Guest guest Posted August 26, 2006 Report Share Posted August 26, 2006 > > , and other DOUBTERS. LDN as I was told at the > beginning may do absolutely nothing for your symptoms, > but it will most likely stop the disease progression. > I have been taking LDN 3.0MG FOR 7 MONTHS NOW. No > major side effects, but no symptom improvements I can > brag about. But, if my disease progression stays where > it is at now, that is better than anything out there. > I have had MS 17 YEARS. bEEN ON BETASERON, COPAXONE, > REBIF, all diets, supplements, anti yeast treatments. > Most mser would try anything if it helped. > Only LDN Dr's and the people who know best, claim this > drug halts disease progression. No other medicine > available makes that claim. So I along with most of > this group believe LDN will stop progression in about > 99% of the cases. We don't need any poo poo ers about > statistics. This site has gone a little negative > lately and needs to go back to positive remarks, > positive testimonials, etc. The power of positive > thinking is also very very valuable. > keith > ======= I think the 15% and possibly 20% will not have results from LDN stopping progression comes from one of the first polls ever taken. About 6 months to a year after I started LDN. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2006 Report Share Posted August 26, 2006 ,Whoa! Hold on a minute here. Just to clarify things, I'm a firm believer in LDN. I do not doubt that it works. I've been taking it for almost 4 months now. See my website www.ldnusers.org. I've just heard that some do not respond to it, that's all. Just wanted to clarify that. Not sure why you got that impression. Maybe you misunderstood me.All the Best, ...helpful support groups for people with MSLDN_Users & www.ldnusers.orglow dose naltrexonemscuredTheChronicIllnessCafeMySpace URL: http://www.myspace.com/jasonvaccaro On Aug 26, 2006, at 1:21 PM, keith kowalis wrote:, and other DOUBTERS. LDN as I was told at thebeginning may do absolutely nothing for your symptoms,but it will most likely stop the disease progression.I have been taking LDN 3.0MG FOR 7 MONTHS NOW. Nomajor side effects, but no symptom improvements I canbrag about. But, if my disease progression stays whereit is at now, that is better than anything out there.I have had MS 17 YEARS. bEEN ON BETASERON, COPAXONE,REBIF, all diets, supplements, anti yeast treatments.Most mser would try anything if it helped.Only LDN Dr's and the people who know best, claim thisdrug halts disease progression. No other medicineavailable makes that claim. So I along with most ofthis group believe LDN will stop progression in about99% of the cases. We don't need any poo poo ers aboutstatistics. This site has gone a little negativelately and needs to go back to positive remarks,positive testimonials, etc. The power of positivethinking is also very very valuable.keith Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2006 Report Share Posted August 26, 2006 I also believe that many people would answer the question in a negative fashion (the glass is half empty) rather than a positive fashion (the glass is half full). They might not have realized the benefit at the time, and if they quit taking it and felt worse would realize it then. It may be little ways they fell better. More energy, walking farther, seeing bette, more mobility.... Things that are taken for granted and sometimes you don't even think about. Things you don't notice when they are good, but notice when they are bad..... I feel so fortunate that my son is in the beginning of this disease, and feel this might be his saving grace.....so yes, positive is good. Believing is very good as it lessons stress....... Non believers are not going to believe anything, as it is their nature. I always try to be positive and to see the good, so I am going to be a believer. I even tried to tell myself that I needed to not believe too much in the beginning and look at the other treatments in a rational way...so I did not lead my son the wrong way. A few people's stories on this website are too incredible to ignore. Yes, some people might be helped by avonex or the other drugs, but to begin with it is more toxic than this drug. So why not go with the less toxic drug. Actually, I am asking a favor of those who know more. Can anyone explain the other drugs, side effects, and how they work. I would like my son to read that as he wants to do ldn, but does not know anything about the other choices. I think he would feel better knowing about the other drugs. Thanks again to everyone on this website. You have all been so helpful, encouraging, and I thank God that we heard about LDN, and this website and its members. Conni [low dose naltrexone] Re: ldn truth be told > > >> >> , and other DOUBTERS. LDN as I was told at the >> beginning may do absolutely nothing for your symptoms, >> but it will most likely stop the disease progression. >> I have been taking LDN 3.0MG FOR 7 MONTHS NOW. No >> major side effects, but no symptom improvements I can >> brag about. But, if my disease progression stays where >> it is at now, that is better than anything out there. >> I have had MS 17 YEARS. bEEN ON BETASERON, COPAXONE, >> REBIF, all diets, supplements, anti yeast treatments. >> Most mser would try anything if it helped. >> Only LDN Dr's and the people who know best, claim this >> drug halts disease progression. No other medicine >> available makes that claim. So I along with most of >> this group believe LDN will stop progression in about >> 99% of the cases. We don't need any poo poo ers about >> statistics. This site has gone a little negative >> lately and needs to go back to positive remarks, >> positive testimonials, etc. The power of positive >> thinking is also very very valuable. >> keith >> > ======= > > I think the 15% and possibly 20% will not have results from LDN stopping > progression comes from one of the first polls ever taken. About 6 months > to a year after I started LDN. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2006 Report Share Posted August 26, 2006 > > I also believe that many people would answer the question in a negative > fashion (the glass is half empty) rather than a positive fashion (the glass > is half full). They might not have realized the benefit at the time, and if > they quit taking it and felt worse would realize it then. It may be little > ways they fell better. More energy, walking farther, seeing bette, more > mobility.... Things that are taken for granted and sometimes you don't even > think about. Things you don't notice when they are good, but notice when > they are bad..... > > I feel so fortunate that my son is in the beginning of this disease, and > feel this might be his saving grace.....so yes, positive is good. Believing > is very good as it lessons stress....... Non believers are not going to > believe anything, as it is their nature. I always try to be positive and to > see the good, so I am going to be a believer. I even tried to tell myself > that I needed to not believe too much in the beginning and look at the other > treatments in a rational way...so I did not lead my son the wrong way. A > few people's stories on this website are too incredible to ignore. Yes, > some people might be helped by avonex or the other drugs, but to begin with > it is more toxic than this drug. So why not go with the less toxic drug. > > Actually, I am asking a favor of those who know more. Can anyone explain > the other drugs, side effects, and how they work. I would like my son to > read that as he wants to do ldn, but does not know anything about the other > choices. I think he would feel better knowing about the other drugs. > > Thanks again to everyone on this website. You have all been so helpful, > encouraging, and I thank God that we heard about LDN, and this website and > its members. > > Conni -- Connie, I've had MS for almost 18 years. In that time I've used Avonex - 3 yrs., Copaxone - 3 yrs. and Novantrone - 5 treatments. The Avonex caused a terrible reaction when I first started. I thought I had the flu. Fever, chills, aches, etc. This would last a couple of days. By the time I recovered it would be time for my next shot. Avonex is taken once a week as an injection into the muscle. I had to have the nurse give it to me for first few months because I just didn't have the guts to stick myself. After awhile she taught me to do it myself but it was never easy. I had to psyche myself up for it. It hurt and I hated every minute being on the stuff. It caused depression and loss of libido and didn't do a thing to slow or halt the MS progression. My neurologist switched me over to Copaxone because I had developed antibodies rendering interferon meds useless in me. The Copaxone shot was a piece of cake compared to Avonex. The only bad reaction was at the injection site. Slightly irritated and red. Went away quickly. But while I was using Copaxone I kept having to go back to my neurologist for IV steroid treatments (solumedrol) which were usually followed by two weeks of oral Prednisone. I had so many of these I lost count and my bones and who knows what else have paid the price. Nasty stuff steroids are and it lost it's positive effect it used to have in me. During this time I was started on Novantrone to take along with Copaxone. The Novantrone is administered via IV. Takes approx. 4 hours. Very long process. It's done every three months and one must stop using it forever after two years, in some cases three. It is a very potent and dangerous chemotherapy as it can cause heart failure and leukemia. I stopped the treatments at five because they were making me very ill and not stopping the MS progression. It was around this time I decided on LDN. It took a lot of courage and desperation but I have been using since March 2005. LDN is not the entire solution but through proper diet, a good combo of rest and exercise, vitamins and supplements along with LDN I think this is a better route to follow if one has MS. I would not recommend the CRAB drugs to anyone. This is just my story and opinion and your son has to do what he thinks is best for him. I wish him good luck Art Hansen rtee54@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2006 Report Share Posted August 27, 2006 Conni, I agree with Art 100%. I have done Avonex, I felt like it sped up problems. I felt like when I gave myself the injection I gave myself problems. Then I did Copaxone for about 5 years. I didn't feel it gave me any problems except for it left indents in my skin. I had and still do problems from injecting my legs, stomach and rear end-oh and my arms-the problem was so bad with the indentions they told me to inject my arms on the inside-like where I put deodorant on. None of these areas show-my clothing covers them all. Not that I would ever model nude, but no one would hire me. I condidentially feel I would not make any $$$. I am glad I am married and my husband accepts me for who I am. LDN is much easier. I am really glad I found it. I have been on it since the end of June. Hope we are able to help your son make his descion. I know it's not easy. So much to deal with-the shock alone of learning he's got the disease is hard enough. -- [low dose naltrexone] Re: ldn truth be told >> I also believe that many people would answer the question in a negative > fashion (the glass is half empty) rather than a positive fashion (the glass > is half full). They might not have realized the benefit at the time, and if > they quit taking it and felt worse would realize it then. It may be little > ways they fell better. More energy, walking farther, seeing bette, more > mobility.... Things that are taken for granted and sometimes you don't even > think about. Things you don't notice when they are good, but notice when > they are bad.....