Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 , Doesn't that just grip you? I went through the same thing with my neuro. He said because of no clinical trials...he couldn't with a clear concious(sp?) prescribe it for me. Dr. Bihari, 20 years plus using LDN with his MS patients.....isn't that clinical testing enough? And how many drugs that are so called approved get to the public and later are found dangerous? The arguements go on and on? I told my ex-neuro...if you will just give me six months on LDN and see how I am doing.....but he wouldn't even give me that. He felt responsible. I feel there are doctors out there, that honestly just don't know about LDN and it's wonderful abilities for different diseases and some are just too stubborn to really study it....cookie cutter docs......and some are honestly afraid of being sued if they jump out of the cookie cutter....and something should go wrong with their patients.....that is our sue happy society......there are so many reasons. Hang in there ...I gave my ex-neuro two visits and he wasn't convinced...but I went away respecting him...he said if I really wanted to try LDN and could find a doctor that would give me that chance....then he knew I had to do what I felt I had to do. I really wish I could have convinced him. He was a likeable guy. Peace and Health .....Donna www.freewebs.com/lovelaugh/ > > i just got back from my neuro appt, to discuss ldn. he unequivocally > said he would not recommend it or prescribe. i gave him the info to > investigate further. guess i'll keep talking to dr. bihari. my > neuro's main argument was the lack of clinical trials. oh, well.... > at least i can say i tried! > > michelle > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 , Doesn't that just grip you? I went through the same thing with my neuro. He said because of no clinical trials...he couldn't with a clear concious(sp?) prescribe it for me. Dr. Bihari, 20 years plus using LDN with his MS patients.....isn't that clinical testing enough? And how many drugs that are so called approved get to the public and later are found dangerous? The arguements go on and on? I told my ex-neuro...if you will just give me six months on LDN and see how I am doing.....but he wouldn't even give me that. He felt responsible. I feel there are doctors out there, that honestly just don't know about LDN and it's wonderful abilities for different diseases and some are just too stubborn to really study it....cookie cutter docs......and some are honestly afraid of being sued if they jump out of the cookie cutter....and something should go wrong with their patients.....that is our sue happy society......there are so many reasons. Hang in there ...I gave my ex-neuro two visits and he wasn't convinced...but I went away respecting him...he said if I really wanted to try LDN and could find a doctor that would give me that chance....then he knew I had to do what I felt I had to do. I really wish I could have convinced him. He was a likeable guy. Peace and Health .....Donna www.freewebs.com/lovelaugh/ > > i just got back from my neuro appt, to discuss ldn. he unequivocally > said he would not recommend it or prescribe. i gave him the info to > investigate further. guess i'll keep talking to dr. bihari. my > neuro's main argument was the lack of clinical trials. oh, well.... > at least i can say i tried! > > michelle > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 donna, my neuro sounds exactly like your neuro. oh, well, i'll stay with dr. bihari until i find someone locally.... thanks, michelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 Hi , I'm having a hard time trying to find someone to prescribe for me too. It's VERY frustrating. I finally heard from my neurologist on Monday (2 weeks after I sent him the information about LDN). He wants more time to look into it (can't give me a timeframe however) and I guess that's a good sign but it's hard waiting. I'm having a bad flare-up right now too and would love nothing better than to start it ASAP but the medical machine doesn't operate like that. I thought I had found a neurologist that would prescribe LDN at the University of Wisconsin Hospital (not my neurologist but someone that I heard of from the compounding pharmacy who can and will prepare the LDN once I actually GET a prescription) but he won't see me. The clinic was helpful however in referring me to yet another neurologist who does prescribe LDN but I can't get in to see him until, get this, December 20th!!!! I made an appointment with my primary physician (internal medicine) and he can see me tomorrow so I will discuss it with him and hopefully get him " onboard " for plan B if my neurologist doesn't come through for me. If anyone has any good suggestions for me in the meantime, I would welcome them. Good luck . