me a lot of hope...after being over medicated for over a decade and a half with a supposed mental illness...now to be discovered caused by damaged intestines and related vitamin deficiencies (CELIAC DISEASE) my brain has not been working ever since. I too as a child was a protégé on the piano composing music and in art work...you would never know it now...my brain doesn't work like that anymore at the age of 38.....I have been sick most of my life.....I think the psychiatric meds may have kept me alive....but " starvation " and toxic reactions to meds damaged my brain...I ALWAYS FELT SO TOXIC AND POISONED BY THEM! 15 years later.....New evaluation by professional psychiatrist and psychologist said that I had been misdiagnosed! That my problem was not Bi-polar at all! To make a very long and complicated story SHORT....that I had PTSD and CELIAC DISEASE! Yet guess what...my creativity seems to have been Robed from me and I want it back! The GF and CF diet DID NOT WORK! Thank you for sharing your story! and how to make GHEE and cultured butter! Antoinette (SCD day 20 entire family) Re: Leadville and cultured butter Antoinette http://www.epa.gov/region8/sf/co_sf.htmlhttp://www.epa.gov/region8/sf/co_sf.htm\ l> For your info, in case you find something that pertains to your area or some place you visit. My sons are recovering autism and digestive disturbance. SCD has been a miracle for us. We have done the rounds of " specialists " and what not, but development started becomming spontaneous with SCD and digestive enzymes and some other nutritional supports we use. Both children were nonverbal at the start of SCD, Hunter had severe behavoiral problems, tics, was a danger to himself, could not be potty trained, and Ben had fungal cysts on his rectum which a surgeon was going to perform surgery on, and had extreme, I mean extreme leaky gut, he always passed water. Healing takes time, and as you can see, we have been on the diet for 18 months, slightly longer than that as when we first started, we quit for abit out of sickness and frustration, only to realize we started losing ground! We got back on, and development has been slow, steady and spontaneous since (a few regressions we weathered, they become less and less overtime. We also homeschool, and part of homeschooling is to learn how to cook SCD foods! Not only are they learning to care for themselves, but they are learning a professional skill and basic division and all about food. Things I never learned in my own childhood. Well, except for division, I learned that. lol Also, it is just plain fun for kids to make a mess in the kitchen! I let them choose some of their own foods. Be sure to lay out the choices first though. heehee When the brain is able to be fed, it can start working again, and children have the capacity to form new connections like crazy. I am a pianist, and after a stroke while living in Leadville, I lost the use of my left arm and hand. I was told I would never play again. Even my old brain, through increased omega 3's, special herbs, then SCD, and then digestive enzymes, guess what? The specialists and doctors were wrong. Connections can be made, the brain can rewire itself! It is possible, scientists study it all the time, and part of this process and getting the fuel to the brain! People with malabsorption are not adequately supplying their brains with enough nutrients, which delays the formation of additional wiring. This is my belief. Another angle why SCD is a miracle and important for our family. Below is an older post I made a while back on how to culture your own butter. I am of the opinion cultured better is somewhat healthier than uncultured, because, like the yogurt, additional enzymes are formed by the probiotic bacteria digesting the casein. Somewhere on pecanbread, there is a detailed recipee for making your own ghee, basically you heat the butter " clarify it " until the fat and casein solids seperate from one another. I haven't made ghee before, perhaps someone else here has more detailed instructions. I really like the taste of making and culturing my own butter! Summer I got this information from a farm I buy things from: Okay, this website isn't all about doing it raw and right, but it's a great, easy-to-understand way to learn butter-making for yourself! And it has nice pictures (tho' small)! http://webexhibits.org/butter/doityourself.htmlhttp://webexhibits.org/butter/do\ ityourself.html> Instead of using a food processor, try a blender or an upright mixer (I can use 2 qts of cream in my Kitchen Aid). Also, to culture butter, you can leave the cream on the counter for 12-24 hours before you 'butter' it.<<< I culture for 24 hours with SCD starter. I trust making this more than buying cultured butter, and it is cheaper. Better to buy fresh raw cream from a farm, but if not, heavy whipping cream will do. It takes so good and fresh! Summer Marilyn Sawyer marilyn1972@...> wrote: Whole Foods has it. Bunce ajbunce@...> wrote: My God that is awful! Are you guys doing better? I never knew that! Antoinette (SCD day 20 entire family) --------------------------------- Yahoo! Mail Bring photos to life! New PhotoMail makes sharing a breeze. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 Wow! You have been very wronged! It is not too late for your piano playing. Work on your diet, and when you are ready, pick it up. I am a music teacher, and if people can come to me and learn piano at 50, and you have a natural talent and leaning with piano, there is no reason but yourself you cannot do it. You will have to start over, and begin again, but once you get into it, you'll start flying through it. Hope? You need hope? I very dear friend of mine, really I should call her family now, has had a similar history you described. She is celiac! And, with my SCD book and some other stuff she is doing, she is recovering. Yes, damage to the brain, but we use so little of our brains anyway, don't let that be a limiting factor. We are only limited by our thinking, I think thinking lays down parameters for what we can and cannot do, can and cannot heal, can and cannot achieve, can and cannot lay down wiring. Think positive, you are walking down a new road in your life. Hope! You have hope, you are doing it! You are on SCD, starting enzymes, and all kinds of beautiful things are happening to you! You're homeschooling a beautiful family, and your art is still there, it is just dormant. No one can take that away from you. I am very sorry you were misdiagnosed, like my good friend. I am very sorry you went through this experience. Rain people have extroadinary talents that need to be nurtured, at any age, healing the gut is paramount to realizing potential. I hope SCD will be ever bit the miracle for you it has been for us. Thanks for sharing your story! Summer Bunce ajbunce@...> wrote: You give me a lot of hope...after being over medicated for over a decade and a half with a supposed mental illness...now to be discovered caused by damaged intestines and related vitamin deficiencies (CELIAC DISEASE) my brain has not been working ever since. I too as a child was a protégé on the piano composing music and in art work...you would never know it now...my brain doesn't work like that anymore at the age of 38.....I have been sick most of my life.....I think the psychiatric meds may have kept me alive....but " starvation " and toxic reactions to meds damaged my brain...I ALWAYS FELT SO TOXIC AND POISONED BY THEM! 15 years later.....New evaluation by professional psychiatrist and psychologist said that I had been misdiagnosed! That my problem was not Bi-polar at all! To make a very long and complicated story SHORT....that I had PTSD and CELIAC DISEASE! Yet guess what...my creativity seems to have been Robed from me and I want it back! The GF and CF diet DID NOT WORK! Thank you for sharing your story! and how to make GHEE and cultured butter! Antoinette (SCD day 20 entire family) Re: Leadville and cultured butter Antoinette http://www.epa.gov/region8/sf/co_sf.htmlhttp://www.epa.gov/region8/sf/co_sf.htm\ l> For your info, in case you find something that pertains to your area or some place you visit. My sons are recovering autism and digestive disturbance. SCD has been a miracle for us. We have done the rounds of " specialists " and what not, but development started becomming spontaneous with SCD and digestive enzymes and some other nutritional supports we use. Both children were nonverbal at the start of SCD, Hunter had severe behavoiral problems, tics, was a danger to himself, could not be potty trained, and Ben had fungal cysts on his rectum which a surgeon was going to perform surgery on, and had extreme, I mean extreme leaky gut, he always passed water. Healing takes time, and as you can see, we have been on the diet for 18 months, slightly longer than that as when we first started, we quit for abit out of sickness and frustration, only to realize we started losing ground! We got back on, and development has been slow, steady and spontaneous since (a few regressions we weathered, they become less and less overtime. We also homeschool, and part of homeschooling is to learn how to cook SCD foods! Not only are they learning to care for themselves, but they are learning a