Re: Sarting my third year on LDN

[Guest guest]

Fantastic and encouraging news!!!>> > > Hi everyone, > I am coming out of my hole today to tell everyone that it has been two years > on LDN. From day one the MS has not progressed at all. Before I started I > was slowly going downhill each and every day. I am stronger, do not lose > balance as much as I was before. I just feel so much better. > I feel like I was lead to this site. > My doctor would not even read the information and it so I had to get it from > somewhere else and I am glad that I did. > Love and Hugs> CJ> Friends are angels who lift us to our feet> when our wings have trouble remembering how to fly>

[Guest guest]

>

> Thanks for the encouraging report on LDN .....I have been reading

the emails since about the first of the month. This is my first

response to anything....I have been trying to learn as much as

possible. I am coming out of my hole!!

This past week I decided to give LDN a try. I got my neurologist to

write me an Rx and I have called the local compounding

pharmacy...they said they have been filling LDN for a long time.

This is a big decision for me....I am very much anti drugs. I was

diagnosed with MS in 1990. There were NO medications then; so I took

what I would call the " natural approach " .....alternative medicine

type. I had a severe attack in 1990....was hospitalized and had

paralysis from the neck down......lost all use of my arms and hands.

I have done better on no drugs than 90% of my neuro's patients on

the CRAB drugs. He is a s Hopkins doc and professor with a very

large practice. He is probably a bit skeptical of the LDN, but he is

open minded. I won't start the LDN for a couple weeks because I

always seem to have unusual reactions to any medication....usually

either adverse or reverse of what is expected.

I would appreciate anything that anyone has to offer in regards to

starting LDN. Thanks to everyone in the group for all the info that

they have circulated!!! nancy

>

> Hi everyone,

> I am coming out of my hole today to tell everyone that it has

been two years

> on LDN. From day one the MS has not progressed at all. Before I

started I

> was slowly going downhill each and every day. I am stronger, do

not lose

> balance as much as I was before. I just feel so much better.

> I feel like I was lead to this site.

> My doctor would not even read the information and it so I had to

get it from

> somewhere else and I am glad that I did.

> Love and Hugs

> CJ

> Friends are angels who lift us to our feet

> when our wings have trouble remembering how to fly

>

[Guest guest]

Congratulations on finding an " endangered species " -- an open-minded

neuro!

I have a suggestion. Since you are so sensitive to medications, maybe

you should start with the liquid LDN. That way sensitivity to the

filler will not be a factor. It would also allow you to start with a

tiny dose and increase it as you are able.

Welcome to the group!

> >

> > Thanks for the encouraging report on LDN .....I have been

reading

> the emails since about the first of the month. This is my first

> response to anything....I have been trying to learn as much as

> possible. I am coming out of my hole!!

> This past week I decided to give LDN a try. I got my neurologist to

> write me an Rx and I have called the local compounding

> pharmacy...they said they have been filling LDN for a long time.

> This is a big decision for me....I am very much anti drugs. I was

> diagnosed with MS in 1990. There were NO medications then; so I

took

> what I would call the " natural approach " .....alternative medicine

> type. I had a severe attack in 1990....was hospitalized and had

> paralysis from the neck down......lost all use of my arms and

hands.

> I have done better on no drugs than 90% of my neuro's patients on

> the CRAB drugs. He is a s Hopkins doc and professor with a very

> large practice. He is probably a bit skeptical of the LDN, but he

is

> open minded. I won't start the LDN for a couple weeks because I

> always seem to have unusual reactions to any medication....usually

> either adverse or reverse of what is expected.

> I would appreciate anything that anyone has to offer in regards to

> starting LDN. Thanks to everyone in the group for all the info that

> they have circulated!!! nancy

> >

[Guest guest]

Okay, I have been reading about how everyone seems to start on 1.5

mg. of LDN. I am going on my six month of LDN and for the past month

I have been on 4.5, the first 4 months I started at 3 mg. I say

started! No problems at all with 3 mg. Now that I am on 4.5, I

at first had awful heartburn...but it has calmed now, but I am

waking up about 3:00 a.m. every morning and sometimes a couple times

earlier, but go back to sleep. Also, my appetite has been unreal

and the dreams are there but that is kind of fun. Nothing bad,

except all the snake dreams at first, but they are gone. LOL! I

can't believe how hungry I am all the time. Anyway, maybe I was

better at 3 mg. and should go back. I don't know. How can I tell?

