Re: Question about IV steroids and LDN

[Guest guest]

Hi Gayle,

Very sorry to hear the LDN doesn't seem to be helping at the moment and

not having MS myself can't answer your question on steroids. However,

seems to me that potentially your problem could be with the compounding

given that you say they are only using the tablets and not the powder.

To me that indicates somebody who probably doesn't do a lot of LDN and

may not be getting it right (see

http://www.low dose naltrexone.org/comp_pharm.htm ).

Have you tried using The Green Dispensary? (see

://www.greendispensary.com/ <http://www.greendispensary.com/>) Even

though they are in Adelaide and I'm in Melbourne I have used them for

about 2 years now for my LDN. My initial lots from a place over here in

Melbourne cost me about $170 for each 100 capsules (4.5mg). The Green

Dispensary charge $90 for the same thing and use naltrexone powder, far

better than crushing the tablets as that place and yours do. It then

costs $5 for acidophilus and $5 postage making it a round $100. They

typically arrive within 3 days or so of me ordering them and it used to

cost me a lot more than $5 in petrol to get to the other place to pick

them up! They also offer a variety of fillers.

Gayle wrote:

>Hi - this an old one I know but I need some help from someone who

>has the answere readily to hand

>

>I've been on LDN 3mg 3 months or so, possible improvement to bladder

>function; otherwise all downhill. This exascerbation is getting too

>much for me - I'm getting steadily more disabled. So with mixed

>feelings I'm heading for hospital and IV steroids tonight.

>

>Question 1 - Do I stop the LDN (until a couple of weeks after ending

>the steroids? Is that right?)

>

>A new compounding pharmacist has started in a pharmacy close to me

>(who can deliver!) I'd like to switch compounders, and take the

>opportunuity to make absolutely sure I have the right stuff being

>prepared for me. At present the Naltrexone tabs are held at the

>current compounding pharmacy -

>

>Question 2 - when I check all the info what do I need to know? About

>the naltrexone tablets - the brand? Or what? Also I'd like to

>absolutely sure I have the right fillers. (It's not slow release -

>that much I know).

>

>I can't deal with going through all the info right now. Thanks

>anyone who can help me out here.

>

>Gayle

>

>

[Guest guest]

, thanks for your reply. SOme of this I knew (the powder) and

had forgotten.

As it turns out , I'm not going to be going to the hospital until

Monday. I have a feeling the neurologist is less co-operative these

days - it's been nagging at me for a while that his attitude is

different since I started taking my treatment into my own hands.

Never mind -there are plenty of other neurologists in the area.

I have a follow up appointment with a Nutritional and Environmental

specialist doctor in a week. He seems open minded. I think I'll take

the LDN issue to him. I looked at the Green Dispensary website; it

looks like this might be the sort of dispensary this doctor would

use on a regular basis. Between that dispensary and this new doctor

I might be sure of geting it right. For now, it's just going to be a

case of getting through each day and hoping things don't get any

worse.

Nice hearing from you, .

Gayle

>

> >Hi - this an old one I know but I need some help from someone who

> >has the answere readily to hand

> >

> >I've been on LDN 3mg 3 months or so, possible improvement to

bladder

> >function; otherwise all downhill. This exascerbation is getting

too

> >much for me - I'm getting steadily more disabled. So with mixed

> >feelings I'm heading for hospital and IV steroids tonight.

> >

> >Question 1 - Do I stop the LDN (until a couple of weeks after

ending

> >the steroids? Is that right?)

> >

> >A new compounding pharmacist has started in a pharmacy close to

me

> >(who can deliver!) I'd like to switch compounders, and take the

> >opportunuity to make absolutely sure I have the right stuff being

> >prepared for me. At present the Naltrexone tabs are held at the

> >current compounding pharmacy -

> >

> >Question 2 - when I check all the info what do I need to know?

About

> >the naltrexone tablets - the brand? Or what? Also I'd like to

> >absolutely sure I have the right fillers. (It's not slow release -

> >that much I know).

> >

> >I can't deal with going through all the info right now. Thanks

> >anyone who can help me out here.

> >

> >Gayle

> >

> >

>

[Guest guest]

Gayle

you have two choices here

1. you can use one of approved pharmacies and have your ldn mailed to

you using pure naltrexone powder and the correct filler.

2. you can have this pharmacy call one of the approved pharmacies and

get correct directions. and ask him if he is willing to make it this

way.

cyndi

On Aug 11, 2006, at 12:22 AM, Gayle wrote:

> Hi - this an old one I know but I need some help from someone who

> has the answere readily to hand

>

> I've been on LDN 3mg 3 months or so, possible improvement to bladder

> function; otherwise all downhill. This exascerbation is getting too

> much for me - I'm getting steadily more disabled. So with mixed

> feelings I'm heading for hospital and IV steroids tonight.

>

> Question 1 - Do I stop the LDN (until a couple of weeks after ending

> the steroids? Is that right?)

>

> A new compounding pharmacist has started in a pharmacy close to me

> (who can deliver!) I'd like to switch compounders, and take the

> opportunuity to make absolutely sure I have the right stuff being

> prepared for me. At present the Naltrexone tabs are held at the

> current compounding pharmacy -

>

> Question 2 - when I check all the info what do I need to know? About

> the naltrexone tablets - the brand? Or what? Also I'd like to

> absolutely sure I have the right fillers. (It's not slow release -

> that much I know).