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 I did have some luck with the www.acam.com list that was on this site. I hope that is right. I don't have my paperwork in front of me, but the alternative medicine guys are more willing to help. The doctor in PA that does phone consults was very helpful, and I have a client that is a psychatrist, and she knew the medication and was talking with her doctor friends to help me. Alternative medicine is the way to go. Conni [low dose naltrexone] Re: neuro said no > Hi , > > I'm having a hard time trying to find someone to prescribe for me too. > It's VERY frustrating. I > finally heard from my neurologist on Monday (2 weeks after I sent him the > information about > LDN). He wants more time to look into it (can't give me a timeframe > however) and I guess > that's a good sign but it's hard waiting. I'm having a bad flare-up right > now too and would > love nothing better than to start it ASAP but the medical machine doesn't > operate like that. I > thought I had found a neurologist that would prescribe LDN at the > University of Wisconsin > Hospital (not my neurologist but someone that I heard of from the > compounding pharmacy > who can and will prepare the LDN once I actually GET a prescription) but > he won't see me. > The clinic was helpful however in referring me to yet another neurologist > who does prescribe > LDN but I can't get in to see him until, get this, December 20th!!!! I > made an appointment > with my primary physician (internal medicine) and he can see me tomorrow > so I will discuss it > with him and hopefully get him " onboard " for plan B if my neurologist > doesn't come through > for me. If anyone has any good suggestions for me in the meantime, I would > welcome them. > > Good luck . > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 I had better luck with my primary physician, then my neuro. I think that's the case for alot of people. He said, it won't hurt you so he was ok with it, even though he doesn't believe in it. He's a very open minded dr. He actually is willing to try things, which is nice. I hope you are both able to get LDN soon. Its not fair! take care, [low dose naltrexone] Re: neuro said no Hi ,I'm having a hard time trying to find someone to prescribe for me too. It's VERY frustrating. I finally heard from my neurologist on Monday (2 weeks after I sent him the information about LDN). He wants more time to look into it (can't give me a timeframe however) and I guess that's a good sign but it's hard waiting. I'm having a bad flare-up right now too and would love nothing better than to start it ASAP but the medical machine doesn't operate like that. I thought I had found a neurologist that would prescribe LDN at the University of Wisconsin Hospital (not my neurologist but someone that I heard of from the compounding pharmacy who can and will prepare the LDN once I actually GET a prescription) but he won't see me. The clinic was helpful however in referring me to yet another neurologist who does prescribe LDN but I can't get in to see him until, get this, December 20th!!!! I made an appointment with my primary physician (internal medicine) and he can see me tomorrow so I will discuss it with him and hopefully get him "onboard" for plan B if my neurologist doesn't come through for me. If anyone has any good suggestions for me in the meantime, I would welcome them.Good luck . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 I guess I'll see what happens tomorrow. I do like my primary physician so I'll see what he has to say. It isn't fair, is it! I should be able to make decisions about what treatments I want to try! Especially if they will do no harm. I'll let everyone know what happens in my continuing saga... > I had better luck with my primary physician, then my neuro. I think that's the case for alot of people. He said, it won't hurt you so he was ok with it, even though he doesn't believe in it. He's a very open minded dr. He actually is willing to try things, which is nice. I hope you are both able to get LDN soon. Its not fair! > > take care, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 sorry to hear that - keep trying - dump that neuro Vic [low dose naltrexone] neuro said no i just got back from my neuro appt, to discuss ldn. he unequivocally said he would not recommend it or prescribe. i gave him the info to investigate further. guess i'll keep talking to dr. bihari. my neuro's main argument was the lack of clinical trials. oh, well.... at least i can say i tried!michelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 Which UW? If you're near Madison, someone once posted a Dr. that presribes in Milwaukee for my wife, but I later found one closer. kricket wrote: > Hi , > > I'm having a hard time trying to find someone to prescribe for me too. > It's VERY frustrating. I > finally heard from my neurologist on Monday (2 weeks after I sent him > the information about > LDN). He wants more time to look into it (can't give me a timeframe > however) and I guess > that's a good sign but it's hard waiting. I'm having a bad flare-up > right now too and would > love nothing better than to start it ASAP but the medical machine > doesn't operate like that. I > thought I had found a neurologist that would prescribe LDN at the > University of Wisconsin > Hospital (not my neurologist but someone that I heard of from the > compounding pharmacy > who can and will prepare the LDN once I actually GET a prescription) > but he won't see me. > The clinic was helpful however in referring me to yet another > neurologist who does prescribe > LDN but I can't get in to see him until, get this, December 20th!!!! I > made an appointment > with my primary physician (internal medicine) and he can see me > tomorrow so I will discuss it > with him and hopefully get him " onboard " for plan B if my neurologist > doesn't come through > for me. If anyone has any good suggestions for me in the meantime, I > would welcome them. > > Good luck . > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 Also, I called a compounding pharmacy in La Crosse, but don't remember which one. They were most helpful in directing me to a Dr. relatively nearby. This one may be closer to you and have a more relevant list of doctors that prescribe: The Compounder Pharmacy, Aurora, IL (800) 679-4667 >Which UW? If you're near Madison, someone once posted a Dr. that >presribes in Milwaukee for my wife, but I later found one closer. kricket wrote: > Hi , > > I'm having a hard time trying to find someone to prescribe for me too. > It's VERY frustrating. I > finally heard from my neurologist on Monday (2 weeks after I sent him > the information about > LDN). He wants more time to look into it (can't give me a timeframe > however) and I guess > that's a good sign but it's hard waiting. I'm having a bad flare-up > right now too and would > love nothing better than to start it ASAP but the medical machine > doesn't operate like that. I > thought I had found a neurologist that would prescribe LDN at the > University of Wisconsin > Hospital (not my neurologist but someone that I heard of from the > compounding pharmacy > who can and will prepare the LDN once I actually GET a prescription) > but he won't see me. > The clinic was helpful however in referring me to yet another > neurologist who does prescribe > LDN but I can't get in to see him until, get this, December 20th!!!! I > made an appointment > with my primary physician (internal medicine) and he can see me > tomorrow so I will discuss it > with him and hopefully get him " onboard " for plan B if my neurologist > doesn't come through > for me. If anyone has any good suggestions for me in the meantime, I > would welcome them. > > Good luck . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 Hi Wesley, I am in madison and I am willing to travel if necessary to see someone in Milwaukee, LaCrosse or anywhere else... > Which UW? If you're near Madison, someone once posted a Dr. that > presribes in Milwaukee for my wife, but I later found one closer. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 Kricket, It has been my personal experience that all of the neuros that I have dealt with are WAY overpaid for what services have been rendered to me. I'm not going to do the CRABs, chemo, or Deep Brain Stimulation/invasive surgery, and that's about all that they wanted to do. I am in control of my healthcare situation. Thank goodness for my Primary Care Physician, also Internal Medicine. He read the info and saw no reason to not try it. Also, most D.O.s are more open minded to alternative situations. Hang in there! Marcie kricket <kris@...> wrote: I guess I'll see what happens tomorrow. I do like my primary physician so I'll see what he has to say. It isn't fair, is it! I should be able to make decisions about what treatments I want to try! Especially if they will do no harm. I'll let everyone know what happens in my continuing saga...> I had better luck with my primary physician, then my neuro. I think that's the case for alot of people. He said, it won't hurt you so he was ok with it, even though he doesn't believe in it. He's a very open minded dr. He actually is willing to try things, which is nice. I hope you are both able to get LDN soon. Its not fair!> > take care,> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 Has anyone considered explaining to their doc that they need Naltrexone to help them deal with the cravings of their substance abuse? Seems that's a pretty clear cut reason to get a prescription.... [low dose naltrexone] Re: neuro said no Hi Wesley, I am in madison and I am willing to travel if necessary to see someone in Milwaukee, LaCrosse or anywhere else...> Which UW? If you're near Madison, someone once posted a Dr. that > presribes in Milwaukee for my wife, but I later found one closer. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2006 Report Share Posted August 31, 2006 Chad, This subject has come up occassionally. Of course, when used for addictions, it is prescribed in the high doses. That would work if one wants to use the liquid form. I know a man who doesn't want a record showing that he has an addiction when he really doesn't. Because of technology these days that info could get out making it difficult to find work. Still, there are times when this means has been used. Sad, but true. Marcie Chad H Byers <chad@...> wrote: Has anyone considered explaining to their doc that they need Naltrexone to help them deal with the cravings of their substance abuse? Seems that's a pretty clear cut reason to get a prescription.... [low dose naltrexone] Re: neuro said no Hi Wesley, I am in madison and I am willing to travel if necessary to see someone in Milwaukee, LaCrosse or anywhere else...> Which UW? If you're near Madison, someone once posted a Dr. that > presribes in Milwaukee for my wife, but I later found one closer. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2006 Report Share Posted August 31, 2006 There is a national data base that has a listing of all perscriptions to we take. The insurance company's have access to it. When you register with a private insurer for health coverage they check that. Just found that out when one of my children was getting health insurance. What does everyone here do for health insurance once you are diagnosed with a disease? My son is still on our policy, but I am worried about when he is done with school and must try to get his own insurance. Conni [low dose naltrexone] Re: neuro said no Hi Wesley, I am in madison and I am willing to travel if necessary to see someone in Milwaukee, LaCrosse or anywhere else...