Re: Is it normal to have bleeding when first starting SCD?

[Guest guest]

On Wed, 01 Mar 2006 06:16:13 -0000 " nicoisse " nicoisse@...>

writes:

> Hello, my son has been on SCD for almost ten days. He's currently

> taking Prednisone, Imuran and Cortenema. This is our second attempt

> to

> wean him off Prednisone. He developed a cold couple of days ago and

> now

> has blood in his stools. He has about one to three stools per day.

> Has

> anyone experienced this problem? I don't know what to do. I was

> thinking of starting the Intro diet again this weekend. I'm afraid

> that

> his GI specialist may want to up his Prednisone again.

I don't know if this will help but blood in stools is normal for

digestive issues like Crohns. It indicates a flare and anemia, and in our

case went away, first with prednisone, this time the diet. What is you

son on SCD for, and has he had any scoping or blood or stool work to

determine if there is an actual digestive issue? Take care, Fay

[Guest guest]

Hi nicoisse,

>Hello, my son has been on SCD for almost ten days. He's currently

taking Prednisone, Imuran and Cortenema. This is our second attempt to

wean him off Prednisone. He developed a cold couple of days ago and now

has blood in his stools. He has about one to three stools per day. Has

anyone experienced this problem? I don't know what to do. I was

thinking of starting the Intro diet again this weekend. I'm afraid that

his GI specialist may want to up his Prednisone again.

What is his weaning schedule like?

Many people have had their symptoms flare up when trying to wean off

prednisone and so had to do a slower wean schedule. This happened to me.

Here is a sample of a slow prednisone wean that was sent in a few years ago:

To those trying a slow prednisone wean,

" Since Ben is 9, he sees a pediatric GI who follows an extremely conservative

prednisone weaning schedule that maybe some of you " older " folks would be

interested in. I think this schedule is typical for kids but I don't know

about adults. Of course, check with your doctor first. It starts when you

get down to 20 mg.

two weeks - alternate 20mg/15mg every other day

two weeks - alternate 20 mg/10mg every other day

two weeks - alternate 20 mg/5mg every other day

two weeks - alternate 20 mg/0 mg every other day

two weeks - 15 mg every other day

two weeks - 10 mg every other day

two weeks - 5 mg every other day

two weeks - 2.5 mg every other day "

Sheila, SCD 61 mos, UC 22yrs

mom of and

[Guest guest]

Hi nicoisse,

>Hello, my son has been on SCD for almost ten days. He's currently

taking Prednisone, Imuran and Cortenema. This is our second attempt to

wean him off Prednisone. He developed a cold couple of days ago and now

has blood in his stools. He has about one to three stools per day. Has

anyone experienced this problem? I don't know what to do. I was

thinking of starting the Intro diet again this weekend. I'm afraid that

his GI specialist may want to up his Prednisone again.

What is his weaning schedule like?

Many people have had their symptoms flare up when trying to wean off

prednisone and so had to do a slower wean schedule. This happened to me.

Here is a sample of a slow prednisone wean that was sent in a few years ago:

To those trying a slow prednisone wean,

" Since Ben is 9, he sees a pediatric GI who follows an extremely conservative

prednisone weaning schedule that maybe some of you " older " folks would be

interested in. I think this schedule is typical for kids but I don't know

about adults. Of course, check with your doctor first. It starts when you

get down to 20 mg.

two weeks - alternate 20mg/15mg every other day

two weeks - alternate 20 mg/10mg every other day

two weeks - alternate 20 mg/5mg every other day

two weeks - alternate 20 mg/0 mg every other day

two weeks - 15 mg every other day

two weeks - 10 mg every other day

two weeks - 5 mg every other day

two weeks - 2.5 mg every other day "

Sheila, SCD 61 mos, UC 22yrs

mom of and

[Guest guest]

I forgot to mention that my son has Ulcerative

Colitis.

--- cf young cfyoung4@...> wrote:

>

>

> On Wed, 01 Mar 2006 06:16:13 -0000 " nicoisse "

> nicoisse@...>

> writes:

> > Hello, my son has been on SCD for almost ten days.

> He's currently

> > taking Prednisone, Imuran and Cortenema. This is

> our second attempt

> > to

> > wean him off Prednisone. He developed a cold

> couple of days ago and

> > now

> > has blood in his stools. He has about one to three

> stools per day.

> > Has

> > anyone experienced this problem? I don't know what

> to do. I was

> > thinking of starting the Intro diet again this

> weekend. I'm afraid

> > that

> > his GI specialist may want to up his Prednisone

> again.

>

> I don't know if this will help but blood in stools

> is normal for

> digestive issues like Crohns. It indicates a flare

> and anemia, and in our

> case went away, first with prednisone, this time the

> diet. What is you

> son on SCD for, and has he had any scoping or blood

> or stool work to

> determine if there is an actual digestive issue?

> Take care, Fay

>

__________________________________________________

[Guest guest]

I forgot to mention that my son has Ulcerative

Colitis.

