Guest guest Posted February 15, 2003 Report Share Posted February 15, 2003 Hi, I am new here, a bit dazed and confused from lack of sleep and pain at that point where I can't think straight. I think I am in trouble, my latest attempt at relief fell through and my doctor says he doesn't know what else to do. (It was a nerve block) I have tried stents, drugs, hypnosis, massage, accupuncture, vitamins, a chiropractor, vinager, sleeping pills, enzyme therapy and dieting, I may have missed something, but now my unemployment is running out as well as my money, so if any one has any suggestions? I have idiopathic chronic and severe pancreatitis, am 45 years old, and end up in the hospital about once every six weeks. My last attack scared my sister so bad she kicked me out of the house. (My nephew is only four and hasn't said boo to me since the attack.)Just a few weeks prior to that, a friend of mine since fifth grade died from pancreatitis, so my family has been treating me with kid fingers now. My son is eleven and freezes up whenever I have an attack and I have so far been unable to get his thoughts on all this. I know he is afraid I will die and I can't tell him every thing will be ok. My own up bringing was emotionally brutal and so I have no real understanding of his sensitivity. It took years of therapy for my doctor to finally explain that I suborn my emotional pain so much, he has to describe them to me. It got me through as a kid, but now it triggers attacks of pancreatitis. (While going to him, my attacks actually lessoned, in intensity and duration) How can some one like me get through to some one like him? He is out going, friendly, warm, trusting, and well liked. It tears him up to see me being carried off to the hospital, but you all know haw sudden these attacks can happen, if I could I would shield him from all this. His mom is the one that made him who he is, but she is too good at seeing what she wants for me to get through to her. With all the medications I am on, my sex life has been zilch for going on six years. Pain is my only lover any more. If only I could get a divorce. I feel much better now, I have been pretty suicidal in my thoughts lately, maybe this felling of getting it off my chest will last. Thanks for being here, I have no one else to understand where I am coming from. Maybe the pain well drop enough I can sleep. Thanks for being here, I do feel better. G.M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2003 Report Share Posted February 15, 2003 G.M., I am so sorry you are having such problems with CP. I also have CP due to a pancreas divisum (divided pancreatic duct). It's birth defect and I've officially been having problems since I was sixteen (though they are now thinkning I've been fighting it all my life) and I'm now 32. If you have any instant messenger programs, I have AOL, Yahoo and MSN, with which you can reach me when I am online, feel free to contact me anytime and we can talk. My AOL and Yahoo screen name is :hominidtwo My MSN screen name is hominid2. Feel free to add me to your buddy lists. Or you can email me directly if you want to: hominid2@.... Have you tried to get SSDI or SSI? The earlier you try to get it, the more likely you'll be eligible. Best is to find a lawyer who deals with this and is willing to only be paid if you win. We have one here for the group to use and you can reach him via the email : ssdcavalry@.... He only uses this email address for the PAI group here. I'm afraid I can't really help you much with your son as I am single and have no kids. If you are having suicidal feelings, it might be time to get a psychologist. I have one and he has been very helpful in dealing with this horrible disease. He's even taught me a number of meditation exercises that help in reducing my pain levels (though they only work for about 2 hours - it's still 2 hours of relief). And when I'm feeling particularly depressed, he helps me out of it. In fact, one of my homework assignments from him this week is to watch a funny movie to help make me laugh, because laughter has been known to help deal with chronic pain and depression. I hope this has helped you some and look forward to hearing more from you. Kimber -- Kimber Vallejo, CA hominid2@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2003 Report Share Posted February 15, 2003 G.M., I am so sorry you are having such problems with CP. I also have CP due to a pancreas divisum (divided pancreatic duct). It's birth defect and I've officially been having problems since I was sixteen (though they are now thinkning I've been fighting it all my life) and I'm now 32. If you have any instant messenger programs, I have AOL, Yahoo and MSN, with which you can reach me when I am online, feel free to contact me anytime and we can talk. My AOL and Yahoo screen name is :hominidtwo My MSN screen name is hominid2. Feel free to add me to your buddy lists. Or you can email me directly if you want to: hominid2@.... Have you tried to get SSDI or SSI? The earlier you try to get it, the more likely you'll be eligible. Best is to find a lawyer who deals with this and is willing