>

> I can't deal with going through all the info right now. Thanks

> anyone who can help me out here.

>

> Gayle

>

>

>

>

>

>

>

>

[Guest guest]

Gayle are you in america?

if you go here these are the pharmacies in America.

http://www.low dose naltrexone.org/

its a lot less money to buy from one of these pharmacies and you know

you'll get it correct.

you can also get it mailed by them

cyndi

On Aug 11, 2006, at 3:13 AM, Gayle wrote:

> , thanks for your reply. SOme of this I knew (the powder) and

> had forgotten.

>

> As it turns out , I'm not going to be going to the hospital until

> Monday. I have a feeling the neurologist is less co-operative these

> days - it's been nagging at me for a while that his attitude is

> different since I started taking my treatment into my own hands.

> Never mind -there are plenty of other neurologists in the area.

>

> I have a follow up appointment with a Nutritional and Environmental

> specialist doctor in a week. He seems open minded. I think I'll take

> the LDN issue to him. I looked at the Green Dispensary website; it

> looks like this might be the sort of dispensary this doctor would

> use on a regular basis. Between that dispensary and this new doctor

> I might be sure of geting it right. For now, it's just going to be a

> case of getting through each day and hoping things don't get any

> worse.

>

> Nice hearing from you, .

>

> Gayle

>

>

>

>

>>

>>> Hi - this an old one I know but I need some help from someone who

>>> has the answere readily to hand

>>>

>>> I've been on LDN 3mg 3 months or so, possible improvement to

> bladder

>>> function; otherwise all downhill. This exascerbation is getting

> too

>>> much for me - I'm getting steadily more disabled. So with mixed

>>> feelings I'm heading for hospital and IV steroids tonight.

>>>

>>> Question 1 - Do I stop the LDN (until a couple of weeks after

> ending

>>> the steroids? Is that right?)

>>>

>>> A new compounding pharmacist has started in a pharmacy close to

> me

>>> (who can deliver!) I'd like to switch compounders, and take the

>>> opportunuity to make absolutely sure I have the right stuff being

>>> prepared for me. At present the Naltrexone tabs are held at the

>>> current compounding pharmacy -

>>>

>>> Question 2 - when I check all the info what do I need to know?

> About

>>> the naltrexone tablets - the brand? Or what? Also I'd like to

>>> absolutely sure I have the right fillers. (It's not slow release -

>

>>> that much I know).

>>>

>>> I can't deal with going through all the info right now. Thanks

>>> anyone who can help me out here.

>>>

>>> Gayle

>>>

>>>

>>

>

>

>

>

>

>

>

>

>

[Guest guest]

OK, I think I have the answer to the naltrexone question. Was I right about needing to go off LDN while I have the solumedrol in my system?

Gayle

From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Cyndi LenzSent: Friday, 11 August 2006 9:08 PMlow dose naltrexone Subject: Re: [low dose naltrexone] Question about IV steroids and LDN

Gayleyou have two choices here1. you can use one of approved pharmacies and have your ldn mailed to you using pure naltrexone powder and the correct filler.2. you can have this pharmacy call one of the approved pharmacies and get correct directions. and ask him if he is willing to make it this way.cyndiOn Aug 11, 2006, at 12:22 AM, Gayle wrote:> Hi - this an old one I know but I need some help from someone who> has the answere readily to hand>> I've been on LDN 3mg 3 months or so, possible improvement to bladder> function; otherwise all downhill. This exascerbation is getting too> much for me - I'm getting steadily more disabled. So with mixed> feelings I'm heading for hospital and IV steroids tonight.>> Question 1 - Do I stop the LDN (until a couple of weeks after ending> the steroids? Is that right?)>> A new compounding pharmacist has started in a pharmacy close to me> (who can deliver!) I'd like to switch compounders, and take the> opportunuity to make absolutely sure I have the right stuff being> prepared for me. At present the Naltrexone tabs are held at the> current compounding pharmacy ->> Question 2 - when I check all the info what do I need to know? About> the naltrexone tablets - the brand? Or what? Also I'd like to> absolutely sure I have the right fillers. (It's not slow release -> that much I know).>> I can't deal with going through all the info right now. Thanks> anyone who can help me out here.>> Gayle>>>>>>>>

[Guest guest]

Cyndi thanks for all the help you give. I'm in Australia.

Gayle

From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Cyndi LenzSent: Friday, 11 August 2006 9:17 PMlow dose naltrexone Subject: Re: [low dose naltrexone] Re: Question about IV steroids and LDN

