Re: causes,do they even know

[Guest guest]

--- " mikael_fata mikael_fata@...> "

mikael_fata@...> wrote:

> hi everyone, just reading the posting of the last week, it seems

i am not alone wondering what causes pancreatitis. i am not a heavy

drinker they told me i don't have gallbladder problems but they have

yet to do an untrasound, i was put in the hospital with pain and

fever and a lipase of over 10000 and a amylase of 2000... mikael>>>

Hi Mikael,

Alcohols effects on the panc. are

accumulative. A heavy night out can cause an attack

particularly if you have a previous attack, as you

have. If I were you I would lay off all alcohol, I

know, I was in your shoes and did not stop. Now I'm in

and out of the hosp. and insulin and enzyme dependent.

I believe any amount is bad. As always thats just my

2 cents good luck and what you think is best for you

Eddie Kline

[Guest guest]

--- " mikael_fata mikael_fata@...> "

mikael_fata@...> wrote:

> hi everyone, just reading the posting of the last week, it seems

i am not alone wondering what causes pancreatitis. i am not a heavy

drinker they told me i don't have gallbladder problems but they have

yet to do an untrasound, i was put in the hospital with pain and

fever and a lipase of over 10000 and a amylase of 2000... mikael>>>

Hi Mikael,

Alcohols effects on the panc. are

accumulative. A heavy night out can cause an attack

particularly if you have a previous attack, as you

have. If I were you I would lay off all alcohol, I

know, I was in your shoes and did not stop. Now I'm in

and out of the hosp. and insulin and enzyme dependent.

I believe any amount is bad. As always thats just my

2 cents good luck and what you think is best for you

Eddie Kline

[Guest guest]

--- " mikael_fata mikael_fata@...> "

mikael_fata@...> wrote:

> hi everyone, just reading the posting of the last week, it seems

i am not alone wondering what causes pancreatitis. i am not a heavy

drinker they told me i don't have gallbladder problems but they have

yet to do an untrasound, i was put in the hospital with pain and

fever and a lipase of over 10000 and a amylase of 2000... mikael>>>

Hi Mikael,

Alcohols effects on the panc. are

accumulative. A heavy night out can cause an attack

particularly if you have a previous attack, as you

have. If I were you I would lay off all alcohol, I

know, I was in your shoes and did not stop. Now I'm in

and out of the hosp. and insulin and enzyme dependent.

I believe any amount is bad. As always thats just my

2 cents good luck and what you think is best for you

Eddie Kline

[Guest guest]

Dear Mikael,

What causes pancreatitis is still sometimes a mystery even to

the professionals. When I was talking with my PM doctor last

week about this group, the doctor asked me how many

members there were. I was telling him that of those members

who posted, only a handful were dx'd as caused by alcohol,

probably only 25%. And the doc said, I understand, and

practically all the rest were idiopathic, weren't they? We just don't

always understand the causes.

He asked me extensive questions about my dx......which was

alcohol, and shook his head and said that my previous drinking

habits weren't indicative of alcoholic-pancreatitis, that the

amount I used to drink shouldn't have been enough to cause this

condition. I told him it didn't matter at this point what the cause

was, the fact is that I've got it and I know what I can and cannot

do to stay healthy. Another alcoholic drink would not be a healthy

or sensible choice for an already damaged pancreas, as the

alcohol does cause accumulative damage, more calcification,

more buildup of sludge....all those things that can bring on

another attack. There's enough damage already to cause me to

lose at least 70% of my pancreas' function, perhaps more,

based on my current malabsorption problems.

IMO, I question your doctor's comments that even with damage

to the tail of your pancreas that you would be okay. Okay by what

standards? If there's damage to the tail that means that you've

already probably lost some pancreatic function, and because of

this there are certain needs to be addressed. Have they put you

on enzyme supplements to help with your digestion? The

supplements should help you to gain weight back and should

also help stop the diarrhea problem. I know they made a big

difference for me after my first attack. I had lost 15 pounds, had

diarrhea all the time, and was able then, with supplements, to

gain it all back.