As far as my MS, I feel fantastic! Really I do! It is so great.

And the MS seems better at 4.5. Oh what to do? Okay just wanted a

bit of feedback.

Thanks all!

Peace! Stay Strong, Stay Well! Donna

www.freewebs.com/lovelaugh/

> >

> > Thanks for the encouraging report on LDN .....I have been

reading

> the emails since about the first of the month. This is my first

> response to anything....I have been trying to learn as much as

> possible. I am coming out of my hole!!

> This past week I decided to give LDN a try. I got my neurologist

to

> write me an Rx and I have called the local compounding

> pharmacy...they said they have been filling LDN for a long time.

> This is a big decision for me....I am very much anti drugs. I was

> diagnosed with MS in 1990. There were NO medications then; so I

took

> what I would call the " natural approach " .....alternative medicine

> type. I had a severe attack in 1990....was hospitalized and had

> paralysis from the neck down......lost all use of my arms and

hands.

> I have done better on no drugs than 90% of my neuro's patients on

> the CRAB drugs. He is a s Hopkins doc and professor with a

very

> large practice. He is probably a bit skeptical of the LDN, but he

is

> open minded. I won't start the LDN for a couple weeks because I

> always seem to have unusual reactions to any

medication....usually

> either adverse or reverse of what is expected.

> I would appreciate anything that anyone has to offer in regards

to

> starting LDN. Thanks to everyone in the group for all the info

that

> they have circulated!!! nancy

> >

> > Hi everyone,

> > I am coming out of my hole today to tell everyone that it has

> been two years

> > on LDN. From day one the MS has not progressed at all. Before I

> started I

> > was slowly going downhill each and every day. I am stronger, do

> not lose

> > balance as much as I was before. I just feel so much better.

> > I feel like I was lead to this site.

> > My doctor would not even read the information and it so I had

to

> get it from

> > somewhere else and I am glad that I did.

> > Love and Hugs

> > CJ

> > Friends are angels who lift us to our feet

> > when our wings have trouble remembering how to fly

> >

>

[Guest guest]

Hi nn,

Do you have any idea what the difference would be in the capsules?

Do you think that they measure incorrectly? Or do you think that it

is the filler? I thought that acidophilus would be a good filler???

I felt that it would be important to use a really good pharmacy. It

sounds like a lot of those in this group use Skip's....

Can the weather... ex. heat and humidity...affect the capsules?

Thanks, nancy

> >>

> >> Thanks for the encouraging report on LDN .....I have been

reading

> > the emails since about the first of the month. This is my first

> > response to anything....I have been trying to learn as much as

> > possible. I am coming out of my hole!!

> > This past week I decided to give LDN a try. I got my neurologist

to

> > write me an Rx and I have called the local compounding

> > pharmacy...they said they have been filling LDN for a long time.

> > This is a big decision for me....I am very much anti drugs. I was

> > diagnosed with MS in 1990. There were NO medications then; so I

took

> > what I would call the " natural approach " .....alternative medicine

> > type. I had a severe attack in 1990....was hospitalized and had

> > paralysis from the neck down......lost all use of my arms and

hands.

> > I have done better on no drugs than 90% of my neuro's patients on

> > the CRAB drugs. He is a s Hopkins doc and professor with a

very

> > large practice. He is probably a bit skeptical of the LDN, but

he is

> > open minded. I won't start the LDN for a couple weeks because I

> > always seem to have unusual reactions to any

medication....usually

> > either adverse or reverse of what is expected.

> > I would appreciate anything that anyone has to offer in regards

to

> > starting LDN. Thanks to everyone in the group for all the info

that

> > they have circulated!!! nancy

> >>

> >> Hi everyone,

> >> I am coming out of my hole today to tell everyone that it has

> > been two years

> >> on LDN. From day one the MS has not progressed at all.

Before I

> > started I

> >> was slowly going downhill each and every day. I am stronger,

do

> > not lose

> >> balance as much as I was before. I just feel so much better.

> >> I feel like I was lead to this site.

> >> My doctor would not even read the information and it so I had

to

> > get it from

> >> somewhere else and I am glad that I did.