Gayle are you in america?if you go here these are the pharmacies in America.http://www.low dose naltrexone.org/its a lot less money to buy from one of these pharmacies and you know you'll get it correct.you can also get it mailed by themcyndiOn Aug 11, 2006, at 3:13 AM, Gayle wrote:> , thanks for your reply. SOme of this I knew (the powder) and> had forgotten.>> As it turns out , I'm not going to be going to the hospital until> Monday. I have a feeling the neurologist is less co-operative these> days - it's been nagging at me for a while that his attitude is> different since I started taking my treatment into my own hands.> Never mind -there are plenty of other neurologists in the area.>> I have a follow up appointment with a Nutritional and Environmental> specialist doctor in a week. He seems open minded. I think I'll take> the LDN issue to him. I looked at the Green Dispensary website; it> looks like this might be the sort of dispensary this doctor would> use on a regular basis. Between that dispensary and this new doctor> I might be sure of geting it right. For now, it's just going to be a> case of getting through each day and hoping things don't get any> worse.>> Nice hearing from you, .>> Gayle>>>> >>>>> Hi - this an old one I know but I need some help from someone who>>> has the answere readily to hand>>>>>> I've been on LDN 3mg 3 months or so, possible improvement to> bladder>>> function; otherwise all downhill. This exascerbation is getting> too>>> much for me - I'm getting steadily more disabled. So with mixed>>> feelings I'm heading for hospital and IV steroids tonight.>>>>>> Question 1 - Do I stop the LDN (until a couple of weeks after> ending>>> the steroids? Is that right?)>>>>>> A new compounding pharmacist has started in a pharmacy close to> me>>> (who can deliver!) I'd like to switch compounders, and take the>>> opportunuity to make absolutely sure I have the right stuff being>>> prepared for me. At present the Naltrexone tabs are held at the>>> current compounding pharmacy ->>>>>> Question 2 - when I check all the info what do I need to know?> About>>> the naltrexone tablets - the brand? Or what? Also I'd like to>>> absolutely sure I have the right fillers. (It's not slow release ->>>> that much I know).>>>>>> I can't deal with going through all the info right now. Thanks>>> anyone who can help me out here.>>>>>> Gayle>>>>>>>>>>>>>>>>>

[Guest guest]

>

> Hi - this an old one I know but I need some help from someone who

> has the answere readily to hand

>

> I've been on LDN 3mg 3 months or so, possible improvement to

bladder

> function; otherwise all downhill. This exascerbation is getting too

> much for me - I'm getting steadily more disabled. So with mixed

> feelings I'm heading for hospital and IV steroids tonight.

>

> Question 1 - Do I stop the LDN (until a couple of weeks after

ending

> the steroids? Is that right?)

>

> A new compounding pharmacist has started in a pharmacy close to me

> (who can deliver!) I'd like to switch compounders, and take the

> opportunuity to make absolutely sure I have the right stuff being

> prepared for me. At present the Naltrexone tabs are held at the

> current compounding pharmacy -

>

> Question 2 - when I check all the info what do I need to know?

About

> the naltrexone tablets - the brand? Or what? Also I'd like to

> absolutely sure I have the right fillers. (It's not slow release -

> that much I know).

>

> I can't deal with going through all the info right now. Thanks

> anyone who can help me out here.

>

> Gayle

>

--

A few weeks ago and against my better judgement I had two days of iv

Solumedrol (steroids) followed by two weeks of Prednisone and I never

stopped taking LDN. I didn't experience any adverse side-effects but

the steroids didn't create the desired results hoped for. From now on

I'm sticking with LDN...only.

Calcium Carbonate is considered a slow-release filler and MUST NOT be

used with LDN. The recommened quick-release fillers are Avicel,

Lactose and Acidophilus.

As one who's never used Naltrexone tablets I can't advise you on

brands, etc.

Artie

[Guest guest]

Artie, against my previous resolution in my case. But I'm hoping the problem is in the compounding of my LDN. Steroids do really nasty things to me. Things have to be bad for me to consider this treatment. Guess I'll stay on the LDN while getting a new prescription sorted.

Gayle

From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Art HansenSent: Friday, 11 August 2006 9:26 PMlow dose naltrexone Subject: [low dose naltrexone] Re: Question about IV steroids and LDN

A few weeks ago and against my better judgement I had two days of iv Solumedrol (steroids) followed by two weeks of Prednisone and I never stopped taking LDN. I didn't experience any adverse side-effects but the steroids didn't create the desired results hoped for. From now on I'm sticking with LDN...only.Calcium Carbonate is considered a slow-release filler and MUST NOT be used with LDN. The recommened quick-release fillers are Avicel, Lactose and Acidophilus.As one who's never used Naltrexone tablets I can't advise you on brands, etc.Artie

..

[Guest guest]

Gayle, One month ago I had a solumedrol IV. Thought it was an exacerbation, but it was a bad bladder infection. All the steroid did was keep me awake for days. That created stress, and made me EXTREMELY weak. So weak that all my neuro wanted to discuss was Assisted Living arrangements. I won't be seeing him again. He didn't prescribe my LDN, and won't discuss it. My Internal MD prescribes my LDN. I get it from Skip with Avicel filler, 4.5mg. MarcieArt Hansen <rtee54@...> wrote: >> Hi - this an old one I know but I need some help from someone who > has the answere readily to hand> > I've been on LDN 3mg 3 months or so, possible improvement to bladder > function; otherwise all downhill. This exascerbation is getting too > much for me - I'm getting steadily more disabled. So with mixed > feelings I'm heading for hospital and IV steroids tonight.> > Question 1 - Do I stop the LDN (until a couple of weeks after ending > the steroids? Is that right?) > > A new compounding pharmacist has started in a pharmacy close to me > (who can deliver!) I'd like to switch compounders, and take the > opportunuity to make absolutely sure I