While the accepted diet is 30 grams or less of fat, perhaps your

doctors feel you need more to regain your weight. Normally the

30 gram limit is to help reduce the pain caused by fat

consumption, but I have known of other CP patients who can eat

more, and do eat more than 30 grams, all without any pain.

IMHO, that perhaps should be your guide. Let your body tell you

how much you can tolerate. If it hurts, or if it's grumbling, it's

probably too much.

It does take quite some time for the pancreas to settle down after

an acute attack. Mine took about three weeks, and then,

because I had gone chronic, the pains started up again and I

had some mild distress with digestion until I started on the

enzyme supplements. My doctor wouldn't start the supplements

until my a&l levels returned to normal.

I didn't mean to ramble on so, I'm in a talkie mood today! I guess

I was just trying to give you some of my experiences for you to

make comparisons with. Good luck, keep trying for answers and

solutions, and let us know how it's going.

With hope and prayers,

Heidi

Heidi H. Griffeth

South Carolina

Southeastern Representative

PAI, Intl.

Note: This is not professional medical advice, only personal

opinion.

mikael_fata wrote:

it seems i am not alone wondering what causes pancreatitis. ct

scan showed damage to the tail but the gi docter was confident

that it would be okay. should i be hounding them for any kind of

test. also they told me to stay under 60 gm of fat a day, while

websites i have found say 30 gm a day,i also caught

clostridium difficle in the hospital so had diarrhea pretty badly

and dropped 22 lbs. not sure what dropped the weigth the

diarrhea or the pancreatitis, its now 7 week s later i get aching in

the gut but no pain.

mikael

[Guest guest]

Dear Mikael,

What causes pancreatitis is still sometimes a mystery even to

the professionals. When I was talking with my PM doctor last

week about this group, the doctor asked me how many

members there were. I was telling him that of those members

who posted, only a handful were dx'd as caused by alcohol,

probably only 25%. And the doc said, I understand, and

practically all the rest were idiopathic, weren't they? We just don't

always understand the causes.

He asked me extensive questions about my dx......which was

alcohol, and shook his head and said that my previous drinking

habits weren't indicative of alcoholic-pancreatitis, that the

amount I used to drink shouldn't have been enough to cause this

condition. I told him it didn't matter at this point what the cause

was, the fact is that I've got it and I know what I can and cannot

do to stay healthy. Another alcoholic drink would not be a healthy

or sensible choice for an already damaged pancreas, as the

alcohol does cause accumulative damage, more calcification,

more buildup of sludge....all those things that can bring on

another attack. There's enough damage already to cause me to

lose at least 70% of my pancreas' function, perhaps more,

based on my current malabsorption problems.

IMO, I question your doctor's comments that even with damage

to the tail of your pancreas that you would be okay. Okay by what

standards? If there's damage to the tail that means that you've

already probably lost some pancreatic function, and because of

this there are certain needs to be addressed. Have they put you

on enzyme supplements to help with your digestion? The

supplements should help you to gain weight back and should

also help stop the diarrhea problem. I know they made a big

difference for me after my first attack. I had lost 15 pounds, had

diarrhea all the time, and was able then, with supplements, to

gain it all back.

While the accepted diet is 30 grams or less of fat, perhaps your

doctors feel you need more to regain your weight. Normally the

30 gram limit is to help reduce the pain caused by fat

consumption, but I have known of other CP patients who can eat

more, and do eat more than 30 grams, all without any pain.

IMHO, that perhaps should be your guide. Let your body tell you

how much you can tolerate. If it hurts, or if it's grumbling, it's

probably too much.

It does take quite some time for the pancreas to settle down after

an acute attack. Mine took about three weeks, and then,

because I had gone chronic, the pains started up again and I

had some mild distress with digestion until I started on the

enzyme supplements. My doctor wouldn't start the supplements

until my a&l levels returned to normal.

I didn't mean to ramble on so, I'm in a talkie mood today! I guess

I was just trying to give you some of my experiences for you to

make comparisons with. Good luck, keep trying for answers and

solutions, and let us know how it's going.