> >> Love and Hugs

> >> CJ

> >> Friends are angels who lift us to our feet

> >> when our wings have trouble remembering how to fly

> >>

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Thanks....for the welcome and info.

My " endangered species " did think of the dosage ...he wrote the Rx

for 1.5 mg for 30 days, 3.0 mg for the next 30 days, and 4.5 mg for

month three. I thought that was a good idea. He always says that if

something strange is going to happen to one of his MS patients...it

will be me that it happens to!!

I take it that everyone is not so lucky in finding open-minded

neuros???

Does the filler cause a lot of problems? I saw that it said stay

away from calcium carbonate?? Since I take acidophilus anyway, I was

going to opt for that.....? If you think it is a problem, maybe I

will consider the liquid.

I am still somewhat puzzled as to how such a low dose of a drug

could cause some problems...it seems almost homeopathic!!! It was

the low dose and the fact that it increases natural endorphins that

sold me on it... thanks, nancy

> > >

> > > Thanks for the encouraging report on LDN .....I have been

> reading

> > the emails since about the first of the month. This is my first

> > response to anything....I have been trying to learn as much as

> > possible. I am coming out of my hole!!

> > This past week I decided to give LDN a try. I got my neurologist

to

> > write me an Rx and I have called the local compounding

> > pharmacy...they said they have been filling LDN for a long time.

> > This is a big decision for me....I am very much anti drugs. I

was

> > diagnosed with MS in 1990. There were NO medications then; so I

> took

> > what I would call the " natural approach " .....alternative

medicine

> > type. I had a severe attack in 1990....was hospitalized and had

> > paralysis from the neck down......lost all use of my arms and

> hands.

> > I have done better on no drugs than 90% of my neuro's patients

on

> > the CRAB drugs. He is a s Hopkins doc and professor with a

very

> > large practice. He is probably a bit skeptical of the LDN, but

he

> is

> > open minded. I won't start the LDN for a couple weeks because I

> > always seem to have unusual reactions to any

medication....usually

> > either adverse or reverse of what is expected.

> > I would appreciate anything that anyone has to offer in regards

to

> > starting LDN. Thanks to everyone in the group for all the info

that

> > they have circulated!!! nancy

> > >

>

[Guest guest]

-Kathy,

I agree with the minimal theory. So, do you think if I see a

difference on 3.0 mg, I should stay at 3.0 mg for whatever period of

time that I feel that there is some improvement? As you can see, I

am planning on improvement!! nancy

-- In low dose naltrexone , " Kathy Lintzenich "

<mykittypaws@...> wrote:

>

> I would definitely start with 1.5 LDN the first month and then go

to 3.0. I had vivid dreams and stayed up till about 2:00 the first

night. After that, I slept like a baby and no problems. Take the

least dosage required to mange the ms. One day you may need to bump

it up to 4.5 but don't rush it if you halt the progression at 3.0. I

always think we should keep things as minimal and simple as possible

to achieve desired response. Kathy

> [low dose naltrexone] Re: Sarting my third year on LDN

>

>

>

> >

> > Thanks for the encouraging report on LDN .....I have been

reading

> the emails since about the first of the month. This is my first

> response to anything....I have been trying to learn as much as

> possible. I am coming out of my hole!!

> This past week I decided to give LDN a try. I got my neurologist

to

> write me an Rx and I have called the local compounding

> pharmacy...they said they have been filling LDN for a long time.

> This is a big decision for me....I am very much anti drugs. I

was

> diagnosed with MS in 1990. There were NO medications then; so I

took

> what I would call the " natural approach " .....alternative

medicine

> type. I had a severe attack in 1990....was hospitalized and had

> paralysis from the neck down......lost all use of my arms and

hands.

> I have done better on no drugs than 90% of my neuro's patients

on

> the CRAB drugs. He is a s Hopkins doc and professor with a

very

> large practice. He is probably a bit skeptical of the LDN, but

he is

> open minded. I won't start the LDN for a couple weeks because I

> always seem to have unusual reactions to any

medication....usually

> either adverse or reverse of what is expected.

> I would appreciate anything that anyone has to offer in regards

to

> starting LDN. Thanks to everyone in the group for all the info

that

> they have circulated!!! nancy

> >

> > Hi everyone,

> > I am coming out of my hole today to tell everyone that it has

> been two years

> > on LDN. From day one the MS has not progressed at all. Before

I

> started I

> > was slowly going downhill each and every day. I am stronger,

do

> not lose

> > balance as much as I was before. I just feel so much better.

