Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 Hi all, I have a client in California that has been on LDN for about 4 months now and is one of those that has not seen any extra improvements, but I believe that progression has slowed or stopped. The lady was a nurse and very active when she was diagnosed with MS some 4 years ago. She has been on some of the injectables, even tysabre(sp) for a short while, nothing but LDN since starting and DLP. She must have her walker to get around: The reason for this post is that the first night that she took LDN (From Skips) she actually got out of bed probably about 3:00AM and walked down the hall to the bathroom without any help at all and walked back and hopped into bed and had a great day the next day but that happened one time and one time only and since that time she has been with the walker with no extra improvements. Why One Night? My question at this time, is there anyone out there that this might of happened to? I have tried to read something into this for about 4 months and cannot come up with anything Would like tho hear from anyone on this board that might have some kind of answer for the above. Thank you D Kelley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 Does she still dream? -- [low dose naltrexone] Strange happening Hi all,I have a client in California that has been on LDNfor about 4 months now and is one of those that hasnot seen any extra improvements, but I believe that progression has slowed or stopped.The lady was a nurse and very active when shewas diagnosed with MS some 4 years ago.She has been on some of the injectables, eventysabre(sp) for a short while, nothing but LDN sincestarting and DLP.She must have her walker to get around:The reason for this post is that the first nightthat she took LDN (From Skips) she actually gotout of bed probably about 3:00AM and walked downthe hall to the bathroom without any help at alland walked back and hopped into bed and had a greatday the next day but that happened one time and onetime only and since that time she has been with thewalker with no extra improvements. Why One Night?My question at this time, is there anyone out therethat this might of happened to? I have tried to readsomething into this for about 4 months and cannot comeup with anythingWould like tho hear from anyone on this board thatmight have some kind of answer for the above.Thank youD Kelley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 > > Hi all, > I have a client in California that has been on LDN > for about 4 months now and is one of those that has > not seen any extra improvements, but I believe that > progression has slowed or stopped. > The lady was a nurse and very active when she > was diagnosed with MS some 4 years ago. > She has been on some of the injectables, even > tysabre(sp) for a short while, nothing but LDN since > starting and DLP. > She must have her walker to get around: > The reason for this post is that the first night > that she took LDN (From Skips) she actually got > out of bed probably about 3:00AM and walked down > the hall to the bathroom without any help at all > and walked back and hopped into bed and had a great > day the next day but that happened one time and one > time only and since that time she has been with the > walker with no extra improvements. Why One Night? > My question at this time, is there anyone out there > that this might of happened to? I have tried to read > something into this for about 4 months and cannot come > up with anything > Would like tho hear from anyone on this board that > might have some kind of answer for the above. > Thank you > D Kelley > ========= You say client, are you some sort of Doctor? There have been some that have had this happen. I am not a doctor but I think it's the intense boost of endorphins that first dose gives that is so intense that some get an extreme amount of endorphins to work with and the next doses the body has adjusted to the high endorphin spike and a leveling off starts to occur. Also, watching doctor McCandless' work with LDN and Autism, LDN in most of her patients activates underlying candida yeast and until that yeast is lowered in the gut, the LDN does not work well or at all. Adverse(sometimes quite severe) symptoms may occur if LDN activates candida yeast. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 MS is extremely unpredictable, but if it were the rush of endorphins, wouldnt that happen pretty much the next day? I'm under the impression that at 3am after taking LDN, endorphins are being blocked. I would be curious what treatment she had tried last, and how long had it been since stopping it. [low dose naltrexone] Re: Strange happening >> Hi all,> I have a client in California that has been on LDN> for about 4 months now and is one of those that has> not seen any extra improvements, but I believe that > progression has slowed or stopped.> The lady was a nurse and very active when she> was diagnosed with MS some 4 years ago.> She has been on some of the injectables, even> tysabre(sp) for a short while, nothing but LDN since> starting and DLP.