> > I feel so fortunate that my son is in the beginning of this disease, and > feel this might be his saving grace.....so yes, positive is good. Believing > is very good as it lessons stress....... Non believers are not going to > believe anything, as it is their nature. I always try to be positive and to > see the good, so I am going to be a believer. I even tried to tell myself > that I needed to not believe too much in the beginning and look at the other > treatments in a rational way...so I did not lead my son the wrong way. A > few people's stories on this website are too incredible to ignore. Yes, > some people might be helped by avonex or the other drugs, but to begin with > it is more toxic than this drug. So why not go with the less toxic drug.> > Actually, I am asking a favor of those who know more. Can anyone explain > the other drugs, side effects, and how they work. I would like my son to > read that as he wants to do ldn, but does not know anything about the other > choices. I think he would feel better knowing about the other drugs.> > Thanks again to everyone on this website. You have all been so helpful, > encouraging, and I thank God that we heard about LDN, and this website and > its members.> > Conni--Connie,I've had MS for almost 18 years. In that time I've used Avonex - 3 yrs., Copaxone - 3 yrs. and Novantrone - 5 treatments. The Avonex caused a terrible reaction when I first started. I thought I had the flu. Fever, chills, aches, etc. This would last a couple of days. By the time I recovered it would be time for my next shot. Avonex is taken once a week as an injection into the muscle. I had to have the nurse give it to me for first few months because I just didn't have the guts to stick myself. After awhile she taught me to do it myself but it was never easy. I had to psyche myself up for it. It hurt and I hated every minute being on the stuff. It caused depression and loss of libido and didn't do a thing to slow or halt the MS progression. My neurologist switched me over to Copaxone because I had developed antibodies rendering interferon meds useless in me.The Copaxone shot was a piece of cake compared to Avonex. The only bad reaction was at the injection site. Slightly irritated and red. Went away quickly. But while I was using Copaxone I kept having to go back to my neurologist for IV steroid treatments (solumedrol) which were usually followed by two weeks of oral Prednisone. I had so many of these I lost count and my bones and who knows what else have paid the price. Nasty stuff steroids are and it lost it's positive effect it used to have in me. During this time I was started on Novantrone to take along with Copaxone.The Novantrone is administered via IV. Takes approx. 4 hours. Very long process. It's done every three months and one must stop using it forever after two years, in some cases three. It is a very potent and dangerous chemotherapy as it can cause heart failure and leukemia. I stopped the treatments at five because they were making me very ill and not stopping the MS progression. It was around this time I decided on LDN.It took a lot of courage and desperation but I have been using since March 2005. LDN is not the entire solution but through proper diet, a good combo of rest and exercise, vitamins and supplements along with LDN I think this is a better route to follow if one has MS. I would not recommend the CRAB drugs to anyone.This is just my story and opinion and your son has to do what he thinks is best for him. I wish him good luckArt Hansenrtee54 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2006 Report Share Posted August 27, 2006 Yeah !!! I can't stand negative comments by people. It is like "go get a punching bag" We all need to spread a little joy. What we focus on grows and that can be a great thing! Best, Kathy [low dose naltrexone] ldn truth be told , and other DOUBTERS. LDN as I was told at thebeginning may do absolutely nothing for your symptoms,but it will most likely stop the disease progression.I have been taking LDN 3.0MG FOR 7 MONTHS NOW. Nomajor side effects, but no symptom improvements I canbrag about. But, if my disease progression stays whereit is at now, that is better than anything out there.I have had MS 17 YEARS. bEEN ON BETASERON, COPAXONE,REBIF, all diets, supplements, anti yeast treatments.Most mser would try anything if it helped.Only LDN Dr's and the people who know best, claim thisdrug halts disease progression. No other medicineavailable makes that claim. So I along with most ofthis group believe LDN will stop progression in about99% of the cases. We don't need any poo poo ers aboutstatistics. This site has gone a little negativelately and needs to go back to positive remarks,positive testimonials, etc. The power of positivethinking is also very very valuable.keith Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2006 Report Share Posted August 27, 2006 [low dose naltrexone] Re: ldn truth be told>> >>>> , and other DOUBTERS. LDN as I was told at the>> beginning may do absolutely nothing for your symptoms,>> but it will most likely stop the disease progression.>> I have been taking LDN 3.0MG FOR 7 MONTHS NOW. No>> major side effects, but no symptom improvements I can>> brag about. But, if my disease progression stays where>> it is at now, that is better than anything out there.>> I have had MS 17 YEARS. bEEN ON BETASERON, COPAXONE,>> REBIF, all diets, supplements, anti yeast treatments.>> Most mser would try anything if it helped.>> Only LDN Dr's and the people who know best, claim this>> drug halts disease progression. No other medicine>> available makes that claim. So I along with most of>> this group believe LDN will stop progression in about>> 99% of the cases. We don't need any poo poo ers about>> statistics. This site has gone a little negative>> lately and needs to go back to positive remarks,>> positive testimonials, etc. The power of positive>> thinking is also very very valuable.>> keith>>> =======>> I think the 15% and possibly 20% will not have results from LDN stopping > progression comes from one of the first polls ever taken. About 6 months > to a year after I started LDN.