professional skill and basic division and all about food. Things I never learned in my own childhood. Well, except for division, I learned that. lol Also, it is just plain fun for kids to make a mess in the kitchen! I let them choose some of their own foods. Be sure to lay out the choices first though. heehee When the brain is able to be fed, it can start working again, and children have the capacity to form new connections like crazy. I am a pianist, and after a stroke while living in Leadville, I lost the use of my left arm and hand. I was told I would never play again. Even my old brain, through increased omega 3's, special herbs, then SCD, and then digestive enzymes, guess what? The specialists and doctors were wrong. Connections can be made, the brain can rewire itself! It is possible, scientists study it all the time, and part of this process and getting the fuel to the brain! People with malabsorption are not adequately supplying their brains with enough nutrients, which delays the formation of additional wiring. This is my belief. Another angle why SCD is a miracle and important for our family. Below is an older post I made a while back on how to culture your own butter. I am of the opinion cultured better is somewhat healthier than uncultured, because, like the yogurt, additional enzymes are formed by the probiotic bacteria digesting the casein. Somewhere on pecanbread, there is a detailed recipee for making your own ghee, basically you heat the butter " clarify it " until the fat and casein solids seperate from one another. I haven't made ghee before, perhaps someone else here has more detailed instructions. I really like the taste of making and culturing my own butter! Summer I got this information from a farm I buy things from: Okay, this website isn't all about doing it raw and right, but it's a great, easy-to-understand way to learn butter-making for yourself! And it has nice pictures (tho' small)! http://webexhibits.org/butter/doityourself.htmlhttp://webexhibits.org/butter/do\ ityourself.html> Instead of using a food processor, try a blender or an upright mixer (I can use 2 qts of cream in my Kitchen Aid). Also, to culture butter, you can leave the cream on the counter for 12-24 hours before you 'butter' it.<<< I culture for 24 hours with SCD starter. I trust making this more than buying cultured butter, and it is cheaper. Better to buy fresh raw cream from a farm, but if not, heavy whipping cream will do. It takes so good and fresh! Summer Marilyn Sawyer marilyn1972@...> wrote: Whole Foods has it. Bunce ajbunce@...> wrote: My God that is awful! Are you guys doing better? I never knew that! Antoinette (SCD day 20 entire family) --------------------------------- Yahoo! Mail Bring photos to life! New PhotoMail makes sharing a breeze. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 Wow! You have been very wronged! It is not too late for your piano playing. Work on your diet, and when you are ready, pick it up. I am a music teacher, and if people can come to me and learn piano at 50, and you have a natural talent and leaning with piano, there is no reason but yourself you cannot do it. You will have to start over, and begin again, but once you get into it, you'll start flying through it. Hope? You need hope? I very dear friend of mine, really I should call her family now, has had a similar history you described. She is celiac! And, with my SCD book and some other stuff she is doing, she is recovering. Yes, damage to the brain, but we use so little of our brains anyway, don't let that be a limiting factor. We are only limited by our thinking, I think thinking lays down parameters for what we can and cannot do, can and cannot heal, can and cannot achieve, can and cannot lay down wiring. Think positive, you are walking down a new road in your life. Hope! You have hope, you are doing it! You are on SCD, starting enzymes, and all kinds of beautiful things are happening to you! You're homeschooling a beautiful family, and your art is still there, it is just dormant. No one can take that away from you. I am very sorry you were misdiagnosed, like my good friend. I am very sorry you went through this experience. Rain people have extroadinary talents that need to be nurtured, at any age, healing the gut is paramount to realizing potential. I hope SCD will be ever bit the miracle for you it has been for us. Thanks for sharing your story! Summer Bunce ajbunce@...> wrote: You give me a lot of hope...after being over medicated for over a decade and a half with a supposed mental illness...now to be discovered caused by damaged intestines and related vitamin deficiencies (CELIAC DISEASE) my brain has not been working ever since. I too as a child was a protégé on the piano composing music and in art work...you would never know it now...my brain doesn't work like that anymore at the age of 38.....I have been sick most of my life.....I think the psychiatric meds may have kept me alive....but " starvation " and toxic reactions to meds damaged my brain...I ALWAYS FELT SO TOXIC AND POISONED BY THEM! 15 years later.....New evaluation by professional psychiatrist and psychologist said that I had been misdiagnosed! That my problem was not Bi-polar at all! To make a very long and complicated story SHORT....that I had PTSD and CELIAC DISEASE! Yet guess what...my creativity seems to have been Robed from me and I want it back! The GF and CF diet DID NOT WORK! Thank you for sharing your story! and how to make GHEE and cultured butter! Antoinette (SCD day 20 entire family) Re: Leadville and cultured butter Antoinette http://www.epa.gov/region8/sf/co_sf.htmlhttp://www.epa.gov/region8/sf/co_sf.htm\ l> For your info, in case you find something that pertains to your area or some place you visit. My sons are recovering autism and digestive disturbance. SCD has been a miracle for us. We have done the rounds of " specialists " and what not, but development started becomming spontaneous with SCD and digestive enzymes and some other nutritional supports we use. Both children were nonverbal at the start of SCD, Hunter had severe behavoiral problems, tics, was a danger to himself, could not be potty trained, and Ben had fungal cysts on his rectum which a surgeon was going to perform surgery on, and had extreme, I mean extreme leaky gut, he always passed water. Healing takes time, and as you can see, we have been on the diet for 18 months, slightly longer than that as when we first started, we quit for abit out of sickness and frustration, only to realize we started losing ground! We got back on, and development has been slow, steady and spontaneous since (a few regressions we weathered, they become less and less overtime. We also homeschool, and part of homeschooling is to learn how to cook SCD foods! Not only are they learning to care for themselves, but they are learning a professional skill and basic division and all about food. Things I never learned in my own childhood. Well, except for division, I learned that. lol Also, it is just plain fun for kids to make a mess in the kitchen! I let them choose some of their own foods. Be sure to lay out the choices first though. heehee When the brain is able to be fed, it can start working again, and children have the capacity to form new connections like crazy. I am a pianist, and after a stroke while living in Leadville, I lost the use of my left arm and hand. I was told I would never play again. Even my old brain, through increased omega 3's, special herbs, then SCD, and then digestive enzymes, guess what? The specialists and doctors were wrong. Connections can be made, the brain can rewire itself! It is possible, scientists study it all the time, and part of this process and getting the fuel to the brain! People with malabsorption are not adequately supplying their brains with enough nutrients, which delays the formation of additional wiring. This is my belief. Another angle why SCD is a miracle and important for our family. Below is an older post I made a while back on how to culture your own butter. I am of the opinion cultured better is somewhat healthier than uncultured, because, like the yogurt, additional enzymes are formed by the probiotic bacteria digesting the casein. Somewhere on pecanbread, there is a detailed recipee for making your own ghee, basically you heat the butter " clarify it " until the fat and casein solids seperate from one another. I haven't made ghee before, perhaps someone else here has more detailed instructions. I really like the taste of making and culturing my own butter! Summer I got this information from a farm I buy things from: Okay, this website isn't all about doing it raw and right, but it's a great, easy-to-understand way to learn butter-making for yourself! And it has nice pictures (tho' small)! http://webexhibits.org/butter/doityourself.htmlhttp://webexhibits.org/butter/do\ ityourself.html> Instead of using a food processor, try a blender or an upright mixer (I can use 2 qts of cream in my Kitchen Aid). Also, to culture butter, you can leave the cream on the counter for 12-24 hours before you 'butter' it.<<< I culture for 24 hours with SCD starter. I trust making this more than buying cultured butter, and it is cheaper. Better to buy fresh raw cream from a farm, but if not, heavy whipping cream will do. It takes so good and fresh! Summer Marilyn Sawyer marilyn1972@...