have the right stuff being > prepared for me. At present the Naltrexone tabs are held at the > current compounding pharmacy - > > Question 2 - when I check all the info what do I need to know? About > the naltrexone tablets - the brand? Or what? Also I'd like to > absolutely sure I have the right fillers. (It's not slow release - > that much I know). > > I can't deal with going through all the info right now. Thanks > anyone who can help me out here.> > Gayle>--A few weeks ago and against my better judgement I had two days of iv Solumedrol (steroids) followed by two weeks of Prednisone and I never stopped taking LDN. I didn't experience any adverse side-effects but the steroids didn't create the desired results hoped for. From now on I'm sticking with LDN...only.Calcium Carbonate is considered a slow-release filler and MUST NOT be used

with LDN. The recommened quick-release fillers are Avicel, Lactose and Acidophilus.As one who's never used Naltrexone tablets I can't advise you on brands, etc.Artie

[Guest guest]

gary was that lbs or dollars. sorry for being ignorant about the money system in Australia. Gayle did you order the tablets and bring them to the pharmacy to be compounded. I really really (and this goes for everyone) if your not gonna use one of the approved pharmacies you can ask your pharmacist to call one of those pharmacist  and get the correct information. I said this before and i'll say it again we have no basis of reality unless we make an effort to do it at least somewhat the same way. I know Skip would more than happy to speak to a pharmacist or chemist from australia. you guys should have someone down there knows the story.cyndi On Aug 11, 2006, at 7:23 AM, Gayle wrote: Cyndi thanks for all the help you give. I'm in Australia. Gayle From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Cyndi LenzSent: Friday, 11 August 2006 9:17 PMlow dose naltrexone Subject: Re: [low dose naltrexone] Re: Question about IV steroids and LDN Gayle are you in america?if you go here these are the pharmacies in America.http://www.low dose naltrexone.org/its a lot less money to buy from one of these pharmacies and you know you'll get it correct.you can also get it mailed by themcyndiOn Aug 11, 2006, at 3:13 AM, Gayle wrote:> , thanks for your reply. SOme of this I knew (the powder) and> had forgotten.>> As it turns out , I'm not going to be going to the hospital until> Monday. I have a feeling the neurologist is less co-operative these> days - it's been nagging at me for a while that his attitude is> different since I started taking my treatment into my own hands.> Never mind -there are plenty of other neurologists in the area.>> I have a follow up appointment with a Nutritional and Environmental> specialist doctor in a week. He seems open minded. I think I'll take> the LDN issue to him. I looked at the Green Dispensary website; it> looks like this might be the sort of dispensary this doctor would> use on a regular basis. Between that dispensary and this new doctor> I might be sure of geting it right. For now, it's just going to be a> case of getting through each day and hoping things don't get any> worse.>> Nice hearing from you, .>> Gayle>>>> >>>>> Hi - this an old one I know but I need some help from someone who>>> has the answere readily to hand>>>>>> I've been on LDN 3mg 3 months or so, possible improvement to> bladder>>> function; otherwise all downhill. This exascerbation is getting> too>>> much for me - I'm getting steadily more disabled. So with mixed>>> feelings I'm heading for hospital and IV steroids tonight.>>>>>> Question 1 - Do I stop the LDN (until a couple of weeks after> ending>>> the steroids? Is that right?)>>>>>> A new compounding pharmacist has started in a pharmacy close to> me>>> (who can deliver!) I'd like to switch compounders, and take the>>> opportunuity to make absolutely sure I have the right stuff being>>> prepared for me. At present the Naltrexone tabs are held at the>>> current compounding pharmacy ->>>>>> Question 2 - when I check all the info what do I need to know?> About>>> the naltrexone tablets - the brand? Or what? Also I'd like to>>> absolutely sure I have the right fillers. (It's not slow release ->>>> that much I know).>>>>>> I can't deal with going through all the info right now. Thanks>>> anyone who can help me out here.>>>>>> Gayle>>>>>>>>>>>>>>>>>

[Guest guest]

Hi Cyndi,

Dollars. The Australian dollar is currently worth about 75c American,

so the A$90 I pay for my 100 4.5 mg capsules is equivalent to approx

US$67.

I'm not sure whether anyone from The Green Dispensary has spoken to

anybody in America, though I tend to doubt it. However, lots of people

they provide LDN to over here are doing very well so they must be doing

it right. From what I've seen they generally seem to be regarded as the

LDN experts in Australia. I don't want to try to get someone from there

to ring or email Skip, but if he is interested in finding out how they

go about it and has time maybe he could email there (email

address = info at greendispensary.com - I've deliberately used ' at '

instead of @ so his address doesn't get picked up by spammers' software).

Cyndi Lenz wrote:

> gary was that lbs or dollars. sorry for being ignorant about the money

> system in Australia. Gayle did you order the tablets and bring them to

> the pharmacy to be compounded. I really really (and this goes for

> everyone) if your not gonna use one of the approved pharmacies you can

> ask your pharmacist to call one of those pharmacist and get the

> correct information. I said this before and i'll say it again we have

> no basis of reality unless we make an effort to do it at least

> somewhat the same way. I know Skip would more than happy to speak to a

> pharmacist or chemist from australia. you guys should have someone

> down there knows the story.