--- cf young cfyoung4@...> wrote:

>

>

> On Wed, 01 Mar 2006 06:16:13 -0000 " nicoisse "

> nicoisse@...>

> writes:

> > Hello, my son has been on SCD for almost ten days.

> He's currently

> > taking Prednisone, Imuran and Cortenema. This is

> our second attempt

> > to

> > wean him off Prednisone. He developed a cold

> couple of days ago and

> > now

> > has blood in his stools. He has about one to three

> stools per day.

> > Has

> > anyone experienced this problem? I don't know what

> to do. I was

> > thinking of starting the Intro diet again this

> weekend. I'm afraid

> > that

> > his GI specialist may want to up his Prednisone

> again.

>

> I don't know if this will help but blood in stools

> is normal for

> digestive issues like Crohns. It indicates a flare

> and anemia, and in our

> case went away, first with prednisone, this time the

> diet. What is you

> son on SCD for, and has he had any scoping or blood

> or stool work to

> determine if there is an actual digestive issue?

> Take care, Fay

>

__________________________________________________

[Guest guest]

On Wed, 1 Mar 2006 10:01:25 -0800 (PST) nicoisse nicoisse

nicoisse@...> writes:

> I forgot to mention that my son has Ulcerative

> Colitis.

>

So is the blood new or was that part of his symptoms? UC has a fairly

good healing rate with SCD, but not as high as Crohns. It's still very

much worth a shot.

Take care, Fay; 13 y.o. son with Crohns, still on Pentasa and

azathioprine

[Guest guest]

My Daugher age 4 has Crohns. She's been on a higher protein SCD

diet since she hasn't been able to tolerate much sugar at all. Even

too much glucose has caused her looser stools early on after her

Prednisolone wean. We've also found her to be intolerant of Dairy

Milk and cheese, I've found the bacon I was giving her had illegals

in it as well. I was giving her store bought aaplesauce that could

have also set her off and not let her heal sooner.

When I wanted to firm up her looser more frequent stools and stop

these symptoms I would give her the basic diet of Chicken soup,

Chicken thighs, steak tenderloin, hamburger, eggs, and a little bit

of grape juice with water and those symptoms would go away after a

few days sometimes in just the next stool.

Ella had UC type symptoms since she was bleeding from her colon. SHe

was put in the Crohns Camp after her biopsies. Its taken us 4 months

of a heavy protein lower carb SCDiet to seem to have her system

settled down and maybe more importantly for us to apply it properly.

She's on no maintenance drugs and takes the SCD multi-vitamin. I

know one other crohns patient age 11 that was also very glucose

interollent for some time.

One time I let her have too much Cows milk yogurt and she did start

bleeding for a few stools. I quickly went back to the above higher

protein regimen and it slowly improved by day 4 we were back to

formed stools again on her own without prednisone. It was a weekend

and our GI was gone or I may not have done this.

Now Ella is tolerating Goats yogurt 1/2tsp twice a day. Pearsauce,

Peanut Butter, Butternut Squash. More Juice/Water mixtures and more

glucose overall. We are seeing a very nice stretch in her diet and

ability to digest more calories. She eats like a horse and is

gaining weight.

Brent--Newbie 4mo SCD for ELLA Crohns 4yrs old

>

> >

> >

> > On Wed, 01 Mar 2006 06:16:13 -0000 " nicoisse "

> >

> > writes:

> > > Hello, my son has been on SCD for almost ten days.

> > He's currently

> > > taking Prednisone, Imuran and Cortenema. This is

> > our second attempt

> > > to

> > > wean him off Prednisone. He developed a cold

> > couple of days ago and

> > > now

> > > has blood in his stools. He has about one to three

> > stools per day.

> > > Has

> > > anyone experienced this problem? I don't know what

> > to do. I was

> > > thinking of starting the Intro diet again this

> > weekend. I'm afraid

> > > that

> > > his GI specialist may want to up his Prednisone

> > again.

> >

> > I don't know if this will help but blood in stools

> > is normal for

> > digestive issues like Crohns. It indicates a flare

> > and anemia, and in our

> > case went away, first with prednisone, this time the

> > diet. What is you

> > son on SCD for, and has he had any scoping or blood

> > or stool work to

> > determine if there is an actual digestive issue?

> > Take care, Fay

> >

>

>

> __________________________________________________

>

[Guest guest]

My Daugher age 4 has Crohns. She's been on a higher protein SCD

diet since she hasn't been able to tolerate much sugar at all. Even

too much glucose has caused her looser stools early on after her

Prednisolone wean. We've also found her to be intolerant of Dairy

Milk and cheese, I've found the bacon I was giving her had illegals

in it as well. I was giving her store bought aaplesauce that could

have also set her off and not let her heal sooner.

When I wanted to firm up her looser more frequent stools and stop

these symptoms I would give her the basic diet of Chicken soup,

Chicken thighs, steak tenderloin, hamburger, eggs, and a little bit

of grape juice with water and those symptoms would go away after a

few days sometimes in just the next stool.