> > I feel like I was lead to this site.

> > My doctor would not even read the information and it so I had

to

> get it from

> > somewhere else and I am glad that I did.

> > Love and Hugs

> > CJ

> > Friends are angels who lift us to our feet

> > when our wings have trouble remembering how to fly

> >

>

[Guest guest]

-I really hope that you are kidding about the snake dreams!!???

Everyone mentions the vivid dreams....does anyone have an idea what

would cause the LDN to affect dreams? nancy

-- In low dose naltrexone , " doofus117 " <doofus117@...>

wrote:

>

> Okay, I have been reading about how everyone seems to start on

1.5

> mg. of LDN. I am going on my six month of LDN and for the past

month

> I have been on 4.5, the first 4 months I started at 3 mg. I say

> started! No problems at all with 3 mg. Now that I am on 4.5,

I

> at first had awful heartburn...but it has calmed now, but I am

> waking up about 3:00 a.m. every morning and sometimes a couple

times

> earlier, but go back to sleep. Also, my appetite has been unreal

> and the dreams are there but that is kind of fun. Nothing bad,

> except all the snake dreams at first, but they are gone. LOL!

I

> can't believe how hungry I am all the time. Anyway, maybe I was

> better at 3 mg. and should go back. I don't know. How can I

tell?

> As far as my MS, I feel fantastic! Really I do! It is so great.

> And the MS seems better at 4.5. Oh what to do? Okay just wanted a

> bit of feedback.

> Thanks all!

> Peace! Stay Strong, Stay Well! Donna

>

> www.freewebs.com/lovelaugh/

>

>

>

>

>

>

>

>

> > >

> > > Thanks for the encouraging report on LDN .....I have been

> reading

> > the emails since about the first of the month. This is my

first

> > response to anything....I have been trying to learn as much as

> > possible. I am coming out of my hole!!

> > This past week I decided to give LDN a try. I got my

neurologist

> to

> > write me an Rx and I have called the local compounding

> > pharmacy...they said they have been filling LDN for a long

time.

> > This is a big decision for me....I am very much anti drugs. I

was

> > diagnosed with MS in 1990. There were NO medications then; so

I

> took

> > what I would call the " natural approach " .....alternative

medicine

> > type. I had a severe attack in 1990....was hospitalized and

had

> > paralysis from the neck down......lost all use of my arms and

> hands.

> > I have done better on no drugs than 90% of my neuro's patients

on

> > the CRAB drugs. He is a s Hopkins doc and professor with a

> very

> > large practice. He is probably a bit skeptical of the LDN, but

he

> is

> > open minded. I won't start the LDN for a couple weeks because

I

> > always seem to have unusual reactions to any

> medication....usually

> > either adverse or reverse of what is expected.

> > I would appreciate anything that anyone has to offer in

regards

> to

> > starting LDN. Thanks to everyone in the group for all the info

> that

> > they have circulated!!! nancy

> > >

> > > Hi everyone,

> > > I am coming out of my hole today to tell everyone that it

has

> > been two years

> > > on LDN. From day one the MS has not progressed at all.

Before I

> > started I

> > > was slowly going downhill each and every day. I am stronger,

do

> > not lose

> > > balance as much as I was before. I just feel so much better.

> > > I feel like I was lead to this site.

> > > My doctor would not even read the information and it so I

had

> to

> > get it from

> > > somewhere else and I am glad that I did.

> > > Love and Hugs

> > > CJ

> > > Friends are angels who lift us to our feet

> > > when our wings have trouble remembering how to fly

> > >

> >

>

[Guest guest]

-Hi Aletha,

I would love a copy of the " welcome email " .....are you the

monitor...group chairman? I remember reading alot of emails from

you, but I am not used to groups like this...it is my first. nancy

-- In low dose naltrexone , " Aletha Wittmann "

<Aletha@...> wrote:

>

> Hi ,

>

> Have I already sent you a copy of the " welcome e-mail " for LDN and

MS?

>

> If not, and you would like a copy just let me know.