With hope and prayers,

Heidi

Heidi H. Griffeth

South Carolina

Southeastern Representative

PAI, Intl.

Note: This is not professional medical advice, only personal

opinion.

mikael_fata wrote:

it seems i am not alone wondering what causes pancreatitis. ct

scan showed damage to the tail but the gi docter was confident

that it would be okay. should i be hounding them for any kind of

test. also they told me to stay under 60 gm of fat a day, while

websites i have found say 30 gm a day,i also caught

clostridium difficle in the hospital so had diarrhea pretty badly

and dropped 22 lbs. not sure what dropped the weigth the

diarrhea or the pancreatitis, its now 7 week s later i get aching in

the gut but no pain.

mikael

[Guest guest]

--- " hhessgriffeth hhessgriffeth@...> "

hhessgriffeth@...> wrote:

> Dear Mikael, What causes pancreatitis is still sometimes a mystery even to

the professionals. . . > With hope and prayers,

Heidi>>>

Hi Heidi,

Not only does our group contradict doctors

about the percentage of alcoholics, but also women are

also suppose to be rarely diagnosed with CP. I have

to wonder (with so many ladies in our group) HOW MANY

WOMEN ARE NOT DIAGNOSED SOONER, because docs think

this is a mans disease, HMMMMM

Ed Kline Panama city beach Fl.

[Guest guest]

--- " hhessgriffeth hhessgriffeth@...> "

hhessgriffeth@...> wrote:

> Dear Mikael, What causes pancreatitis is still sometimes a mystery even to

the professionals. . . > With hope and prayers,

Heidi>>>

Hi Heidi,

Not only does our group contradict doctors

about the percentage of alcoholics, but also women are

also suppose to be rarely diagnosed with CP. I have

to wonder (with so many ladies in our group) HOW MANY

WOMEN ARE NOT DIAGNOSED SOONER, because docs think

this is a mans disease, HMMMMM

Ed Kline Panama city beach Fl.

[Guest guest]

--- " hhessgriffeth hhessgriffeth@...> "

hhessgriffeth@...> wrote:

> Dear Mikael, What causes pancreatitis is still sometimes a mystery even to

the professionals. . . > With hope and prayers,

Heidi>>>

Hi Heidi,

Not only does our group contradict doctors

about the percentage of alcoholics, but also women are

also suppose to be rarely diagnosed with CP. I have

to wonder (with so many ladies in our group) HOW MANY

WOMEN ARE NOT DIAGNOSED SOONER, because docs think

this is a mans disease, HMMMMM

Ed Kline Panama city beach Fl.

[Guest guest]

Ed,

I think that a high percentage of these women are told they have

IBS......that seems to be the rage these days.

With hope and prayers,

Heidi

Heidi H. Griffeth

South Carolina

Southeastern Representative

PAI, Intl.

Note: This is not professional medical advice, only personal

opinion.

> Hi Heidi, Not only does our group contradict doctors

about the percentage of alcoholics, but also women are

also suppose to be rarely diagnosed with CP. I have to wonder

(with so many ladies in our group) HOW MANY WOMEN ARE

NOT DIAGNOSED SOONER, because docs think this is a mans

disease, HMMMMM Ed Kline Panama city beach Fl.

[Guest guest]

Ed,

I think that a high percentage of these women are told they have

IBS......that seems to be the rage these days.

With hope and prayers,

Heidi

Heidi H. Griffeth

South Carolina

Southeastern Representative

PAI, Intl.

Note: This is not professional medical advice, only personal

opinion.

> Hi Heidi, Not only does our group contradict doctors

about the percentage of alcoholics, but also women are

also suppose to be rarely diagnosed with CP. I have to wonder

(with so many ladies in our group) HOW MANY WOMEN ARE

NOT DIAGNOSED SOONER, because docs think this is a mans

disease, HMMMMM Ed Kline Panama city beach Fl.

[Guest guest]

or in my case...I was told it was stress !

Jeannine