Ella had UC type symptoms since she was bleeding from her colon. SHe

was put in the Crohns Camp after her biopsies. Its taken us 4 months

of a heavy protein lower carb SCDiet to seem to have her system

settled down and maybe more importantly for us to apply it properly.

She's on no maintenance drugs and takes the SCD multi-vitamin. I

know one other crohns patient age 11 that was also very glucose

interollent for some time.

One time I let her have too much Cows milk yogurt and she did start

bleeding for a few stools. I quickly went back to the above higher

protein regimen and it slowly improved by day 4 we were back to

formed stools again on her own without prednisone. It was a weekend

and our GI was gone or I may not have done this.

Now Ella is tolerating Goats yogurt 1/2tsp twice a day. Pearsauce,

Peanut Butter, Butternut Squash. More Juice/Water mixtures and more

glucose overall. We are seeing a very nice stretch in her diet and

ability to digest more calories. She eats like a horse and is

gaining weight.

Brent--Newbie 4mo SCD for ELLA Crohns 4yrs old

>

> >

> >

> > On Wed, 01 Mar 2006 06:16:13 -0000 " nicoisse "

> >

> > writes:

> > > Hello, my son has been on SCD for almost ten days.

> > He's currently

> > > taking Prednisone, Imuran and Cortenema. This is

> > our second attempt

> > > to

> > > wean him off Prednisone. He developed a cold

> > couple of days ago and

> > > now

> > > has blood in his stools. He has about one to three

> > stools per day.

> > > Has

> > > anyone experienced this problem? I don't know what

> > to do. I was

> > > thinking of starting the Intro diet again this

> > weekend. I'm afraid

> > > that

> > > his GI specialist may want to up his Prednisone

> > again.

> >

> > I don't know if this will help but blood in stools

> > is normal for

> > digestive issues like Crohns. It indicates a flare

> > and anemia, and in our

> > case went away, first with prednisone, this time the

> > diet. What is you

> > son on SCD for, and has he had any scoping or blood

> > or stool work to

> > determine if there is an actual digestive issue?

> > Take care, Fay

> >

>

>

> __________________________________________________

>

[Guest guest]

My Daugher age 4 has Crohns. She's been on a higher protein SCD

diet since she hasn't been able to tolerate much sugar at all. Even

too much glucose has caused her looser stools early on after her

Prednisolone wean. We've also found her to be intolerant of Dairy

Milk and cheese, I've found the bacon I was giving her had illegals

in it as well. I was giving her store bought aaplesauce that could

have also set her off and not let her heal sooner.

When I wanted to firm up her looser more frequent stools and stop

these symptoms I would give her the basic diet of Chicken soup,

Chicken thighs, steak tenderloin, hamburger, eggs, and a little bit

of grape juice with water and those symptoms would go away after a

few days sometimes in just the next stool.

Ella had UC type symptoms since she was bleeding from her colon. SHe

was put in the Crohns Camp after her biopsies. Its taken us 4 months

of a heavy protein lower carb SCDiet to seem to have her system

settled down and maybe more importantly for us to apply it properly.

She's on no maintenance drugs and takes the SCD multi-vitamin. I

know one other crohns patient age 11 that was also very glucose

interollent for some time.

One time I let her have too much Cows milk yogurt and she did start

bleeding for a few stools. I quickly went back to the above higher

protein regimen and it slowly improved by day 4 we were back to

formed stools again on her own without prednisone. It was a weekend

and our GI was gone or I may not have done this.

Now Ella is tolerating Goats yogurt 1/2tsp twice a day. Pearsauce,

Peanut Butter, Butternut Squash. More Juice/Water mixtures and more

glucose overall. We are seeing a very nice stretch in her diet and

ability to digest more calories. She eats like a horse and is

gaining weight.

Brent--Newbie 4mo SCD for ELLA Crohns 4yrs old

>

> >

> >

> > On Wed, 01 Mar 2006 06:16:13 -0000 " nicoisse "

> >

> > writes:

> > > Hello, my son has been on SCD for almost ten days.

> > He's currently

> > > taking Prednisone, Imuran and Cortenema. This is

> > our second attempt

> > > to

> > > wean him off Prednisone. He developed a cold

> > couple of days ago and

> > > now

> > > has blood in his stools. He has about one to three

> > stools per day.

> > > Has

> > > anyone experienced this problem? I don't know what

> > to do. I was

> > > thinking of starting the Intro diet again this

> > weekend. I'm afraid

> > > that

> > > his GI specialist may want to up his Prednisone

> > again.

> >

> > I don't know if this will help but blood in stools

> > is normal for

> > digestive issues like Crohns. It indicates a flare

> > and anemia, and in our

> > case went away, first with prednisone, this time the

> > diet. What is you

> > son on SCD for, and has he had any scoping or blood

> > or stool work to

> > determine if there is an actual digestive issue?

> > Take care, Fay

> >

>

>

> __________________________________________________

>