>> >>>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2006 Report Share Posted August 28, 2006 , thanks for the reply. Thanks for the understanding of the situation also. I am still in a fragile state emotionally – I am sure my son is, but he is putting a good face on for me….. and the brick wall is not making it any easier. I would feel better if I had a doctor on our side. Conni [low dose naltrexone] Re: ldn truth be told > > I also believe that many people would answer the question in a negative > fashion (the glass is half empty) rather than a positive fashion (the glass > is half full). They might not have realized the benefit at the time, and if > they quit taking it and felt worse would realize it then. It may be little > ways they fell better. More energy, walking farther, seeing bette, more > mobility.... Things that are taken for granted and sometimes you don't even > think about. Things you don't notice when they are good, but notice when > they are bad..... > > I feel so fortunate that my son is in the beginning of this disease, and > feel this might be his saving grace.....so yes, positive is good. Believing > is very good as it lessons stress....... Non believers are not going to > believe anything, as it is their nature. I always try to be positive and to > see the good, so I am going to be a believer. I even tried to tell myself > that I needed to not believe too much in the beginning and look at the other > treatments in a rational way...so I did not lead my son the wrong way. A > few people's stories on this website are too incredible to ignore. Yes, > some people might be helped by avonex or the other drugs, but to begin with > it is more toxic than this drug. So why not go with the less toxic drug. > > Actually, I am asking a favor of those who know more. Can anyone explain > the other drugs, side effects, and how they work. I would like my son to > read that as he wants to do ldn, but does not know anything about the other > choices. I think he would feel better knowing about the other drugs. > > Thanks again to everyone on this website. You have all been so helpful, > encouraging, and I thank God that we heard about LDN, and this website and > its members. > > Conni -- Connie, I've had MS for almost 18 years. In that time I've used Avonex - 3 yrs., Copaxone - 3 yrs. and Novantrone - 5 treatments. The Avonex caused a terrible reaction when I first started. I thought I had the flu. Fever, chills, aches, etc. This would last a couple of days. By the time I recovered it would be time for my next shot. Avonex is taken once a week as an injection into the muscle. I had to have the nurse give it to me for first few months because I just didn't have the guts to stick myself. After awhile she taught me to do it myself but it was never easy. I had to psyche myself up for it. It hurt and I hated every minute being on the stuff. It caused depression and loss of libido and didn't do a thing to slow or halt the MS progression. My neurologist switched me over to Copaxone because I had developed antibodies rendering interferon meds useless in me. The Copaxone shot was a piece of cake compared to Avonex. The only bad reaction was at the injection site. Slightly irritated and red. Went away quickly. But while I was using Copaxone I kept having to go back to my neurologist for IV steroid treatments (solumedrol) which were usually followed by two weeks of oral Prednisone. I had so many of these I lost count and my bones and who knows what else have paid the price. Nasty stuff steroids are and it lost it's positive effect it used to have in me. During this time I was started on Novantrone to take along with Copaxone. The Novantrone is administered via IV. Takes approx. 4 hours. Very long process. It's done every three months and one must stop using it forever after two years, in some cases three. It is a very potent and dangerous chemotherapy as it can cause heart failure and leukemia. I stopped the treatments at five because they were making me very ill and not stopping the MS progression. It was around this time I decided on LDN. It took a lot of courage and desperation but I have been using since March 2005. LDN is not the entire solution but through proper diet, a good combo of rest and exercise, vitamins and supplements along with LDN I think this is a better route to follow if one has MS. I would not recommend the CRAB drugs to anyone. This is just my story and opinion and your son has to do what he thinks is best for him. I wish him good luck Art Hansen rtee54 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2006 Report Share Posted August 28, 2006 Dear Conni .. I can relate to fighting for a loved one. Know that you are without question or doubt that you are doing the right thing for your son. There were times four years ago my sanity was questioned when I challenged Noels Neurologist and medical dogma but I never gave up because anonymous faces inside my computer kept telling me to keep going. So i am telling you the same .. don't give up until you get your son on LDN .. just don't .. he needs it. And then, fight harder! You see it is now 4 years since my husband Noel (PPMS) quit Avonex and went on 4.5 mg LDN .. he has not progressed .. not one new symptom has emerged. He can still walk around the house with his cane and our bedroom is still upstairs. He has not one single brand new symptom and the brand new ones that were emerging four years ago (ED, hands tingling)are all a thing of a very distant and scary past. Noels MS is confined to his legs. That is a miracle .. We are now on day 6 of a new diet. It took us four years to think .. now that the progression has stoppped can diet also help??? I feel so good and believe Noel looks ten years younger .. I have concluded we were very, very, very, very slow on the uptake. Diet is critical .. what do you know .. distant voices inside my computer are right yet again! Our new regime is no gluten, no dairy, no processed foods and no refined sugars and we are loving it. WE are laughing out loud over our meals but having a blast. We also added cod liver oil to our diet. We are having such fun and living better than we ever dreamed possible. I think Noel is actually healthier than most people despite the MS