> cyndi

[Guest guest]

thanks i'll do that.

cyndi

On Aug 11, 2006, at 9:38 AM, C wrote:

> Hi Cyndi,

>

> Dollars. The Australian dollar is currently worth about 75c American,

> so the A$90 I pay for my 100 4.5 mg capsules is equivalent to approx

> US$67.

>

> I'm not sure whether anyone from The Green Dispensary has spoken to

> anybody in America, though I tend to doubt it. However, lots of

> people

> they provide LDN to over here are doing very well so they must be

> doing

> it right. From what I've seen they generally seem to be regarded

> as the

> LDN experts in Australia. I don't want to try to get someone from

> there

> to ring or email Skip, but if he is interested in finding out how they

> go about it and has time maybe he could email there

> (email

> address = info at greendispensary.com - I've deliberately used ' at '

> instead of @ so his address doesn't get picked up by spammers'

> software).

>

>

>

>

> Cyndi Lenz wrote:

>

>> gary was that lbs or dollars. sorry for being ignorant about the

>> money

>> system in Australia. Gayle did you order the tablets and bring

>> them to

>> the pharmacy to be compounded. I really really (and this goes for

>> everyone) if your not gonna use one of the approved pharmacies you

>> can

>> ask your pharmacist to call one of those pharmacist and get the

>> correct information. I said this before and i'll say it again we have

>> no basis of reality unless we make an effort to do it at least

>> somewhat the same way. I know Skip would more than happy to speak

>> to a

>> pharmacist or chemist from australia. you guys should have someone

>> down there knows the story.

>> cyndi

>

>

>

>

>

>

[Guest guest]

Hey Gayle!! I am sorry to hear that you are going through some

tribulation that is hard to see beyond. I myself suffered an attack

a little over a month ago, and opted for the solumedrol. The attack

occured on my upper lumbar spine (or so we suspect) and I lost

massive amounts of motor control in my right leg and right arm

(could not write or type, walking was clumsy), plus I was having the

craziest nerve sensitivity (hot felt cold along mixed with numbness

and hyper-sensitivity). I am a drummer and needed to be able to at

least get through a show at the end of that week. Plus I am a right

handed drummer, so this did not bode well. I did two days of the

solumedrol, which greatly decreased the nerve issuses. Plus I did a

lot of meditative focus on the afflicted parts, welcoming the

strange sensations instead of fearing them. I also completely

refrained from any kind of nerve stimulants like caffeine, and

moderated my diet very closely. This along with the continued LDN

helped me recover enough for the show, and I got through fine. I am

just now back at 100%, though I lost some of my muscle memory. It

was my fast twitch muscles that seemed the most effected. All that

can be re-taught though. It was scary because I am about to go on

tour, and I cannot afford such set backs!!

The question of mixing the two has never been sufficiently answered

for me, but when I posed the query a while ago, I got a response

here from someone who had addressed the issue with the moderators of

the LDN site. They said that even though they expected them to

cancel out, Dr. Bihari noted a positive alliance between them. We

of course all respond differently to every medication, so that is

not a definite. I have not noted a negative effect between the

two. Maybe you could up your dose to 3.5 or something. I went

ahead and got a heightened prescription for any future trouble.

Just to let you know, I blame myself for my recent attack. I had

for so long been so good with my diet and exercise, but let it lapse

pretty bad the month prior to my attack. Plus I got too much sun on

vacation, got eaten up by fire ants at the end of it, and my

grandmother died all within the same week. Thats a lot of nerve

stimulus!! I think my nerves just revolted on me.

Anyway, I hope some of that helps, best of luck to you, and just

know that there is always the potential for healing!!

Jon

>

> Hi - this an old one I know but I need some help from someone who

> has the answere readily to hand

>

> I've been on LDN 3mg 3 months or so, possible improvement to

bladder

> function; otherwise all downhill. This exascerbation is getting

too

> much for me - I'm getting steadily more disabled. So with mixed

> feelings I'm heading for hospital and IV steroids tonight.

>

> Question 1 - Do I stop the LDN (until a couple of weeks after

ending

> the steroids? Is that right?)

>

> A new compounding pharmacist has started in a pharmacy close to me

> (who can deliver!) I'd like to switch compounders, and take the

> opportunuity to make absolutely sure I have the right stuff being

> prepared for me. At present the Naltrexone tabs are held at the

> current compounding pharmacy -

>

> Question 2 - when I check all the info what do I need to know?

About

> the naltrexone tablets - the brand? Or what? Also I'd like to

> absolutely sure I have the right fillers. (It's not slow release -

> that much I know).

>

> I can't deal with going through all the info right now. Thanks

> anyone who can help me out here.

