Re: I've been on LDN for 5 months, and have had a major exacerbation

August 3, 2006

My neurologist suggested that if there was any progression I might want to add Copaxone. But not discontinue the LDN. It is an option for all of us.

Joyce

August 4, 2006

Sorry to hear that. Is he the one that prescribed the LDN for you, where was it being made?>> Hello everyone,> > > > I am been on LDN for 5 months (4.5 mg), and initially I felt wonderful. I> almost felt like a "normal" person! For the past 2 weeks, I have been very> tired, much more so than usual, but not completely down and out. I didn't> have any MS symptoms other than exhaustion, and my walking/balance was just> a bit off, which I attributed to being tired. My husband badgered me to go> to the neurologist, who ordered an MRI "just to be safe". I fully expected> it to show nothing; I was wrong. I have some new lesions (!), and some old> ones acting up. My neurologist told me that this was/is a major attack, and> wants to put me on different medication, as LDN isn't working for me.

August 4, 2006

Yes, this neurologist prescribed the LDN

for me. I had my LDN compounded at a pharmacy that is using the correct

fillers, not slow-release, etc.

From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of frito_banned_ito

Sent: Thursday, August 03, 2006 7:26 PM

low dose naltrexone

Subject: [low dose naltrexone] Re:

I've been on LDN for 5 months, and have had a major exacerbation

Sorry to

hear that. Is he the one that prescribed the LDN for you, where was it being

made?

>

> Hello everyone,

>

> I am been on LDN for 5 months (4.5 mg), and initially I felt wonderful. I

> almost felt like a " normal " person! For the past 2 weeks, I have

been very

> tired, much more so than usual, but not completely down and out. I didn't

> have any MS symptoms other than exhaustion, and my walking/balance was

just

> a bit off, which I attributed to being tired. My husband badgered me to go

> to the neurologist, who ordered an MRI

" just to be safe " . I fully expected

> it to show nothing; I was wrong. I have some new lesions (!), and some old

> ones acting up. My neurologist told me that this was/is a major attack,

and

> wants to put me on different medication, as LDN isn't working for me.

August 4, 2006

,

What dosage are you taking? What company are you getting your LDN from? Have you checked for Candida?

I hope things get better. I would not give up on LDN as of yet. But of course you must go with what your gut instinct tells you.

We are all here for you

Aletha

RE: [low dose naltrexone] Re: I've been on LDN for 5 months, and have had a major exacerbation

Yes, this neurologist prescribed the LDN for me. I had my LDN compounded at a pharmacy that is using the correct fillers, not slow-release, etc.

From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of frito_banned_itoSent: Thursday, August 03, 2006 7:26 PMlow dose naltrexone Subject: [low dose naltrexone] Re: I've been on LDN for 5 months, and have had a major exacerbation

Sorry to hear that. Is he the one that prescribed the LDN for you, where was it being made?>> Hello everyone,> > > > I am been on LDN for 5 months (4.5 mg), and initially I felt wonderful. I> almost felt like a "normal" person! For the past 2 weeks, I have been very> tired, much more so than usual, but not completely down and out. I didn't> have any MS symptoms other than exhaustion, and my walking/balance was just> a bit off, which I attributed to being tired. My husband badgered me to go> to the neurologist, who ordered an MRI "just to be safe". I fully expected> it to show nothing; I was wrong. I have some new lesions (!), and some old> ones acting up. My neurologist told me that this was/is a major attack, and> wants to put me on different medication, as LDN isn't working for me.

August 4, 2006

I take 4.5 mg nightly. I get my LDN from

Nature’s Pharmacy in Ohio.

I have done the “spit test” for Candida, and it was normal (no “legs”).

Thanks for your support,

Jen

From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Aletha Wittmann

Sent: Thursday, August 03, 2006 8:13 PM

low dose naltrexone

Subject: Re: [low dose naltrexone]

Re: I've been on LDN for 5 months, and have had a major exacerbation

,

What dosage are you taking? What company are you

getting your LDN from? Have you checked for Candida?

I hope things get better. I would not give up on LDN

as of yet. But of course you must go with what your gut instinct tells

you.

We are all here for you

Aletha

[low dose naltrexone] Re:

I've been on LDN for 5 months, and have had a major exacerbation

Sorry to hear

that. Is he the one that prescribed the LDN for you, where was it being made?

>

> Hello everyone,

>

> I am been on LDN for 5 months (4.5 mg), and initially I felt wonderful. I

> almost felt like a " normal " person! For the past 2 weeks, I have

been very

> tired, much more so than usual, but not completely down and out. I didn't

> have any MS symptoms other than exhaustion, and my walking/balance was

just

> a bit off, which I attributed to being tired. My husband badgered me to go

> to the neurologist, who ordered an MRI

" just to be safe " . I fully expected

> it to show nothing; I was wrong. I have some new lesions (!), and some old

> ones acting up. My neurologist told me that this was/is a major attack,

and

> wants to put me on different medication, as LDN isn't working for me.

