Guest guest Posted August 29, 2006 Report Share Posted August 29, 2006 Hi Calli, If you search back through the archives you will find a million postings on fillers. As I read it the two most popular ones are lactose and Avicel (microcrystalline cellulose) although various people have found that they seem to be allergic to one or other and changing helps them a lot. I use acidophilus which has the added advantage of adding good bacteria to your gut. I have never read of anybody having problems with it but that may be more due to the fact that a lot of pharmacies don't offer it. Dr. Skip, why would that be? The one to definitely steer clear of is calcium carbonate as it CAN pack down and thus effectively become a slow release filler which destroys the effectiveness of the LDN for us - we need it to be fast release. Hope that helps. nThanisch wrote: >I've read about various 'fillers' used in LDN capsules but am a bit >confused about which one might be best - and indeed which fillers might >NOT be particularly good when used with LDN. > >Any suggestions? - or experiences of this? > >I've got an appointment with my GP next week to discuss the possibility >of me being prescribed LDN - so I want to arrive with all the right >information. As we know, sometimes we patients can know more about >these things than our docs, bless em. I'm quite lucky, in that my GP >often bows to his patients' experiences and knowledge when it comes to >specifics to particular chronic conditions such as MS, and he's quite >open minded about trying new things if he agrees that they might help. > >Thanks all >Calli > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2006 Report Share Posted August 29, 2006 > > I've read about various 'fillers' used in LDN capsules but am a bit > confused about which one might be best - and indeed which fillers might > NOT be particularly good when used with LDN. > > Any suggestions? - or experiences of this? > > I've got an appointment with my GP next week to discuss the possibility > of me being prescribed LDN - so I want to arrive with all the right > information. As we know, sometimes we patients can know more about > these things than our docs, bless em. I'm quite lucky, in that my GP > often bows to his patients' experiences and knowledge when it comes to > specifics to particular chronic conditions such as MS, and he's quite > open minded about trying new things if he agrees that they might help. > > Thanks all > Calli > xx > ======== Lactose, non-dairy non refrigerate Acidophilus, Gelatin, Avicel(cellulose)-symptoms if one is llergic to Avicel is...headache, nausea, vomiting Avoid calcium carbonate as a filler. CC can cause LDN to release slow and LDN must release fast to work. Dr. Bihari's choice of fillers is lactose unless his patiens are lactose intolerant. Lactose is what Bihari started out with so he's sticking to it for his research purposes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2006 Report Share Posted August 29, 2006 here is the lecture on fillers from the ldn conferance http://skipspharmacy.com/movie.php when you order your ldn you should order it from one of the approved pharmacies that know how to compound this they are listed at www.low dose naltrexone.org cyndi On Aug 29, 2006, at 9:03 AM, nThanisch wrote: > I've read about various 'fillers' used in LDN capsules but am a bit > confused about which one might be best - and indeed which fillers > might > NOT be particularly good when used with LDN. > > Any suggestions? - or experiences of this? > > I've got an appointment with my GP next week to discuss the > possibility > of me being prescribed LDN - so I want to arrive with all the right > information. As we know, sometimes we patients can know more about > these things than our docs, bless em. I'm quite lucky, in that my GP > often bows to his patients' experiences and knowledge when it comes to > specifics to particular chronic conditions such as MS, and he's quite > open minded about trying new things if he agrees that they might help. > > Thanks all > Calli > xx > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2006 Report Share Posted August 29, 2006 advicil is an hypoallergenic filler- it is used by most allergies and environmental doctors- we compound for a big doc down here in florida and will only use advicil. we have seen very few issues with it and really can't even figure out why people are allergic to it since it is basically inert. the reason we do not do acidophilus is because because it does something because there is a reason for it being there it is considered another drug. putting two drugs in one capsule is considered a no-no in the compounding world. a filler should be something that just takes up space. when you add something that has the potential to something else then your asking for