to only be paid if you win. We have one here for the group to use and you can reach him via the email : ssdcavalry@.... He only uses this email address for the PAI group here. I'm afraid I can't really help you much with your son as I am single and have no kids. If you are having suicidal feelings, it might be time to get a psychologist. I have one and he has been very helpful in dealing with this horrible disease. He's even taught me a number of meditation exercises that help in reducing my pain levels (though they only work for about 2 hours - it's still 2 hours of relief). And when I'm feeling particularly depressed, he helps me out of it. In fact, one of my homework assignments from him this week is to watch a funny movie to help make me laugh, because laughter has been known to help deal with chronic pain and depression. I hope this has helped you some and look forward to hearing more from you. Kimber -- Kimber Vallejo, CA hominid2@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2003 Report Share Posted February 15, 2003 <<< zombied out Hi, I am new here, a bit dazed and confused from lack of sleep and pain at that point where I can't think straight. I think I am in trouble, my latest attempt at relief fell through and my doctor says he doesn't know what else to do. (It was a nerve block) I have tried stents, drugs, hypnosis, massage, accupuncture, vitamins, a chiropractor, vinager, sleeping pills, enzyme therapy and dieting, I may have missed something, but now my unemployment is running out as well as my money, so if any one has any suggestions?...>>> G.M., Welcome to the group. I'm a newbie here too. I can say that in less than a full week, I have already learned a lot about pancreatitis and the people that suffer from it. Though I certaintly don't want anyone to suffer from this, it is good that those of us that do suffer from it, and our family and caretakers have a place to find stregnth in sharing. You have already received wise suggestions about pursuing SSD now as soon as you can and about the group lawyer, or finding your own. I have no experience with SSD or SSI or anything such thing but I have been told by doctors that when/if it comes to that point getting a lawyer is very important. I too have depression, but I had it long before I had my first attack of pancreatitis. Mindset is really important in order to keep up stregnth to heal, and to keep up resilience to pain. Finding acceptance within yourself is really important. Personally I find listening to music a great way to occupy my mind and stregnthen my will. It feeds the soul too. Make sure to find some way to reward yourself for all the pain you are taking on. If nothing else than finding some peace and acceptance for yourself, some beautiful music, and some meditation or prayer (no matter faith you follow). Remember to tell yourself that your life is a gift and no matter how hard things are, and had poorly your family understands you and your situation, that you have a right to live and to strive for the highest quality of life. I hope none of this sounds like hogwash, but I really do believe life is a gift and so I face each day as best I can. Keep writing and sharing -- it will help. Best of luck to you and may you find some freedom from the pain. Bert Bolin Cincinnati, OH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2003 Report Share Posted February 15, 2003 <<< zombied out Hi, I am new here, a bit dazed and confused from lack of sleep and pain at that point where I can't think straight. I think I am in trouble, my latest attempt at relief fell through and my doctor says he doesn't know what else to do. (It was a nerve block) I have tried stents, drugs, hypnosis, massage, accupuncture, vitamins, a chiropractor, vinager, sleeping pills, enzyme therapy and dieting, I may have missed something, but now my unemployment is running out as well as my money, so if any one has any suggestions?...>>> G.M., Welcome to the group. I'm a newbie here too. I can say that in less than a full week, I have already learned a lot about pancreatitis and the people that suffer from it. Though I certaintly don't want anyone to suffer from this, it is good that those of us that do suffer from it, and our family and caretakers have a place to find stregnth in sharing. You have already received wise suggestions about pursuing SSD now as soon as you can and about the group lawyer, or finding your own. I have no experience with SSD or SSI or anything such thing but I have been told by doctors that when/if it comes to that point getting a lawyer is very important. I too have depression, but I had it long before I had my first attack of pancreatitis. Mindset is really important in order to keep up stregnth to heal, and to keep up resilience to pain. Finding acceptance within yourself is really important. Personally I find listening to music a great way to occupy my mind and stregnthen my will. It feeds the soul too. Make sure to find some way to reward yourself for all the pain you are taking on. If nothing else than finding some peace and acceptance for yourself, some beautiful music, and some