> wrote: Whole Foods has it. Bunce ajbunce@...> wrote: My God that is awful! Are you guys doing better? I never knew that! Antoinette (SCD day 20 entire family) --------------------------------- Yahoo! Mail Bring photos to life! New PhotoMail makes sharing a breeze. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 Wow! You have been very wronged! It is not too late for your piano playing. Work on your diet, and when you are ready, pick it up. I am a music teacher, and if people can come to me and learn piano at 50, and you have a natural talent and leaning with piano, there is no reason but yourself you cannot do it. You will have to start over, and begin again, but once you get into it, you'll start flying through it. Hope? You need hope? I very dear friend of mine, really I should call her family now, has had a similar history you described. She is celiac! And, with my SCD book and some other stuff she is doing, she is recovering. Yes, damage to the brain, but we use so little of our brains anyway, don't let that be a limiting factor. We are only limited by our thinking, I think thinking lays down parameters for what we can and cannot do, can and cannot heal, can and cannot achieve, can and cannot lay down wiring. Think positive, you are walking down a new road in your life. Hope! You have hope, you are doing it! You are on SCD, starting enzymes, and all kinds of beautiful things are happening to you! You're homeschooling a beautiful family, and your art is still there, it is just dormant. No one can take that away from you. I am very sorry you were misdiagnosed, like my good friend. I am very sorry you went through this experience. Rain people have extroadinary talents that need to be nurtured, at any age, healing the gut is paramount to realizing potential. I hope SCD will be ever bit the miracle for you it has been for us. Thanks for sharing your story! Summer Bunce ajbunce@...> wrote: You give me a lot of hope...after being over medicated for over a decade and a half with a supposed mental illness...now to be discovered caused by damaged intestines and related vitamin deficiencies (CELIAC DISEASE) my brain has not been working ever since. I too as a child was a protégé on the piano composing music and in art work...you would never know it now...my brain doesn't work like that anymore at the age of 38.....I have been sick most of my life.....I think the psychiatric meds may have kept me alive....but " starvation " and toxic reactions to meds damaged my brain...I ALWAYS FELT SO TOXIC AND POISONED BY THEM! 15 years later.....New evaluation by professional psychiatrist and psychologist said that I had been misdiagnosed! That my problem was not Bi-polar at all! To make a very long and complicated story SHORT....that I had PTSD and CELIAC DISEASE! Yet guess what...my creativity seems to have been Robed from me and I want it back! The GF and CF diet DID NOT WORK! Thank you for sharing your story! and how to make GHEE and cultured butter! Antoinette (SCD day 20 entire family) Re: Leadville and cultured butter Antoinette http://www.epa.gov/region8/sf/co_sf.htmlhttp://www.epa.gov/region8/sf/co_sf.htm\ l> For your info, in case you find something that pertains to your area or some place you visit. My sons are recovering autism and digestive disturbance. SCD has been a miracle for us. We have done the rounds of " specialists " and what not, but development started becomming spontaneous with SCD and digestive enzymes and some other nutritional supports we use. Both children were nonverbal at the start of SCD, Hunter had severe behavoiral problems, tics, was a danger to himself, could not be potty trained, and Ben had fungal cysts on his rectum which a surgeon was going to perform surgery on, and had extreme, I mean extreme leaky gut, he always passed water. Healing takes time, and as you can see, we have been on the diet for 18 months, slightly longer than that as when we first started, we quit for abit out of sickness and frustration, only to realize we started losing ground! We got back on, and development has been slow, steady and spontaneous since (a few regressions we weathered, they become less and less overtime. We also homeschool, and part of homeschooling is to learn how to cook SCD foods! Not only are they learning to care for themselves, but they are learning a professional skill and basic division and all about food. Things I never learned in my own childhood. Well, except for division, I learned that. lol Also, it is just plain fun for kids to make a mess in the kitchen! I let them choose some of their own foods. Be sure to lay out the choices first though. heehee When the brain is able to be fed, it can start working again, and children have the capacity to form new connections like crazy. I am a pianist, and after a stroke while living in Leadville, I lost the use of my left arm and hand. I was told I would never play again. Even my old brain, through increased omega 3's, special herbs, then SCD, and then digestive enzymes, guess what? The specialists and doctors were wrong. Connections can be made, the brain can rewire itself! It is possible, scientists study it all the time, and part of this process and getting the fuel to the brain! People with malabsorption are not adequately supplying their brains with enough nutrients, which delays the formation of additional wiring. This is my belief. Another angle why SCD is a miracle and important for our family. Below is an older post I made a while back on how to culture your own butter. I am of the opinion cultured better is somewhat healthier than uncultured, because, like the yogurt, additional enzymes are formed by the probiotic bacteria digesting the casein. Somewhere on pecanbread, there is a detailed recipee for making your own ghee, basically you heat the butter " clarify it " until the fat and casein solids seperate from one another. I haven't made ghee before, perhaps someone else here has more detailed instructions. I really like the taste of making and culturing my own butter! Summer I got this information from a farm I buy things from: Okay, this website isn't all about doing it raw and right, but it's a great, easy-to-understand way to learn butter-making for yourself! And it has nice pictures (tho' small)! http://webexhibits.org/butter/doityourself.htmlhttp://webexhibits.org/butter/do\ ityourself.html> Instead of using a food processor, try a blender or an upright mixer (I can use 2 qts of cream in my Kitchen Aid). Also, to culture butter, you can leave the cream on the counter for 12-24 hours before you 'butter' it.<<< I culture for 24 hours with SCD starter. I trust making this more than buying cultured butter, and it is cheaper. Better to buy fresh raw cream from a farm, but if not, heavy whipping cream will do. It takes so good and fresh! Summer Marilyn Sawyer marilyn1972@...> wrote: Whole Foods has it. Bunce ajbunce@...> wrote: My God that is awful! Are you guys doing better? I never knew that! Antoinette (SCD day 20 entire family) --------------------------------- Yahoo! Mail Bring photos to life! New PhotoMail makes sharing a breeze. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 Your message has warmed my heart and brought happy tears to my eyes. Before this list serve I felt so alone...so I started to wite my families story...a testimony that I now will dedicate to Elaine and her Children. I hope that your are right and that I again can write music like I once did....I can't even play my own songs I wrote at the tender age of 13.....when I look at the notes...I just can't believe that I wrote it...it is like having two lives.....the one before my brain was taken...and then now.....one thing that makes me happy...is that with the SCD I may hold my grand babies...so many relatives have died from this undiagnosed...my mother and sister where just two of many. My mother never got to hold her grand babies.....at one time I feared that I would die young....thanks to diagnosis of CD and running into the correct way to eat....I hope you are right....I HAVE HOPE.....at the age of 38 I am also learning how to play for the first time. When I read Elaine's book I could not believe my eyes when I saw the brain gut connection....how could have my doctors missed this? And then if it hadn't been for me....almost missed my kids and my husband! What a story I have to tell...thank you for listening...thank you for sharing your tale. It is nice to have a new friend. Antoinette (SCD entire family day 20/celiac,dh,asd,add,adhd,mental illness) Re: Leadville and cultured butter Antoinette http://www.epa.gov/region8/sf/co_sf.htmlhttp://www.epa.gov/region8/sf/co_sf.htm\ l>http://www.epa.gov/region8/sf/co_sf.htmlhttp://www.epa.gov/region8/sf/co_sf.