> She must have her walker to get around:> The reason for this post is that the first night> that she took LDN (From Skips) she actually got> out of bed probably about 3:00AM and walked down> the hall to the bathroom without any help at all> and walked back and hopped into bed and had a great> day the next day but that happened one time and one> time only and since that time she has been with the> walker with no extra improvements. Why One Night?> My question at this time, is there anyone out there> that this might of happened to? I have tried to read> something into this for about 4 months and cannot come> up with anything> Would like tho hear from anyone on this board that> might have some kind of answer for the above.> Thank you> D Kelley>=========You say client, are you some sort of Doctor?There have been some that have had this happen. I am not a doctor but I think it's the intense boost of endorphins that first dose gives that is so intense that some get an extreme amount of endorphins to work with and the next doses the body has adjusted to the high endorphin spike and a leveling off starts to occur.Also, watching doctor McCandless' work with LDN and Autism, LDN in most of her patients activates underlying candida yeast and until that yeast is lowered in the gut, the LDN does not work well or at all. Adverse(sometimes quite severe) symptoms may occur if LDN activates candida yeast. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 I would like to know what the Tysabri did? Anything good or bad? Marcie Dave Carlin <davizona@...> wrote: MS is extremely unpredictable, but if it were the rush of endorphins, wouldnt that happen pretty much the next day? I'm under the impression that at 3am after taking LDN, endorphins are being blocked. I would be curious what treatment she had tried last, and how long had it been since stopping it. [low dose naltrexone] Re: Strange happening >> Hi all,> I have a client in California that has been on LDN> for about 4 months now and is one of those that has> not seen any extra improvements, but I believe that > progression has slowed or stopped.> The lady was a nurse and very active when she> was diagnosed with MS some 4 years ago.> She has been on some of the injectables, even> tysabre(sp) for a short while, nothing but LDN since> starting and DLP.> She must have her walker to get around:> The reason for this post is that the first night> that she took LDN (From Skips) she actually got> out of bed probably about 3:00AM and walked down> the hall to the bathroom without any help at all> and walked back and hopped into bed and had a great> day the next day but that happened one time and one> time only and since that time she has been with the> walker with no extra improvements. Why One Night?> My question at this time, is there anyone out there> that this might of happened to? I have tried to read> something into this for about 4 months and cannot come> up with anything> Would like tho hear from anyone on this board that> might have some kind of answer for the above.> Thank you> D Kelley>=========You say client, are you some sort of Doctor?There have been some that have had this happen. I am not a doctor but I think it's the intense boost of endorphins that first dose gives that is so intense that some get an extreme amount of endorphins to work with and the next doses the body has adjusted to the high endorphin spike and a leveling off starts to occur.Also, watching doctor McCandless' work with LDN and Autism, LDN in most of her patients activates underlying candida yeast and until that yeast is lowered in the gut, the LDN does not work well or at all. Adverse(sometimes quite severe) symptoms may occur if LDN activates candida yeast. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 > > MS is extremely unpredictable, but if it were the rush of endorphins, wouldnt that happen pretty much the next day? ====== The endorphins do not drop back down to the low it was before that initial first dose of LDN. That initial first boost can be quite poweful especially when one starts with 3.0mg and even more so at 4.5mg. I have a friend who put me in touch with their relative with MS and upon the first dose of LDN be able to get herself out of bed and to her wheelchair and not be picked up by her husband and carrried from the bed to the chair like he'd been doing for many years. The 2nd dose she was unable to do this. Now, she refuses or her family refuses to do anything to help get her stronger since the LDN has stopped her progression. She has access to an in-ground pool but her husband does not like to swim so there's nobody to help her get in or out of the pool that is equipped with a handicapped ladder, family refuses to be of assistance, she refuses to eat healtheir, continues to smoke like a chimney, gets no physical therapy, does nothing but sit in wheelchair all day watching TV, smoking and coughing fiercely every few minutes and eating junk food. She's wanting LDN to perform this miracle that it cannot possibly do and stand her right up out of that wheelchair without her having to put forth one bit of effort. Her muscles have atrophied and if she doesn't do something to regain some strength in the muscles that are not permanently damaged and capable of recovering with proper rehabilitation, she will remain in that wheelchair. At least with that first dose of LDN it showed her that she still could possibly walk, how far I don't know but I do believe with much rehab and other lifestyle changes she just might be able to at least stand up for a moment or two. She'll never know if she doesn't put forth an effort. oooch, didn't mean to write a book. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 But , we're talking about 3AM, isnt that when the endorphins are being blocked? Saying there is an endorphin rush when the medicine is supposed to be blocking endorphins is contradicting the website AND the theory beind LDN. If your friend transfered at 3 in the morning like the other person, I would think there is something else going on, but I wouldnt attrbute it to the naltrexone. Does that make any sense? Maybe I'm the only one confused here. [low dose naltrexone] Re: Strange happening >> MS is extremely unpredictable, but if it were the rush of endorphins, wouldnt that happen pretty much the next day? ======The endorphins do not drop back down to the low it was before that initial first dose of LDN. That initial first boost can be quite poweful especially when one starts with 3.0mg and even more so at 4.5mg. I have a friend who put me in touch with their relative with MS and upon the first dose of LDN be able to get herself out of bed and to her wheelchair and not be picked up by her husband and carrried from the bed to the chair like he'd been doing for many years. The 2nd dose she was unable to do this. Now, she refuses or her family refuses to do anything to help get her stronger since the LDN has stopped her progression. She has access to an in-ground pool but her husband does not like to swim so there's nobody to help her get in or out of the pool that is equipped with a handicapped ladder, family refuses to be of assistance, she refuses to eat healtheir, continues to smoke like a chimney, gets no physical therapy, does nothing but sit in wheelchair all day watching TV, smoking and coughing fiercely every few minutes and eating junk food. She's wanting LDN to perform this miracle that it cannot possibly do and stand her right up out of that wheelchair without her having to put forth one bit of effort. Her muscles have atrophied and if she doesn't do something to regain some strength in the muscles that are not permanently damaged and capable of recovering with proper rehabilitation, she will remain in that wheelchair. At least with that first dose of LDN it showed her that she still could possibly walk, how far I don't know but I do believe with much rehab and other lifestyle changes she just might be able to at least stand up for a moment or two. She'll never know if she doesn't put forth an effort. oooch, didn't mean to write a book. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 Hello can you explain the initial bosst please I have never heard of that before, will I pop out of bed in the middle of the night? God Bless, Dyana From: "Dave Carlin" <davizona@...>Reply-low dose naltrexone To: <low dose naltrexone >Subject: Re: [low dose naltrexone] Re: Strange happeningDate: Sat, 2 Sep 2006 12:39:21 -0700 But , we're talking about 3AM, isnt that when the endorphins are being blocked? Saying there is an endorphin rush when the medicine is supposed to be blocking endorphins is contradicting the website AND the theory beind LDN. If your friend transfered at 3 in the morning like the other person, I would think there is something else going on, but I wouldnt attrbute it to the naltrexone. Does that make any sense? Maybe I'm the only one confused here. [low dose naltrexone] Re: Strange happening >> MS is extremely unpredictable, but if it were the rush of endorphins, wouldnt that happen pretty much the next day? ======The endorphins do not drop back down to the low it was before that initial first dose of LDN. That initial first boost can be quite poweful especially when one starts with 3.0mg and even more so at 4.5mg. I have a friend who put me in touch with their relative with MS and upon the first dose of LDN be able to get herself out of bed and to her wheelchair and not be picked up by her husband and carrried from the bed to the chair like he'd been doing for many years. The 2nd dose she was unable to do this. Now, she refuses or her family refuses to do anything to help get her stronger since the LDN has stopped her progression. She has access to an in-ground pool but her husband does not like to swim so there's nobody to help her get in or out of the pool that is equipped with a handicapped ladder, family refuses to be of assistance, she refuses to eat healtheir, continues to smoke like a chimney, gets no physical therapy, does nothing but sit in wheelchair all day watching TV, smoking and coughing fiercely every few minutes and eating junk food. She's wanting LDN to perform this miracle that it cannot possibly do and stand her right up out of that wheelchair without her having to put forth one bit of effort. Her muscles have atrophied and if she doesn't do something to regain some strength in the muscles that are not permanently damaged and capable of recovering with proper rehabilitation, she will remain in that wheelchair. At least with that first dose of LDN it showed her that she still could possibly walk, how far I don't know but I do believe with much rehab and other lifestyle changes she just might be able to at least stand up for a moment or two. She'll never know if she doesn't put forth an effort. oooch, didn't mean to write a book. Windows Live Spaces is here! It’s easy to create your own personal Web site. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2006 Report Share Posted September 3, 2006 > > > > MS is extremely unpredictable, but if it were the rush of endorphins, wouldnt that happen pretty much the next day? > ====== ====== The next day after the first dose is what I'm talking about. While LDN is blocking our endorphins our bodies are trippling the amount of endorphins that will carry us through the next day and hopefully not allow our disease to progress. That endorphin spike sometimes wakes us up in the middle of the night, the block is on and endorphins are producing in mass production creating energy, wakefulness, sometimes some may get a rapid heartbeat or heart palpatations. It's that carry-over of mass produced endorphins from the first night's dose that generally causes those with very low endorphins to be able to perform tasks that following day that they may not have been able to do for years. That big endorphin boost may not be as big the second dose because the endorphins are already up from that 1st dose so the boost may not be as strong with the second dose. Hope this makes sense, been watching college football all day. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2006 Report Share Posted September 3, 2006 , the poster mentioned 3 in the morning after takng her very first dose. I realize technically this is part of the next day, but isnt that a little early for this 'flood' of endorphins, especially since, according to the website, LDN is blocking endorphins between the hours of 2 and 4am. Cant you see where what you're saying doesnt make much sense? Perhaps you missed the part where he mentioned 3AM. Maybe there was a big play happening when you were reading it! [low dose naltrexone] Re: Strange happening > >> > MS is extremely unpredictable, but if it were the rush of endorphins, wouldnt that happen pretty much the next day? > ============The next day after the first dose is what I'm talking about. While LDN is blocking our endorphins our bodies are trippling the amount of endorphins that will carry us through the next day and hopefully not allow our disease to progress. That endorphin spike sometimes wakes us up in the middle of the night, the block is on and endorphins are producing in mass production creating energy, wakefulness, sometimes some may get a rapid heartbeat or heart palpatations. It's that carry-over of mass produced endorphins from the first night's dose that generally causes those with very low endorphins to be able to perform tasks that following day that they may not have been able to do for years. That big endorphin boost may not be as big the second dose because the endorphins are already up from that 1st dose so the boost may not be as strong with the second dose.Hope this makes sense, been watching college football all day. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2006 Report Share Posted September 3, 2006 She was probably yelling at those Razorbacks!! Marcie Dave Carlin <davizona@...> wrote: , the poster mentioned 3 in the morning after taking her very first dose. I realize technically this is part of the next day, but isn't that a little early for this 'flood' of endorphins, especially since, according to the website, LDN is blocking endorphins between the hours of 2 and 4am. Cant you see where what you're saying doesn't make much sense? Perhaps you missed the part where he mentioned 3AM. Maybe there was a big play happening when you were reading it! [low dose naltrexone] Re: Strange happening > >> > MS is extremely unpredictable, but if it were the rush of endorphins, wouldnt that happen pretty much the next day? > ============The next day after the first dose is what I'm talking about. While LDN is blocking our endorphins our bodies are trippling the amount of endorphins that will carry us through the next day and hopefully not allow our disease to progress. That endorphin spike sometimes wakes us up in the middle of the night, the block is on and endorphins are producing in mass production creating energy, wakefulness, sometimes some may get a rapid heartbeat or heart palpatations. It's that carry-over of mass produced endorphins from the first night's dose that generally causes those with very low endorphins to be able to perform tasks that following day that they may not have been able to do for years. That big endorphin boost may not be as big the second dose because the endorphins are already up from that 1st dose so the boost may not be as strong with the second dose.Hope this makes sense, been watching college football all day. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2006 Report Share Posted September 3, 2006 lol, but there was no day before, this was her first dose! > > > > But thats what you dont understand. At the time that she got out of > > bed and walked down the hallway, the LDN was supposed to be blocking > > endorphins for the next day, .... > Quote Link to comment Share on other sites More sharing options...
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