Guest guest Posted September 8, 2006 Report Share Posted September 8, 2006 Hello. I just searched the back log database of postings to see if anyone talks about being on Symmetrel (it's marketed as Mantadix where I am in France) WHILE taking LDN. I saw that a few of you had mentioned using it before getting on LDN...just wondering if anyone has any infomation, warnings, general experience to share about being on the both at the same time. My neuro here has suggested I give it a try...she knows that I'm taking LDN and is sympathetic, but doesn't know much about it (I still have a year's supply left, and don't even know if she could prescribe LDN in France.) Any help would be very much appreciated. I've been all over the net looking for info, but my search hasn't yielded much in regards to the combination. All the best, and Thanks! . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2006 Report Share Posted September 8, 2006 , I have been on LDN 4.5mg for nearly 3 years. One year ago I went to a new doctor who really believes that there is something to the viral/MS theory. He put me on Amantadine at that time. There was no contraindication with the LDN, but the Amantadine can cause mobility problems. I was stiff anyway, but that drug made me MUCH stiffer. Is your doctor wanting you to take a antiviral drug? If so, there are others to try. Marcie thepapineau <thepapineau@...> wrote: Hello.I just searched the back log database of postings to see if anyone talks about being on Symmetrel (it's marketed as Mantadix where I am in France) WHILE taking LDN. I saw that a few of you had mentioned using it before getting on LDN...just wondering if anyone has any infomation, warnings, general experience to share about being on the both at the same time. My neuro here has suggested I give it a try...she knows that I'm taking LDN and is sympathetic, but doesn't know much about it (I still have a year's supply left, and don't even know if she could prescribe LDN in France.)Any help would be very much appreciated. I've been all over the net looking for info, but my search hasn't yielded much in regards to the combination.All the best, and Thanks!.(Sorry if this has double posted...I've having trouble getting this to work.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2006 Report Share Posted September 8, 2006 hi marcie. thanks for sharing your experience. to answer your question, my doctor told me that it was a drug given to people with parkinson's to help with fatigue, and that there had been some success with it for people with MS. she was specifically trying to address my overall weakness, which has been getting worse. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2006 Report Share Posted September 8, 2006 I tried amantadine for MS related fatigue. The stuff put me down on the floor, icepacks around me to cool me off, then I had to stagger to the toilet to throw up. I was also so stiff it felt like rigor- mortis was moving in. At one time I could stand straight up and bend over to touch my palms to the floor. Not anymore. Tried to stretch, but no luck. The amantadine is serious stuff. HELP! Real > > , > > I have been on LDN 4.5mg for nearly 3 years. One year ago I went to a new doctor who really believes that there is something to the viral/MS theory. He put me on Amantadine at that time. There was no contraindication with the LDN, but the Amantadine can cause mobility problems. I was stiff anyway, but that drug made me MUCH stiffer. Is your doctor wanting you to take a antiviral drug? If so, there are others to try. > > Marcie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2006 Report Share Posted September 8, 2006 , You may want to try it, but if you notice increased stiffness or just feel terrible, you will know that it is the Amantadine. I have a friend who says it has helped her tremendously. Good Luck, Marcie thepapineau <thepapineau@...> wrote: hi marcie.thanks for sharing your experience. to answer your question, my doctor told me that it was a drug given to people with parkinson's to help with fatigue, and that there had been some success with it for people with MS. she was specifically trying to address my overall weakness, which has been getting worse. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2006 Report Share Posted September 9, 2006 > > hi marcie. > thanks for sharing your experience. to answer your question, my doctor told me that it was a > drug given to people with parkinson's to help with fatigue, and that there had been some > success with it for people with MS. she was specifically trying to address my overall > weakness, which has been getting worse. > Hi, I used to take baclofen and noticed I was getting weaker and weaker. It was hard to open a bottle of water or an office door. I realized that the drug was the cause. I weaned myself off and have had noticeable improvements! Quote Link to comment Share on other sites More sharing options...
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