> Which UW? If you're near Madison, someone once posted a Dr. that > presribes in Milwaukee for my wife, but I later found one closer. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2006 Report Share Posted August 31, 2006 Being self-employeed, I had private insurance. When it became 'unaffordable'($1600 per month), I found that my state has a Health Insurance Pool. This pool is for 'uninsurables'. It is expensive, but it is about half of what I was paying. Not all states have this pool, so you will need to check with your state. Also, once he graduates and is no longer a dependant, he may qualify for Medicaid. When he finds a job, he will have a group policy through that company. This will be an important deciding factor in what jobs your son takes from now on. > > What does everyone here do for health insurance once you are diagnosed with a disease? My son is still on our policy, but I am worried about when he is done with school and must try to get his own insurance. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2006 Report Share Posted August 31, 2006 Conni, I'll try and answer your question based on my experience. I also have MS. I have learned I need to stay on group health insurance. I am unable to have a private/individual policy with my diagnosis. I am lucky that I am married and covered under my husband's policy he has at work. I know that is he was to leave his employer I would have to keep covered under COBRA until his new policy picks up. I have been also fortunate to not work for 10 years (to raise my kids not health related). I went back to work part-time for a doctor ( I use to run walk-in medical centers) in September. Now I only work the hours my kids are in school so not enough hours for insurance through my employer. I hope that I was able to answer some of your questions regarding insurance. -- Re: [low dose naltrexone] Re: neuro said no There is a national data base that has a listing of all perscriptions to we take. The insurance company's have access to it. When you register with a private insurer for health coverage they check that. Just found that out when one of my children was getting health insurance. What does everyone here do for health insurance once you are diagnosed with a disease? My son is still on our policy, but I am worried about when he is done with school and must try to get his own insurance. Conni [low dose naltrexone] Re: neuro said no Hi Wesley, I am in madison and I am willing to travel if necessary to see someone in Milwaukee, LaCrosse or anywhere else...> Which UW? If you're near Madison, someone once posted a Dr. that > presribes in Milwaukee for my wife, but I later found one closer. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2006 Report Share Posted August 31, 2006 I am replying to two messages. Those messages will be posted first, then my response: Posted by: " Conni Lawrence " summerwind1@... Wed Aug 30, 2006 4:19 pm (PST) There is a national data base that has a listing of all perscriptions to we take. The insurance company's have access to it. When you register with a private insurer for health coverage they check that. Just found that out when one of my children was getting health insurance. What does everyone here do for health insurance once you are diagnosed with a disease? My son is still on our policy, but I am worried about when he is done with school and must try to get his own insurance. Conni > > Kricket, > > It has been my personal experience that all of the neuros that I have dealt with are WAY overpaid for what services have been rendered to me. I'm not going to do the CRABs, chemo, or Deep Brain Stimulation/invasive surgery, and that's about all that they wanted to do. > > I am in control of my healthcare situation. Thank goodness for my Primary Care Physician, also Internal Medicine. He read the info and saw no reason to not try it. > > Also, most D.O.s are more open minded to alternative situations. > > Hang in there! > > Marcie ------------------------ There are so many of these posts we can respond to. My Neuro, Dr. Clinical Trial, has said " no " twice. His response was that he's had 3 or 4 patients who tried LDN and he did not like the results. He did not elaborate on the results. Shoot, he's an MD pH.D., so he should have the cranial capacity to have some specific details off the top of his head. I'm a pharma science guy, so I thought maybe he would have some respect for my opinions and curiosity. Appearently not. There was another message in this string about a national prescription database. Why does it seem that all of our nations brain power is being used to track us, our prescriptions, and ways to keep us from trying different medicines?? I just switched neuro's, had a cranial MRI, and have asked for naltrexone. My brain looks like it should go on a Christmas tree! Maybe I'm just a " bright " kind of guy?? I truly detest being placed into a position where I have to " beg " for something. apologies for the vent. Real Quote Link to comment Share on other sites More sharing options...
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