Guest guest Posted March 4, 2003 Report Share Posted March 4, 2003 Hi All, Tomorrow is my appointment with the hospital nutritionalist. I sure hope she knows more than I do, because in spite of all my increased efforts to add the calories, drinking MCT oil twice daily, drinking tons of juice and protein drinks, instead of water or tea because they add calories, eating at least three mini meals a day plus a regular lunch and dinner, I'm still losing weight. Even if I gain a pound or two, it's gone the next day. My husband is so worried now that he's convinced I need to be hospitalized, and I hate to tell him how scared I actually am, his concern is enough and I don't want to make him worry more than he already is. I've become afraid to answer him when he asks what my morning weight is. I made an appointment with a new interist for a full work up, but the she wasn't available until the 13th, and every day I seem to slide down a little more. The muscle wasting is horrible to see at this point and I've become very reclusive as a result of it. There aren't even have any clothes left that are small enough to fit! I called my GI yesterday and left a " HELP " message. I wanted to find out how to cut back on my antidepressants safely because they aren't working, but now I'm having side effects of severe dry mouth to the point that I can't produce saliva, and of course that has made trying to eat an ordeal....everything tastes like newspaper and chewing is practically impossible. I've been gorging on fruits, puddings, yogurt and jello....cool and easy to chew. I also wanted to ask him whether he still plans to treat me, because lately his lack of concern about my weight loss problems and failure to follow through, follow up, or answer my phone calls requesting help has been marginal at best. He has not bothered to return my call. Should I call my PM doctor, who's only seen me once, and request his help? It really has nothing to do with pain management. Shouldn't this be handled by my GI? Well, wish me luck, and thanks for letting me vent. My quality of life has suddenly taken a deep spiral downward and it's scary to think about where it's going. I can't do anything anymore without running out of energy and strength and having to rest all the time. If anyone has any ideas, please jump in. With hope and prayers, Heidi Heidi H. Griffeth South Carolina Southeastern Rep. PAI, Intl. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2003 Report Share Posted March 4, 2003 Hi Heidi, I had the same problem. They put me on creon 20/10's and I started to gain weight. I was at 117lbs at my lowest. Now I am at 136lb and maintaining that weight very well. Walt Tacoma, WA > Hi All, > > Tomorrow is my appointment with the hospital nutritionalist. I > sure hope she knows more than I do, because in spite of all my > increased efforts to add the calories, drinking MCT oil twice daily, > drinking tons of juice and protein drinks, instead of water or tea > because they add calories, eating at least three mini meals a > day plus a regular lunch and dinner, I'm still losing weight. Even > if I gain a pound or two, it's gone the next day. > > My husband is so worried now that he's convinced I need to be > hospitalized, and I hate to tell him how scared I actually am, his > concern is enough and I don't want to make him worry more than > he already is. I've become afraid to answer him when he asks > what my morning weight is. I made an appointment with a new > interist for a full work up, but the she wasn't available until the > 13th, and every day I seem to slide down a little more. The > muscle wasting is horrible to see at this point and I've become > very reclusive as a result of it. There aren't even have any clothes > left that are small enough to fit! > > I called my GI yesterday and left a " HELP " message. I wanted to > find out how to cut back on my antidepressants safely because > they aren't working, but now I'm having side effects of severe dry > mouth to the point that I can't produce saliva, and of course that > has made trying to eat an ordeal....everything tastes like > newspaper and chewing is practically impossible. I've been > gorging on fruits, puddings, yogurt and jello....cool and easy to > chew. I also wanted to ask him whether he still plans to treat > me, because lately his lack of concern about my weight loss > problems and failure to follow through, follow up, or answer my > phone calls requesting help has been marginal at best. He has > not bothered to return my call. Should I call my PM doctor, who's > only seen me once, and request his help? It really has nothing > to do with pain management. Shouldn't this be handled by my > GI? > > Well, wish me luck, and thanks for letting me vent. My quality of > life has suddenly taken a deep spiral downward and it's scary to > think about where it's going. I can't do anything anymore without > running out of energy and strength and having to rest all the time. > > If anyone has any ideas, please jump in. > > With hope and prayers, > Heidi > > Heidi H. Griffeth > South Carolina > Southeastern Rep. > PAI, Intl. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2003 Report Share Posted March 4, 2003 Hi Heidi, I had the same problem. They put me on creon 20/10's and I started to gain weight. I was at 117lbs at my lowest. Now I am at 136lb and maintaining that weight very well. Walt Tacoma, WA > Hi All, > > Tomorrow is my appointment with the hospital nutritionalist. I > sure hope she knows more than I do, because in spite of all my > increased efforts to add the calories, drinking MCT oil twice daily, > drinking tons of juice and protein drinks, instead of water or tea > because they add calories, eating at least three mini meals a > day plus a regular lunch and dinner, I'm still losing weight. Even > if I gain a pound or two, it's gone the next day. > > My husband is so worried now that he's convinced I need to be > hospitalized, and I hate to tell him how scared I actually am, his > concern is enough and I don't want to make him worry more than > he already is. I've become afraid to answer him when he asks > what my morning weight is. I made an appointment with a new > interist for a full work up, but the she wasn't available until the > 13th, and every day I seem to slide down a little more. The > muscle wasting is horrible to see at this point and I've become > very reclusive as a result of it. There aren't even have any clothes > left that are small enough to fit! > > I called my GI yesterday and left a " HELP " message. I wanted to > find out how to cut back on my antidepressants safely because > they aren't working, but now I'm having side effects of severe dry > mouth to the point that I can't produce saliva, and of course that > has made trying to eat an ordeal....everything tastes like > newspaper and chewing is practically impossible. I've been > gorging on fruits, puddings, yogurt and jello....cool and easy to > chew. I also wanted to ask him whether he still plans to treat > me, because lately his lack of concern about my weight loss > problems and failure to follow through, follow up, or answer my > phone calls requesting help has been marginal at best. He has > not bothered to return my call. Should I call my PM doctor, who's > only seen me once, and request his help? It really has nothing > to do with pain management. Shouldn't this be handled by my > GI? > > Well, wish me luck, and thanks for letting me vent. My quality of > life has suddenly taken a deep spiral downward and it's scary to > think about where it's going. I can't do anything anymore without > running out of energy and strength and having to rest all the time. > > If anyone has any ideas, please jump in. > > With hope and prayers, > Heidi > > Heidi H. Griffeth > South Carolina > Southeastern Rep. > PAI, Intl. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2003 Report Share Posted March 4, 2003 Hi Heidi, I had the same problem. They put me on creon 20/10's and I started to gain weight. I was at 117lbs at my lowest. Now I am at 136lb and maintaining that weight very well. Walt Tacoma, WA > Hi All, > > Tomorrow is my appointment with the hospital nutritionalist. I > sure hope she knows more than I do, because in spite of all my > increased efforts to add the calories, drinking MCT oil twice daily, > drinking tons of juice and protein drinks, instead of water or tea > because they add calories, eating at least three mini meals a > day plus a regular lunch and dinner, I'm still losing weight. Even > if I gain a pound or two, it's gone the next day. > > My husband is so worried now that he's convinced I need to be > hospitalized, and I hate to tell him how scared I actually am, his > concern is enough and I don't want to make him worry more than > he already is. I've become afraid to answer him when he asks > what my morning weight is. I made an appointment with a new > interist for a full work up, but the she wasn't available until the > 13th, and every day I seem to slide down a little more. The > muscle wasting is horrible to see at this point and I've become > very reclusive as a result of it. There aren't even have any clothes > left that are small enough to fit! > > I called my GI yesterday and left a " HELP " message. I wanted to > find out how to cut back on my antidepressants safely because > they aren't working, but now I'm having side effects of severe dry > mouth to the point that I can't produce saliva, and of course that > has made trying to eat an ordeal....everything tastes like > newspaper and chewing is practically impossible. I've been > gorging on fruits, puddings, yogurt and jello....cool and easy to > chew. I also wanted to ask him whether he still plans to treat > me, because lately his lack of concern about my weight loss > problems and failure to follow through, follow up, or answer my > phone calls requesting help has been marginal at best. He has > not bothered to return my call. Should I call my PM doctor, who's > only seen me once, and request his help? It really has nothing > to do with pain management. Shouldn't this be handled by my > GI? > > Well, wish me luck, and thanks for letting me vent. My quality of > life has suddenly taken a deep spiral downward and it's scary to > think about where it's going. I can't do anything anymore without > running out of energy and strength and having to rest all the time. > > If anyone has any ideas, please jump in. > > With hope and prayers, > Heidi > > Heidi H. Griffeth > South Carolina > Southeastern Rep. > PAI, Intl. Quote Link to comment Share on other sites More sharing options...
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