damage .. I bet he will outlive most of his peers. Our quality of life, thank God is top class .. our kids are growing up beautifully and we are so very happy together .. life is grand! So Conni my friend .. whatever you do .. don't give up! All the very best Bradley > > > > I also believe that many people would answer the question in a > negative > > fashion (the glass is half empty) rather than a positive fashion > (the glass > > is half full). They might not have realized the benefit at the > time, and if > > they quit taking it and felt worse would realize it then. It may > be little > > ways they fell better. More energy, walking farther, seeing bette, > more > > mobility.... Things that are taken for granted and sometimes you > don't even > > think about. Things you don't notice when they are good, but > notice when > > they are bad..... > > > > I feel so fortunate that my son is in the beginning of this > disease, and > > feel this might be his saving grace.....so yes, positive is good. > Believing > > is very good as it lessons stress....... Non believers are not > going to > > believe anything, as it is their nature. I always try to be > positive and to > > see the good, so I am going to be a believer. I even tried to tell > myself > > that I needed to not believe too much in the beginning and look at > the other > > treatments in a rational way...so I did not lead my son the wrong > way. A > > few people's stories on this website are too incredible to ignore. > Yes, > > some people might be helped by avonex or the other drugs, but to > begin with > > it is more toxic than this drug. So why not go with the less toxic > drug. > > > > Actually, I am asking a favor of those who know more. Can anyone > explain > > the other drugs, side effects, and how they work. I would like my > son to > > read that as he wants to do ldn, but does not know anything about > the other > > choices. I think he would feel better knowing about the other > drugs. > > > > Thanks again to everyone on this website. You have all been so > helpful, > > encouraging, and I thank God that we heard about LDN, and this > website and > > its members. > > > > Conni > > -- > > Connie, > > I've had MS for almost 18 years. In that time I've used Avonex - 3 > yrs., Copaxone - 3 yrs. and Novantrone - 5 treatments. > > The Avonex caused a terrible reaction when I first started. I thought > I had the flu. Fever, chills, aches, etc. This would last a couple of > days. By the time I recovered it would be time for my next shot. > Avonex is taken once a week as an injection into the muscle. I had to > have the nurse give it to me for first few months because I just > didn't have the guts to stick myself. After awhile she taught me to > do it myself but it was never easy. I had to psyche myself up for it. > It hurt and I hated every minute being on the stuff. It caused > depression and loss of libido and didn't do a thing to slow or halt > the MS progression. My neurologist switched me over to Copaxone > because I had developed antibodies rendering interferon meds useless > in me. > > The Copaxone shot was a piece of cake compared to Avonex. The only > bad reaction was at the injection site. Slightly irritated and red. > Went away quickly. But while I was using Copaxone I kept having to go > back to my neurologist for IV steroid treatments (solumedrol) which > were usually followed by two weeks of oral Prednisone. I had so many > of these I lost count and my bones and who knows what else have paid > the price. Nasty stuff steroids are and it lost it's positive effect > it used to have in me. During this time I was started on Novantrone > to take along with Copaxone. > > The Novantrone is administered via IV. Takes approx. 4 hours. Very > long process. It's done every three months and one must stop using it > forever after two years, in some cases three. It is a very potent and > dangerous chemotherapy as it can cause heart failure and leukemia. I > stopped the treatments at five because they were making me very ill > and not stopping the MS progression. It was around this time I > decided on LDN. > > It took a lot of courage and desperation but I have been using since > March 2005. LDN is not the entire solution but through proper diet, a > good combo of rest and exercise, vitamins and supplements along with > LDN I think this is a better route to follow if one has MS. I would > not recommend the CRAB drugs to anyone. > > This is just my story and opinion and your son has to do what he > thinks is best for him. I wish him good luck > > Art Hansen > rtee54 (DOT) <mailto:rtee54%40> com > > > > > > > > > > > > <http://www.incredimail.com/index.asp?id=54475> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2006 Report Share Posted August 28, 2006 Good for you and Noel! WHen friends and family give you a hard time, just tell 'em "garbage in, garbage out --GIGO". So many foods and additives affect brain function it is hard to believe, and lots of drugs cause nutritional deficiencies that most docs or pharmacists do not inform the patients about. mjh"The Basil Book"http://foxhillfarm.us/FireBasil/ I feel so good and believe Noel looks ten years younger .. I have concluded we were very, very, very, very slow on the uptake. Diet is critical .. what do you know .. distant voices inside my computer are right yet again! Our new regime is no gluten, no dairy, no processed foods and no refined sugars and we are loving it. WE are laughing out loud over our meals but having a blast. We also added cod liver oil to our diet. We are having such fun and living better than we ever dreamed possible. I think Noel is actually healthier than most people despite the MS damage Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2006 Report Share Posted August 28, 2006 , you are such a doll. I know diet is next. That is going to be very tough, as my son loves bread. His main food group is pizza. He knows he can't drink milk, or eat ice cream, but he likes cheese. He eats a ton of bread. Do you have book recommendations that detail the diet