>

> Thanks

> Aletha

> [low dose naltrexone] Re: Sarting my third year on LDN

>

>

> >

> >>

> >> Thanks for the encouraging report on LDN .....I have been

reading

> > the emails since about the first of the month. This is my first

> > response to anything....I have been trying to learn as much as

> > possible. I am coming out of my hole!!

> > This past week I decided to give LDN a try. I got my neurologist

to

> > write me an Rx and I have called the local compounding

> > pharmacy...they said they have been filling LDN for a long time.

> > This is a big decision for me....I am very much anti drugs. I

was

> > diagnosed with MS in 1990. There were NO medications then; so I

took

> > what I would call the " natural approach " .....alternative

medicine

> > type. I had a severe attack in 1990....was hospitalized and had

> > paralysis from the neck down......lost all use of my arms and

hands.

> > I have done better on no drugs than 90% of my neuro's patients

on

> > the CRAB drugs. He is a s Hopkins doc and professor with a

very

> > large practice. He is probably a bit skeptical of the LDN, but

he is

> > open minded. I won't start the LDN for a couple weeks because I

> > always seem to have unusual reactions to any

medication....usually

> > either adverse or reverse of what is expected.

> > I would appreciate anything that anyone has to offer in regards

to

> > starting LDN. Thanks to everyone in the group for all the info

that

> > they have circulated!!! nancy

> >>

> >> Hi everyone,

> >> I am coming out of my hole today to tell everyone that it has

> > been two years

> >> on LDN. From day one the MS has not progressed at all.

Before I

> > started I

> >> was slowly going downhill each and every day. I am stronger,

do

> > not lose

> >> balance as much as I was before. I just feel so much better.

> >> I feel like I was lead to this site.

> >> My doctor would not even read the information and it so I had

to

> > get it from

> >> somewhere else and I am glad that I did.

> >> Love and Hugs

> >> CJ

> >> Friends are angels who lift us to our feet

> >> when our wings have trouble remembering how to fly

> >>

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

--Thanks Kathy...That sounds like a good plan. Do many others stop

at 3.0 mg, or do most go on to the 4.5mg? Have you ever taken one of

the CRABs? nancy

- In low dose naltrexone , " Kathy Lintzenich "

<mykittypaws@...> wrote:

>

> , I have stayed at 3.0. I asked Skip one time when I had a

little increase in symptoms if I should go higher and he said " Wait,

one day you might need the 4.5 " . I never pursued it with a question.

I just always like to have an alternate plan for my ms that doesn't

include one of the CRABS. Best wishes, Kathy

> [low dose naltrexone] Re: Sarting my third year on LDN

> >

> >

> >

> > >

> > > Thanks for the encouraging report on LDN .....I have been

> reading

> > the emails since about the first of the month. This is my

first

> > response to anything....I have been trying to learn as much as

> > possible. I am coming out of my hole!!

> > This past week I decided to give LDN a try. I got my

neurologist

> to

> > write me an Rx and I have called the local compounding

> > pharmacy...they said they have been filling LDN for a long

time.

> > This is a big decision for me....I am very much anti drugs. I

> was

> > diagnosed with MS in 1990. There were NO medications then; so

I

> took

> > what I would call the " natural approach " .....alternative

> medicine

> > type. I had a severe attack in 1990....was hospitalized and

had

> > paralysis from the neck down......lost all use of my arms and

> hands.

> > I have done better on no drugs than 90% of my neuro's patients

> on

> > the CRAB drugs. He is a s Hopkins doc and professor with a

> very

> > large practice. He is probably a bit skeptical of the LDN, but

> he is

> > open minded. I won't start the LDN for a couple weeks because

I

> > always seem to have unusual reactions to any

> medication....usually

> > either adverse or reverse of what is expected.

> > I would appreciate anything that anyone has to offer in

regards

> to

> > starting LDN. Thanks to everyone in the group for all the info

> that

> > they have circulated!!! nancy

> > >

> > > Hi everyone,

> > > I am coming out of my hole today to tell everyone that it

has

> > been two years

> > > on LDN. From day one the MS has not progressed at all.

Before

> I

> > started I

> > > was slowly going downhill each and every day. I am stronger,

> do

> > not lose

> > > balance as much as I was before. I just feel so much better.

> > > I feel like I was lead to this site.

> > > My doctor would not even read the information and it so I

had

> to

> > get it from

> > > somewhere else and I am glad that I did.