\ html>> For your info, in case you find something that pertains to your area or some place you visit. My sons are recovering autism and digestive disturbance. SCD has been a miracle for us. We have done the rounds of " specialists " and what not, but development started becomming spontaneous with SCD and digestive enzymes and some other nutritional supports we use. Both children were nonverbal at the start of SCD, Hunter had severe behavoiral problems, tics, was a danger to himself, could not be potty trained, and Ben had fungal cysts on his rectum which a surgeon was going to perform surgery on, and had extreme, I mean extreme leaky gut, he always passed water. Healing takes time, and as you can see, we have been on the diet for 18 months, slightly longer than that as when we first started, we quit for abit out of sickness and frustration, only to realize we started losing ground! We got back on, and development has been slow, steady and spontaneous since (a few regressions we weathered, they become less and less overtime. We also homeschool, and part of homeschooling is to learn how to cook SCD foods! Not only are they learning to care for themselves, but they are learning a professional skill and basic division and all about food. Things I never learned in my own childhood. Well, except for division, I learned that. lol Also, it is just plain fun for kids to make a mess in the kitchen! I let them choose some of their own foods. Be sure to lay out the choices first though. heehee When the brain is able to be fed, it can start working again, and children have the capacity to form new connections like crazy. I am a pianist, and after a stroke while living in Leadville, I lost the use of my left arm and hand. I was told I would never play again. Even my old brain, through increased omega 3's, special herbs, then SCD, and then digestive enzymes, guess what? The specialists and doctors were wrong. Connections can be made, the brain can rewire itself! It is possible, scientists study it all the time, and part of this process and getting the fuel to the brain! People with malabsorption are not adequately supplying their brains with enough nutrients, which delays the formation of additional wiring. This is my belief. Another angle why SCD is a miracle and important for our family. Below is an older post I made a while back on how to culture your own butter. I am of the opinion cultured better is somewhat healthier than uncultured, because, like the yogurt, additional enzymes are formed by the probiotic bacteria digesting the casein. Somewhere on pecanbread, there is a detailed recipee for making your own ghee, basically you heat the butter " clarify it " until the fat and casein solids seperate from one another. I haven't made ghee before, perhaps someone else here has more detailed instructions. I really like the taste of making and culturing my own butter! Summer I got this information from a farm I buy things from: Okay, this website isn't all about doing it raw and right, but it's a great, easy-to-understand way to learn butter-making for yourself! And it has nice pictures (tho' small)! http://webexhibits.org/butter/doityourself.htmlhttp://webexhibits.org/butter/do\ ityourself.html>http://webexhibits.org/butter/doityourself.htmlhttp://webexhib\ its.org/butter/doityourself.html>> Instead of using a food processor, try a blender or an upright mixer (I can use 2 qts of cream in my Kitchen Aid). Also, to culture butter, you can leave the cream on the counter for 12-24 hours before you 'butter' it.<<< I culture for 24 hours with SCD starter. I trust making this more than buying cultured butter, and it is cheaper. Better to buy fresh raw cream from a farm, but if not, heavy whipping cream will do. It takes so good and fresh! Summer Marilyn Sawyer marilyn1972@...> wrote: Whole Foods has it. Bunce ajbunce@...> wrote: My God that is awful! Are you guys doing better? I never knew that! Antoinette (SCD day 20 entire family) --------------------------------- Yahoo! Mail Bring photos to life! New PhotoMail makes sharing a breeze. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 Your message has warmed my heart and brought happy tears to my eyes. Before this list serve I felt so alone...so I started to wite my families story...a testimony that I now will dedicate to Elaine and her Children. I hope that your are right and that I again can write music like I once did....I can't even play my own songs I wrote at the tender age of 13.....when I look at the notes...I just can't believe that I wrote it...it is like having two lives.....the one before my brain was taken...and then now.....one thing that makes me happy...is that with the SCD I may hold my grand babies...so many relatives have died from this undiagnosed...my mother and sister where just two of many. My mother never got to hold her grand babies.....at one time I feared that I would die young....thanks to diagnosis of CD and running into the correct way to eat....I hope you are right....I HAVE HOPE.....at the age of 38 I am also learning how to play for the first time. When I read Elaine's book I could not believe my eyes when I saw the brain gut connection....how could have my doctors missed this? And then if it hadn't been for me....almost missed my kids and my husband! What a story I have to tell...thank you for listening...thank you for sharing your tale. It is nice to have a new friend. Antoinette (SCD entire family day 20/celiac,dh,asd,add,adhd,mental illness) Re: Leadville and cultured butter Antoinette http://www.epa.gov/region8/sf/co_sf.htmlhttp://www.epa.gov/region8/sf/co_sf.htm\ l>http://www.epa.gov/region8/sf/co_sf.htmlhttp://www.epa.gov/region8/sf/co_sf.\ html>> For your info, in case you find something that pertains to your area or some place you visit. My sons are recovering autism and digestive disturbance. SCD has been a miracle for us. We have done the rounds of " specialists " and what not, but development started becomming spontaneous with SCD and digestive enzymes and some other nutritional supports we use. Both children were nonverbal at the start of SCD, Hunter had severe behavoiral problems, tics, was a danger to himself, could not be potty trained, and Ben had fungal cysts on his rectum which a surgeon was going to perform surgery on, and had extreme, I mean extreme leaky gut, he always passed water. Healing takes time, and as you can see, we have been on the diet for 18 months, slightly longer than that as when we first started, we quit for abit out of sickness and frustration, only to realize we started losing ground! We got back on, and development has been slow, steady and spontaneous since (a few regressions we weathered, they become less and less overtime. We also homeschool, and part of homeschooling is to learn how to cook SCD foods! Not only are they learning to care for themselves, but they are learning a professional skill and basic division and all about food. Things I never learned in my own childhood. Well, except for division, I learned that. lol Also, it is just plain fun for kids to make a mess in the kitchen! I let them choose some of their own foods. Be sure to lay out the choices first though. heehee When the brain is able to be fed, it can start working again, and children have the capacity to form new connections like crazy. I am a pianist, and after a stroke while living in Leadville, I lost the use of my left arm and hand. I was told I would never play again. Even my old brain, through increased omega 3's, special herbs, then SCD, and then digestive enzymes, guess what? The specialists and doctors were wrong. Connections can be made, the brain can rewire itself! It is possible, scientists study it all the time, and part of this process and getting the fuel to the brain! People with malabsorption are not adequately supplying their brains with enough nutrients, which delays the formation of additional wiring. This is my belief. Another angle why SCD is a miracle and important for our family. Below is an older post I made a while back on how to culture your own butter. I am of the opinion cultured better is somewhat healthier than uncultured, because, like the yogurt, additional enzymes are formed by the probiotic bacteria digesting the casein. Somewhere on pecanbread, there is a detailed recipee for making your own ghee, basically you heat the butter " clarify it " until the fat and casein solids seperate from one another. I haven't made ghee before, perhaps someone else here has more detailed instructions. I really like the taste of making and culturing my own butter! Summer I got this information from a farm I buy things from: Okay, this website isn't all about doing it raw and right, but it's a great, easy-to-understand way to learn butter-making for yourself! And it has nice pictures (tho' small)! http://webexhibits.org/butter/doityourself.htmlhttp://webexhibits.org/butter/do\ ityourself.html>http://webexhibits.org/butter/doityourself.htmlhttp://webexhib\ its.org/butter/doityourself.html>> Instead of using a food processor, try a blender or an upright mixer (I can use 2 qts of cream in my Kitchen Aid). Also, to culture butter, you can leave the cream on the counter for 12-24 hours before you 'butter' it.<<< I culture for 24 hours with SCD starter. I trust making this more than buying cultured butter, and it is cheaper. Better to buy fresh raw cream from a farm, but if not, heavy whipping cream will do. It takes so good and fresh! Summer Marilyn Sawyer marilyn1972@...> wrote: Whole Foods has it. Bunce ajbunce@...> wrote: My God that is awful! Are you guys doing better? I never knew that! Antoinette (SCD day 20 entire family) --------------------------------- Yahoo! Mail Bring photos to life! New PhotoMail makes sharing a breeze. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 Your message has warmed my heart and brought happy tears to my eyes. Before this list serve I felt so alone...so I started to wite my families story...a testimony that I now will dedicate to Elaine and her Children. I hope that your are right and that I again can write music like I once did....I can't even play my own songs I wrote at the tender age of 13.....when I look at the notes...I just can't believe that I wrote it...it is like having two lives.....the one before my brain was taken...and then now.....one thing that makes me happy...is that with the SCD I may hold my grand babies...so many relatives have died from this undiagnosed...my mother and sister where just two of many. My mother never got to hold her grand babies.....at one time I feared that I would die young....thanks to diagnosis of CD and running into the correct way to eat....I hope you are right....I HAVE HOPE.....at the age of 38 I am also learning how to play for the first time. When I read Elaine's book I could not believe my eyes when I saw the brain gut connection....how could have my doctors missed this? And then if it hadn't been for me....almost missed my kids and my husband! What a story I have to tell...thank you for listening...thank you for sharing your tale. It is nice to have a new friend. Antoinette (SCD entire family day 20/celiac,dh,asd,add,adhd,mental illness) Re: Leadville and cultured butter Antoinette http://www.epa.gov/region8/sf/co_sf.htmlhttp://www.epa.gov/region8/sf/co_sf.htm\ l>http://www.epa.gov/region8/sf/co_sf.htmlhttp://www.epa.gov/region8/sf/co_sf.\ html>> For your info, in case you find something that pertains to your area or some place you visit. My sons are recovering autism and digestive disturbance. SCD has been a miracle for us. We have done the rounds of " specialists " and what not, but development started becomming spontaneous with SCD and digestive enzymes and some other nutritional supports we use. Both children were nonverbal at the start of SCD, Hunter had severe behavoiral problems, tics, was a danger to himself, could not be potty trained, and Ben had fungal cysts on his rectum which a surgeon was going to perform surgery on, and had extreme, I mean extreme leaky gut, he always passed water. Healing takes time, and as you can see, we have been on the diet for 18 months, slightly longer than that as when we first started, we quit for abit out of sickness and frustration, only to realize we started losing ground! We got back on, and development has been slow, steady and spontaneous since (a few regressions we weathered, they become less and less overtime. We also homeschool, and part of homeschooling is to learn how to cook SCD foods! Not only are they learning to care for themselves, but they are learning a professional skill and basic division and all about food. Things I never learned in my own childhood. Well, except for division, I learned that. lol Also, it is just plain fun for kids to make a mess in the kitchen! I let them choose some of their own foods. Be sure to lay out the choices first though. heehee When the brain is able to be fed, it can start working again, and children have the capacity to form new connections like crazy. I am a pianist, and after a stroke while living in Leadville, I lost the use of my left arm and hand. I was told I would never play again. Even my old brain, through increased omega 3's, special herbs, then SCD, and then digestive enzymes, guess what? The specialists and doctors were wrong. Connections can be made, the brain can rewire itself! It is possible, scientists study it all the time, and part of this process and getting the fuel to the brain! People with malabsorption are not adequately supplying their brains with enough nutrients, which delays the formation of additional wiring. This is my belief. Another angle why SCD is a miracle and important for our family. Below is an older post I made a while back on how to culture your own butter. I am of the opinion cultured better is somewhat healthier than uncultured, because, like the yogurt, additional enzymes are formed by the probiotic bacteria digesting the casein. Somewhere on pecanbread, there is a detailed recipee for making your own ghee, basically you heat the butter " clarify it " until the fat and casein solids seperate from one another. I haven't made ghee before, perhaps someone else here has more detailed instructions. I really like the taste of making and culturing my own butter! Summer I got this information from a farm I buy things from: Okay, this website isn't all about doing it raw and right, but it's a great, easy-to-understand way to learn butter-making for yourself! And it has nice pictures (tho' small)! http://webexhibits.org/butter/doityourself.htmlhttp://webexhibits.org/butter/do\ ityourself.html>http://webexhibits.org/butter/doityourself.htmlhttp://webexhib\ its.org/butter/doityourself.html>> Instead of using a food processor, try a blender or an upright mixer (I can use 2 qts of cream in my Kitchen Aid). Also, to culture butter, you can leave the cream on the counter for 12-24 hours before you 'butter' it.<<< I culture for 24 hours with SCD starter. I trust making this more than buying cultured butter, and it is cheaper. Better to buy fresh raw cream from a farm, but if not, heavy whipping cream will do. It takes so good and fresh! Summer Marilyn Sawyer marilyn1972@...> wrote: Whole Foods has it. Bunce ajbunce@...> wrote: My God that is awful! Are you guys doing better? I never knew that! Antoinette (SCD day 20 entire family) --------------------------------- Yahoo! Mail Bring photos to life! New PhotoMail makes sharing a breeze. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 Yes, you do have a story! Keep writing it! If you want to email me, anytime! Good luck with SCD! Take care, Summer Bunce ajbunce@...> wrote: Your message has warmed my heart and brought happy tears to my eyes. Before this list serve I felt so alone...so I started to wite my families story...a testimony that I now will dedicate to Elaine and her Children. I hope that your are right and that I again can write music like I once did....I can't even play my own songs I wrote at the tender age of 13.....when I look at the notes...I just can't believe that I wrote it...it is like having two lives.....the one before my brain was taken...and then now.....one thing that makes me happy...is that with the SCD I may hold my grand babies...so many relatives have died from this undiagnosed...my mother and sister where just two of many. My mother never got to hold her grand babies.....at one time I feared that I would die young....thanks to diagnosis of CD and running into the correct way to eat....I hope you are right....I HAVE HOPE.....at the age of 38 I am also learning how to play for the first time. When I read Elaine's book I could not believe my eyes when I saw the brain gut connection....how could have my doctors missed this? And then if it hadn't been for me....almost missed my kids and my husband! What a story I have to tell...thank you for listening...thank you for sharing your tale. It is nice to have a new friend. Antoinette (SCD entire family day 20/celiac,dh,asd,add,adhd,mental illness) Re: Leadville and cultured butter Antoinette http://www.epa.gov/region8/sf/co_sf.htmlhttp://www.epa.gov/region8/sf/co_sf.htm\ l>http://www.epa.gov/region8/sf/co_sf.htmlhttp://www.epa.gov/region8/sf/co_sf.\ html>> For your info, in case you find something that pertains to your area or some place you visit. My sons are recovering autism and digestive disturbance. SCD has been a miracle for us. We have done the rounds of " specialists " and what not, but development started becomming spontaneous with SCD and digestive enzymes and some other nutritional supports we use. Both children were nonverbal at the start of SCD, Hunter had severe behavoiral problems, tics, was a danger to himself, could not be potty trained, and Ben had fungal cysts on his rectum which a surgeon was going to perform surgery on, and had extreme, I mean extreme leaky gut, he always passed water. Healing takes time, and as you can see, we have been on the diet for 18 months, slightly longer than that as when we first started, we quit for abit out of sickness and frustration, only to realize we started losing ground! We got back on, and development has been slow, steady and spontaneous since (a few regressions we weathered, they become less and less overtime. We also homeschool, and part of homeschooling is to learn how to cook SCD foods! Not only are they learning to care for themselves, but they are learning a professional skill and basic division and all about food. Things I never learned in my own childhood. Well, except for division, I learned that. lol Also, it is just plain fun for kids to make a mess in the kitchen! I let them choose some of their own foods. Be sure to lay out the choices first though. heehee When the brain is able to be fed, it can start working again, and children have the capacity to form new connections like crazy. I am a pianist, and after a stroke while living in Leadville, I lost the