>

> Gayle

>

[Guest guest]

jon

really good feedback. Thats a lot of stress to go through. and i

think thats an important point. I think even when your feeling great

on ldn you have to be carefull of how much stress you have because it

really can hurt yu.

cyndi

On Aug 11, 2006, at 10:53 AM, kloetus wrote:

> Hey Gayle!! I am sorry to hear that you are going through some

> tribulation that is hard to see beyond. I myself suffered an attack

> a little over a month ago, and opted for the solumedrol. The attack

> occured on my upper lumbar spine (or so we suspect) and I lost

> massive amounts of motor control in my right leg and right arm

> (could not write or type, walking was clumsy), plus I was having the

> craziest nerve sensitivity (hot felt cold along mixed with numbness

> and hyper-sensitivity). I am a drummer and needed to be able to at

> least get through a show at the end of that week. Plus I am a right

> handed drummer, so this did not bode well. I did two days of the

> solumedrol, which greatly decreased the nerve issuses. Plus I did a

> lot of meditative focus on the afflicted parts, welcoming the

> strange sensations instead of fearing them. I also completely

> refrained from any kind of nerve stimulants like caffeine, and

> moderated my diet very closely. This along with the continued LDN

> helped me recover enough for the show, and I got through fine. I am

> just now back at 100%, though I lost some of my muscle memory. It

> was my fast twitch muscles that seemed the most effected. All that

> can be re-taught though. It was scary because I am about to go on

> tour, and I cannot afford such set backs!!

>

> The question of mixing the two has never been sufficiently answered

> for me, but when I posed the query a while ago, I got a response

> here from someone who had addressed the issue with the moderators of

> the LDN site. They said that even though they expected them to

> cancel out, Dr. Bihari noted a positive alliance between them. We

> of course all respond differently to every medication, so that is

> not a definite. I have not noted a negative effect between the

> two. Maybe you could up your dose to 3.5 or something. I went

> ahead and got a heightened prescription for any future trouble.

>

> Just to let you know, I blame myself for my recent attack. I had

> for so long been so good with my diet and exercise, but let it lapse

> pretty bad the month prior to my attack. Plus I got too much sun on

> vacation, got eaten up by fire ants at the end of it, and my

> grandmother died all within the same week. Thats a lot of nerve

> stimulus!! I think my nerves just revolted on me.

>

> Anyway, I hope some of that helps, best of luck to you, and just

> know that there is always the potential for healing!!

>

> Jon

>

>

>>

>> Hi - this an old one I know but I need some help from someone who

>> has the answere readily to hand

>>

>> I've been on LDN 3mg 3 months or so, possible improvement to

> bladder

>> function; otherwise all downhill. This exascerbation is getting

> too

>> much for me - I'm getting steadily more disabled. So with mixed

>> feelings I'm heading for hospital and IV steroids tonight.

>>

>> Question 1 - Do I stop the LDN (until a couple of weeks after

> ending

>> the steroids? Is that right?)

>>

>> A new compounding pharmacist has started in a pharmacy close to me

>> (who can deliver!) I'd like to switch compounders, and take the

>> opportunuity to make absolutely sure I have the right stuff being

>> prepared for me. At present the Naltrexone tabs are held at the

>> current compounding pharmacy -

>>

>> Question 2 - when I check all the info what do I need to know?

> About

>> the naltrexone tablets - the brand? Or what? Also I'd like to

>> absolutely sure I have the right fillers. (It's not slow release -

>> that much I know).

>>

>> I can't deal with going through all the info right now. Thanks

>> anyone who can help me out here.

>>

>> Gayle

>>

>

>

>

>

>

>

>

>

>

[Guest guest]

>

> > Hi - this an old one I know but I need some help from someone who

> > has the answere readily to hand

> >

> > I've been on LDN 3mg 3 months or so, possible improvement to bladder

> > function; otherwise all downhill. This exascerbation is getting too

> > much for me - I'm getting steadily more disabled. So with mixed

> > feelings I'm heading for hospital and IV steroids tonight.

> >

> > Question 1 - Do I stop the LDN (until a couple of weeks after ending

> > the steroids? Is that right?)

> >

> > A new compounding pharmacist has started in a pharmacy close to me

> > (who can deliver!) I'd like to switch compounders, and take the

> > opportunuity to make absolutely sure I have the right stuff being

> > prepared for me. At present the Naltrexone tabs are held at the

> > current compounding pharmacy -

> >

> > Question 2 - when I check all the info what do I need to know? About

> > the naltrexone tablets - the brand? Or what? Also I'd like to

> > absolutely sure I have the right fillers. (It's not slow release -

> > that much I know).

> >

> > I can't deal with going through all the info right now. Thanks

> > anyone who can help me out here.

> >

> > Gayle

===========

Gayle,

Even though you've taken steroids Dr. Bihari recommends one continuing on the

LDN while usin steroids.

Sounds to me like you need a reputable LDN compounding pharmacy.

Also, while on these steroids you will develop candida yeast overgrowth. Do you

have the link to my LDN forum? If not let me know and I'll send it to you. On

the main discussion board is the candida sticky thread. Skip the candida test

since you know you will be battling candida while on steroids and go straight to

the diet and supplements.

[Guest guest]

I totally agree Cyndi, I was feeling so good that I got cocky and

let go the good habits I had established. It's amazing how quickly

they can be undone!

> >>

> >> Hi - this an old one I know but I need some help from someone

who

> >> has the answere readily to hand

> >>

> >> I've been on LDN 3mg 3 months or so, possible improvement to

> > bladder

> >> function; otherwise all downhill. This exascerbation is getting

> > too

> >> much for me - I'm getting steadily more disabled. So with mixed

> >> feelings I'm heading for hospital and IV steroids tonight.

> >>

> >> Question 1 - Do I stop the LDN (until a couple of weeks after

> > ending

> >> the steroids? Is that right?)