> > > Love and Hugs

> > > CJ

> > > Friends are angels who lift us to our feet

> > > when our wings have trouble remembering how to fly

> > >

> >

>

[Guest guest]

I am speechless...! I have never heard that before.... " you don't

dream as often when you are not healthy " ...that would explain why I

don't dream as much anymore, and no exciting dreams. I really miss

flying in my dreams....haven't flown for years!! I thought it just

had to do with REM sleep etc. I can't wait to see if I start

dreaming more....nancy

> > > >

> > > > Thanks for the encouraging report on LDN .....I have been

> > reading

> > > the emails since about the first of the month. This is my

> first

> > > response to anything....I have been trying to learn as much

as

> > > possible. I am coming out of my hole!!

> > > This past week I decided to give LDN a try. I got my

> neurologist

> > to

> > > write me an Rx and I have called the local compounding

> > > pharmacy...they said they have been filling LDN for a long

> time.

> > > This is a big decision for me....I am very much anti drugs.

I

> was

> > > diagnosed with MS in 1990. There were NO medications then;

so

> I

> > took

> > > what I would call the " natural approach " .....alternative

> medicine

> > > type. I had a severe attack in 1990....was hospitalized and

> had

> > > paralysis from the neck down......lost all use of my arms

and

> > hands.

> > > I have done better on no drugs than 90% of my neuro's

patients

> on

> > > the CRAB drugs. He is a s Hopkins doc and professor with

a

> > very

> > > large practice. He is probably a bit skeptical of the LDN,

but

> he

> > is

> > > open minded. I won't start the LDN for a couple weeks

because

> I

> > > always seem to have unusual reactions to any

> > medication....usually

> > > either adverse or reverse of what is expected.

> > > I would appreciate anything that anyone has to offer in

> regards

> > to

> > > starting LDN. Thanks to everyone in the group for all the

info

> > that

> > > they have circulated!!! nancy

> > > >

> > > > Hi everyone,

> > > > I am coming out of my hole today to tell everyone that it

> has

> > > been two years

> > > > on LDN. From day one the MS has not progressed at all.

> Before I

> > > started I

> > > > was slowly going downhill each and every day. I am

stronger,

> do

> > > not lose

> > > > balance as much as I was before. I just feel so much

better.

> > > > I feel like I was lead to this site.

> > > > My doctor would not even read the information and it so I

> had

> > to

> > > get it from

> > > > somewhere else and I am glad that I did.

> > > > Love and Hugs

> > > > CJ

> > > > Friends are angels who lift us to our feet

> > > > when our wings have trouble remembering how to fly

> > > >

> > >

> >

>

[Guest guest]

---Cyndi,

What determines if it is immediate release? Is the filler the only

determining factor? nancy

In low dose naltrexone , psychrn@... wrote:

>

> you really need to take the capsule form that is the best. ask for

advicil. it hypoallogenic. the deal is it has to be immediate

release.

> cyndi

>

>

> [low dose naltrexone] Re: Sarting my third year on LDN

> >

> >Thanks....for the welcome and info.

> >My " endangered species " did think of the dosage ...he wrote the

Rx

> >for 1.5 mg for 30 days, 3.0 mg for the next 30 days, and 4.5 mg

for

> >month three. I thought that was a good idea. He always says that

if

> >something strange is going to happen to one of his MS

patients...it

> >will be me that it happens to!!

> >I take it that everyone is not so lucky in finding open-minded

> >neuros???

> >Does the filler cause a lot of problems? I saw that it said stay

> >away from calcium carbonate?? Since I take acidophilus anyway, I

was

> >going to opt for that.....? If you think it is a problem, maybe I

> >will consider the liquid.

> >I am still somewhat puzzled as to how such a low dose of a drug

> >could cause some problems...it seems almost homeopathic!!! It was

> >the low dose and the fact that it increases natural endorphins

that

> >sold me on it... thanks, nancy

> >

> >> > >

> >> > > Thanks for the encouraging report on LDN .....I have been

> >> reading

> >> > the emails since about the first of the month. This is my

first

> >> > response to anything....I have been trying to learn as much

as

> >> > possible. I am coming out of my hole!!