use of my left arm and hand. I was told I would never play again. Even my old brain, through increased omega 3's, special herbs, then SCD, and then digestive enzymes, guess what? The specialists and doctors were wrong. Connections can be made, the brain can rewire itself! It is possible, scientists study it all the time, and part of this process and getting the fuel to the brain! People with malabsorption are not adequately supplying their brains with enough nutrients, which delays the formation of additional wiring. This is my belief. Another angle why SCD is a miracle and important for our family. Below is an older post I made a while back on how to culture your own butter. I am of the opinion cultured better is somewhat healthier than uncultured, because, like the yogurt, additional enzymes are formed by the probiotic bacteria digesting the casein. Somewhere on pecanbread, there is a detailed recipee for making your own ghee, basically you heat the butter " clarify it " until the fat and casein solids seperate from one another. I haven't made ghee before, perhaps someone else here has more detailed instructions. I really like the taste of making and culturing my own butter! Summer I got this information from a farm I buy things from: Okay, this website isn't all about doing it raw and right, but it's a great, easy-to-understand way to learn butter-making for yourself! And it has nice pictures (tho' small)! http://webexhibits.org/butter/doityourself.htmlhttp://webexhibits.org/butter/do\ ityourself.html>http://webexhibits.org/butter/doityourself.htmlhttp://webexhib\ its.org/butter/doityourself.html>> Instead of using a food processor, try a blender or an upright mixer (I can use 2 qts of cream in my Kitchen Aid). Also, to culture butter, you can leave the cream on the counter for 12-24 hours before you 'butter' it.<<< I culture for 24 hours with SCD starter. I trust making this more than buying cultured butter, and it is cheaper. Better to buy fresh raw cream from a farm, but if not, heavy whipping cream will do. It takes so good and fresh! Summer Marilyn Sawyer marilyn1972@...> wrote: Whole Foods has it. Bunce ajbunce@...> wrote: My God that is awful! Are you guys doing better? I never knew that! Antoinette (SCD day 20 entire family) --------------------------------- Yahoo! Mail Bring photos to life! New PhotoMail makes sharing a breeze. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 Yes, you do have a story! Keep writing it! If you want to email me, anytime! Good luck with SCD! Take care, Summer Bunce ajbunce@...> wrote: Your message has warmed my heart and brought happy tears to my eyes. Before this list serve I felt so alone...so I started to wite my families story...a testimony that I now will dedicate to Elaine and her Children. I hope that your are right and that I again can write music like I once did....I can't even play my own songs I wrote at the tender age of 13.....when I look at the notes...I just can't believe that I wrote it...it is like having two lives.....the one before my brain was taken...and then now.....one thing that makes me happy...is that with the SCD I may hold my grand babies...so many relatives have died from this undiagnosed...my mother and sister where just two of many. My mother never got to hold her grand babies.....at one time I feared that I would die young....thanks to diagnosis of CD and running into the correct way to eat....I hope you are right....I HAVE HOPE.....at the age of 38 I am also learning how to play for the first time. When I read Elaine's book I could not believe my eyes when I saw the brain gut connection....how could have my doctors missed this? And then if it hadn't been for me....almost missed my kids and my husband! What a story I have to tell...thank you for listening...thank you for sharing your tale. It is nice to have a new friend. Antoinette (SCD entire family day 20/celiac,dh,asd,add,adhd,mental illness) Re: Leadville and cultured butter Antoinette http://www.epa.gov/region8/sf/co_sf.htmlhttp://www.epa.gov/region8/sf/co_sf.htm\ l>http://www.epa.gov/region8/sf/co_sf.htmlhttp://www.epa.gov/region8/sf/co_sf.\ html>> For your info, in case you find something that pertains to your area or some place you visit. My sons are recovering autism and digestive disturbance. SCD has been a miracle for us. We have done the rounds of " specialists " and what not, but development started becomming spontaneous with SCD and digestive enzymes and some other nutritional supports we use. Both children were nonverbal at the start of SCD, Hunter had severe behavoiral problems, tics, was a danger to himself, could not be potty trained, and Ben had fungal cysts on his rectum which a surgeon was going to perform surgery on, and had extreme, I mean extreme leaky gut, he always passed water. Healing takes time, and as you can see, we have been on the diet for 18 months, slightly longer than that as when we first started, we quit for abit out of sickness and frustration, only to realize we started losing ground! We got back on, and development has been slow, steady and spontaneous since (a few regressions we weathered, they become less and less overtime. We also homeschool, and part of homeschooling is to learn how to cook SCD foods! Not only are they learning to care for themselves, but they are learning a professional skill and basic division and all about food. Things I never learned in my own childhood. Well, except for division, I learned that. lol Also, it is just plain fun for kids to make a mess in the kitchen! I let them choose some of their own foods. Be sure to lay out the choices first though. heehee When the brain is able to be fed, it can start working again, and children have the capacity to form new connections like crazy. I am a pianist, and after a stroke while living in Leadville, I lost the use of my left arm and hand. I was told I would never play again. Even my old brain, through increased omega 3's, special herbs, then SCD, and then digestive enzymes, guess what? The specialists and doctors were wrong. Connections can be made, the brain can rewire itself! It is possible, scientists study it all the time, and part of this process and getting the fuel to the brain! People with malabsorption are not adequately supplying their brains with enough nutrients, which delays the formation of additional wiring. This is my belief. Another angle why SCD is a miracle and important for our family. Below is an older post I made a while back on how to culture your own butter. I am of the opinion cultured better is somewhat healthier than uncultured, because, like the yogurt, additional enzymes are formed by the probiotic bacteria digesting the casein. Somewhere on pecanbread, there is a detailed recipee for making your own ghee, basically you heat the butter " clarify it " until the fat and casein solids seperate from one another. I haven't made ghee before, perhaps someone else here has more detailed instructions. I really like the taste of making and culturing my own butter! Summer I got this information from a farm I buy things from: Okay, this website isn't all about doing it raw and right, but it's a great, easy-to-understand way to learn butter-making for yourself! And it has nice pictures (tho' small)! http://webexhibits.org/butter/doityourself.htmlhttp://webexhibits.org/butter/do\ ityourself.html>http://webexhibits.org/butter/doityourself.htmlhttp://webexhib\ its.org/butter/doityourself.html>> Instead of using a food processor, try a blender or an upright mixer (I can use 2 qts of cream in my Kitchen Aid). Also, to culture butter, you can leave the cream on the counter for 12-24 hours before you 'butter' it.<<< I culture for 24 hours with SCD starter. I trust making this more than buying cultured butter, and it is cheaper. Better to buy fresh raw cream from a farm, but if not, heavy whipping cream will do. It takes so good and fresh! Summer Marilyn Sawyer marilyn1972@...> wrote: Whole Foods has it. Bunce ajbunce@...> wrote: My God that is awful! Are you guys doing better? I never knew that! Antoinette (SCD day 20 entire family) --------------------------------- Yahoo! Mail Bring photos to life! New PhotoMail makes sharing a breeze. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 Yes, you do have a story! Keep writing it! If you want to email me, anytime! Good luck with SCD! Take care, Summer Bunce ajbunce@...> wrote: Your message has warmed my heart and brought happy tears to my eyes. Before this list serve I felt so alone...so I started to wite my families story...a testimony that I now will dedicate to Elaine and her Children. I hope that your are right and that I again can write music like I once did....I can't even play my own songs I wrote at the tender age of 13.....when I look at the notes...I just can't believe that I wrote it...it is like having two lives.....the one before my brain was taken...and then now.....one thing that makes me happy...is that with the SCD I may hold my grand babies...so many relatives have died from this undiagnosed...my mother and sister where just two of many. My mother never got to hold her grand babies.....at one time I feared that I would die young....thanks to diagnosis of CD and running into the correct way to eat....I hope you are right....I HAVE HOPE.....at the age of 38 I am also learning how to play for the first time. When I read Elaine's book I could not believe my eyes when I saw the brain gut connection....how could have my doctors missed this? And then if it hadn't been for me....almost missed my kids and my husband! What a story I have to tell...thank you for listening...thank you for sharing your tale. It is nice to have a new friend. Antoinette (SCD entire family day 20/celiac,dh,asd,add,adhd,mental illness) Re: Leadville and cultured butter Antoinette http://www.epa.gov/region8/sf/co_sf.htmlhttp://www.epa.gov/region8/sf/co_sf.htm\ l>http://www.epa.gov/region8/sf/co_sf.htmlhttp://www.epa.gov/region8/sf/co_sf.