trouble. and we don't want any issues with our ldn. i'm sure skip will weigh in (if we still have electricity later) -i know he's working his butt off to get every out the door before the storm and i need to get off mine and go held. if you guys don't hear from us that because our electricity blew away. and for my friend here from AZ who pissing and moaning over his rain 12 inches today and who knows how much tomorrow cyndi On Aug 29, 2006, at 9:22 AM, C wrote: > Hi Calli, > > If you search back through the archives you will find a million > postings > on fillers. As I read it the two most popular ones are lactose and > Avicel (microcrystalline cellulose) although various people have found > that they seem to be allergic to one or other and changing helps > them a > lot. I use acidophilus which has the added advantage of adding good > bacteria to your gut. I have never read of anybody having problems > with > it but that may be more due to the fact that a lot of pharmacies don't > offer it. Dr. Skip, why would that be? > > The one to definitely steer clear of is calcium carbonate as it CAN > pack > down and thus effectively become a slow release filler which destroys > the effectiveness of the LDN for us - we need it to be fast release. > > Hope that helps. > > > > nThanisch wrote: > >> I've read about various 'fillers' used in LDN capsules but am a bit >> confused about which one might be best - and indeed which fillers >> might >> NOT be particularly good when used with LDN. >> >> Any suggestions? - or experiences of this? >> >> I've got an appointment with my GP next week to discuss the >> possibility >> of me being prescribed LDN - so I want to arrive with all the right >> information. As we know, sometimes we patients can know more about >> these things than our docs, bless em. I'm quite lucky, in that my GP >> often bows to his patients' experiences and knowledge when it >> comes to >> specifics to particular chronic conditions such as MS, and he's quite >> open minded about trying new things if he agrees that they might >> help. >> >> Thanks all >> Calli >> >> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2006 Report Share Posted August 29, 2006 i don't think this is true anymore. at the first ldn conference many pharmacies including the one in NY was using calcium carbonate only. thats why skip brought up the issue with it because he had done research with calcium carbonate and one of the other pharmacists disagreed with him so skip did the study to show everyone at the second one why calcium carb did not work. Dr bihari is well aware of the fillers that everyone uses that is approved on his board and has no issues with it all. in fact on the dvd you hear joel gluck talking about how he had issues when his advicil was changed to something else. and then it got better after he changed back. cyndi > > >> >> I've read about various 'fillers' used in LDN capsules but am a bit >> confused about which one might be best - and indeed which fillers >> might >> NOT be particularly good when used with LDN. >> >> Any suggestions? - or experiences of this? >> >> I've got an appointment with my GP next week to discuss the >> possibility >> of me being prescribed LDN - so I want to arrive with all the right >> information. As we know, sometimes we patients can know more about >> these things than our docs, bless em. I'm quite lucky, in that my GP >> often bows to his patients' experiences and knowledge when it >> comes to >> specifics to particular chronic conditions such as MS, and he's quite >> open minded about trying new things if he agrees that they might >> help. >> >> Thanks all >> Calli >> xx >> > ======== > > Lactose, non-dairy non refrigerate Acidophilus, Gelatin, Avicel > (cellulose)-symptoms if one is llergic to Avicel is...headache, > nausea, vomiting > > Avoid calcium carbonate as a filler. CC can cause LDN to release > slow and LDN must release fast to work. > > Dr. Bihari's choice of fillers is lactose unless his patiens are > lactose intolerant. Lactose is what Bihari started out with so > he's sticking to it for his research purposes. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2006 Report Share Posted August 29, 2006 Cyndi, You don't think what is true anymore? That calcium carbonate does not cause LDN to release slow or does cause it to release slow? I know many who have used CC and their disease kept progressing and when hey switched fillers their progression halted. I switched to CC from lactose and I started getting my symptoms back, I immediately switched back to lactose and had wonderful results again. > >> > >> I've read about various 'fillers' used in LDN capsules but am a bit > >> confused about which one might be best - and indeed which fillers > >> might > >> NOT be particularly good when used with LDN. > >> > >> Any suggestions? - or experiences of this? > >> > >> I've got an appointment with my GP next week to discuss the > >> possibility > >> of me being prescribed LDN - so I want to arrive with all the right > >> information. As we know, sometimes we patients can know more about > >> these things than our docs, bless em. I'm quite lucky, in that my GP > >> often bows to his patients' experiences and knowledge when it > >> comes to > >> specifics to particular chronic conditions such as MS, and he's quite > >> open minded about trying new things if he agrees that they might > >> help. > >> > >> Thanks all > >> Calli > >> xx > >> > > ======== > > > > Lactose, non-dairy non refrigerate Acidophilus, Gelatin, Avicel > > (cellulose)-symptoms if one is llergic to Avicel is...headache, > > nausea, vomiting > > > > Avoid calcium carbonate as a filler. CC can cause LDN to release > > slow and LDN must release fast to work. > > > > Dr. Bihari's choice of fillers is lactose unless his patiens are > > lactose intolerant. Lactose is what Bihari started out with so > > he's sticking to it for his research purposes. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2006 Report Share Posted August 29, 2006 Go here to learn everything you always wanted to know about fillers: http://www.gazorpa.com/LDNFillers.html And here's another handy item: " How to Talk to Your Doctor About LDN " : http://www.gazorpa.com/PatientGuide.html Hope these help... let us know how it goes for you! Maureen (Gazorpa) > > I've read about various 'fillers' used in LDN capsules but am a bit > confused about which one might be best - and indeed which fillers might > NOT be particularly good when used with LDN. > > Any suggestions? - or experiences of this? > > I've got an appointment with my GP next week to discuss the possibility > of me being prescribed LDN - so I want to arrive with all the right > information. As we know, sometimes we patients can know more about > these things than our docs, bless em. I'm quite lucky, in that my GP > often bows to his patients' experiences and knowledge when it comes to > specifics to particular chronic conditions such as MS, and he's quite > open minded about trying new things if he agrees that they might help. > > Thanks all > Calli > xx > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2006 Report Share Posted August 29, 2006 I've read about various 'fillers' used in LDN capsules but am a bit confused about which one might be best - and indeed which fillers might NOT be particularly good when used with LDN.Any suggestions? - or experiences of this?I've got an appointment with my GP next week to discuss the possibility of me being prescribed LDN - so I want to arrive with all the right information. As we know, sometimes we patients can know more about these things than our docs, bless em. I'm quite lucky, in that my GP often bows to his patients' experiences and knowledge when it comes to specifics to particular chronic conditions such as MS, and he's quite open minded about trying new things if he agrees that they might help. Thanks all :)Callixx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2006 Report Share Posted August 29, 2006 no I do -I responding to the preferred filler by Dr Bahari. cyndi On Aug 29, 2006, at 12:29 PM, Bren wrote: > > Cyndi, > > You don't think what is true anymore? That calcium carbonate does > not cause LDN to release slow or does cause it to release slow? I > know many who have used CC and their disease kept progressing and > when hey switched fillers their progression halted. I switched to > CC from lactose and I started getting my symptoms back, I > immediately switched back to lactose and had wonderful results again. > > > > >>>> >>>> I've read about various 'fillers' used in LDN capsules but am a bit >>>> confused about which one might be best - and indeed which fillers >>>> might >>>> NOT be particularly good when used with LDN. >>>> >>>> Any suggestions? - or experiences of this? >>>> >>>> I've got an appointment with my GP next week to discuss the >>>> possibility >>>> of me being prescribed LDN - so I want to arrive with all the right >>>> information. As we know, sometimes we patients can know more about >>>> these things than our docs, bless em. I'm quite lucky, in that >>>> my GP >>>> often bows to his patients' experiences and knowledge when it >>>> comes to >>>> specifics to particular chronic conditions such as MS, and he's >>>> quite >>>> open minded about trying new things if he agrees that they might >>>> help. >>>> >>>> Thanks all >>>> Calli >>>> xx >>>> >>> ======== >>> >>> Lactose, non-dairy non refrigerate Acidophilus, Gelatin, Avicel >>> (cellulose)-symptoms if one is llergic to Avicel is...headache, >>> nausea, vomiting >>> >>> Avoid calcium carbonate as a filler. CC can cause LDN to release >>> slow