you are on? I am calling the doctors today from the acam list. Will let you know what I find, so the girls can let others know. Thanks again . I am so glad your husband is well. Conni [low dose naltrexone] Re: ldn truth be told Dear Conni .. I can relate to fighting for a loved one. Know that you are without question or doubt that you are doing the right thing for your son. There were times four years ago my sanity was questioned when I challenged Noels Neurologist and medical dogma but I never gave up because anonymous faces inside my computer kept telling me to keep going. So i am telling you the same .. don't give up until you get your son on LDN .. just don't .. he needs it. And then, fight harder! You see it is now 4 years since my husband Noel (PPMS) quit Avonex and went on 4.5 mg LDN .. he has not progressed .. not one new symptom has emerged. He can still walk around the house with his cane and our bedroom is still upstairs. He has not one single brand new symptom and the brand new ones that were emerging four years ago (ED, hands tingling)are all a thing of a very distant and scary past. Noels MS is confined to his legs. That is a miracle .. We are now on day 6 of a new diet. It took us four years to think .. now that the progression has stoppped can diet also help??? I feel so good and believe Noel looks ten years younger .. I have concluded we were very, very, very, very slow on the uptake. Diet is critical .. what do you know .. distant voices inside my computer are right yet again! Our new regime is no gluten, no dairy, no processed foods and no refined sugars and we are loving it. WE are laughing out loud over our meals but having a blast. We also added cod liver oil to our diet. We are having such fun and living better than we ever dreamed possible. I think Noel is actually healthier than most people despite the MS damage .. I bet he will outlive most of his peers. Our quality of life, thank God is top class .. our kids are growing up beautifully and we are so very happy together .. life is grand! So Conni my friend .. whatever you do .. don't give up! All the very best Bradley > > > > I also believe that many people would answer the question in a > negative > > fashion (the glass is half empty) rather than a positive fashion > (the glass > > is half full). They might not have realized the benefit at the > time, and if > > they quit taking it and felt worse would realize it then. It may > be little > > ways they fell better. More energy, walking farther, seeing bette, > more > > mobility.... Things that are taken for granted and sometimes you > don't even > > think about. Things you don't notice when they are good, but > notice when > > they are bad..... > > > > I feel so fortunate that my son is in the beginning of this > disease, and > > feel this might be his saving grace.....so yes, positive is good. > Believing > > is very good as it lessons stress....... Non believers are not > going to > > believe anything, as it is their nature. I always try to be > positive and to > > see the good, so I am going to be a believer. I even tried to tell > myself > > that I needed to not believe too much in the beginning and look at > the other > > treatments in a rational way...so I did not lead my son the wrong > way. A > > few people's stories on this website are too incredible to ignore. > Yes, > > some people might be helped by avonex or the other drugs, but to > begin with > > it is more toxic than this drug. So why not go with the less toxic > drug. > > > > Actually, I am asking a favor of those who know more. Can anyone > explain > > the other drugs, side effects, and how they work. I would like my > son to > > read that as he wants to do ldn, but does not know anything about > the other > > choices. I think he would feel better knowing about the other > drugs. > > > > Thanks again to everyone on this website. You have all been so > helpful, > > encouraging, and I thank God that we heard about LDN, and this > website and > > its members. > > > > Conni > > -- > > Connie, > > I've had MS for almost 18 years. In that time I've used Avonex - 3 > yrs., Copaxone - 3 yrs. and Novantrone - 5 treatments. > > The Avonex caused a terrible reaction when I first started. I thought > I had the flu. Fever, chills, aches, etc. This would last a couple of > days. By the time I recovered it would be time for my next shot. > Avonex is taken once a week as an injection into the muscle. I had to > have the nurse give it to me for first few months because I just > didn't have the guts to stick myself. After awhile she taught me to > do it myself but it was never easy. I had to psyche myself up for it. > It hurt and I hated every minute being on the stuff. It caused > depression and loss of libido and didn't do a thing to slow or halt > the MS progression. My neurologist switched me over to Copaxone > because I had developed antibodies rendering interferon meds useless > in me. > > The Copaxone shot was a piece of cake compared to Avonex. The only > bad reaction was at the injection site. Slightly irritated and red. > Went away quickly. But while I was using Copaxone I kept having to go > back to my neurologist for IV steroid treatments (solumedrol) which > were usually followed by two weeks of oral Prednisone. I had so many > of these I lost count and my bones and who knows what else have paid > the price. Nasty stuff steroids are and it lost it's positive effect > it used to have in me. During this time I was started on Novantrone > to take along with Copaxone. > > The Novantrone is administered via IV. Takes approx. 