\ html>> For your info, in case you find something that pertains to your area or some place you visit. My sons are recovering autism and digestive disturbance. SCD has been a miracle for us. We have done the rounds of " specialists " and what not, but development started becomming spontaneous with SCD and digestive enzymes and some other nutritional supports we use. Both children were nonverbal at the start of SCD, Hunter had severe behavoiral problems, tics, was a danger to himself, could not be potty trained, and Ben had fungal cysts on his rectum which a surgeon was going to perform surgery on, and had extreme, I mean extreme leaky gut, he always passed water. Healing takes time, and as you can see, we have been on the diet for 18 months, slightly longer than that as when we first started, we quit for abit out of sickness and frustration, only to realize we started losing ground! We got back on, and development has been slow, steady and spontaneous since (a few regressions we weathered, they become less and less overtime. We also homeschool, and part of homeschooling is to learn how to cook SCD foods! Not only are they learning to care for themselves, but they are learning a professional skill and basic division and all about food. Things I never learned in my own childhood. Well, except for division, I learned that. lol Also, it is just plain fun for kids to make a mess in the kitchen! I let them choose some of their own foods. Be sure to lay out the choices first though. heehee When the brain is able to be fed, it can start working again, and children have the capacity to form new connections like crazy. I am a pianist, and after a stroke while living in Leadville, I lost the use of my left arm and hand. I was told I would never play again. Even my old brain, through increased omega 3's, special herbs, then SCD, and then digestive enzymes, guess what? The specialists and doctors were wrong. Connections can be made, the brain can rewire itself! It is possible, scientists study it all the time, and part of this process and getting the fuel to the brain! People with malabsorption are not adequately supplying their brains with enough nutrients, which delays the formation of additional wiring. This is my belief. Another angle why SCD is a miracle and important for our family. Below is an older post I made a while back on how to culture your own butter. I am of the opinion cultured better is somewhat healthier than uncultured, because, like the yogurt, additional enzymes are formed by the probiotic bacteria digesting the casein. Somewhere on pecanbread, there is a detailed recipee for making your own ghee, basically you heat the butter " clarify it " until the fat and casein solids seperate from one another. I haven't made ghee before, perhaps someone else here has more detailed instructions. I really like the taste of making and culturing my own butter! Summer I got this information from a farm I buy things from: Okay, this website isn't all about doing it raw and right, but it's a great, easy-to-understand way to learn butter-making for yourself! And it has nice pictures (tho' small)! http://webexhibits.org/butter/doityourself.htmlhttp://webexhibits.org/butter/do\ ityourself.html>http://webexhibits.org/butter/doityourself.htmlhttp://webexhib\ its.org/butter/doityourself.html>> Instead of using a food processor, try a blender or an upright mixer (I can use 2 qts of cream in my Kitchen Aid). Also, to culture butter, you can leave the cream on the counter for 12-24 hours before you 'butter' it.<<< I culture for 24 hours with SCD starter. I trust making this more than buying cultured butter, and it is cheaper. Better to buy fresh raw cream from a farm, but if not, heavy whipping cream will do. It takes so good and fresh! Summer Marilyn Sawyer marilyn1972@...> wrote: Whole Foods has it. Bunce ajbunce@...> wrote: My God that is awful! Are you guys doing better? I never knew that! Antoinette (SCD day 20 entire family) --------------------------------- Yahoo! Mail Bring photos to life! New PhotoMail makes sharing a breeze. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2006 Report Share Posted March 13, 2006 Your story is similar to mine, I was 'misdiagnosed' for 10 years as having anorexia. I was hospitalized 4 times for months at a time, locked in hospital room with a nurse watching over me 24/7 so I wouldn't exercise or throw up or what ever else they feared I would do. My bathroom was locked and when I went I had to have a nurse in there with me. The whole time I was forced to stay in the hospital bed allowed very little movement and force fed Ensure and a whole other bunch of junk food, bread and pasta gallore, ice cream, you name it, I have a naturally low heart rate (resting 37) and so when ever my heart rate dropped below 40 at night they would wake me up and force me to have another ensure. They just couldn't understand what I could be doing since, despite them upping my calories to unnaturally high levels daily, I continued to lose weight. Did they not get it, what they were feeding me was killing me. They didn't want to get it, they had decided their diagnoses and didn't want to be wrong. after going through pain for 10 years I was finally diagnosed with celiac sprue and UC After being told over and over to eat grains and wheat despite me just naturally avoiding them..........that is my story > >Reply-To: pecanbread >To: pecanbread > >Subject: Re: Leadville and cultured butter Antoinette >Date: Sun, 12 Mar 2006 22:11:10 -0700 > >You give me a lot of hope...after being over medicated for over a decade >and a half with a supposed mental illness...now to be discovered caused by >damaged intestines and related vitamin deficiencies (CELIAC DISEASE) my >brain has not been working ever since. I too as a child was a protégé on >the piano composing music and in art work...you would never know it >now...my brain doesn't work like that anymore at the age of 38.....I have >been sick most of my life.....I think the psychiatric meds may have kept me >alive....but " starvation " and toxic reactions to meds damaged my brain...I >ALWAYS FELT SO TOXIC AND POISONED BY THEM! 15 years later.....New >evaluation by professional psychiatrist and psychologist said that I had >been misdiagnosed! That my problem was not Bi-polar at all! To make a >very long and complicated story SHORT....that I had PTSD and CELIAC >DISEASE! Yet guess what...my creativity seems to have been Robed from me >and I want it back! The GF and CF diet DID NOT WORK! Thank you for >sharing your story! and how to make GHEE and cultured butter! > >Antoinette (SCD day 20 entire family) > Re: Leadville and cultured butter Antoinette > > > >http://www.epa.gov/region8/sf/co_sf.htmlhttp://www.epa.gov/region8/sf/co_sf.ht\ ml> > > For your info, in case you find something that pertains to your area >or some place you visit. > > My sons are recovering autism and digestive disturbance. SCD has been >a miracle for us. We have done the rounds of " specialists " and what not, >but development started becomming spontaneous with SCD and digestive >enzymes and some other nutritional supports we use. Both children were >nonverbal at the start of SCD, Hunter had severe behavoiral problems, tics, >was a danger to himself, could not be potty trained, and Ben had fungal >cysts on his rectum which a surgeon was going to perform surgery on, and >had extreme, I mean extreme leaky gut, he always passed water. Healing >takes time, and as you can see, we have been on the diet for 18 months, >slightly longer than that as when we first started, we quit for abit out of >sickness and frustration, only to realize we started losing ground! We got >back on, and development has been slow, steady and spontaneous since (a few >regressions we weathered, they become less and less overtime. We also >homeschool, and part of homeschooling is to learn > how to cook SCD foods! Not only are they learning to care for >themselves, but they are learning a professional skill and basic division >and all about food. Things I never learned in my own childhood. Well, >except for division, I learned that. lol Also, it is just plain fun for >kids to make a mess in the kitchen! I let them choose some of their own >foods. Be sure to lay out the choices first though. heehee When the brain >is able to be fed, it can start working again, and children have the >capacity to form new connections like crazy. > > I am a pianist, and after a stroke while living in Leadville, I lost >the use of my left arm and hand. I was told I