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well he is just gettin beast milk and thats it!! he is also on enzymes with

every feed, which I give through a sirange with breast milk into his mouth. I

take many supplmenmts my self so he gets it in the milk. Liam is 13pd 13 oz

last week thursday, he was born at 7 pd 15 oz. He is now taking a herb which is

talked about on another message bored to increase absorbtion. Soon I will start

him on juiced organic carrort juice to get more beta carotene so that he can

convert it to vitamin A in his liver. Will do this through the medicine

dispenser. He had vitamin levels checked and he was down on vitamin E and D so

we are going to start micelle Vitamin E and I am buying a water soluble A from

the health shop. I havent had to give him any extra fomulas or calories, and I

figure that breast milk is the best sort of fat for baby and whole food. Cows

milk products have large protiens that are hard for humans to digest and break

down that is probably why there are so many allergies for milk becasue we are

not cows!! although sometimes when breastfeeding a baby you feel like a cow!

RIGHT?? LOL .

Anyway we should keep in touch maybe send some photos

My private e mail is

smoneill@...

mum to baby Liam and to Angel Lily who died of CF at 8 days old, and

wife to wonderful friend

Re: was: RE: Attendance Rewards

>

> hi marian

> Yes it is a beautiful time around 3 months.

> Can I ask what sorts of thing you are doing for joshua at the moment in

> regards to supplements and so forth??

> thanks you

>

> ps how heavy is he??

>

>

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The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

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Thanks n,

I just bought the ones that look like Jelly and you squish them is to

cover the opening. I know she'll let me do it okay as she cries with

the pain in her ears. She is a great little swimmer though, she can

swim nearly 25mtrs freestyle - do I sound proud?

But most importantly she loves it. She was great today. I had to take

her with me to my Gastro. appt. and she was an angel. Then she played

after school cricket at school (she's the only girl on the team) and she

was good there also. Its a pleasant surprise. Now 2 1/2 hours in the

cinema will be the test.LOL

(Australia)

in Australia

Thank you for the update on Eilish. They can make special ear plugs

made to the shape of her ears to really seal the water out; our young

child with cystic fibrosis had these as she had tubes in her ears. She

hated being required to wear a nose plug because of the tubes, but it

all worked and SHE WENT ON SWIMMING AND STILL DOES!

Best of luck to Eilish!

Love and courage to you,

n Rojas

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n,

Liam is a fanatic on Harry Potter. He's read the first two books and

will start the third soon. He sat there wide eyed and didn't peep. As

we were leaving he asked when we were coming back to see it again. We

saw the first one 5 times in the cinema in 3 weeks then got a pirated

copy (ssshh!) and have seen it dozens and dozens of times. So we'll do

the same with this one.

Re: Harry Potter - Not Cf Related/JULIE

I went with grandchildren, aged 8 and 4--girls; they kept saying things

like, " Cool, " " WoW, " and " Neat " throughout. Would have scared the

socks off me at age four--but that WAS clear back during WWII! Thank

you for telling us how much Eilish enjoyed this; I assume that Liam did,

as well. Aren't kids just amazing?

Love,

n Rojas

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n,

Liam is a fanatic on Harry Potter. He's read the first two books and

will start the third soon. He sat there wide eyed and didn't peep. As

we were leaving he asked when we were coming back to see it again. We

saw the first one 5 times in the cinema in 3 weeks then got a pirated

copy (ssshh!) and have seen it dozens and dozens of times. So we'll do

the same with this one.

Re: Harry Potter - Not Cf Related/JULIE

I went with grandchildren, aged 8 and 4--girls; they kept saying things

like, " Cool, " " WoW, " and " Neat " throughout. Would have scared the

socks off me at age four--but that WAS clear back during WWII! Thank

you for telling us how much Eilish enjoyed this; I assume that Liam did,

as well. Aren't kids just amazing?

Love,

n Rojas

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  • 1 month later...

Only you could break your funny bone........I think you are like me and have

the luck of the Irish!!

Hope your settling in and feeling better. Please BE CAREFUL!

Rosemary in New York with 3 children with CF - they are 12, 10, 6...I coined

the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you ready for

this - TOBI after their medication!

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You are very sweet to write; thank you--must have forgotten my brain--

really dumb thing to do! But then, as my first psychology professor said

to me, " If you are gifted, " as she dropped a whole pot of beans at a

class picnic, " you can do anything! "

Love to you and best of health in your family,

n

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You are very sweet to write; thank you--must have forgotten my brain--

really dumb thing to do! But then, as my first psychology professor said

to me, " If you are gifted, " as she dropped a whole pot of beans at a

class picnic, " you can do anything! "

Love to you and best of health in your family,

n

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