> >>

> >> A new compounding pharmacist has started in a pharmacy close to

me

> >> (who can deliver!) I'd like to switch compounders, and take the

> >> opportunuity to make absolutely sure I have the right stuff

being

> >> prepared for me. At present the Naltrexone tabs are held at the

> >> current compounding pharmacy -

> >>

> >> Question 2 - when I check all the info what do I need to know?

> > About

> >> the naltrexone tablets - the brand? Or what? Also I'd like to

> >> absolutely sure I have the right fillers. (It's not slow

release -

> >> that much I know).

> >>

> >> I can't deal with going through all the info right now. Thanks

> >> anyone who can help me out here.

> >>

> >> Gayle

> >>

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Gayle,

My email server is down at the moment and I'm going on holiday

tomorrow, so this is the only way I've got of contacting you before I

go.

If you're having a problem with your LDN, then maybe I can help you.

The DVD I sent you arrived in only five days. If that is the normal

time for packages to get to you, then there is probably no reason why

I can't post LDN to you.

Unless there's a problem with customs.

I don't understand all this compounding stuff, too technical for a

simple Scotsman like me to understand.

I get my LDN delivered every month as a liquid.

It has a shelf life of 28 days or 56 if refrigerated.

The chemist who supplies it also now offers capsules, but because

they cost a little more, he only expects to supply them to people

going on holiday.

If the post is going to arrive with you regularly within 5-7 days,

then I see no reason why I can't post it to you. Liquid or capsule.

I'd have to get a prescription for you, but I'm sure I could manage

that.

I sent you another disk on Monday, you should get that any day now,

and I sent another one today, so we can see how long it takes for

those to arrive.

I'll be back on Friday, and I assume my email will be working again

by then, so you can let me know.

If I can do this thing for you, will you promise to take Rolf

back to Oz.

Lots and lots of Blessings,

Danny.

>

> Cyndi, I just took the prescription to the compounding pharmacy with

> instructions for dosage. I've checked the filler is OK, but apart

from that

> all I know is that he's making it up from 50mg tablets.

>

> , did your pharmacy ever talk to Skips or anyone on the list?

>

> Gayle

>

[Guest guest]

Hi Jon, , everyone - I've had some good answers. About the Candida - I'm on the BBD and also treating Candida at present. The hospital food will be a break in the diet - pity, but can't be helped. My diet is too restricted to hope their kitchen can accommodate it. I joined your forum , and I have the supplement s pretty much sorted out. Managing my MS has been a disappointing process so far...Jon, yes: meditation, Kinesiology, other therapies and lots of exercise are all in there. Stress has a lot to answer for in my MS too.

I will go ahead with the IV steroids and keep on the LDN. Meanwhile I'll get all the LDN questions sorted, i.e. make sure it's being compounded right. I have only a small hope that the steroids will help, but I'll do it anyway because I don't know what else to try and this attack is getting in the way of things I badly want to pursue! Jon, sad how MS seems to get you where you need it least - you say you lost some of your muscle memory? Do you mean you had to re-learn how to get your body do some things? Not the drumming, surely! About "welcoming the strange sensations instead of fearing them" can you explain a bit more about that? Maybe reply to my email address so as not to clutter up this board? gayle@...

Thanks everyone - Gayle

Re: []Also, while on these steroids you will develop candida yeast overgrowth. Do you have the link to my LDN forum? and

[ Kloetus]: I myself suffered an attack a little over a month ago, and opted for the solumedrol.

[Guest guest]

Gayle,

Can I ask you a very personal question ?

How much do you pay for your LDN ?

I never see anyone here talking about the cost.

I pay £15.00/ month. That would be about $37 AU or $27 US

We usually seem to pay double what the rest of the world pays for

anything, so you probably get a much better deal than I do.

Maybe your health service pays for yours ?

I hope your IV treatment goes ok.

I had it once, so that must make me a bit of an expert. It certainly

got me back on my feet quickly, and out of hospital, but no long term

benefit. It was a long time ago though, and maybe the steroids are

better now.

I hope you're taking note of all the Candida advice.

You can pass it on to me when I get back. I've made a pretty poor

attempt at controlling it myself, there's always something comes up.

Eg. holidays.

Bit like trying to stop smoking, but I managed that, so I want to

have a real go again.

I'm still here, waiting for a plane to take me away.

Last time I tried to go on holiday, it was technical problems, this

time it's Blair's megalomania.

All the airports here are still in a mess.

Do you have a " special friend " , to lead you into special adventures ?

Your Colonial Master,

Danny

>

> Hi Danny - Nice to hear from you again.

> About the LDN - thank you. I'm not sure I knew you got yours as a

liquid. If

> I have problems getting the pure powder or liquid (hadn't really

considered

> that) I'll be in touch. At least I know I can get a prescription,

which puts

> me in a better position than many who come to this board. I don't

know if

> the post can be relied on for liquid LDN - I'll do my best to get

my scripts

> filled locally.

>

> [Off-topic/personal message here, due to Danny's server problems.

Danny -

> You may understand a little about MS getting in the way of the

things I want

> to pursue. Thanks for sending those disks on to me. I thought the

mail would

> take longer too. Have a good holiday and I hope the air travel

doesn't mess

> up your legs again. It sounds like the LDN is doing OK for you.

And we

> don't want Rolf back, so no deal if that's part of it!]