and LDN must release fast to work. >>> >>> Dr. Bihari's choice of fillers is lactose unless his patiens are >>> lactose intolerant. Lactose is what Bihari started out with so >>> he's sticking to it for his research purposes. >>> >>> > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 , this makes no sense. The filler overpowers the naltrexone? I think you're confusing MS progression with perhaps an allergic reaction to the filler. What medical proof do you have that MS progression is caused by filler? Re: [low dose naltrexone] Re: Which type of filler in LDN capsules is best?? no I do -I responding to the preferred filler by Dr Bahari.cyndiOn Aug 29, 2006, at 12:29 PM, Bren wrote:>> Cyndi,>> You don't think what is true anymore? That calcium carbonate does > not cause LDN to release slow or does cause it to release slow? I > know many who have used CC and their disease kept progressing and > when hey switched fillers their progression halted. I switched to > CC from lactose and I started getting my symptoms back, I > immediately switched back to lactose and had wonderful results again.>> >> >>>>>>>> I've read about various 'fillers' used in LDN capsules but am a bit>>>> confused about which one might be best - and indeed which fillers>>>> might>>>> NOT be particularly good when used with LDN.>>>>>>>> Any suggestions? - or experiences of this?>>>>>>>> I've got an appointment with my GP next week to discuss the>>>> possibility>>>> of me being prescribed LDN - so I want to arrive with all the right>>>> information. As we know, sometimes we patients can know more about>>>> these things than our docs, bless em. I'm quite lucky, in that >>>> my GP>>>> often bows to his patients' experiences and knowledge when it>>>> comes to>>>> specifics to particular chronic conditions such as MS, and he's >>>> quite>>>> open minded about trying new things if he agrees that they might>>>> help.>>>>>>>> Thanks all >>>> Calli>>>> xx>>>>>>> ========>>>>>> Lactose, non-dairy non refrigerate Acidophilus, Gelatin, Avicel>>> (cellulose)-symptoms if one is llergic to Avicel is...headache,>>> nausea, vomiting>>>>>> Avoid calcium carbonate as a filler. CC can cause LDN to release>>> slow and LDN must release fast to work.>>>>>> Dr. Bihari's choice of fillers is lactose unless his patiens are>>> lactose intolerant. Lactose is what Bihari started out with so>>> he's sticking to it for his research purposes.>>>>>> >>>>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 > > no I do -I responding to the preferred filler by Dr Bahari. > cyndi > -- Cyndi, I'm confused with your answer. You DO think it's true that calcium carbonate will cause LDN to release slow? Thanks for clarifying. Artie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 never mind, I answered my own question. It's NOT the actual filler causing the progression, it's the CC preventing absorption of LDN, which is causing the progression. > >>>> > >>>> I've read about various 'fillers' used in LDN capsules but am a bit > >>>> confused about which one might be best - and indeed which fillers > >>>> might > >>>> NOT be particularly good when used with LDN. > >>>> > >>>> Any suggestions? - or experiences of this? > >>>> > >>>> I've got an appointment with my GP next week to discuss the > >>>> possibility > >>>> of me being prescribed LDN - so I want to arrive with all the right > >>>> information. As we know, sometimes we patients can know more about > >>>> these things than our docs, bless em. I'm quite lucky, in that > >>>> my GP > >>>> often bows to his patients' experiences and knowledge when it > >>>> comes to > >>>> specifics to particular chronic conditions such as MS, and he's > >>>> quite > >>>> open minded about trying new things if he agrees that they might > >>>> help. > >>>> > >>>> Thanks all > >>>> Calli > >>>> xx > >>>> > >>> ======== > >>> > >>> Lactose, non-dairy non refrigerate Acidophilus, Gelatin, Avicel > >>> (cellulose)-symptoms if one is llergic to Avicel is...headache, > >>> nausea, vomiting > >>> > >>> Avoid calcium carbonate as a filler. CC can cause LDN to release > >>> slow and LDN must release fast to work. > >>> > >>> Dr. Bihari's choice of fillers is lactose unless his patiens are > >>> lactose intolerant. Lactose is what Bihari started out with so > >>> he's sticking to it for his research purposes. > >>> > >>> > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 > > never mind, I answered my own question. It's NOT the actual filler > causing the progression, it's the CC preventing absorption of LDN, > which is causing the progression. > ======= Dave, Now you've got it...we're both in the same book and on the same page(folks, that's just an expression, no real book). Quote Link to comment Share on other sites More sharing options...
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