> >> > This past week I decided to give LDN a try. I got my

neurologist

> >to

> >> > write me an Rx and I have called the local compounding

> >> > pharmacy...they said they have been filling LDN for a long

time.

> >> > This is a big decision for me....I am very much anti drugs. I

> >was

> >> > diagnosed with MS in 1990. There were NO medications then; so

I

> >> took

> >> > what I would call the " natural approach " .....alternative

> >medicine

> >> > type. I had a severe attack in 1990....was hospitalized and

had

> >> > paralysis from the neck down......lost all use of my arms and

> >> hands.

> >> > I have done better on no drugs than 90% of my neuro's

patients

> >on

> >> > the CRAB drugs. He is a s Hopkins doc and professor with

a

> >very

> >> > large practice. He is probably a bit skeptical of the LDN,

but

> >he

> >> is

> >> > open minded. I won't start the LDN for a couple weeks because

I

> >> > always seem to have unusual reactions to any

> >medication....usually

> >> > either adverse or reverse of what is expected.

> >> > I would appreciate anything that anyone has to offer in

regards

> >to

> >> > starting LDN. Thanks to everyone in the group for all the

info

> >that

> >> > they have circulated!!! nancy

> >> > >

> >>

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

-Kathy,

Thanks for the dosage answer. Others have replied with similar

answers. I think that I will just play it by how I react to the LDN.

I am interested in your calcium injections. I have never heard of

this. Would you mind giving me some info as to the background and

theory etc? I have made it all these years on a variety of vitamins

and supplements etc., with heavy emphasis on fatty acids.

nancy

-

- In low dose naltrexone , " Kathy Lintzenich "

<mykittypaws@...> wrote:

>

> There is no general rule as to who gets what dose. It seems to

differ for everyone. I took 4.5 two nights in a row and yikes! I

felt weird so it seems my body likes the 3.0. No, I have never taken

a CRAB and started my journey back to good health with injectible

calcium EAP. When my veins got a little fragile after 6 years of

injections, I cut back and started taking LDN in 11/03. It took

about 3 months to kick in. Now I do EAP whenever I need a boost and

take LDN each night. Best, Kathy

> [low dose naltrexone] Re: Sarting my third year on LDN

> > >

> > >

> > >

> > > >

> > > > Thanks for the encouraging report on LDN .....I have been

> > reading

> > > the emails since about the first of the month. This is my

> first

> > > response to anything....I have been trying to learn as much

as

> > > possible. I am coming out of my hole!!

> > > This past week I decided to give LDN a try. I got my

> neurologist

> > to

> > > write me an Rx and I have called the local compounding

> > > pharmacy...they said they have been filling LDN for a long

> time.

> > > This is a big decision for me....I am very much anti drugs.

I

> > was

> > > diagnosed with MS in 1990. There were NO medications then;

so

> I

> > took

> > > what I would call the " natural approach " .....alternative

> > medicine

> > > type. I had a severe attack in 1990....was hospitalized and

> had

> > > paralysis from the neck down......lost all use of my arms

and

> > hands.

> > > I have done better on no drugs than 90% of my neuro's

patients

> > on

> > > the CRAB drugs. He is a s Hopkins doc and professor with

a

> > very

> > > large practice. He is probably a bit skeptical of the LDN,

but

> > he is

> > > open minded. I won't start the LDN for a couple weeks

because

> I

> > > always seem to have unusual reactions to any

> > medication....usually

> > > either adverse or reverse of what is expected.

> > > I would appreciate anything that anyone has to offer in

> regards

> > to

> > > starting LDN. Thanks to everyone in the group for all the

info

> > that

> > > they have circulated!!! nancy

> > > >

> > > > Hi everyone,

> > > > I am coming out of my hole today to tell everyone that it

> has

> > > been two years

> > > > on LDN. From day one the MS has not progressed at all.

> Before

> > I

> > > started I

> > > > was slowly going downhill each and every day. I am

stronger,

> > do

> > > not lose

> > > > balance as much as I was before. I just feel so much

better.

> > > > I feel like I was lead to this site.

> > > > My doctor would not even read the information and it so I

> had

> > to

> > > get it from

> > > > somewhere else and I am glad that I did.

> > > > Love and Hugs

> > > > CJ

> > > > Friends are angels who lift us to our feet

> > > > when our wings have trouble remembering how to fly

> > > >

> > >

> >

>