>

> Gayle

[Guest guest]

Hi Danny - My LDN costs me Aus$70.00 for 50 capsules. More than yours, and no; no subsidy. But mine includes the cost of compounding. I'm still keen to do this another way. The Candida treatment easier than I expected but I haven't repeated that spit test yet. I hope that flight doesn't undo all the good work the LDN has done for you. "Colonial Master!" Cheek!

Gayle

From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Danny (UK)Sent: Saturday, 12 August 2006 6:05 PMlow dose naltrexone Subject: [low dose naltrexone] Re: Question about IV steroids and LDN

Gayle,Can I ask you a very personal question ?How much do you pay for your LDN ?I never see anyone here talking about the cost.I pay £15.00/ month. That would be about $37 AU or $27 USWe usually seem to pay double what the rest of the world pays for anything, so you probably get a much better deal than I do.Maybe your health service pays for yours ?I hope your IV treatment goes ok.I had it once, so that must make me a bit of an expert. It certainly got me back on my feet quickly, and out of hospital, but no long term benefit. It was a long time ago though, and maybe the steroids are better now.I hope you're taking note of all the Candida advice.You can pass it on to me when I get back. I've made a pretty poor attempt at controlling it myself, there's always something comes up. Eg. holidays.Bit like trying to stop smoking, but I managed that, so I want to have a real go again.I'm still here, waiting for a plane to take me away.Last time I tried to go on holiday, it was technical problems, this time it's Blair's megalomania. All the airports here are still in a mess.Do you have a "special friend", to lead you into special adventures ?Your Colonial Master,Danny>> Hi Danny - Nice to hear from you again.> About the LDN - thank you. I'm not sure I knew you got yours as a liquid. If> I have problems getting the pure powder or liquid (hadn't really considered> that) I'll be in touch. At least I know I can get a prescription, which puts> me in a better position than many who come to this board. I don't know if> the post can be relied on for liquid LDN - I'll do my best to get my scripts> filled locally. > > [Off-topic/personal message here, due to Danny's server problems. Danny -> You may understand a little about MS getting in the way of the things I want> to pursue. Thanks for sending those disks on to me. I thought the mail would> take longer too. Have a good holiday and I hope the air travel doesn't mess> up your legs again. It sounds like the LDN is doing OK for you. And we> don't want Rolf back, so no deal if that's part of it!]> > Gayle__________ NOD32 1.1704 (20060811) Information __________This message was checked by NOD32 antivirus system.http://www.eset.com

[Guest guest]

Danny - I'll amend that - the LDN costs $65, not $70, for 50x3mg capsules. Any other Aussies have comments on price?

Gayle

From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of GayleSent: Saturday, 12 August 2006 7:20 PMlow dose naltrexone Subject: RE: [low dose naltrexone] Re: Question about IV steroids and LDN

Hi Danny - My LDN costs me Aus$70.00 for 50 capsules. More than yours, and no; no subsidy. But mine includes the cost of compounding. I'm still keen to do this another way. The Candida treatment easier than I expected but I haven't repeated that spit test yet. I hope that flight doesn't undo all the good work the LDN has done for you. "Colonial Master!" Cheek!

Gayle

From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Danny (UK)Sent: Saturday, 12 August 2006 6:05 PMlow dose naltrexone Subject: [low dose naltrexone] Re: Question about IV steroids and LDN

Gayle,Can I ask you a very personal question ?How much do you pay for your LDN ?I never see anyone here talking about the cost.I pay £15.00/ month. That would be about $37 AU or $27 USWe usually seem to pay double what the rest of the world pays for anything, so you probably get a much better deal than I do.Maybe your health service pays for yours ?I hope your IV treatment goes ok.I had it once, so that must make me a bit of an expert. It certainly got me back on my feet quickly, and out of hospital, but no long term benefit. It was a long time ago though, and maybe the steroids are better now.I hope you're taking note of all the Candida advice.You can pass it on to me when I get back. I've made a pretty poor attempt at controlling it myself, there's always something comes up. Eg. holidays.Bit like trying to stop smoking, but I managed that, so I want to have a real go again.I'm still here, waiting for a plane to take me away.Last time I tried to go on holiday, it was technical problems, this time it's Blair's megalomania. All the airports here are still in a mess.Do you have a "special friend", to lead you into special adventures ?Your Colonial Master,Danny>> Hi Danny - Nice to hear from you again.> About the LDN - thank you. I'm not sure I knew you got yours as a liquid. If> I have problems getting the pure powder or liquid (hadn't really considered> that) I'll be in touch. At least I know I can get a prescription, which puts> me in a better position than many who come to this board. I don't know if> the post can be relied on for liquid LDN - I'll do my best to get my scripts> filled locally. > > [Off-topic/personal message here, due to Danny's server problems. Danny -> You may understand a little about MS getting in the way of the things I want> to pursue. Thanks for sending those disks on to me. I thought the mail would> take longer too. Have a good holiday and I hope the air travel doesn't mess> up your legs again. It sounds like the LDN is doing OK for you. And we> don't want Rolf back, so no deal if that's part of it!]> > Gayle__________ NOD32 1.1704 (20060811) Information __________This message was checked by NOD32 antivirus system.http://www.eset.com

__________ NOD32 1.1704 (20060811) Information __________This message was checked by NOD32 antivirus system.http://www.eset.com