4 hours. Very > long process. It's done every three months and one must stop using it > forever after two years, in some cases three. It is a very potent and > dangerous chemotherapy as it can cause heart failure and leukemia. I > stopped the treatments at five because they were making me very ill > and not stopping the MS progression. It was around this time I > decided on LDN. > > It took a lot of courage and desperation but I have been using since > March 2005. LDN is not the entire solution but through proper diet, a > good combo of rest and exercise, vitamins and supplements along with > LDN I think this is a better route to follow if one has MS. I would > not recommend the CRAB drugs to anyone. > > This is just my story and opinion and your son has to do what he > thinks is best for him. I wish him good luck > > Art Hansen > rtee54 (DOT) <mailto:rtee54%40> com > > > > > > > > > > > > <http://www.incredimail.com/index.asp?id=54475> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2006 Report Share Posted August 28, 2006 Dear Conni .. We don't have a book .. We decided to look at the Detox diet (we had too much fun all summer long traveling everywhere) .. then I looked at the Best Bet Diet .. then I looked at some anti cancers diets and then my head spun and I had a bowl of ice cream and realized all of the diets have much in common. Then I looked at supplements, vitamins and enzymes. Then I had a glass of wine. We had visitors so we polished off the wine. The following morning we decided to start on the extreme end of the spectrum and introduce things gradually back into our system, hence the no dairy, refined sugars, processed foods or Dairy .. we didn't expect to feel so great so at present we are relucatant to tamper. Basically we get a selection of foods, throw them on the table, scratch our heads and try to decide how best to eat them. It is a riot! Last night I arrived home with organic sweet potatoes and honey .. and we drooled with delight at the prospect .. they were divine! Our friends wish we weren't such extreme people .. I prefer the term passionate .. and lemons, pineapples and baskets of fruit selections I think give the house that country feel I have always loved. I knew we had gone over board I confess when we took the kids to Dairy Queen after mass yesterday ... because we swung by our house en route to pick up some organic plums and bananas for us to feast on. The funny thing is .. we really and truly are enjoying this way of eating .. because we feel great! This is what i think .. I think there are many wonderful diets out there ... people testify passionately so many diets must be good .. however .. our objective was not to lose weight .. we could do with it but are equally attractive .. we wanted to see if we could feel better .. for that .. this was the obvious way to go .. back to basics type of approach and so far so good. It is exciting! We are eating only the foods that people ate before cancer and all the other epidemics emerged .. food for thought. I have noticed many positives already .. and I didn't think I could have felt better .. All the Best > > > > > > I also believe that many people would answer the question in a > > negative > > > fashion (the glass is half empty) rather than a positive fashion > > (the glass > > > is half full). They might not have realized the benefit at the > > time, and if > > > they quit taking it and felt worse would realize it then. It may > > be little > > > ways they fell better. More energy, walking farther, seeing > bette, > > more > > > mobility.... Things that are taken for granted and sometimes you > > don't even > > > think about. Things you don't notice when they are good, but > > notice when > > > they are bad..... > > > > > > I feel so fortunate that my son is in the beginning of this > > disease, and > > > feel this might be his saving grace.....so yes, positive is > good. > > Believing > > > is very good as it lessons stress....... Non believers are not > > going to > > > believe anything, as it is their nature. I always try to be > > positive and to > > > see the good, so I am going to be a believer. I even tried to > tell > > myself > > > that I needed to not believe too much in the beginning and look > at > > the other > > > treatments in a rational way...so I did not lead my son the > wrong > > way. A > > > few people's stories on this website are too incredible to > ignore. > > Yes, > > > some people might be helped by avonex or the other drugs, but to > > begin with > > > it is more toxic than this drug. So why not go with the less > toxic > > drug. > > > > > > Actually, I am asking a favor of those who know more. Can anyone > > explain > > > the other drugs, side effects, and how they work. I would like > my > > son to > > > read that as he wants to do ldn, but does not know anything > about > > the other > > > choices. I think he would feel better knowing about the other > > drugs. > > > > > > Thanks again to everyone on this website. You have all been so > > helpful, > > > encouraging, and I thank God that we heard about LDN, and this > > website and > > > its members. > > > > > > Conni > > > > -- > > > > Connie, > > > > I've had MS for almost 18 years. In that time I've used Avonex - 3 > > yrs., Copaxone - 3 yrs. and Novantrone - 5 treatments. > > > > The Avonex caused a terrible reaction when I first started. I > thought > > I had the flu. Fever, chills, aches, etc. This would last a couple > of > > days. By the time I recovered it would be time for my next shot. > > Avonex is taken once a week as an injection into the muscle. I had > to > > have the nurse give it to me for first few months because I just > > didn't have the guts to stick myself. After awhile she taught me > to > > do it myself but it was never easy. I had to psyche myself up for > it. > > It hurt and I hated every minute being on the stuff. It caused > > depression and loss of libido and didn't do a thing to slow or > halt > > the MS progression. My neurologist switched me over to Copaxone > > because I had developed antibodies rendering interferon meds > useless > > in me. > > > > The Copaxone shot was a piece of cake compared to Avonex. The only > > bad reaction was at the injection site. Slightly irritated and > red. > > Went away quickly. But while I was using Copaxone I kept having to > go > > back to my neurologist for IV steroid treatments (solumedrol) > which > > were usually followed by two weeks of oral Prednisone. I had so > many > > of these I lost count and my bones and who knows what else have > paid > > the price. Nasty stuff steroids are and it lost it's positive > effect > > it used to have in me. During this time I was started on > Novantrone > > to take along with Copaxone. > > > > The Novantrone is administered via IV. Takes approx. 