meditation or prayer (no matter faith you follow). Remember to tell yourself that your life is a gift and no matter how hard things are, and had poorly your family understands you and your situation, that you have a right to live and to strive for the highest quality of life. I hope none of this sounds like hogwash, but I really do believe life is a gift and so I face each day as best I can. Keep writing and sharing -- it will help. Best of luck to you and may you find some freedom from the pain. Bert Bolin Cincinnati, OH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2003 Report Share Posted February 15, 2003 <<< zombied out Hi, I am new here, a bit dazed and confused from lack of sleep and pain at that point where I can't think straight. I think I am in trouble, my latest attempt at relief fell through and my doctor says he doesn't know what else to do. (It was a nerve block) I have tried stents, drugs, hypnosis, massage, accupuncture, vitamins, a chiropractor, vinager, sleeping pills, enzyme therapy and dieting, I may have missed something, but now my unemployment is running out as well as my money, so if any one has any suggestions?...>>> G.M., Welcome to the group. I'm a newbie here too. I can say that in less than a full week, I have already learned a lot about pancreatitis and the people that suffer from it. Though I certaintly don't want anyone to suffer from this, it is good that those of us that do suffer from it, and our family and caretakers have a place to find stregnth in sharing. You have already received wise suggestions about pursuing SSD now as soon as you can and about the group lawyer, or finding your own. I have no experience with SSD or SSI or anything such thing but I have been told by doctors that when/if it comes to that point getting a lawyer is very important. I too have depression, but I had it long before I had my first attack of pancreatitis. Mindset is really important in order to keep up stregnth to heal, and to keep up resilience to pain. Finding acceptance within yourself is really important. Personally I find listening to music a great way to occupy my mind and stregnthen my will. It feeds the soul too. Make sure to find some way to reward yourself for all the pain you are taking on. If nothing else than finding some peace and acceptance for yourself, some beautiful music, and some meditation or prayer (no matter faith you follow). Remember to tell yourself that your life is a gift and no matter how hard things are, and had poorly your family understands you and your situation, that you have a right to live and to strive for the highest quality of life. I hope none of this sounds like hogwash, but I really do believe life is a gift and so I face each day as best I can. Keep writing and sharing -- it will help. Best of luck to you and may you find some freedom from the pain. Bert Bolin Cincinnati, OH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2003 Report Share Posted February 17, 2003 Hi Marisa, Thank you for the words of support. They help more than you know. I have had this condition all my life, but since September, I have had little but pain to occupy my thoughts. I tried school but in trying to study I stretched out my pain medicine, and ended up in the hospital and had to quit. I just can't seem to shake this dispair, though I know I will get better in time. I am waiting for some advance in medicine and I am sure it will come one of these days. I hope it comes in time that you can have a child and that I can see it. Best wishes and thanks again for your support and encouragement. G.M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2003 Report Share Posted February 17, 2003 Hi Marisa, Thank you for the words of support. They help more than you know. I have had this condition all my life, but since September, I have had little but pain to occupy my thoughts. I tried school but in trying to study I stretched out my pain medicine, and ended up in the hospital and had to quit. I just can't seem to shake this dispair, though I know I will get better in time. I am waiting for some advance in medicine and I am sure it will come one of these days. I hope it comes in time that you can have a child and that I can see it. Best wishes and thanks again for your support and encouragement. G.M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2003 Report Share Posted February 17, 2003 Hi Marisa, Thank you for the words of support. They help more than you know. I have had this condition all my life, but since September, I have had little but pain to occupy my thoughts. I tried school but in trying to study I stretched out my pain medicine, and ended up in the hospital and had to quit. I just can't seem to shake this dispair, though I know I will get better in time. I am waiting for some advance in medicine and I am sure it will come one of these days. I hope it comes in time that you can have a child and that I can see it. Best wishes and thanks again for your support and encouragement. G.M. Quote Link to comment Share on other sites More sharing options...
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