would never play again. Even >my old brain, through increased omega 3's, special herbs, then SCD, and >then digestive enzymes, guess what? The specialists and doctors were wrong. >Connections can be made, the brain can rewire itself! It is possible, >scientists study it all the time, and part of this process and getting the >fuel to the brain! People with malabsorption are not adequately supplying >their brains with enough nutrients, which delays the formation of >additional wiring. This is my belief. Another angle why SCD is a miracle >and important for our family. > > Below is an older post I made a while back on how to culture your own >butter. I am of the opinion cultured better is somewhat healthier than >uncultured, because, like the yogurt, additional enzymes are formed by the >probiotic bacteria digesting the casein. > > Somewhere on pecanbread, there is a detailed recipee for making your >own ghee, basically you heat the butter " clarify it " until the fat and >casein solids seperate from one another. I haven't made ghee before, >perhaps someone else here has more detailed instructions. > > I really like the taste of making and culturing my own butter! > > Summer > I got this information from a farm I buy things from: > > Okay, this website isn't all about doing it raw and right, but it's a > great, easy-to-understand way to learn butter-making for yourself! And > it has nice pictures (tho' small)! > > > >http://webexhibits.org/butter/doityourself.htmlhttp://webexhibits.org/butter/d\ oityourself.html> > > > Instead of using a food processor, try a blender or an upright mixer (I > can use 2 qts of cream in my Kitchen Aid). > > Also, to culture butter, you can leave the cream on the counter for > 12-24 hours before you 'butter' it.<<< > > I culture for 24 hours with SCD starter. I trust making this more than >buying cultured butter, and it is cheaper. Better to buy fresh raw cream >from a farm, but if not, heavy whipping cream will do. It takes so good and >fresh! > > Summer > > Marilyn Sawyer marilyn1972@...> wrote: > Whole Foods has it. > > > Bunce ajbunce@...> wrote: > My God that is awful! Are you guys doing better? I never knew that! > > Antoinette (SCD day 20 entire family) > > > --------------------------------- > Yahoo! Mail > Bring photos to life! New PhotoMail makes sharing a breeze. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2006 Report Share Posted March 13, 2006 Your story is similar to mine, I was 'misdiagnosed' for 10 years as having anorexia. I was hospitalized 4 times for months at a time, locked in hospital room with a nurse watching over me 24/7 so I wouldn't exercise or throw up or what ever else they feared I would do. My bathroom was locked and when I went I had to have a nurse in there with me. The whole time I was forced to stay in the hospital bed allowed very little movement and force fed Ensure and a whole other bunch of junk food, bread and pasta gallore, ice cream, you name it, I have a naturally low heart rate (resting 37) and so when ever my heart rate dropped below 40 at night they would wake me up and force me to have another ensure. They just couldn't understand what I could be doing since, despite them upping my calories to unnaturally high levels daily, I continued to lose weight. Did they not get it, what they were feeding me was killing me. They didn't want to get it, they had decided their diagnoses and didn't want to be wrong. after going through pain for 10 years I was finally diagnosed with celiac sprue and UC After being told over and over to eat grains and wheat despite me just naturally avoiding them..........that is my story > >Reply-To: pecanbread >To: pecanbread > >Subject: Re: Leadville and cultured butter Antoinette >Date: Sun, 12 Mar 2006 22:11:10 -0700 > >You give me a lot of hope...after being over medicated for over a decade >and a half with a supposed mental illness...now to be discovered caused by >damaged intestines and related vitamin deficiencies (CELIAC DISEASE) my >brain has not been working ever since. I too as a child was a protégé on >the piano composing music and in art work...you would never know it >now...my brain doesn't work like that anymore at the age of 38.....I have >been sick most of my life.....I think the psychiatric meds may have kept me >alive....but " starvation " and toxic reactions to meds damaged my brain...I >ALWAYS FELT SO TOXIC AND POISONED BY THEM! 15 years later.....New >evaluation by professional psychiatrist and psychologist said that I had >been misdiagnosed! That my problem was not Bi-polar at all! To make a >very long and complicated story SHORT....that I had PTSD and CELIAC >DISEASE! Yet guess what...my creativity seems to have been Robed from me >and I want it back! The GF and CF diet DID NOT WORK! Thank you for >sharing your story! and how to make GHEE and cultured butter! > >Antoinette (SCD day 20 entire family) > Re: Leadville and cultured butter Antoinette > > > >http://www.epa.gov/region8/sf/co_sf.htmlhttp://www.epa.gov/region8/sf/co_sf.ht\ ml> > > For your info, in case you find something that pertains to your area >or some place you visit. > > My sons are recovering autism and digestive disturbance. SCD has been >a miracle for us. We have done the rounds of " specialists " and what not, >but development started becomming spontaneous with SCD and digestive >enzymes and some other nutritional supports we use. Both children were >nonverbal at the start of SCD, Hunter had severe behavoiral problems, tics, >was a danger to himself, could not be potty trained, and Ben had fungal >cysts on his rectum which a surgeon was going to perform surgery on, and >had extreme, I mean extreme leaky gut, he always passed water. Healing >takes time, and as you can see, we have been on the diet for 18 months, >slightly longer than that as when we first started, we quit for abit out of >sickness and frustration, only to realize we started losing ground! We got >back on, and development has been slow, steady and spontaneous since (a few >regressions we weathered, they become less and less overtime. We also >homeschool, and part of homeschooling is to learn > how to cook SCD foods! Not only are they learning to care for >themselves, but they are learning a professional skill and basic division >and all about food. Things I never learned in my own childhood. Well, >except for division, I learned that. lol Also, it is just plain fun for >kids to make a mess in the kitchen! I let them choose some of their own >foods. Be sure to lay out the choices first though. heehee When the brain >is able to be fed, it can start working again, and children have the >capacity to form new connections like crazy. > > I am a pianist, and after a stroke while living in Leadville, I lost >the use of my left arm and hand. I was told I would never play again. Even >my old brain, through increased omega 3's, special herbs, then SCD, and >then digestive enzymes, guess what? The specialists and doctors were wrong. >Connections can be made, the brain can rewire itself! It is possible, >scientists study it all the time, and part of this process and getting the >fuel to the brain! People with malabsorption are not adequately supplying >their brains with enough nutrients, which delays the formation of >additional wiring. This is my belief. Another angle why SCD is a miracle >and important for our family. > > Below is an older post I made a while back on how to culture your own >butter. I am of the opinion cultured better is somewhat healthier than >uncultured, because, like the yogurt, additional enzymes are formed by the >probiotic bacteria digesting the casein. > > Somewhere on pecanbread, there is a detailed recipee for making your >own ghee, basically you heat the butter " clarify it " until the fat and >casein solids seperate from one another. I haven't made ghee before, >perhaps someone else here has more detailed instructions. > > I really like the taste of making and culturing my own butter! > > Summer > I got this information from a farm I buy things from: > > Okay, this website isn't all about doing it raw and right, but it's a > great, easy-to-understand way to learn butter-making for yourself! And > it has nice pictures (tho' small)! > > > >http://webexhibits.org/butter/doityourself.htmlhttp://webexhibits.org/butter/d\ oityourself.html> > > > Instead of using a food processor, try a blender or an upright mixer (I > can use 2 qts of cream in my Kitchen Aid). > > Also, to culture butter, you can leave the cream on the counter for > 12-24 hours before you 'butter' it.<<< > > I culture for 24 hours with SCD starter. I trust making this more than >buying cultured butter, and it is cheaper. Better to buy fresh raw cream >from a farm, but if not, heavy whipping cream will do. It takes so good and >fresh! > > Summer > > Marilyn Sawyer marilyn1972@...> wrote: > Whole Foods has it. > > > Bunce ajbunce@...> wrote: > My God that is awful! Are you guys doing better? I never knew that! > > Antoinette (SCD day 20 entire family) > > > --------------------------------- > Yahoo! Mail > Bring photos to life! New PhotoMail makes sharing a breeze. > > Quote Link to comment Share on other sites More sharing options...
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