4 hours. Very > > long process. It's done every three months and one must stop using > it > > forever after two years, in some cases three. It is a very potent > and > > dangerous chemotherapy as it can cause heart failure and leukemia. > I > > stopped the treatments at five because they were making me very > ill > > and not stopping the MS progression. It was around this time I > > decided on LDN. > > > > It took a lot of courage and desperation but I have been using > since > > March 2005. LDN is not the entire solution but through proper > diet, a > > good combo of rest and exercise, vitamins and supplements along > with > > LDN I think this is a better route to follow if one has MS. I > would > > not recommend the CRAB drugs to anyone. > > > > This is just my story and opinion and your son has to do what he > > thinks is best for him. I wish him good luck > > > > Art Hansen > > rtee54 (DOT) <mailto:rtee54%40> com > > > > > > > > > > > > > > > > > > > > > > > > <http://www.incredimail.com/index.asp?id=54475> > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2006 Report Share Posted August 28, 2006 Conni, Guys are sooo different tfrom us girls! The best thing you can do is be there for him. My son is 9 and has had his own mind since he was born so I understand when you can't reason with him.. Wish you the best of luck! -- [low dose naltrexone] Re: ldn truth be told >> I also believe that many people would answer the question in a negative > fashion (the glass is half empty) rather than a positive fashion (the glass > is half full). They might not have realized the benefit at the time, and if > they quit taking it and felt worse would realize it then. It may be little > ways they fell better. More energy, walking farther, seeing bette, more > mobility.... Things that are taken for granted and sometimes you don't even > think about. Things you don't notice when they are good, but notice when > they are bad.....> > I feel so fortunate that my son is in the beginning of this disease, and > feel this might be his saving grace.....so yes, positive is good. Believing > is very good as it lessons stress....... Non believers are not going to > believe anything, as it is their nature. I always try to be positive and to > see the good, so I am going to be a believer. I even tried to tell myself > that I needed to not believe too much in the beginning and look at the other > treatments in a rational way...so I did not lead my son the wrong way. A > few people's stories on this website are too incredible to ignore. Yes, > some people might be helped by avonex or the other drugs, but to begin with > it is more toxic than this drug. So why not go with the less toxic drug.> > Actually, I am asking a favor of those who know more. Can anyone explain > the other drugs, side effects, and how they work. I would like my son to > read that as he wants to do ldn, but does not know anything about the other > choices. I think he would feel better knowing about the other drugs.> > Thanks again to everyone on this website. You have all been so helpful, > encouraging, and I thank God that we heard about LDN, and this website and > its members.> > Conni--Connie,I've had MS for almost 18 years. In that time I've used Avonex - 3 yrs., Copaxone - 3 yrs. and Novantrone - 5 treatments. The Avonex caused a terrible reaction when I first started. I thought I had the flu. Fever, chills, aches, etc. This would last a couple of days. By the time I recovered it would be time for my next shot. Avonex is taken once a week as an injection into the muscle. I had to have the nurse give it to me for first few months because I just didn't have the guts to stick myself. After awhile she taught me to do it myself but it was never easy. I had to psyche myself up for it. It hurt and I hated every minute being on the stuff. It caused depression and loss of libido and didn't do a thing to slow or halt the MS progression. My neurologist switched me over to Copaxone because I had developed antibodies rendering interferon meds useless in me.The Copaxone shot was a piece of cake compared to Avonex. The only bad reaction was at the injection site. Slightly irritated and red. Went away quickly. But while I was using Copaxone I kept having to go back to my neurologist for IV steroid treatments (solumedrol) which were usually followed by two weeks of oral Prednisone. I had so many of these I lost count and my bones and who knows what else have paid the price. Nasty stuff steroids are and it lost it's positive effect it used to have in me. During this time I was started on Novantrone to take along with Copaxone.The Novantrone is administered via IV. Takes approx. 4 hours. Very long process. It's done every three months and one must stop using it forever after two years, in some cases three. It is a very potent and dangerous chemotherapy as it can cause heart failure and leukemia. I stopped the treatments at five because they were making me very ill and not stopping the MS progression. It was around this time I decided on LDN.It took a lot of courage and desperation but I have been using since March 2005. LDN is not the entire solution but through proper diet, a good combo of rest and exercise, vitamins and supplements along with LDN I think this is a better route to follow if one has MS. I would not recommend the CRAB drugs to anyone.This is just my story and opinion and your son has to do what he thinks is best for him. I wish him good luckArt Hansenrtee54 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2006 Report Share Posted September 1, 2006 Hi -- regarding healthy eating, I think Weil's book Healthy Aging is helpful. -- Robin Quote Link to comment Share on other sites More sharing options...
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