August 4, 2006

It's probably just me, but I'm just not sure I would rely on the MRI too much, (or even your neuro!!) It has been incredibly hot this summer, there may be other factors involved for you like stress, etc. If it were me, I would stick with the LDN and maybe look into other supplements that you could be using. Perhaps a phone call to Skip or even Dr. Bihari. There have been days for me when I felt like I should be doing something else, but have stuck with the LDN, it hasnt let me down yet.>> Yes, this neurologist prescribed the LDN for me. I had my LDN compounded at> a pharmacy that is using the correct fillers, not slow-release, etc.> > > > _____ > > From: low dose naltrexone > [mailto:low dose naltrexone ] On Behalf Of frito_banned_ito> Sent: Thursday, August 03, 2006 7:26 PM> low dose naltrexone > Subject: [low dose naltrexone] Re: I've been on LDN for 5 months, and have had> a major exacerbation

August 4, 2006

>

> I take 4.5 mg nightly. I get my LDN from Nature's Pharmacy in Ohio. I have

> done the " spit test " for Candida, and it was normal (no " legs " ).

> Thanks for your support,

>

> Jen

=====

Jen,

If it were me I would use one of the reputable compounding pharmacies listed on

the LDN website. Just because your pharmacy compounds doesn't mean they're

doing it correctly. Try Irmat or Skips and see if you see a difference.

August 4, 2006

Some people here take LDN and Copaxone together. That may appease

your nero and you could stay on LDN. Also, in case you missed the

post by Mendoza regarding MRIs, here it is:

In regards to whether or not an MRI is accurate, I just have to share…

About a year ago, my husband and I went to a MS conference. A great

local doctor spoke basically about how we really know close to

nothing about MS and how it works and how to truly fight it. It was

so refreshing to finally see a doctor admit that! Anyway, he

was heavily involved in various research projects and shared some

great insight with us. The one thing that stood out STRONGLY was a

series of MRI pictures….He had MRIs taken each month for about a year

with a couple of different patients. In one patient, there was

relatively no change during the time, but you could see a couple of

lesions…they stayed basically the same. In the other patient, it

showed masses of lesions, then a month later, those ones cleared away

and nothing, then the next month lesions in different places, etc…it

was constant change. Then he explained that the first on was someone

who was fine and as the study progressed had additional problems and

exacerbations. The one who had so much change going on he explained

was someone who was having NO ACTIVE symptoms or any problems with

their MS in any way. Their situation stayed the same over the course

of the study! It was SHOCKING to us….I'm sure it would be to most

doctors I know, to tell you the truth! He pointed out that

basically, the brain is in constant change, MRIs can help with some

things, but they are entirely unreliable and we need a better

method. So now I don't really care what my MRI says. It was

helpful to lead to my MS diagnosis which was then confirmed by a

spinal tap, but now I just can't believe them. I know I feel better

since I began LDN last year and I know that all other potential drugs

for MS scare the * & %)*( out of me, so I plan to stay with LDN `till

there is a cure. In the meantime, I get a kick out of hearing about

the latest study or some new wonder drug….I believe that each needs

to find what works for them and we al need to have hope for a cure

someday. Other than that, I'm happy with my basically no-side-effect

LDN and encourage anyone considering it to give it a chance.

in Las Vegas

My neurologist told me that this was/is a major attack,

> and

> > wants to put me on different medication, as LDN isn't working for

me.

>

August 4, 2006

Thank you, .

I did miss the post by

Mendoza. Do you know what

conference she was referring to?

I feel so much better on LDN, and I really

don’t want to stop. I will try to get my LDN from Irmat’s or Skips, as

suggested. Is there any way I could find out for certain that my LDN was prepared

incorrectly (other than an exacerbation)? Do you think one of the recommended

pharmacies would check for me if I sent some of my LDN?

Thank you all for you help and support. I

really appreciate your kindness.

Jen

From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of perfectlysunnyday

Sent: Thursday, August 03, 2006 8:46 PM

low dose naltrexone

Subject: [low dose naltrexone] Re:

I've been on LDN for 5 months, and have had a major exacerbation

Some people here take LDN and Copaxone together. That

may appease

your nero and you could stay on LDN. Also, in case

you missed the

post by

Mendoza regarding MRIs, here it

is:

In regards to whether or not an MRI

is accurate, I just have to share…

About a year ago, my husband and I went to a MS conference. A great

local doctor spoke basically about how we really know close to

nothing about MS and how it works and how to truly fight it. It was

so refreshing to finally see a doctor admit that! Anyway, he

was heavily involved in various research projects and shared some

great insight with us. The one thing that stood out STRONGLY was a

series of MRI pictures….He

had MRIs taken each month for about a year